Place Your Advertisement Here. All ad revenues support the mission of the Epilepsy Therapy Project.
 

Welcome to the redesigned epilepsy.com

It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.

The new features include:

  • Streamlined design with less clutter to promote important content and sections
  • New slider masthead
  • New horizontal menu across the site to ease top level navigation
  • Re-designed content pages that are easier to navigate
  • Overall new, fresh look!

Place Your Advertisement Here

Take control of your epilepsy and seizures. Seizure management has never been easier.

TAKE CONTROL TODAY

Sign up for our Newsletter!



Keagan
Keagan

Not sure where the connection is...= /

Hi, my name is Sebastian, I'll be 17 in about 10 days =)

To get to the point, I've had these weird little 'episodes' since Grade 8 that were so confusing, and I had no idea why they started. Basically, I would get this feeling like I need to use the washroom, and sometimes it would lead to a very embarrassing incident where I would stall and shake for a very small amount of time, then I would laugh after or just shake my head in frustration / confusion. 

When I was 6 years old or so, I have this semi-vivid memory of waking in the middle of the night, not being able to see, (I wasn't scared for some reason) and I walked to the bathroom, turned on the light and still couldn't see properly. It was as if my dream was stuck as a slide over my eyes. I went to my mom's room and told her I couldn't see (which she remembers), and so I just fell asleep in her bed and I woke up and could see fine the next day.

Another weird incident occured around the age of 8 or 9, I was saying goodbye to my friend for the night before my step-dad drove him home, and I suddenly lost the strength in my legs, and it felt funny. I wasn't scared again, just shocked, my mom thought I was just being an attention seeker, but she laid me down on the couch and assumed it was a body flu.

Well, on labor day weekend a month n' a half ago, I was up til' 4AM 'partying' with friends (Weed / 40's of beer etc.). It could even have been way later in the morning that I went to the tent, but I ended up in my friend's tent we set up with my other two friends Sophie and Mike. I'm not sure how long I'd fallen asleep before, but I got the shaking feeling again, without the feeling of peeing. I knew I was awake, and I knew I was shaking, but I couldn't open my eyes.

The shaking continued for what I thought was an eternity, I was panicking, I was breathing so strange, and I even started imagining that my friend Sophie was standing over me, comforting me by saying 'WERE GONNA GET HELP! DON'T WORRY!" then I heard freakishly unsettling ringing, like I was about to die, then I could finally open my eyes!!!

Once my eyes were opened, I realised I HAD been shaking, and I could not feel my body, or any of my limbs. I was forcing out a loud 'Heaelp..." to my friends, all my words were fumbled...and my friends told me it was a sickening help, like a military casualty pleading through bloody lips. They didn't believe me at first, and I was screaming and yelling at them to help me up, and I couldn't feel my body while I was hyper-ventilating. My friend Mike said he didn't believe me because he claimed I had been laughing, which I don't remember at all.

I had no idea what had happened, until two weeks ago on a Thrusday night, I fell asleep at 3AM, only to wake myself again with eyes closed, to shaking for about 1-2 mins. (I'm actually not sure how long the first two lasted, I just assume that my memory serves me well) I called for my mom after listening to my hyper-ventilating breath overlap, and tricking myself into believeing somebody was standing over me, helping me. (It turned out to just be me...hearing weird). 5 days after that, last week on Tuesday, I had another at 7AM at my friends house. Same deal, but my left hand felt like it was trying to let go of something very vigorously, and when it ended I was able to stand up within 5 mins. and go to the washroom.

 

Some of my most major concerns are:

-Does the pee feeling have to do with the seizures? For the last three days actually, I've had discomfort in my 'crotch area' as if I need to pee, but I know I don't, and I just have the looming feeling it will eventually lead to a seizure.

-Do the childhood incidents represent early warning signs of future seizure-issues?

 

I haven't got a call from the neurologist I was assigned, or the CT Scan that was appointed by my family doctor. So no medication yet, no nothing. Just Ativan in case a seizure occurs.

