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Kesai-Serris

Can I be cured of Epilepsy?

I have had Epilepsy my whole life, I am 29 and just now getting treated for it.  My grandmother had it too and was still on meds until she died in her 90s.  My doctor says its possible to become seizure free first with the meds and then ween off of them and be cured.  My grandma was never cured obviously.  And my doctor hasn't yet been able to stop my seizures (but that can take years and we've only tried for months) I still have them everyday, the worst ones several times a week. Just a few days ago I had 17 and on and on it was a two day marathon which prompted my doctor to throw in Keppra, he wants to go aggressive now with treatment he said because my seizures are getting so invasive.  My brain doesn't function well (if at all) which effects my marriage and my being the best mom I can be.  Anyone else feel it hurts their love life?  I would love to be cured of course but is it possible? Are any of you guys seizure free? Can you tell me how long it took, what you did, how it changed your life? What are the hardest to treat seizures?

I have absence seizures with secondary generalization

Comments

Re: Can I be cured of Epilepsy?

Given you some links at the bottom if its helps to start your search on these ancient techniques. GOOGLE PRANAYAMA, ANULOM VILOM is most important.

Try these techniques for a least 20 days and see how you feel. I would also urge you to go meet dr.pankaj naram if you can. He is an master in pulse reading etc and has cured epilepsy suffer'ers and even given HIV relief.
The dr has been taught by a 125 year old tibetan monk to carry on the lineage and is helping people for free. He goes to shanti towns to give support etc and charges people who cannot afford the herbs absolutely nothing. Look him up. He's really popular in India and has trated over 500,000 people. I was looked upon by his wife, she pulse read my emotions and mental and physical problems like it was from a book and knew exactly what i was going through and what to perscribe herb wise. 
 
I have had temporal lobe epilepsy for roughly 2 years. I havent taken any anti depressants or medicine as i thought i could fight this off with will power, i know it sounds stupid. I felt depersonalised and dreamy all the time, it made me feel so depressed and lonely. Also had hallucinations which would make me feel sick, nauseaos and very depressed. The hallucinations where so powerful they would suck all the energy and positive thoughts out of me and left me hopeles thinking i would be stuck in this depressed state forever.
 
Ive done this yoga for 2-3 weeks and im a different person. I havent even taken the herbs yet im waiting for it to be delivered, but i will keep you up to date on how it affects me. But please in the meantime start this pranayama. Especially anulom vilom for 20 mins a day and night.
 
Also i believe anti-epileptic medicine and anti depressents, deal with the affects of something wrong with the body. These techniques and the herbs deal with the cause of the effects, therefore treating all the wrongs in the body, not just the seizures.(effects)
 
 
 Look up prankaj naram epilepsy , or something to do with him on google. It will save your life, i know what your going through. Peace x

 Also do meditation! Do anulom vilom first, and after that meditate for as long as you want, make it at least 2 minutes. Try to lose your thoughts and become silent in your mind, but conscious of your existence. Meditating increases blood flow to the brain, and most importantly replenishes the brain cells of toxins. While you are sleeping you do not give your thoughts 'rest', your thoughts are just frozen while you are asleep and unfreeze when you wake up, so you are always tired, your immune system is lowered. Meditate and you will give your brain rest, so this reduces the chances of a misfiring in the brain..leading to a seizure, as the brain is more at peace, and not working 24/7.

 

Here are some links to start your healing and give you hope. Also remember, once you ARE cured, to spread the word. Remember what if feels like to suffer from this and pull people out of the dark to see the world for what is really is again, BEAUTY.

 

“When you realize how perfect everything is you will tilt your head back and laugh at the sky”

 

Hindu Prince Gautama Siddharta, the founder of Buddhism, 563-483 B.C.

 

Vaidya Jivak, the main founder of this pulse reading, was the Lord Guatama Buddha's physician. As well as serving humanity, Jivak also served and pulse read Buddha 3 times a day. Once in the morning, once at noon and once at night. Even Buddha himself found Viadya Jivak to be a wonder.

 

Dr Pankaj Naram has treated Mother Teresa, The Dalai Lama and the Indian Prime Minister.

 

http://www.ayushakti.com/hs_success.htm

http://www.drnaram.com/about_drnaram.html

Re: Can I be cured of Epilepsy?

People should look carefully into any treatment for epilepsy/seizures and find out as much as they can before following this. Look at published studies about outcome too. 

