Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYHi Everyone
I also suffer from Post Traumatic Stress due to a bad family life so not sure if its because of that.
I seem to have problems perceiving other peoples intentions or just take them the wrong way. Often feeling that they are against me. Every job I have had I seem to have social interaction problems, at the start things seem ok but then people seem to get agitated and frustrated with me and i dont know if its because maybe I have said things the wrong way around, or the wrong word, or looked angry or if I am giving off some sort of negative vibe. I dont have a firm diagnosis of TLE but thats what the nuero & pyschiatrist think after all my tests.
Does anyone else experience social interaction probs due to your behaviour? By the way I have only just been diagnosed so its not like people have known about the epilepsy and then went funny towards me.
My partner thinks because I have (gobbeldy gook speak) as my partner says sometimes, that people may think Im a bit strange or if I say the wrong word. I also seem to be a bit impulsive and make decisions before thinking of the consequences which has caused me a lot pf probs in life with my partner.
Thanks
Dot
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jfoster57 New - Should people with intractable TLE
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Recent Comments on this Discussion
Shepherd,
I, like you, have TLE and PTSD (among other things.) It makes life tough.
You may or may not have "behavioral problems." I've noticed that psychiatry has morphed into "behavioral health." I have no idea what that means because it is an oxymoron.
Behaviors are neither healthy, nor unhealthy. Health or the lack thereof is a property of the person exhibiting the behaviors, not the behaviors themselves.
The most likely explanation for your social problems is the dysfunctional interpersonal style you learned from growing up in a dysfunctional family environment. This is something you can learn to change. I tought myself once I realized (at age 26 when I was having trouble at work), though I won't say it was easy.
What I did was look at people who were successful in areas where I was not. I analysed what they did and tried it myself. If it worked for me, I kept it; otherwise, I looked for something else.
I usually hit pay-dirt the first time, but sometimes had to go to "plan B." Practice this with easy stuff first. You need to make it habitual behavior. Something you do without thinking. Once that happens, once you have "internalized" these behaviors, you've made them your own and you will rely upon your now skillful coping strategies even when stressed.
It works. Before I got too sick to work I was earning $175,000 a year as an IT consultant on Wall Street. You don't get and keep those kinds of jobs, especially as a woman, unless you have some seriously effective interpersonal skills.
Social skills are learned. Neurological impairments can make this difficult or even impossible (Autism and Aspergers are a coulple of examples), but you don't have that problem. TLE makes life more difficult; it changes us and makes us different and different is difficult.
TLE alters the way we think and, I believe, because of that, the way we communicate. This can lead to misunderstandings and frustrations on both sides. Pay attention to when, how, and why the problems arise and try to figure out what went wrong so you can prevent it from occurring again.
I'm not so sure about your gobbledy-gook-speak partner. It may just be that e-communications are easily misunderstood, but this person doesn't sound terribly supportive. You may have sought out the same kind of dysfunctional relationship with which you were raised because that is what we do: We are comfortable with the familiar.
Please do not start blaming yourself. That will only make you feel worse and that will make everything worse. Just pay attention to what works and what doesn't and when it doesn't try something else.
Best of luck.
Baruch Hashem. Hoshia na.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!
P.S. My latest post:
Carpe Diem: The Epileptic Jewish Zealot Harps Back On Jabberwocky and Lewis Carroll http://psychout.typepad.com/blog/2010/10/carpe-diem-the-epileptic-jewish-zealot-harps-back-on-jabberwocky-and-lewis-carroll.html and Carpe Diem: Epilepsy Patient Abuse New Jersey Division of Mental Health Service psychout.typepad.com/blog/2010/10/carpe-diem-epilepsy-patient-abuse-new-jersey-division-of-mental-health-service.htmlThanks again Baruch
It sounds correct that I seem to mis communicate, i seem to have probs saying what I mean because of jumbled words or saying the wrong word. Part of my problem is that it seems my brain is going faster than what I am speaking so I know I need to slow down and think of what I am going to say whether it is in reply to someone's obvious frustration or just if I am communicating with people. My PTSD makes me want to in a knee jerk fashion reply in a defensive manner straight away without thinking and then I gather its my TLE that makes me communicate my thoughts / feelings in the wrong way, so both together makes a recipe for frustration and miscommunication.
By the way i did do what you stated up above, (worked with a very successful women), I learnt a lot, travelled a bit which was great for my self esteem among other things but unfortunately I took it too far and before I knew it I was placing more importance on my work life than my personal relationship. In the end I had to resign to save my relationship, but I get what you mean. At the moment I'm not working as I resigned due my TLE and my neuro doesnt want me to go back to work till we figure out the meds and everything else which I am hoping will be by the end of this year. Maybe thats why I feel bad about myself at the moment as I have always prided myself on having good jobs and never having to rely on social security (live in australia) but now having to rely on government money puts a dent in my pride.
