I'm so scared, what's going on??
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UPDATED: Mon, 11/02/2009 - 6:46pm
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joezef7
Auras
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Now, I'm sure a large amount of people are familiar with these, and like myself, i'm sure you find it hard to put into words when it come to describing what exactly it feels like. for me, the closest I can get is that my bottom lip and right hand go numb, and that i get incredibly strange headrushes. I've had focal epilepsy pretty much all my life, and I started on Sodium Valproate (Epilim) and these stopped my tonic clonic Grand Mal seizures between the age of 13 and 17.
Then, at the age of 17 they started again, occuring maybe...once every three months or so. when they still didn't stop I consulted my neuro about it about a year later, and they changed my medication to Levetiracetam (Keppra). I started by lowering my daily dose of Epilim and starting on a low dose of Keppra. Now, instead of lowering the occurances of my seizures I went from once every few months to without fail, once a month.
This went on for nearly a year, whilst I was in my 1st year of university. Eventually I slowly increased my medication from 1000mg of Keppra a day, to 2250mg a day.
My seizures have now been stopped for the past 6 months. However, I still get something that I don't fully understand.
I get what seem like the pre-seizure aura but with out the numb hand and lip. I get just the headrush. These happen maybe once every week, and sometimes 2-3 times a week. Is this normal? Do other people get the same/similar?
Regards,
Joe, age 20
By joezef7 at Mon, 11/02/2009 - 6:46pm | 22 views | 1 comments
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Recent Comments on this Discussion
i do get the same thing, this is weird. i had them since 14 now 27, had the surgery, seizures were more controled but now latley i have been getting the same auras like you, being 2-3 a week. i have been getting so paranoid because i had an aura when behind the wheel (i was seizure free to drive legaly) but at that time i was on the freeway and my heart started racing, my left and right side of brain was pulsating while my eyes were stairing forward like a warning to get off the freeway or just pull over. its hard to explain. but at that point i was like oh crap, focus on the road, focus on the surroundings, dont get sucked into the 'dream thought' and fly off the road. so i immediately got off the freeway to the quickest stop and immediately pulled over took the keys out and just waited and focused on surroundings and breathing or head rush i guess. i called a friend to drive me home and dont drive anymore except parking (so i dont get a ticket). it just scares me, im so paranoid since that happened and to afraid to drive anyware. here we wait 3months to legaly drive again but with these auras i am scaired and dont want to put lives at risk, if next time this aura happens im afraid a seizure will be next when driving. its just become a constent pain, like everytime i have one i have to focus on more things in life with enough going on and things i have to do and then this happens and i get distracted. for now im chainging docs and would realy like my lamictal back.