 

Thanks very much for any feedback. =|

By Keagan at Fri, 10/23/2009 - 4:23pm | 37 views | 1 comments

Recent Comments on this Discussion

im 17 as well, and this is what happened with me.

i was diagnosed with epilepsy in first grade, but then never took any seizures, and still have never taken a full "convulsion" seizure since. However, i had become especially "spacey" and EXTREMELY forgetful come highschool years, so i went to the doctor's and they found out it was because of the epilepsy.

my point is, i dont know what you have, and i cannot diagnose you. however, i know that i wasn't sure what my problem was either. However, i got a full "neoropsych report" from a neorologist, who narrowed it down to what i had... i assume if you see a neurologist, they are/had done this(?) 

...if they havnt, ask for one, and they can tell you whether its epilepsy. it could be something completely different, such as anxiety attacks, night terrors, etc... 

epilep...

Related Content

View all Forums
 
criscobr
criscobr
Questions about partial seizures caused by heterotopia in both oc...
Created by criscobrat4/6/09 - 9:07 pm|6 Comments
Posted To:
malnwa...
malnwa...
New - Epilepsy?? Or Schizophrenia??
Created by malnwa...at11/28/09 - 3:55 pm|3 Comments
Posted To:
drowsy...
drowsy...
New - Confused about some terminology
Created by drowsy...at11/19/09 - 11:55 am|2 Comments
Posted To:
joyjohn
joyjohn
New - Seizure/Epilepsy medications
Created by joyjohnat11/19/09 - 4:30 am
Posted To:
Mr.D
Mr.D
New - Do I have Epilepsy?
Created by Mr.Dat11/17/09 - 12:27 pm
Posted To:
sunsta...
sunsta...
New - could this be an aura?
Created by sunsta...at11/17/09 - 11:18 am
Posted To:
Mosmer36
Mosmer36
New - Can somebody relate to me and tell me im not the only person like...
Created by Mosmer36at11/14/09 - 9:31 pm|5 Comments
Posted To:
jmal
jmal
New - Coming off medicine? Thoughts?
Created by jmalat11/14/09 - 6:27 pm|4 Comments
Posted To:
maymae
maymae
New - Cussing During A Seizure
Created by maymaeat11/9/09 - 4:34 am
Posted To:
cdcg19
cdcg19
New - what to do EPilepsy and ADHD
Created by cdcg19at11/8/09 - 7:48 pm
Posted To:
remedy...
remedy...
New - Myths About Epilepsy
Created by remedy...at11/4/09 - 11:49 pm
Posted To:
gracie...
gracie...
New - My Story...
Created by gracie...at11/3/09 - 3:20 pm
Posted To:
mblack618
mblack618
New - Affection & Intimacy with Epilepsy
Created by mblack618at11/1/09 - 11:35 pm
Posted To:
epi_help
epi_help
New - Welcome to My Epilepsy Diary!
Created by epi_helpat10/31/09 - 4:53 am|1 Comment
Posted To:
Childr...
Childr...
Video blog of teens coping with epilepsy on Thrive
Created by Childr...at10/27/09 - 11:03 am
Posted To:
Childr...
Childr...
Video blog of teens coping with epilepsy on Thrive
Created by Childr...at10/27/09 - 11:03 am
Posted To:
Childr...
Childr...
Children's Hospital Boston's epilepsy-related information
Created by Childr...at10/27/09 - 10:30 am
Posted To:
phylis...
phylis...
"Fighting for a Cure" on DVD
Created by phylis...at10/26/09 - 4:45 am|1 Comment
Posted To:
phylis...
phylis...
Katie Couric Reports On Epilepsy: A Fight For The Cure
Created by phylis...at10/23/09 - 2:52 pm|7 Comments
Posted To:
phylis...
phylis...
Award-Winning Actor Danny Glover Featured on "Sharing Miracles"
Created by phylis...at10/23/09 - 1:10 pm
Posted To:
Christ...
Christ...
New - Mom needing advice
Created by Christ...at10/21/09 - 8:26 pm|12 Comments
Posted To:
borgma...
borgma...
New - Best Size of High-Def TV for an Epileptic?
Created by borgma...at10/19/09 - 4:45 am|4 Comments
Posted To:
cma_0418
cma_0418
epilepsy and the brain
Created by cma_0418at10/16/09 - 8:42 pm
Posted To:
kimber...
kimber...
Is my Epilepsy from the American Measles?
Created by kimber...at10/14/09 - 7:17 pm
Posted To:
Heathe...
Heathe...
60 Minutes doing a show on Epilepsy on Sunday October 25, 2009.
Created by Heathe...at10/14/09 - 3:30 pm
Posted To: