Dr. Janice Buelow Will Help Bring Epilepsy Community Voices to Research Funding Efforts
Tuesday, May 19, 2015

LANDOVER, MD - Janice Buelow, PhD, FAAN, vice president of programs and research at the Epilepsy Foundation, has been selected by the Patient-Centered Outcomes Research Institute (PCORI) as one of the first members of PCORI’s new Advisory Panel on Communication and Dissemination Research. 

Dr. Buelow and the other 20 new panelists will apply their experience and expertise to advising PCORI, a nonprofit research funding institution, on its priorities for funding research to determine how best to communicate and disseminate clinical study results so that they are more quickly and effectively used to improve patient care.

The 21 panelists were selected from 135 applicants on the basis of their experience, expertise, and ability to contribute to the panel’s advisory tasks and responsibilities. In addition, they were selected to ensure representation of a broad range of healthcare stakeholder groups and perspectives, including people with health conditions, family caregivers, clinicians, drug and device makers, and researchers, among others. A list of the new panelists is available on PCORI's website at www.pcori.org/CDR-panel-bios.   

“The Epilepsy Foundation is the largest non-government, non-corporate funder of epilepsy research, and Dr. Buelow has skillfully forged new partnerships to benefit the epilepsy community since taking the helm as the Foundation’s vice president of programs and research in July 2013,” said Philip M. Gattone, president and CEO of the Epilepsy Foundation. “We are proud to serve as the only epilepsy organization represented in the PCORI Advisory Panel, and Jan’s leadership as a panelist aligns strongly with our mission to improve the quality of life for individuals living with seizures.”

The Epilepsy Foundation’s new therapies research program, led by Dr. Buelow, awards funding for a series of grants, fellowships, and awards in basic, clinical, and behavioral science to researchers and scientists at the beginning of their careers. The Foundation also offers funding opportunities to established investigators for targeted research initiatives and new therapies for epilepsy, accelerating the advancement of research from the laboratory to the person with epilepsy.

Dr. Buelow is an epilepsy advocate, researcher, educator, and clinical nurse specialist. She has focused on the self-management of epilepsy and quality of life for individuals and families living with the condition. By identifying key stressors in families, Dr. Buelow has developed highly effective management techniques for parents of children who live with epilepsy and intellectual disability. Her insightful research has been published in interdisciplinary and nursing journals including Developmental and Child NeurologyJournal of Neuroscience NursingClinical Nurse Specialist, and Epilepsy and Behavior. Dr. Buelow received her PhD and MS from University of Illinois at Chicago, and her BSN from Northwestern University. She completed a post-doctoral fellowship under the mentorship of Dr. Joan Austin at Indiana University.

“PCORI’s efforts to improve how clinical research results are communicated will benefit greatly from the insights of this stellar group of individuals with such breadth and depth of expertise in in this area,” said Jean Slutsky, PA, MSPH, director of PCORI’s Communication and Dissemination Research Program. "Through her contributions to this multi-stakeholder advisory panel, Dr. Buelow will help us identify and prioritize research topics and ensure that our work remains patient-centered.”

The charter for the Advisory Panel on Communication and Dissemination Research, including its scope of work, is available on the PCORI website: http://www.pcori.org/sites/default/files/PCORI-Advisory-Panel-Communication-and-Dissemination-Research-Charter.pdf

PCORI Media Contact: Christine Stencel, Associate Director of Media Relations (202-827-7707 or cstencel@pcori.org)

Epilepsy Foundation Media Contact: Kirsten Withrow, Manager of Program Communications and Media Relations (301-918-3743 or kwithrow@efa.org)

About PCORI
PCORI is an independent, non-profit organization authorized by Congress to fund research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions.

About Epilepsy
When a person has two or more unprovoked seizures, they are considered to have epilepsy. Epilepsy affects nearly 3 million people in the U.S. and 65 million worldwide. This year, another 150,000 people will be diagnosed with epilepsy.

About the Epilepsy Foundation
The Epilepsy Foundation, a national non-profit with nearly 50 affiliated organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures. The mission of the Epilepsy Foundation is to stop seizures and sudden unexpected death in epilepsy (SUDEP), find a cure, and overcome the challenges created by epilepsy through efforts including education, advocacy, and research to accelerate ideas into therapies. The Foundation works to ensure that people with seizures have the opportunity to live their lives to their fullest potential. 

“Like” the Epilepsy Foundation on Facebook at www.facebook.com/epilepsyfoundationofamerica and follow us on Twitter at www.twitter.com/epilepsyfdn.

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