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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAY
As often I'm confused. Years ago I was a member of a chat group which became a very supportive as well as informational group. The group is no longer here. I don't remember my ID name back then so if any of the past members are here I wish I could know but don't see how.
I have had epiepilepsy for 15 years now. I have been considered a senior citizen. My children are grown now. The life they went thru was sure___
Within the past 2 yrs. I have been told that "Anyone who knows me knows that I exagerate everything and then by my husband that "I am the most negative person in the world."
I have experienced about every form of seizures. My doctor says that they have tried every type of drug there is and there is nothing more that he can do. He has me on Lamictal now. I have been on more than one med at a time but they stopped doing that after removing my right tempral lobe.
I still suffer from seizures but my dr's feel that they are all physdogenic seizures now. The people around me and some of the tests when they first began were described like that by many around me.
Now I have some proof that my seizures have been real during some points. They do not take out part of your brain because you just want attention and I could stop them anytime I wanted. O yah. About a year ago I was near the front of the church and had a seizure right during a baptism going on.
As I come out of a seizure my hearing is always the first to come back to me. The other night in bed I heard my husband yelling "It's like a zoo around here!"I found out that why he yelled that is because of our pets were reacting to them. There had been 2. It made him more disgusted than usual.
I should really be on the couch with my leg up to ease the pain in my ankle. When I had just been diagnoed with epilesy I was standing talking with my pharmacist, had a grandmal and when I fell I crushed my ankle. They tried three surgeries to finally put it together with metal. This last Aug. 27 they went in and removed the metal. It has been a long process since the surgery because it ended with complecations. I'll leave out the details.
I know that this is long and I appologize. It's just that no one understands and/or wants to hear about my problems. I'm here because right now I have no one to share my struggle with..
Since I have no memory at all I'm going to have to take a moment to find where I wrote my name as. It looks like it is We tried. Let me know if I talk to much and that I shouln't be here to just whine on and on.
Goodnight and God bless for the help you give.
Recent Comments on this Discussion
hello Tired
I have been having seizures for three years, they started when I was in my forties for no particular reason. I too had family members who doubted what I was going through, I have had to cut some of them out of my life. They even doubted the broken shoulders and head wounds. I have learned that not all people can handle what we have and that it is best to let them go. I need to use my energy for positive things and not waste it on the opinions of others. If you wish to chat feel free to email me at cloutierpaul@shaw.ca
Tonight when I was in my e-mail I found a note from the webmaster. I tried to follow it but when I was trying my computer showed al the ltters in suppure small form which with background color in some I couldent read anythg. I went to my computer control and had it make my font beger.. I then went back and tried again. After a few pages of guessing I got to my entry here and found my entry telling me how many had read and how many hhad replied. At least I managed to get in this time which made me able to e-mail to a woman She gave me her e-mail adress adress which is a blessing since I may be mixed up enough to find my way back again.
I just notice that what I am typing now looks very small. I don't know if this my problems or my computer is goofed up. I hope not because it is my main link with the outside world. I am pretty much homebound with my epilepsy and this is my way out.
I also use it to fill some of my days with programs that let me use my crativity and value. I make cards for people who need encougement, thanyou's etc. etc. I may not be able to get back to this site and this page but I do have that e-mail adress if my computer keeps going I can try to conntact her.
My font is really small and after getting it to look like it was going to be bigger it is now svery small again. I graduated from college with honors and now feel like a 5yr. old. I have to go to bed now and see what I can do tomorrow.