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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYHi,
I have had epilepsy 15 years. Uncontrolled the whole time. I am on a new medication Vimpat and a birthcontrol (Ortho Micronor since I have catamenial epilepsy) I am to the point right now where I am 28 years old, totally dependent on my parents, I live at home, not allowed to work, have few friends, and feel like crap all the time. I would never commit suicide because I know how that would effect my mother but today she told me that her and my father are walking on egg shells around me.
I have been having mood swings but didn't realize anger was one of them until last night. My mom criticized something (I don't even remember) and I blew up and left the restaurant. (My mom and I have never had a good relationship). I guess the thing is, I can take the depression and the random sadness that I have to deal with, but I can't put my parents through the anger. Anger I don't even see as over the top when it occurs.
How do people deal with these mood swings? I can't really change meds because I have been on most of the already. I don't know what to do.
Thanks.
tara m... Do Your Seizures Change Make You Angry/Detached?
Created by tara m...at3/4/10 - 7:53 pm|13 Comments Posted To: |
henry199 |
kay69 Extreme mood/behaviour changes associated with seizure activity
Created by kay69at2/22/08 - 6:03 pm|7 Comments Posted To: |

Recent Comments on this Discussion
Of course you're depressed. Who wouldn't be? And unfortunately you lash out at those you love the best. (Or at lease those you depend upon which is frustrating enough!) But you're hardly alone...
One study stated that 80% of the patients with epilepsy were also diagnosed as having a depressive disorder. Upwards of 60% of these individuals had a history of significant episodes of depression. And 10-32% experience symptoms of anxiety. Not too reassuring, is it?
And for those whose epilepsy cannot be controlled by meds, the likelihood of depression and anxiety are even greater.
In fact, many of the medications used to treat seizure disorders can trigger depression. Dilantin, Phenobarbatol, Celonton and Tegretol are all notorious for this side effect.
Here are some suggestions that may (or may not) help...
Consider counseling…
Support groups…
Tracking your seizures, their triggers and your emotions daily in a diary…
Try some time-out when you’re feeling overwhelmed…
Learn relaxation exercises, deep breathing, yoga, meditation…
But most importantly, tell your doctor and family how vulnerable you feel. It might make it easier for them to understand your behavior. And support can often go a long way towards helping your anger and depression.
Phylis Feiner Johnson www.epilepsytalk.com
Hi There -
I really feel for you. I think it's safe to say we all do, regardless of how well-controlled out seizures may or may not be (which only makes things worse); epilepsy has co-morbidity with depression, anxiety, ADD, and who knows what other fun stuff.
The side effects to the meds either take time to get used to - or if it doesn't get better within a couple of weeks - it's time to try something new. I tried Keppra once, and it made me a complete raging bitch - after a week I told my doctor to put something else to the test.
Birth control brings with it it's own whole host of beloved mood-swinging side-effects. Depo Provera is a shot that lasts for 3 months, so it is a commitment to whatever it does to you; but it's a progesterone only; which is PERFECT for the epilepsy you have (I always get seizures around my menstrual cycle too - but didn't know there was a NAME for it!).
You're going to have to deal with some level of mood-swings in your life, the best thing you can do for yourself is talk to a counselor (a psychiatrist who can prescribe some anti-depressants is a great start if you're comfortable with that), EXERCISE - yoga is excellent for your mind, body - and MOOD - it's super rejuvenating and relaxing at the same time. Other than that - you're doing the right thing by coming to these forum boards and making friends with others who have epilepsy - you'll see you don't have a unique experience - and maybe your parents can find support here too.
All the best,
Tara
http://elanvitalanthology.blogspot.com
Hi, I'm 29 & It's not easy to deal with this. I feel the same. I've had epilepsy for 10 yrs, it's not controlled, I can't drive, I don't have much friends & I depend everything on my parents. I hate all of those things. I don't want to be 30 this year & still have to depend on my parents. My family has to deal with my depression & mood swings. I have my days where I'm happy & feeling good but all of a sudden my thoughts set my anger off or change my mood. My mom & I have arguments because of my mood swings. Then she gets emotional because I go through all of these things. I don't want to do this to my mom & family.
I've been seeing a psychologist for a few months. It has helped me slowly. I try to keep myself busy doing things. This stops me from sitting in my room, thinking about my problems & getting depressed. As hard as this may be for us, we must be thankful for what we have. Seizures are not easy to deal with. There are many people with health issues that are worse than seizures. I think about that every day now. I hope I'm not sounding like a nun =) I started taking vimpat in january & it's been helping me.
Take care & I hope things get better for you...Rena