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hiya everyone,

my names mairi and my daughter sophie started taking seizures at 6weeks, we are not about 10weeks down the line and the seizures are still not under control.

she was diagnosed wrongly to start with myoclonic epilepsy and put on phenytoin, epilum and nitrzapam. she has now been weaned off all of these medicines.

in recent weeks she has been tried on steroids and vigabatrin- neither of which has had any positive effect on her eeg.

we are back at hospital tomorrow and i think sophie will be put onto acth.

I would like start this group to be able to talk to each other on a daily bases. We like to make some friends how have epilepsy and maybe sometime hang out. Everyone can always need a new friend. If you interest just tell me. 

Hello,

Is anyone dealing with a child having Absence Seizures? 

I cant beleive this will ever happen to me...i met a man when i travel to africa for business purpose last year and i told him that am suffering from epilepsy and he helped me to cast a spell,,i dont really beleive that the spell will work in the first place cos i dont believe in this spell stuff..but when i try the spell and i use it as he told me..and i travel back to US...u cant believe it that have never experinced epilepsy again for the past 4 months and when i called the man he told me have been cured totally and i will never in my life know what is called epilepsy again,,he said i shoul

I cant beleive this will ever happen to me...i met a man when i travel to africa for business purpose last year and i told him that am suffering from epilepsy and he helped me to cast a spell,,i dont really beleive that the spell will work in the first place cos i dont believe in this spell stuff..but when i try the spell and i use it as he told me..and i travel back to US...u cant believe it that have never experinced epilepsy again for the past 4 months and when i called the man he told me have been cured totally and i will never in my life know what is called epilepsy again,,he said i shoul

 my name is paul frombaltimore ...Ive been epileptic since my childhood and it had caused me so much embarassment, so much pain, it even happened a few times when driving.. i tried all solutions ...spent thousands of dollars with no visible result , and my son also developed it at the age of 14 and it was all thesame till he was about 20..i tried all medical solutions to no avail then someone introduced me to someone in africa that had a cure for it and i decided to give him a try...i went there once when i had a job to execute there and i decided to go see the man.

Hello all! I'm Ann and I just turned 27 a few days ago. Thank you for taking time to read my post and trying to help me understand what is going on.....

Hi folks, I will be losing my insurance in May, and I am taking Lamictal XR ( 800 mil per day) and I am having a HARD TIME trying to find a Health insurance provider that will cover me as soon as I enroll for it. Mostly everyone wants me to wait 12 months for pre existing conditions, and they want to charge you a arm and a leg for it. The "Hippa Insurance" is going to cost me over $1,500.00 a month, I told the guy that I might as well, pay out of pocket for my own meds instead of pay for the insurance. That is more than that Rent!!!

Is anyone else scared to be home alone with thier baby? I know that I usually have serizure in the morning. So I have taught my daughter that she has to stay in her room with the gate up until 10:30am. (I put a bowl of dry cereal in her room with a capri sun before I go to bed) That way if I have a serizure its not a problem. I still worry about it, there lots of other problems I worry about.

Take Control of your seizures by starting My Epilepsy Diary today.

Keeping a daily record of your seizures can help you and your doctor better understand and treat your epilepsy.

Open my epiCom Diary

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