People should NOT stop medical treatment without advice of a doctor as serious complications and emergencies can occur!

Re: Can I be cured of Epilepsy?

I have sp/cp/myoclonics and for 3 years I was uncontrolled.  I switched from a neurologist (who only specializes in headache/migraine issues) to an epileptologist.  He upped the medication I was on.  It didn't work.  I was on topamax and had dropped from 120 lbs to 100 lbs, at which point it was dangerous to up it any more.  He switched me to lamictal.  He was very aggressive about treating the seizurs.  For example, I had a seizure at 400 mg and he immediately upped my meds to 500 mg.  He wanted to know immediately if I had a seizure, so this helped the seizures stay in check.  When I reached that 500 mg threshold, he put me on an extended release version of Lamictal (Lamictal xr) and the seizures stopped.  But they picked up again 6 mo later. I'm now on 600 mg and seizure free.  He has told me that if they start again, he'll have to try dual therapy. 

I am married to an amazing man.  He listens to me rant and rave with love and understanding.  When I'm suffering any of the million side effects of aeds, he makes it clear that it'll be ok and that he loves me even with the side effects.  When I went on aeds, I was terrified that he'd get tired of the whole epilepsy routine.  But it's made us even closer, as we cling together instead of falling apart.  One thing I DO do is to constantly tell him how much I love him and how much his support means to me.  I send cards with him to work (AEDs make it impossible for me to work).  I write little love notes.  I call him at work just to say that I love him.  Make sure he has someone else to talk to so he can vent.  Tell him about how scared you are about losing him.  It's the best thing in the world to have a forthright discussion.  It'll make him feel better (to voice what he's feeling) and it'll help you (to be assured that he's going to stick with you).  Communication is the key!

I don't have children (yet) but I can tell you that kids focus on what you CAN do - not on what you can't.  I'm sure you tell them that you love them!  That is one of the most important things you can do.  Explain about epilepsy, how seizures affect you, how to respond to a seizure (very important), and how they can show you that they love you.  Mention what you're having trouble with - memory issues etc.  And ask how they would help you.  It gives them some input/ownership to help you.  It'll take the mystery out of something that is potentially scary.  Take them with you to the dr so they can hear what he's saying and ask questions.  If you have young (1-4 yrs) kids, have them draw pictures of how to help anyone (i.e. rescue a cat out of the tree/help a friend when they fall down).  Give them constant love and encouragement (which, I'm sure, you're already doing). No matter what physical ailments YOU have, concentrate on what you can do.  This will help you stay more positive so you can handle the ups and downs of being a parent.

 Epilepsy cannot be cured, only managed.  Yes, the medication sucks.  Yes, it impacts every part of your life.  I went through a whole stage of grief that lasted a year.  Your routines changed, you have trouble doing what you used to do, you lose some independence, you name it.  For me, it was as if I had to accept a new me.  It's ok to feel angry/sad/frustrated etc.  It's part of dealing with the emotions that are part and parcel of epilepsy.  Do be cautious, however.  I got to a point that I couldn't dig myself out of feelings of sadness/hopelessness.  Epilepsy and depression are linked.  If you feel like you can't "shake it" let a dr know, whether it's your neuro or gp (that knows what they're doing).  Wellbutrin is a no-no as it affects the aeds.  I'm on citalopram and on a mininimal dose.  But even that small of a dose helps keep me at even keel.  If, at ANY point, you feel suicidal (drugs can "help" this) IMMEDIATELY GET HELP!!!!!  

Hope this helps and know that we've all been through this.  It might take a months/a year etc, but it'll be ok.  <hugs>

 

 

Re: Can I be cured of Epilepsy?

BTW, I'm 32 and have epilepsy, not genetically, but as a result of a drunk driver.  I went untreated (Navy dr thought it was panic attack) for 8 years.  I know how later in life onsets can be difficult.

Re: Can I be cured of Epilepsy?

i got epilepsy in nov 2008 i have had to have med changed becouse of allergies to them lost 50 lbs on topamax and they are sending me to another nero becouse they dont now what they should do becouse of my reations but as far as i heard there is no cure for eplipesy and for kids and husband as long as they support you . my husband support me i think the only thing he thinks is when i get upset from the meds is frusrting but hes so good he gets my meds to gather i have to take 5 in the moring 2 at night there every 12 hours he always makes sure i take them on time and the kids do also . i have grandmal . and they still to this day have not been able to find a reason why

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