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UPDATED: Fri, 11/06/2009 - 11:02am
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filly150
Vimpat for Primary Generalized Epilepsy
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Is anyone out there taking Vimpat for Primary Generalized Epilepsy? If so, what kind of luck did you have with it. I am just starting it as an add-on to Lamictal for Tonic Clonic Seizures. My doctor says that even though it is uses for partials, that all medications start out that way and eventually are used for different types of Epilepsy.
By filly150 at Fri, 11/06/2009 - 11:02am | 70 views | 11 comments
Topic: Medication Issues
Recent Comments on this Discussion
I am taking vimpat. I started 2 weeks after it got approved and it is doing great for me. I feel so stable like i did a year ago before I had my car accident last year.
I have very bad tonic clonic seizures. I have only had them since March of 2006. I have tried several different anti-seizure medicines. Currently I am taking a very high dose of both Keppra & Neurontin without much luck. The doctor then added Vimpat to the cocktail, which I am taking 150mg 2x/day. It seems to be working so far :) I have not had a single seizure in almost 5 months!
I do not have any side effects from the Vimpat.
Best of luck!
Hello,
What is your dosage of Vimpat? I take it with Dilantn and Lomotrigene. Do you think the blurred vision and uncoordination will go away. It last only one hour. It is weird though.
The doctor just increased my dosage of Vimpat. I get blurred vision and wobbley 1/2 hr. after i take it. This side effect last for an hour. I hope my body gets use to the side effects. I take it with Lamotrigene (lamictal) and Dilantin. I've had seizures for 16 yrs.
Has anyone had these side effects and did they get worse before getting better?
You are describing me adapting to Vimpat as I take it, with the side-effcts that I have been dealing with. I would have to say your body adjusts as you take it and it slowly goes away. I'm half-way through, what is a 5 week schedule for my for introduction to Vimpat. Every week as I take it the increase is 50 mgs , either as the weeks go by the increase for me is 50 mgs. to my morning meds. or 50 mgs. to my evening meds. I take it... about 30-45 minutes after I take it, I feel drunk for 30-60 minutes. My dose will be a total of 400 mgs. a day on top of my Keppra and Trileptal that I take daily. It has been working for me as well as it's been working for everyone else too. Good luck to everyone that takes it and don't be surprised if everyone experiences those side-effects.
Take care, Johnny
What kind of seizures are you taking it for? One thing I have done with my meds is I get up at 5:00 a.m., take them, and go back to bed. By the time I get up, I the side effects are pretty much gone. I take my evening dose with dinner, and that seems to help.
HEY!
WHAT A SMART IDEA. I CAN SET THE ALARM, TAKE THE MEDS. AND GO BACK TO SLEEP. DO YOU EAT ANYTHING AT 5AM?
I BELIEVE THE VIMPAT IS FOR GRAND MAL AND THE DOCTOR WILL TAKE ME OFF THE DILANTIN IF IT IS WORKING.
I NEED TO CHECK THOUGH TO MAKE SURE.
INCREASED THEM TODAY. NOW I TAKE 150MGS AM AND 150MGS PM
EVERY MONTH I HAVE 4-6 SEIZURES. THEY'RE PARTIAL COMPLEX AND USUALLY OCCUR WHEN I SLEEP. I'VE ONLY HAD 3 GRAND MAL BUT IT'S SCARY.
I normally have a smoothie in the morning. If I do anything in the morning it is usually swimming, but I don't think the drunk feeling is going to interfere with that. I'm not swimming right now because I'm still on Topamax, and I have a rash from that. My doctor said that the Vimpat is for Complex and Simple Partials and not Grand Mals. I'm willing to give it a try to see if it will work. Did you say it worked with your grand mals?
Hello,
I not sure if it's for grand mal seizures also. It's been 18 days since I've had a seizure. The last one I had was when I was ironing a shirt before a concert. It was a complex and I didn't even know I had it. My family told me. The neurologist told my husband, "she was ironing?". I don't iron often. It was just for the occasion.
It's been 8months since I had a grand mal.
Did you say you were taking Vimpat or thinking about it. I've basically tried every med out there and have a vns also. The lamital seems to be helping.
Good Luck!
Thank you for responding.
Those side effects(drunk feelings) are exactly what I was talking about. I felt bad when I was walking with my husband at the Breeder's Cup, Santa Anita. I had to walk more carefully and he wanted to hold on to me. My husband has put up with a lot. Sixteen yrs of seizures is nothing to joke about.
I'll continue the vimpat for awhile to see if I get used to it.
I recently switched from keppra to vimpat for Atonic seizures. I was on the vimpat for about 6 weeks but I was having too many breakthrough seizures (around 3 or more per week). Once I added the keppra back with it I have only had 1 a week, which is slightly better. Everything I have read says vimpat works better along with another drug so hopefully it works for you. Hopefully that helps you.
Staci :)