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UPDATED: Fri, 11/13/2009 - 12:32pm

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Hismom
Hismom

Struggling today

I'm struggling today. 

 

After months of watching my son (who's been on Keppra since he was 13 months)  do wierd jerking movements during the night, I found out (via 24 EEG) that he was having complex partial seizures in his sleep.  And now, I'm seeing more and more of them through out the night.

 

The Dr upped his Keppra, and that worked great for 2 weeks, then he had the H1N1 shot, and had a few seizures post shot (no surprise) but they haven't stopped.  It's been almost 4 weeks and he's still seizing more than he did before the 24 hour EEG.

 

I'm so scared and frustrated.  My husband has no idea what our son's seizures look like, he's completely detached from everything.  

 

I'm tired, I'd like to sleep soundly just one night.

By Hismom at Fri, 11/13/2009 - 12:32pm | 7 views | 0 comments
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