I need your input and/or suggestions. I've been experiencing these episodes for about 3.5 years now. I am ussually alone (as I am single w/o kids) when I experience these episodes. I do, however, have a history of a severe closed head injury 20 years ago, which required 3 months of hospitalization. These episodes occur randomly but kind of regularly - sometimes more than 1 in a day but never days in a row more like intermittent periods of 3-5weeks.
In one of these episodes (big ones) , I feel very dizzy (like the room is spinning out of control) - I sometimes hear loud noises (like a freight train) - I am pretty tired after these occur. They've happened in my sleep, in the shower, at the gym on the cardio machines, while teaching class, while driving down the road, sitting in front of the computer, etc... they happen at all times of day doing different various activities.
When one of these episodes occur, sometimes another one or two will follow shortly thereafter. I just hold on to something and try to keep from falling. I don't usually remember much - other than the dizziness and nausea - that accompany the spinning. Doctors have said that these are panic attacks and written it off. I was with some other teachers in January and they observed one of these "episodes" - they said I stiffened up and my lips quivered - I remember them calling my name and patting my back but could not respond. After it was all over, I was very confused about what was going on , but I explained to them that this was a panic attack and I have them regularly . They said no.
The doctors then diagnosed me with epilepsy - MRI completely normal - the neurologist said she had to study the EEG 3x before noticing some small spikes in the temporal lobe. The neurologist had already told me she thought that I was having seizures and the EEG might not show abnormal activity unless I was actually having a seizure. When she was interpreting the reading, was she wanting to confirm her thoughts or was there abnormalities (study 3x before finding spikes???).
Been on Lamictal since - still have these episodes about as often as before - they might not be quite as intense - do these sound like seizures to you?
Please give me some insight - I'm frustrated - if they were seizures, wouldn't the meds be helping? I don't like the meds - Lamictal has a negative effect on my memory and mood swings. I am fine if they are seizures, I just need the diagnosis - it's hard to explain to someone who has never experienced what I am describing and it is hard for me to understand your seizures, if they are different from my experiences - doctors don't know - they haven't experienced one first hand.