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Hi everyone,
this is my first post-- I'd really appreciate whatever feedback you can give me. I had an EEG the other day in hopes of getting off AEDs all together, but no dice, still spikes and my neurologist still said I should stay on.
I had my first seizure about 3 years ago, docs believe as a result of scar tissue from surgery to remove a brain tumor. . . and i've had a few more surgeries since then. . .I started with keppra which didn't work for me. I've been on a low dose of topamax ever since,100 mg 2x a day, which is great for me. BUT, as many of you surely know topamax is now considered not the "safest" for pregnancy. My husband and I would really like to start a family and I just don't know what to do. I'm just so scared. . .my neurologist seems content with me on the topamax and worried about me switching, he also mentioned that we'd have to up the dose into a pregnancy.
Anything you could offer as advise or your own experiences would be greatly appreciated,
Adrianne