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Tatianalee

Paying for your seizure pills with no insurance?

Hello, Living without insurance should not even be an issue in america but some how it is and the people who need it the most is suffering without it, some of us with epilepsy can do alot if only we had our medicine everyday on time but alot of us are not blessed enough to have the money or insurance to refill our medicine when it runs out and the state denies most of us disability if only the state would provide us with the medicine most of us wouldn't need disability because we would be capable of working and going to school or driving and taking care of our families who ever has went thru it im sure you know how frustrating this is, if anyone knows a program that helps you with medicine i would like to know because i am about to graduate college soon and i dont know if the place im going to will have insurance so any help will be great thank you!

Comments

Re: Paying for your seizure pills with no insurance?

The pharmacy where you get the medicine filled most likely has a card to help out those who have problems getting medicines filled.  Also, you can contact the company who makes the medicine, for example GSK, might be able to help with medicine costs.

Re: Paying for your seizure pills with no insurance?

There is an organization called partnership for prescription assitance - pparx.org.  I received assistance for my meds from them.  Hope this helps.

Re: Paying for your seizure pills with no insurance?

Please see "Epilepsy Help! No-cost or low-cost drugs and patient assistance programs" on www.epilepsytalk.com 

They won't allow me to post the link.

 

Phylis Feiner Johnson
www.epilepsytalk.com

Re: Paying for your seizure pills with no insurance?

One thing was, when I did not have insurance, I applied for SSI (Social Security Income) and that has helped me allot. I got Straight Medicaid because of it. But one thing is, that most or some doctors donnot accept Straight Medicaid. But still, that's something for you to try. Another thing, some doctors I had, offered me medication from Canada. They gave me some "Samples" that would be for a certain period of time until I needed more. So, try to find a Social Worker that can help you with SSI. And that would help you get other services offered. Hope this helps. And I HATE you for having gone that far in your education. I have not been able to go to college because of this epilepsy crap. Since I have it in both sides of the brain. And the main reason is that my memory is crap. I have to write everything down ASAP other wise, its gone. So congrats on school. And what are you studying? Another thing is, I wont know about this post, cuz I most of the time dont come online since I dont speak w/anyone. But I'll write it down and see about coming back on tomorrow. Good Luck! I'll see about something else.

Re: Paying for your seizure pills with no insurance?

  I have to say, that I was looking for this post throughout the whole day. 'Cuz I wrote down that I had replied a comment. But Thank God for the "History Tag" I was able to find it. So, even though its been too soon to ask, let us know what happened/ Hope everything goes well.

Re: Paying for your seizure pills with no insurance?

I just got the PDR Pharmacy Discount Card from my local EFA. They claim you can save up to 75% on 50,000 drugs at over 50,000 pharmacies. (Pretty steep claim!)

The card also says: "No pre-approval needed. This card is not insurance. You will not be turned down for a pre-existing condition."

It is part of Rxrelief. Phone number is: 1-800-776-0760. (I haven't tried it yet.)

Phylis Feiner Johnson
www.epilepsytalk.com

Re: Paying for your seizure pills with no insurance?

Hi, I got my medicine for free. Go to rxassist.com and add your info, they will direct you to the manufacturer or a program that can help.

Hope this helps.

Re: Paying for your seizure pills with no insurance?

My doctore use to give me the samplles. I had insurance but she still wanted to help me out.

Re: Paying for your seizure pills with no insurance?

I use a company RX Speciality.  If  you want you can email me for their info.

They charge you for filling out the paperwork per quarter per med and follow up like clockwork on the paperwork.  The pharma companies will sometimes "donate" meds if you fall under a certain income level which is darn near living in a cardboard box.

Depending on how many meds you are on, it helps a LOT and the charge is nominal for them to keep track of everything.

Re: Paying for your seizure pills with no insurance?

I have been without insurance for over a year and was able to work something out with my neurologist and my pharmacy. My neurologist continued to prescribe my meds for me and agreed to see me on an as needed basis and for a either free or a small fee. I use Kroger pharmacy and if you ask them to "match Costco" they will and generic meds are cheaper without insurance than they are if you pay the generic price, typically.

Re: Paying for your seizure pills with no insurance?

I started graduate school just as I was adding a second medication. The first was already expensive without insurance, and I was buying it from a Canadian pharmacy for about $120/month. I told my doctor I was concerned about the cost of adding a second med and he mentioned that some of his patients had found good prices at Costco.

I checked around where I was living and didn't actually get match prices any better than the Costco pharmacy itself. They had a special prescription discount program for members without insurance. Initially, when both meds had just come off patent, it was $120-140/month for two seizure meds and a sleep aid. The price dropped about 30% over a couple of years. At a normal retail pharmacy, I would have paid 3-4 times that price. You have to pay the $50/yr membership fee, but I was also commuting to school and we calculated that between the meds and gas it would more than pay for itself.

I didn't qualify for a lot of the prescription aid programs, I think because I was living with family for cheap and my expenses weren't as high as some. Never mind that each semester I was earning just a little more than my tuition costs for the next semester.

Re: Paying for your seizure pills with no insurance?

I made the HUGE mistake recently of not getting my rx refilled and nearly killed myself on accident because I didn't have insurance nor a job.  I learned the hard way that the county hospital here in Indianapolis works with people such as myself.  After spending 5 days in the hospital and getting lectured from the docs and family, I got a 90 day supply for only $5 plus 2 refills on top of that.  See if the county hospital where you live has something similar.