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Looking for a Seizure Monitor

I have been looking for a seizure monitor for my husband. He has to go
to another state because of his project and i am not in a position to
accompany him. I was looking around for some seizure monitor that would
alert me or someone close by when he is having a seizure. I came across
this website called easylinkukdotcodotuk. I just want to know if anyone
has used any kind of monitor. Any help or advice appreciated. Thanks.

Jupi

Comments

Re: Looking for a Seizure Monitor

Hi Jojupi01,

I've been looking for practical and economical monitors to keep track of as many seizures as I can, especially when I'm away from home and such tracking is even more important and more difficult.

I almost always have fairly unique partial seizures that usually give me plenty of warning of more intense partial complex seizures leading to about monthly secondary tonic-clonic seizures without AEDs.

My warning partial seizures are subjective visceral Limbic sensations, and from the books I've studied, they are not easily and objectively monitored without implanted EEG electrodes, which limits the practicality of such direct monitoring. With simple partial seizures, I rely on my own self-reports recorded on common electronic equipment, from i-Pods, cell-phone applications, compact audio/video recorders, GPS units, etc. Some medical centers are doing just about the same thing with such equipment for Alzheimer's patients, and the legal issues involved should be resolved soon (to me, it looks like the ADA would protect the use of the equipment for disabled people, and if not, things like wheel-chairs could be prohibited when they would ruin the "ambiance" of the discount store).

The generated record that includes verified failures of, or atypical actions with, tasks without conscious notations are suspects of larger epileptic seizures, with the time, location, duration, travel, and audio recorded (video needs a 360° lens somehow for more than sky or sidewalk contact pictures).

Since portable EEGs are still expensive, inconvenient, and rather crude, I'm looking for ways to use moderately priced toys (like Mattel's Mindflex headset) linked to a notepad or an iPad to detect larger atypical neurological events, and record them with or without alarms through e-mails, etc. Most commercially available alarms are for nocturnal seizures of epilepsy, and detect only erratic movements, and/or "fall alarms".

Tadzio