Re: comments.....

Thankfully she is very self confident, but she needs to work a little on the self advocacy piece.

The
sports thing is another issue entirely, but we are working through that
too.  It's good to hear you talk about college, because that is a big scary hurdle in our not too distant future.  

I called an IEP review meeting and I hope to address this issue then.   I witnessed another complex partial since I posted this.  It was so subtle it makes me wonder if she is having more in class.  That would explain why she comes home with her completed homework still in her binder ("the teacher didn't ask for it").  She really has no idea, but she is missing bits and pieces of her day.  Maybe another med. change is in the near future. 

It is so hard to explain this to other people.  It's like trying to explain the bottom of the ocean to someone who has never even been to the shore.  When you have no frame of reference, I guess it is really difficult to make sense of it.  If there were time, and people would listen, I would show these teachers the MRIs of the shrunken left hippocampus, the IQ scores that have plummetted nearly 20 points since 3rd grade, and the giant rhythmic spikes on the EEG that correspond to her left temporal lobe. 

Thanks again for your empathy and comments. 

My 18 year old son has grand mal and complex partials.  At the beginning of every school year I email the teacher to inform them of his condition.  I always have one teacher that just doesn't get it.   His soccer coach use to snap his fingers in his face and say "are you with me"?  I use to email him periodically, updating him about my son's condition.  His response was always "I'm sorry, I just forget he has epilepsy.  Currently he is in college and thanksfully, his best friend is in all but one with him.  So far, no partials in class--but just in case, sent an email to the one class his friend isn't in.  

Sadly, educators and the public only think epilepsy results in having grand mal seizures.  It's still a very unknown condition.