Welcome to the redesigned epilepsy.com
It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.
The new features include:
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYAlright guys how are you? this is my first post on the forum and let me tell u that for the past 5 months I’ve had 4 seizures... doctors say it seems to be JME... They are still struggling to find the correct medicine. But I’ve been already a month without a seizure... tonight iam writing from the epilepsy room of the hospital... that means ill prob have a seizure tonight or tomm... the reason why im posting here today is because in 10 days Ultra music festival is coming and i really want to take a pill. first im a 19 yr old... i work at a retail store at the mall and not studying yet.... now I’m getting my full hours of sleep and haven’t drink for the past 3 or 4 months now since “sleep deprivation and alcohol triggered my seizures”. Since I started taking depacot (1 month maybe 2 ago) I’ve been feeling pretty good. I smoke marijuana chronically but that’s the only drug i use. Cigarettes a pack each 2 days... so I’m writing of this forum guys so you give me your opinion on me taking 1 mayyybe 2 pills next week... last time i used ecstasy was last year the same concert.
Ryan G |
Panter... |
phylis... |
ssever... |
peterg... |
gypsyh... |
President The state of the biotechnology/neurotechnology industry
Created by Presidentat5/21/09 - 5:44 pm Posted To: |
rishwa3 |
DougIn... New - Diet, Drugs, sleep... What is known to increase/decrease seizure ...
Created by DougIn...at4/23/09 - 12:56 am|6 Comments Posted To: |
madhat... |
warren7 Notes on Epilepsy Pipeline Update from March 13 ETP Conference
Created by warren7at5/7/08 - 6:59 am Posted To: |
ValNew... |
speran... |
fdgsogc91 |

Recent Comments on this Discussion
THESE SYMPTOMS ARE NOT NEARLY AS BAD
Hi Karlosimon,
"A Danish study reported that seizures are among the most common CNS complications after the ingestion of ecstasy. The pathophysiology of seizures due to MDMA use seems related to severe hyponatremia (Hedetoft and Christensen, 1999). "Psychiatric Controversies in Epilepsy" by Andres M. Kanner, Steven C. Schachter (2008), p.276. Some AEDs have the side-effect of users becomming "drunk" by drinking a bit too much water as another compounded threat.
Hedetoft, C., Christensen, H. R. (1999). Amphetamine, ecstasy, and cocaine. Clinical aspects of acute poisoning. Ugeskr Laeger 161(50),6907-6911. (Article in Danish) English abstract: http://www.ncbi.nlm.nih.gov/pubmed/10643376?ordinalpos=1&ito...
A wider report is at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1297063/pdf/jrso...
Tadzio
Please don't take the ecstasy. Drugs can lower your threshold for having a seizure. Because you've had seizures in the past, you know at least some of the dangers and side effects associated with them. Luckily, so far you've not had one so bad that you've hurt yourself by hitting your head and suffering brain damage. Are you ready to take that chance?
My heart, like everyone else's, also goes out to you. I'm 39, with a background in everything mentioned. I only started having seizures this year. Haven't really come to terms with it, but I gotta assume my drug taking past has to do with it. I felt I had to quit the lot now.
Obviously, at my age, this could be a blessing. But you wonder, what you wonder what you're gonna do with your life? On the high days. There are literally no highs left for me now: I don't drink, smoke, puff, take drugs, I don't even eat meat or dairy. It can be dispiriting. But part of me knows it was the high-seeking mentality that put my body out-of-balance. My body naturally runs on adrenaline, which probably caused my addiction to stimulants; something had to give, and it did, at 40.
If I had the time again, I have no doubt I'd do the same again. I really feel for you at 18, unable to experiment without this risk. But I'm sure you can see these people are right, you know the risks: it's a high, versus a public fit. Not much of a choice. Go in peace. xx
I've also wondered the same thing--did all the wreckless partying I did years ago bring me to what I am today? I've tried a lot of drugs in my time--marijuana, cocaine, acid/lsd, ecstasy, abuse of prescription drugs, and possibly more if my memory hadn't become so compromised from the seizures.
It upsets me to think that I brought this on myself. To the guy thats considering trying ecstasy, dude, its not worth it. I went from high honors, deans list, and honorable mention in college to where I had to quit school with 8 classes remaining for my BS in computer information technology because I couldnt remember anything, or because I was excused from school because I was in the hospital.
Ironically, of all the drugs I have done, the only one that had absolutely no effect on me was ecstasy. I did it twice and both time I just kept wondering when it was going to 'kick in', but it never did.
