Welcome to the redesigned epilepsy.com
It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.
The new features include:
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYI'm wondering if anyone has tried the ketogenic diet with good success? I think this research is really exciting and thinking I will definitely try it. Wowza -- 3 months on this diet, and 33 to 50% chance I could go off meds?! Why aren't more people talking about this?
Research shows:
Regardless of age, seizure type, or etiology, the KD appears to provide a third of the patients with >90% reduction in their seizure frequency (Henderson et al., 2006).
http://pediatrics.aappublications.org/cgi/content/abstract/122/2/e330 (this latest study shows it's safe)
http://www3.interscience.wiley.com/journal/123269881/abstrac...
SG

Recent Comments on this Discussion
Hi Sheltiegal,
With an additional note of the dangers of inadvertantly eating a high-sugar snack during the ketogenic diet, (such a snack on the diet will usually cause blood sugar levels to briefly sky-rocket, then often precipitously drop, sometimes to such low levels as to occasionally induce hypoglycemic seizures, and moderately to very rare cases of death), an old posting about the Dr. Atkin's ketogenic diet is:
I was on the Dr. Atkin's Diet in the late 1970's. I was in my mid 20's then, and I didn't know my clusters of complex partial seizures were a form of epilepsy. I used the diet to lose body fat while building muscle mass with weight lifting. One side-effect of the diet was that it minimized my complex partial seizures; a couple undesirable side-effects were the low fiber and occasional episodes of very low blood-sugar levels just before awakening in the morning to have breakfast. Snacking on sardines right before bed stopped the low blood-sugar symptoms, but such a snack was slightly unpleasant.
Once my body went into ketosis (measured in urine by Ketostix's available at most drugstores) my hunger went away, and I had to eat by measurements and schedules to be sure to maintain strength and nutrition. Now blood sugar levels are so easily measured at home with digital meters, I wish I had the meters back then instead of the "match the color" diabetic blood test strips to also monitor blood sugar levels better while on the diet, since the "valleys" were very unpleasant.
I tried for zero carbohydrate intake because carbohydrates frequently "sneak" into protein foods, and going out of ketosis messes things up for a day or so at least. The cost of an all meat diet back in the 1970's wasn't that much greater than a regular diet, but now the price differences are very large. The low fiber causes irregularity, and the ketosis gives off "fumes" that can be minimized by drinking more than average amounts of water, or at least somewhat masked by non-sugar (or very low sugar) SenSen licorice-like breathe mints. The diet was very inconvenient if I couldn't always eat at home. I was on the diet for a few months when I reached a near ideal muscle-mass-ratio. A couple months after stopping the diet, my clusters of complex partial seizures slowly returned at about half the intensity/frequency per cluster for 5-6 years. Many editions of Dr. Atkin's Diet Books are in still print.
I hope this helps.
Tadzio
Shelti,
I too have been looking into the ketogenic diet and you bet your sweet bu** I'm looking into putting my grandson on this diet. This diet has been around for 80 years and then came drugs so it slowly died out but now they're bringing it back....yay!!!!!
Cool! Glad to know I am not alone in thinking about this again. I was excited to see a long-term study showing that it is safe. I called my neuro yesterday to ask about how I can phase it in... whether I stay on meds the whole time, phase them out, etc. If I can even reduce my meds, I would be so happy! (And so would my liver!!!)
Best,
SG :)
-simple partials, some generalized, frontal lobe, temporal lobe and myoclonic; 250 mg Topamax and backing off of Klonopin (see orgasms post ... lol)
The Ketogenic Diet was designed to simulate many of the metabolic effects of starvation. During starvation, the body first uses its store of glucose and glycogen, then begins to burn the stored body fat. When there is not sufficient glucose available, the fats cannot be completely burned and ketone bodies (acetoacetate and beta hydroxy butyrate) are left as the residue of incompletely burned fat. The ketogenic diet provides exogenous fats (fat from outside the body) for the body to burn, but limits the available carbohydrate so that ketone bodies build up. It is the high level of these ketones which appear to suppress seizures. http://www.epilepsy.org.uk/info/ketogenic.html
If you go to http://www.coping-with-epilepsy.com/forums/groups/ketogenic-diet.html you'll find a whole forum on the Ketogenic Diet. (You just have to join to participate, no big deal.)
With careful and proper monitoring, the Ketogenic Diet has been found to reduce seizures in two-thirds. And if it is successful, it’s usually continued for two years. During this time, people are often gradually able to lessen or discontinue the amount of medication they take for seizures.
And if the find the Ketonic Diet too restrictive for you, you might consider the Modified Atkins Diet (MAD) http://www.atkinsforseizures.com/index.html
Phylis Feiner Johnson www.epilepsytalk.com
Thank you, Phylis!! :)
-simple partials, some generalized, frontal lobe, temporal lobe and myoclonic