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amber1981

Uncontrolable Eye Jerking...

Hoping someone can help me...I have complex partial seizures, and lately I have a new symptom that is worrying me. I get these episodes when my eyes both start jerking really fast from side to side and I have no control over it. It last only seconds, but it is scary. Is this a seizure that I should be telling my doctor about or is this something completely NOT related to epilepsy? If anyone has any input or advice I would really appreciate it. I have looked all over the web and it doesn't seem like there is a lot of straight forward info and I know that coming here I get a lot more information!

Thanks!

Amber 

 

Comments

Re: Uncontrolable Eye Jerking...

Some children and adults have nystagmus (involuntary eye movements/eye wobble).  It appears that some types of nystagmus are not associated with epilepsy at all, however, in a few cases the eye movements may be due to some subtle type of the many, many epilepsies (likely involving the 12 pairs of cranial nerves/more precisely the ones which help control eye movements).  That's my understanding.  Also, it's known that some meds used for epilepsy can, as a side-effect, affect eye movements vs other meds for epilepsy which do not appear to affect eye movements.  Also (perhaps less likely): -   http://en.wikipedia.org/wiki/Paroxysmal_dyskinesia -  Yes, you should be telling your epilepsy doctor about your eyes.  Good luck.

Re: Uncontrolable Eye Jerking...

I take 1,000 mgs of Depakote...I will have to look it up and see if that is a side effect...thanks for the info!

:)

Re: Uncontrolable Eye Jerking...

Well, I have epilesy for over 7 years. two years before this all started i also was having the twiching problem, but had no clue whatsoever, what was happening! Then came the jerking and I was still clueless. Guess they are just the starters. If at all your eyes are twiching, don't panic. It doesn't necessarilly mean you are going to have a seizure. But my mom says eye twiching is not a good sign. If it happens just go and get some rest. In my case when my hands start shaking thats when i know.

Re: Uncontrolable Eye Jerking...

I have to ask: Are the eyes actually moving or does it just feel like they are? I ask because what you describe is virtually identical to something that I experience. For me it normally happens when I am laying down or sitting. I have stared people directly in the eye (or tried to) and asked them if they noticed any eye movement and no one has. If I close my eyes I can still "feel" them shaking, but it just feels like it's in my head. Everything I have read points to nystagmus, but somehow for me I just feel it's wrong. I would definitely bring it up with your neuro as it could be related. (I plan to bring it up with mine).

Re: Uncontrolable Eye Jerking...

Well, nobody has "seen" them moving because it usually happens too fast (3 seconds or so) so I don't have time to ask anyone. It's a very fast vibrating, side to side movement and it freaks me out! It usually happens when I am looking down. It remains a mystery at this point, but I have so many symptoms with my epilepsy and so many of them come and go. It might just be one of the ones that might linger for a while and then go away....HOPING!!!

Thanks!