Good luck to you--you're probably going to need it if you keep doing drugs.
Jason
Nicely put.
my heart goes out to you. i had my first seizure when i was 18 after staying up all night doing ectasy. i have juvenile myoclonic epilepsy. i have been told that the drugs did not cause my seizures but they did lower my threshhold. you would think that i stopped there but i did not. i later learned that i had a serious problem with drugs and alcohol that also had to be dealt with.
Anyway the point is I know through personal experience that drugs and alcohol cause seizures for me because i have epilepsy. this is not only painful and inconvienant just because of the seizure but when it happens at an event where people are out having a good time, it is extremely embarrasing. I know--I have had a seizure in the middle of a party before---that i planned. i got carried away in an ambulance and my poor friends got to sit with me in the hospital.
so....don't mean to lecture....but i have been extremely stupid in the past. I hope my experience can help you from making the same mistake.
Really, however fun they can be, drugs are really not a good idea. I DO leave marijuana out of the "drug" class though. In the past I've done ecstacy, coke, various pills, and lsd. Most of them, with the exception of SOME of the medicinal pills have caused me to have seizures to varying degrees. Lsd was the worst at that, followed by ecstasy and coke. While I understand the want to experiment more than most on here, it's NOT a good idea. If you must at least be careful in how you do it. How fun will your night be, if you seize at the rave and wake up after being half trampled and in the back of an ambulance? Of course, just being at a rave/concert the paramedics WILL test your blood for drugs. You could lose you freedom (jail for being under the influence of a controlled substance) lose your insurance, lose your job and so on. If you MUST try street drugs or even something that is legal but you don't have a script for, do it in controlled circumstances. I.E. in your home, or a friend's home with someone that can help you out if you do have a seizure. Being epileptic and using requires massive amounts of care and caution and helpful friends. VERY hard to do. And that is why I don't do it any longer. I wised up.
Yeagh just say NO!!!!
If I had that choice "No drugs No Siezures" or "drugs than have siezures"
definitely go with option A my friend.. Ive suffered with Epilepsy for over 10 years.. your fortunate and sounds like you have done a lot more shit than I have.. I have been in a wheel chair , to not knowing what I was doing every five seconds.. "Mentally Fried"
You seem very fortunate.. I think your addiction is going to be hard to get over.. don't get me wrong.. but seizures is no picnic in the park!!!
Take your seizure meds and I do hope that works for you and Get your rest!!! Good luck!!
Survivor,
ALS
peace R.C.
Hi no High!
O.K. as dumb and simple as this sounds .
WHAT GOOD WILL THE SHOW BE IF YOU HAVE A SEIZURE DURING IT!???. loud and clear right?
you just just have to many angles working here the meds ,the seizures maybe a little booze, the anxiety from either doing or not doing one or all of the above.some weed, just the tempo and hopefully LOVE of the show.
You need to replace the energy you hoped for with the forein aid and replce it with ENERGY from yourself and FEEL the show and hopefully come out CLEAN with no SEIZURE and still remember the show.
Possibly even damage yourself in some other way ?
even give the thoughtsto the fact you are going to ruin the show fro others "BAD KARMA" ALERT in a MAJOR way . they spend all their eneergy helping loving you and forget what they came for and lose their energy they needed for the show!
YOU CAN DO IT and have still have fun JUST WITH OUT THE DOPE. it really is that simple.
PLEASE take what I say to HEART. .
Rick long term sober ,drug addict /alcoholic, dead head ,life long ,full energy ,real deal, hippie type,seizure disorder, AMERICAN, VETERAN, maybe a 1,000 granmal szs, a living aura effect, add,adhd lol, over 100 dead shows, SHEW and I know now I could do it all with out the X, or the Lor the S or the D, or the beer in my hand .
WOW ......sounds good huh! lol...truth is I would be DEAD if I still used anything and maintained a SEIZURE DISORDER ........Rick BUT the ???? would be what would have they blamed ??? I say ME not the other items I chose to use! Rick
Yeah, I feel it Rick, I feel what you're saying. Thanks. I'm getting the clean energy. It is harder, where's my crutch, whaddo I lean on? But, I guess that's part of the dependent mentality that inspired this thing.
Yeah, not a good idea at all. Dangerous indeed and with epilepsy? Even worse. Just say no.
Really??? I use to use Ecstasy and as a result had 4 seizures in a 1 year period.. I am very well controlled on Dilantin and am blessed to have only suffered those 4 seizures 11 years ago. Use some common sense! Dont take it, its not worth it to have a seizure.