Having just turned 40 and recently been diagnosed with TLE seizures both Simple and Complex Partial. I was started on Topamax which seemed like a good choice since I have also suffered with migraines for many years. It has only been 6 weeks since I started and I am currently up to 87.5 mg daily (my Dr is having me increase by 12.5 mg each week to avoid too many side effect since I am extremely sensitive to meds) so I am not getting much help as far as the seizures yet. As soon as I started taking the Topamax though I getting the dreaded side effect I read about regarding the soda/soft drinks tasting terrible. Well, I have to tell you, I love my Pepsi. I drink water and juice, but I MUST have my Pepsi and my this was truly tragic. BUT.....as they say, where there is a will.......there's a way! So here is a trick that you can try if you miss your soda. First, make sure it's really cold and don't add ice cubes. Second, use a straw, but make sure you put it in the middle of your mouth and push it against the roof of your mouth when you suck. If you take a drink with the straw in the front of your mouth or you drink from the glass/bottle/can without the straw, I'm sure the soda will tast completely flat. But when you put the straw in the middle of you mouth, it seems to work. I don't really know why, all I can guess is that it probably has something to do with the fact that we have different taste buds on different parts of our tongues and not all of them are effected. I am hoping it still works for me as my dosage goes higher. I hope this helps someone else who just wants to have one more piece of their life back to normal.
Starting medication again... Spikes in the optic lobe?!
Created by kaitly...at11/1/09 - 1:41 pm
New - Memory Loss/Side Effects - Lamictal vs. Topomax
Created by Jenlsbat10/30/09 - 5:17 pm|7 Comments
Created by Black....at9/11/08 - 6:23 pm|2 Comments
Topamax and constipation
Created by Black....at9/5/08 - 7:11 pm
Topamax Side Effects
Created by Black....at8/31/08 - 6:44 am|33 Comments
How long do you wait?
Created by ValNew...at4/17/08 - 5:40 am|7 Comments
New - i believe i have been misdiagnosised with panic disorder
Created by pixie0879at1/17/10 - 6:51 am|1 Comment
New - tegretol, low white count
Created by koalbat1/11/10 - 8:46 am|1 Comment
New - Lamictal and boobs
Created by seakatsat1/7/10 - 7:58 pm
New - Trileptal side effects
Created by mmolsenat1/6/10 - 1:42 pm
New - Trileptal - High dose side effects
Created by mmolsenat1/5/10 - 8:29 pm
New - Vimpat Side effect? --tight chest, out of breath but my EKG was n...
Created by Amanda...at1/1/10 - 5:10 pm|1 Comment
New - Normal EEG = Epilepsy?
Created by mmcinpdxat12/28/09 - 8:51 pm|4 Comments
Topiramate Side Effect
Created by chyat12/7/09 - 10:44 pm|2 Comments
Improvement with Topamax
Created by smallt...at12/3/09 - 6:57 am|2 Comments
Topamax Side Effects
Created by stacei...at12/1/09 - 7:12 pm|16 Comments
New - My 3 year old son and Keppra,
Created by asmend...at11/27/09 - 9:52 am|3 Comments
New - Pregnant on Lamictal AND Topamax
Created by sarahn...at11/14/09 - 2:34 pm|2 Comments
New - Epilepsy and emotional trauma
Created by nuvasooat11/12/09 - 1:03 pm|5 Comments
tegretol side effects - coloured urine?
Created by rudhekat11/12/09 - 7:24 am
may dswitch from dilantin to topamax, anyone had good results??
Created by jubatumat11/1/09 - 2:34 pm
Ritalin or Adderall for Depression with Epilepsy
Created by zeusjuiceat10/31/09 - 3:25 pm|1 Comment
academic and social regression
Created by lisaco...at10/30/09 - 9:54 am
should I switch from topamax before getting pregnant?
Created by adritu...at10/26/09 - 8:33 pm
Keppra-- Weight Gain?
Created by egpat10/26/09 - 12:24 pm|1 Comment