Surgery is the way to go! Slowly but surely recovering!


mark_88 New - Surgery is the way to go..im slowly but surely recovering! Created by mark_88at11/4/09 - 4:59 pm Surgery description

mark_88

New - Surgery is the way to go..im slowly but surely recovering!
Created by mark_88at11/4/09 - 4:59 pm

Surgery description

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Re: Surgery is the way to go! Slowly but surely recovering!

Hi Mark,

I go into Toronto on the 25th for my consultation for surgery for the exact same operation almost (my abnormality as they call it *not a tumor* is under the lobe so they're just taking it and some of the tissue). I'm having partial seizures and the meds they have me on are controlling them for the most part but I still have random small ones (more like a dizzy spell) every couple of days. From what they tell me i'll be knocked out though. I don't think i could be awake for it.

So you said you had headaches and nausea. How bad was it, and how long after the surgery did it last for? I've been doing a lot of reading about the surgery and they say that your face swells up pretty good. I know everyone is different but, any feed back would be greatly appreciated.

Just think, in a year if everything goes right you can drive, thats how i'm looking at it.

Thanks

By candyg... on Wed, 11/04/2009 - 11:00pm

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hey...finally a canadian on this site :P ...so ya as far as headaches and nausea its a headache covering your whole head but mostly on the temples n sides. its not a migraine it feels like a regular headache but a very strong one. it lasts about 5-6 weeks. As far as nausea, I got it because of my headache and my eating pattern so i dont know if everyone gets it so i took gravol for it and it worked great. It stops when the head pain stops. any more q's let me know! i hope that helped.

By mark_88 on Thu, 11/05/2009 - 6:25pm

Hey Mark,

Thanks for answering back so quickly. Seriously 5-6 weeks of headaches eh? (canadian representing) My eating patterns are already terrible because of the meds I'm on. I have almost no appetite, so once i get the surgery i guess the next couple weeks after are going to be alittle rough, but that was what i was expecting anyways. It's still better than having the damn seizures though.

So speaking of seizures, are you still having them? I know my doc said that i have about an 80% chance of coming out of this seizure free, and even if i do still have seizures they will find me the right combo of meds and then i will be 100% seizure free after awhile.

The reason why i'm asking so many questions is I was in a seizure clinic last december and meet awhole bunch of people who are having epilepsy surgery also and they have a million questions but they don't know anyone who has actually had the surgery. When I have mine i plan on doing the exact same thing you did and try and answer anyone questions. Doctors are great but they can't tell you what it feels like to have a seizure or brain surgery...

Thanks, Candice

By candyg... on Sat, 11/07/2009 - 8:59pm

Hey Candice, DO NOT be shy with questions! I know exactly how you feel and thats why I put myself and story on this site. I want to help people like you as much as possible. I was just in your shoes and I got no help so I decided to be the one to start helping and its great you're going to do the same I really appreciate it. As for seizures nah I haven't had anything since surgery. I Love not having seizures! The surgery pain is so worth it. Just think positive. I hope this helped. Don't be shy to ask!

Mark

By mark_88 on Sun, 11/08/2009 - 5:22pm

Hi, I have a 7 year old son who is facing the same surgery as you. It is really frightening as he has severe learning and speech delays so I can't have a conversation with him about how he feels and am worried about ok'ing an operation that I can't explain to him about.

By retreat on Wed, 11/04/2009 - 10:17pm

your response slid down a few sorry

By mark_88 on Sun, 11/08/2009 - 5:23pm

Our 12 year old grandson just had a right frontal and partial right temporal lobectomy, just 8 days ago. He went through the grid placement the week before and a lot of testing. He has left sided weakness from a birth injury so they felt that he would have very few, if any, deficits from the surgery. He has done very well. He does complain about not being able to say words but his speech does sound normal to us. Fatigue is the biggest thing for him at this point. He has not had the headaches and requires no pain meds at all. The swelling only lasted about 5 or 6 days and is only a small inconvenience. That said, he does have a small amount of swelling over the surgical site but his face is no longer swollen. We are happy to report that he has had no seizures. The doctor released him to go to school one week after the second surgery (grid placement was the first one) but he is still very tired and sleeps several times a day. Every day is getting better. It's worth it to not have seizures. He wants his driver's license and that motivated him to get the surgery. Life without seizures is a blessing.

By bamatr... on Sun, 11/08/2009 - 5:39am

Yes this surgery and everything that comes along with it is sooo worth not having seizures. Doctors always act and talk like they know what a seizure feels like and think its nothing but they will never know. You have to find a doctor who listens and really understands you to get the treatment you need. Good luck with your grandson. Glod bless.

By mark_88 on Sun, 11/08/2009 - 5:21pm

I had right temporal lobe surgery done in August '07, and had been seizure free up until just a few weeks ago, I had a breakthrough seizure ONLY because I had run out of meds and was not on them for a couple of days. Other than that one incident, everything has gone just great. I will probably have to stay on meds, but no problem. I have no side effects, so it wont hinder things at all. I'm thankful that I was able to have surgery, because it has truely given me a better quality of life.

By reba on Sun, 11/08/2009 - 3:53pm

By mark_88 on Sun, 11/08/2009 - 5:28pm

Ahhh so true...I'm still recovering but I've been seizure free since oct 9 and I feel sooo free already. That musta hurt or crushed you when you got that seizure after about 2 yrs seizure free tho. Sorry about that.

By mark_88 on Sun, 11/08/2009 - 5:27pm

well if you want to talk to him about/before the surgery you want to encourage him and excite/support him because I wanted my surgery my whole life and I even studied it as a kid/teen and throughout my life if there ways any new info I would pick it up right away so once I got my "golden ticket" I almost cried. I took it with no second thoughts. Its nothing to fear about. My surgery could've affected my speech,short term memory, and vision, but it didn't affect either one I'm the same way I was only happier and feel free for the first time in my life. The only down side is recovering because of the full time headache and feeling dizzy and nautios but its almost gone and its soooo worth it! This surgery can benefit his speech and learning delays because it could be the seizures affecting that part. I had a hard time learning due to my seizures. But I feel so lifted from this I do. So tell him all about the surgery and tell him the benefits and how he'll be afterwards (but be easy on the after surgery part cuz that could scare him). Its very beneficial to have the surgery so even if hes not responding comfort him and excite him for it as much as you can! Its nothing to fear!

By mark_88 on Thu, 11/05/2009 - 6:11pm

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Surgery is the way to go! Slowly but surely recovering!

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