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Vitamins and Rolandic Epilepsy

I have a 7 year old daughter who was diagnosed last year with Benign Rolandi Epilepsy.  She has had a handful of seizures and don't feel it's necessary yet to have her take medication.  The epilepsy doesn't happen during the day and hasn't affected her school work.  I've seen a little bit of information online regarding taking Vitamin E and B12.  I just wanted to find out if there are other parents giving their kids with the same diagnosis any vitamins. 

Thanks for your input. 

Carrie

Comments

Re: Vitamins and Rolandic Epilepsy

My son is five and was diagnosed last summer with Benign Rolandic Epilepsy.  His seizures started in the morning but now he only has them at night.  The doctor put him on meds after his 3rd seizure.  Now, every seizure he has is worse than the one before it and they are longer.  We just got home from the emergency room this morning.  We had to administer Diastat (a rectal med) because the seizure lasted more than 5 minutes, it was actually 17 minutes.  He actually as strep and I guess it triggered the seizure.

  I asked the neurologist about the vitamins and he said they don't make a difference with this type of epilepsy.  I do give him a daily vitamin anyway.  I pray your daughter never get's them as severely as my son.  It is so hard to see them in pain!

Re: Vitamins and Rolandic Epilepsy

My heart goes out to you.  Sierra only has them between 5:00am-6:00am and they last anywhere from 30 seconds to a minute and a half.  I cry everytime because I think this is the one that's going to last too long and we will have to call 911.  She was diagnosed January 2009 and only had a few up until a month ago.  She's had 4 in the last month.  We saw the neurologist and have decided against the medication for now unless something changes. 

I did ask the neurologist about vitamins because I read about Vitamin E online.  He said he hadn't heard anything about that one but said we could give her B12 500mg a day.  I just wanted to see if anyone else gave their children anything.  

thanks for your response!

Carrie