I don't want to make this any longer than it has to be, so I'll try to keep it short. My general/family doctor first started treating me for "anxiety attacks" with Topral (a beta blocker) because he noticed that when I was just sitting still, my heart race would speed up and diagnosed me with PSVT and Mitral Valve Prolapse. He said he didn't think I had an anxiety/panic disorder, because for the most part it seemed to be unprovoked and he would continue to look at my symptoms and see what he could make of it. I had been treated for the past eight years with just about every single anti-depressant/anti-psychotic available, to no help... Actually, it only seemed to make my 'episodes' much worse. I had also been diagnosed with JUST about every single psychiatric illness the therapists have in their books, besides maybe multi-personality and schizophrenia. In May of this year, I just got fed up with these therapists and decided to see a regular doctor. After seeing him several times, going over my symptoms in much detail, he concluded that he thought I may be experiencing symptoms of Partial Seizures. He added Topamax and Gabapentin to my Topral, and it slowly started to help. Before these two medicines were added, I was basically pulling my hair out. My hair was down to my waist. I had to get it all chopped off to my ears. Apparently, I was grabbing it and twirling it into knots without knowing it... And before you know it, one side of my hair was about ten inches shorter than the other. It had just been progressively getting worse. No amount of therapy or anti-depressant water pills helped.
I guess I was fine with his 'diagnosis', but my family and I wanted to make sure, so he recommended us to a neurologist. After my first visit, he also seemed to think that I was experiencing Partial Seizures. Actually, I think I may have had a Simple right in front of him while he and my husband were chatting. He took notice of this, asked if I were ok, etc... So, he waited a month before finally sending me to a hospital to get a 20 minute EEG. My experience there was awful. I was to go off of my meds for the few days before. That was all I was told. I wasn't told to not drink caffeine or anything like that. It certainly wasn't sleep deprived. My experience at the hospital was awful. All was well until I actually got into the room where the EEG was performed, and I started to get really anxious... The lab technician kept looking over at my husband asking things like "is she always this nervous" to which he explained "No, it's the fact that she's afraid nothing will show up, we dont' have insurance and we will have to pay out of pocket again for another one"... So apparently, I had a brief panic attack or period of anxiety during the beginning of the EEG. Is this 'not' normal??
Anyway, the strobe light part of the test came... I could feel my heart racing with the beat of the strobe light as it got faster. My husband described my eyes as looking as though they were rolling open and shut to the beat of it as well. It really bothered me. My left arm went numb and started hurting and remember feeling like jumping out of view of the lights. After that part of the test, I was asked about our anniversary. My husband quickly answered with the correct date of our marriage, and I insisted he was wrong. I was very confused, and didn't realize what I had actually done until we left the hospital and I talked to my husband.
The technician decided to 'skip' the deep breathing part of the test. I have no idea why. I was actually rather irritated. This could have helped in diagnosing something FOR SURE. I don't have asthma... I wasn't undergoing a terrible anxiety attack, and in my opinion, I could have gone through with it. That is what I was there for. I paid out of pocket for this test, and had waited over a month for it.
I left the hospital thinking, of course, nothing is going to show up on this test, she didn't even finish it... I felt really awful afterwards, horrible nausea, headaches, and my balance was completely off, I immediately went to sleep when I got home. The next morning, after I woke up, my right and left thighs seem to almost be weakened/stiffened and it's hard for me to walk at all. It has improved slowly over the past several days, but I have never experienced this before.
To cut to the chase, my appointment with my neurologist for the results was yesterday. He said he was pleased to say that I had no seizure activity on my test. Nothing else... I was not pleased at all. Although he said it may still be seizures, he would like me to have a 48-72 hour EEG monitoring in a bigger hospital (which I am aimlessly searching for the funding for now). He also noted that the anxiety and the seizures could be related. BUT, he took my Topamax and Gabapentin and quadrupled the dosage of Klonopins. He gave me a big lecture about anxiety, and said he hoped it was 'just that' and that way I would 'NEVER HAVE TO SEE ANOTHER NEUROLOGIST AGAIN IN MY LIFE'.... Excuse me, but WTF? My husband explained to him he thought something would show up, considering what he saw the strobes physically do to me. The neurologist just chuckled and said something like 'yes yes, I saw or read that'...
He also explained that 20 minute EEG's are fairly uncertain... So WHY take my medicines from me and also order me for more diagnostics? Not to mention, the tech. didn't even complete all the procedures within the test.
Sorry, I said I would keep it short. At this point, I'm just really angry, confused, and I feel like I've been made a mockery of... not only that, but this financial situation is a drag on my family and I...
Anyone with any similar situations or suggestions??