ADVERTISEMENT
wp3003

Breakthrough Seizures

I had my first seizure in 2008 and the doctors preformed all the test such as EKG, EEG, MRI and Cat scans and everything came back normal so they put me on Keppra XR for 2 years and all was fine untill June of this year i had forgotten to take my medicine for a few days and i had a seizure but i was fine and didnt think anything of it and kept on my regular schedule. Then this Sunday i was in bed around noon when i heard the plow guy plowing are driveway and i had to move my truck so i jumped out of bed ran down stairs and moved my truck out to the street and my dads car, when i got out of the car i started spinning and had another seizure. After i thought about it for a while the last time i took my medicine was thursday morning, so i went 3 days without medicine. I went to the doctor monday and they preformed an EEG and it came back abnormal in the area above my left ear, but thats also the same area where i hit my head on the ground when i fell and i have a big bump there. So my doctor is uping my medicine from 2 a day to 3 a day. What do you guys think? is my medicine working and im only have seizures when i forget?

Comments

Re: Breakthrough Seizures

If you're not consistent with your meds, you're in a mess.

Try to take them at the same time every day – a pill organizer is very helpful.  And put them someplace where they are clearly visible -- your bathroom sink, kitchen table, etc.  Create a daily routine and if you have to take meds in the middle of the day, set the alarm on your watch, clock or cell phone to remind you.

And don't skip a dosage...not to mention 3 days.  (Ok. End of lecture!)   Phylis Feiner Johnson   www.epilepsytalk.com

 

Re: Breakthrough Seizures

I think it should be either a standard or a requirement for pharmacists recommend provide a written suggestion every time a person receives something that needs it to be taken at least once if not two or three times a day to use a weekly separation container in order to ensure that person to take their prescribed medicine as prescribed.
By using at least one but probably two or even three of these weekly containers.I have three weekly containers,two are for AM doses,one AM is for days I'm home.Another AM is for the days that I'll be at work.They equal 7 days of AM doses.
PM doses are all kept in just one weekly container which is divided by Sun,M,T,W,Th,F and Sat.The AMs are divided the same.I'll quickly see that a dose is to be taken.
If doses are supposed to be taken from a prescription bottle,it can't be counted each time to check if you'd just took it.It's impossible for that bottle to scream to remind you to take todays dose.

Re: Breakthrough Seizures

Does your Dr. know that you forgot to take your dose for a few days?  Having breakthrough seizures when you miss a dose is pretty inevitable - you might talk to him/her and ask if you can try staying on the 2/day regime and think of a way that you can keep yourself from forgettting (cell phone alarm, pill organizer, etc.. etc...)

Good luck!

Re: Breakthrough Seizures

yes, i told my Dr. that i had forgotten to take my medicine for a few days and he still wanted the test to be preformed. I have a pill organizer now so i wont forget anymore. The weirdest part to me is i had an EEG done 2 years ago and it came back normal and then the preformed one within 24 hours of my siezure and it came back abnormal. But i also hit my head very hard on the ground in the same spot that the EEG came back abnormal so could that have anything to do with it?

Re: Breakthrough Seizures

yes, i told my Dr. that i had forgotten to take my medicine for a few days and he still wanted the test to be preformed. I have a pill organizer now so i wont forget anymore. The weirdest part to me is i had an EEG done 2 years ago and it came back normal and then the preformed one within 24 hours of my siezure and it came back abnormal. But i also hit my head very hard on the ground in the same spot that the EEG came back abnormal so could that have anything to do with it?

Re: Breakthrough Seizures

My EEG was normal first and my family thought was weird.  They did a brain scan and they saw an abnormality.  Two years later my EEG is abnormal now.  Hmm!   My MRI most recently found the cause of my sz.  It is interesting.  The first MRI didn't see anything.

Breakthrough seizures are common when we forget!  I have a timer on my meds!  My kids will say mom!!!! It irritates them!  I don't forget as easily!  I have to much to do and be responsible for!  I wish you the best!

 We all are human!  I take Keppra XR too. along w/ Tegretol XR and Zonegran!

Taking them two times a day is great around meals is also a helper to remember to take your meds!

Re: Breakthrough Seizures

As it is, seizures are very hard to control as much as they are very hard to predict.