Thanks again, you seem to have lots of valuable experience and I really appreciate it!
Dot
Dot,
I went through the same thing and I made the same mistake you did with the names. Trouble with remembering people's names is another symptom of TLE. I've got that in spades!
I hate the fact that you had to quit your job to save your relationship. You should be able to have both.
If you are so unhappy about not working, I think maybe you should get a job. Your neuro's advice does not take all of your needs into account. Unhappiness and the stress caused by not working are worse than the stress of a job.
If you were able to learn from other's like that, you'll be OK. It means that you know what you lack and how to find it. That's a good thing.
Please take good care of yourself and do not put the needs of others before your own. I made that mistake for too long and it's the reason I'm in the terrible predicament in which I now find myself.
If I'd been more selfish, which would have been the right and healthy thing to do, I would still have a home and a job and a life! I sacrificed for others and now that I need, no one is there to help me.
My friend who said "any time, any where..." disappeared at the first hint that I needed her to make good on her promise. All I got were mouthfuls of excuses and conditions. I finally told her that I was marking her email address as spam and would not take her phone calls because I was disgusted with her lies.
My latest post: Epilepsy Carpe Diem: Devorah Zealot Soodak, nee Deborah Ellen Soodak, aka Debbie Soodak, says: Hi!
http://psychout.typepad.com/blog/2010/11/epilepsy_carpe_diem_devora_zealot_soodak_nee_deborah_ellen_soodak_aka_debbie_soodak_ny_omh_state_us_gov_nj_dmhs_jfsatlantic.html
I'm afraid it's rather bleak.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!
My dear Devorah. You are me. What is it that makes us throw ourselves out with the bathwater? What is it that says I'll care for you and if I do then you'll care for me? It does not work that way. The more you do, the more that is taken. Expected. Demanded. Hands held out to take.
I'm so sorry. Here you are still giving. An angel.
And Dot. I can hear a name and it means nothing. People think I'm so rude. I will walk right past because I don't remember their face. Go back to work. Devorah is right. The loss of a job is a slippery slope into the loss of self respect, identity at the least and a shelter and security at the worst. A job can be a thread to the functioning world.
yr,
yeah, you're right. (Sorry, I could't let it go. [lol])
I get mixed up with the names and the faces. I have for decades. I could never figure out why. It wasn't all the time though. Like the seizures, it came and went, but with the accumulating damage now mores more come than went.
Oh well.
As for the Angel part, you flatter me, but thanks. Helping others makes life worth living. Just not to the point of self-sacrifice. I've learned that lesson too many times the hard way.
A friend in need is a friend, indeed.
Baruch Hashem. Hoshia na.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!
Thanks again to both of you!
Unfortunately I have had the same fate, I have made the mistake of expecting people to treat me as I treat them which is, help a friend when needed. Over the years me and my partner have truly seen what our friends are made of in these times and as a result dont really have anyone we can call a friend. All we have learnt over our lives is the more you give the more they take and abandon you at the first site of them maybe having to give you a helping hand. We havent told any of them that I have TLE as we dont anything else put against us.
Baruch, I just wanted to also say especially thank you to you, whether you know it or not you have helped me a great deal in realising I'm not going crazy as I did for many years just in these last few posts.
I truly hope you are now doing something that gives you great enjoyment in your day!
Fortunately we do even if I am not working, something we take great pride in is our german shepherd dog who is just beautiful, i think he also gets us through the tough times as he is just so loving and loyal! Also our attempt at self sufficiency at home. We have solar panels, fruit trees and vege patches to try and have good fresh, organic food and about 9 rain water tanks. This is something we enjoy doing.
Also maybe I didnt put it the right way (mis communicating again) but my partner means the gobbeldy gook speak in a joking manner. He does support me but it has been a hard road as he also suffered from my family as we met in highschool and there is no doubt he has PTSD from them too! Like they say you can choose your friends but not your family!
Thanks
Dot
Dot,
I guess you and your partner are kindred souls. That's a mixed blessing. As long as he/she is supportive.
I think it's great that you are so self-sufficient. I've done the "city girl" version of that for a long time. When I lived in an apartment with a gas stove with pilot lights, I closed the gas line to the pilots and lit the stove with a flint.
Green saves greenbacks. Green saves lives. Green saves the planet.
I'm glad you have your dog. Animals are good and loyal friends. One of the best friends I ever had in my life was a cat. I still miss her.
It makes my day to know that I have helped you. I do as much as I can to stay productive and occupied. I draw, take pictures with the camera on my phone, and work much too hard on my blog.
And I post here. This is the closest thing I get to human companionship these days. Fair weather friends...
Oh well.
Baruch Hashem. Hoshia na.
Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! Please read my blog. The link is after my name. Thanks.
P.S. I'm going to try to put up the link to my latest post. I don't know if I can get it past the censor.
the latest post from the zeelot