I'm a bit late on a reply here buy i've been having the same problem with Aetna for my daughter who has Lennox Gastaut syndrome, they preaproved nursing then once the agency was ready to get started they denied it. They also are denying a helmet for her which she needs since she has 100 seizures per day and constantly hits her head but they cover false breasts, and treatments for erectile dysfunction. Kinda unreal, I don't know how they get away with it. I am in the process of starting a movement against Aetna, not really sure what kind of movement but I am tired of sitting back and letting them get away with what I would call pure theft of our money. They have forced my daughter to get over $20,000 worth of surgery for feeding because they did not want to pay 100 a month for the only formula that would allow her to gain weight.