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My now 5 year old son was diagnosed with partial complex seizures a little over a year ago. He has experienced about 20 seizures, all of which last 1-2 minutes and happen in clusters of 2-4 over a week long period always precipitated by a cold (ie. fatigue). Our neurologist says this is a 'benign' form (after EEG's, MRI, bloodwork etc.) and that he will likely outgrow them. He has asked us to start our son on Trileptal but so far, based on what I have read, the side effects, effacacy and withdrawal issues have kept us from agreeing.
Our son is upbeat, energetic and incredibly smart. He is thriving in kindergarten and his seizures have not interfered with the daily living of his our our lives (except where we take extra precaution to keep him well rested) We are choosing not to use AED's, is there anyone else out there who is also going the non-drug route? I would love to compare stories!
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My daughter was diagnosed in April and we havent begun any medication. She has "twitches" as I call them if she gets to bed late or up too early in the morning so we have a 8 oclock bedtime and it seems to keep things at bay (she's 10) A video EEG gave her myoclonic epilepsy dx. But I was reading all the side effects of various medicines and they seemed worse than the twitching. If she has a seizure, we would begin medicine or if her neurolgoist really suggested we should.
Please be careful with your decision because I tried that same route and it turned into generalized seizure which in turn lead to brain damaged from uncontrolled seizures.