But, I think you are taking too many chances & risking a lot, by simply missing/failing to take your medicine on time.

Every time you miss a dose, you are CERTAINLY putting yourself at risk of another seizure. And every time you are having a seizure, your head is taking a bitting & you are damaging your brain, making your seizures far more worst than the last one.

I learned the hard way,,, In Epilepsy, Protection is far more better than cure.

Therefore, before making your seizures far more complicated by having more seizures for missing medication doses, you need to device a system to CONSTANTLY REMINDING you, to take your medicine & stop or minimize your seizures, before your seizure get out of hand.

Wishng you ALL the best.

Just Another Epileptic,

www.myspace.com/MySeizures

 

Re: Breakthrough Seizures

Thanks for sharing your experiences. This happens with many people. Missed medicines are the most frequent causes of breakthrough seizures and just because one occurs after missing meds, doesn't mean the seizures will remain uncontrolled. The steps people have recommended to avoid missing meds are important. You can also set up electronic reminders of times to take meds.

Start a seizure diary on this site - My Epilepsy Diary - and set up reminders to get text/SMS or email reminders of times to take meds. It's immediate feedback and is a great way to make medication taking easier.

In regards to the results of tests - a routine EEG is only a snapshot of the EEG activity at the time the test is done. It doesn't show what the electrical activity is like at all times. Thus many times the EEG may be normal when a person is not having seizures, but show seizure activity at other times. The routine EEGs are used to capture changes, but not to record seizures. If this is needed, a more extensive EEG test called EEG telemetry would be done. If a routine EEG however, is showing seizure activity or something suspicious for seizures, then that may be all the doctor needs at that time to get a person back on track with medicines. If seizures can get controlled with meds again - great news! If by chance seizures continue, then more extensive testing may be considered.

I hope this info is helpful. Write down a list of questions to take to your doctor and ask how this info pertains to you.

Good luck, hope things work out well!

Epi_help
Resource Specialist

Re: Breakthrough Seizures

When I was changed to take Vimpat&Keppra XR after being on Vimpat&Lyrica,it made a much better change to frequency of seizures.It was 8-12wk between them.Became,3 mo. a couple of times now its been 6mo&1wk since being aware of one.
I think the first time after starting Keppra XR&Vimpat I had a seizure that was probably due to both at the same time.It was the first time I forgot to take my sleep time dose.I always set a time to take it which is about my sleep time.Don't just wait till you go to bed,the next afternoon.I noticed the next morning that I didn't take it at 10pm the night before.My last seizure was three mo&five days,so;I became more stressed after seeing that I missed a dose and I'm ahead of the point I've never been to.
The next time was 3mo&2days later I probably had it in my mind that it was seizure time after being three months.I was bicycling(not very used to doing it)and I saw something I hadn't seen in twenty years and thought I had to see that again.Next thing I knew of was being in a ER and my face was being stitched from eye to lips(just over temporal area).I knew nothing of crashing.Apparently I lost consciousness just after thinking that I had to see that again,my bicycle just went straight as the road turned.
That was 6mo&1wk ago w/o having any seizures that I know of,I just had a 72hr. ambulatory EEG.I don't know of any seizures during it,maybe there some or record,I'll find out.

Re: Breakthrough Seizures

thank you all for your comments
I had blood taken today to test the amount of medicine in my blood so they could determine if they need to switch my medicine. My head still has a little bump and is sensitive in that area so im still a little worried about that but it still stumps me that my EEG comes back abnormal in the exact spot that i landed on my head, i should also add that i was bleeding out of my nose when my parents found me so they suspect a concussion but the ambulance didnt do anything about it.

They had an ambulatory EEG schedule for today but they cancelled it after they found out that my EEG came back abnormal. Im a little concerned about my seizures as im looking down the road, im will be off on my own in college next year and who knows after that. I am beginning to wonder whats going to happen in say 10 years? Will my seizures ever be gone? i was told by a few people that i could be experiencing seizures because i grew so fast in a short time. I am currently 6'1" and weigh about 190 pounds and just a few years ago i was 5'9" 220 pounds.

Its great to hear all your story's and advice, now i know that im not the only person with the same issues. Thanks again and have a Merry Christmas!