Our son is 37 years old and down syndrome. He has had seizures since he was 21 years old. Medications are not working,he has tried all. I mean all!! He is schedule for a corpus colostomy at Emory on Jan 26th. My husband and I have had to make this decision for him. We are scared to death.. The doctors at Emory are informative but not very caring. Are we doing the right thing??Can anyone help us on our decision. He is having 30 to 50+ seizures a month... They have him so much medication he can't function.. He is such a joy to us ...He is also on commundin for a blood clot disorder...Which is scaring us to death....Please someone help us and tell us some news bad or good if you have experienced this..
James, Susan ,Sean