It's been a LONG time since I have posted on here, some might not even know me or remember me... so I will give some background information...

Kaitlyn just turned 4, she started having seizures shortly before turning 2. She's had a variety of seizures, tried almost every medication available and even other types of treatments in hopes of finding something that works. She had more side effects than what we could tolerate at the time and made the decision to have her be unmedicated. Sort of a lesser of 2 evils type of thing. It was agreed on by the doctor. She's had several VEEG's, some with seizures, some without, some with constant activity, some without. So all-in-all a very different opinions from different doctors. She's been off of medication for almost a year, a little less than a year. We were still having seizures here and there, nothing that often but her behavior has been erratic. We had been traveling over 8 hours to see a neurologist but unfortunately we aren't able to do so anymore because we not only have 2 kids we now have 3 kiddo's, Nic (husband) joined the Army National Guard and just returned home from training but is in the midst of preparing for a deployment, and our insurance keeps changing from Tricare (military insurance) back to his insurance through his work, so we are having a hard time with finding doctors that are covered by both. We just got into a new neurologist that we had been waiting for over a year to see, she decided it was best to put Kaitlyn back on medicine again and see what happens, I agreed as it's been long enough and I want something to help. So she's back on Topamax, we've tried it before already- had some minimal side effects but we took her off of it because it wasn't working and she was having outbursts, we suspect it was the Singulair that she was on that time too...

Anyway, so now we are in the process of getting her started on Topamax (the ever increasing of the medicine slowly) and lsat night she did some really weird things...

We had just gotten to a Halloween party and she started to bend forward almost without control and was saying that her stomach hurt and she started to cry. I asked her if she was going to throw up, she said no. I asked if she had to poop, she said no. She wasn't completely out of it, but she wasn't completely there either. It was as if she was coming and going in a way. After that we decided to leave the party and go to a few houses as maybe that would be better. She seemed fine and then started again, she was sort of thrusting forward with arms going inwards (so hard to explain it) and was crying again. When she stopped I asked her again what was wrong and she said her stomach again. So we stopped and went to eat, she seemed fine. Went to a few more houses after she asked to go to some more and she did it again. After that last time though she didn't complain again.... I just don't know what to think of it all.

Could it be a side effect of the medication or seizures? A coincidence?

I forgot to add, that when we saw the dr she looked at Kaitlyn's latest EEG and it showed spikes in the Optic Lobe?? What exactly does that mean for her Epilepsy? I can't find anything!!!