Place Your Advertisement Here
All ad revenues support the mission of the Epilepsy Therapy Project
 

  • Insights & Strategies
  • Seizure Medication
  • Videos
  • Seizure Diary
  • Find a Doctor
  • Epilepsy Centers
  • Clinical Trials
  • Event Calendar

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project

 

Hi All,

I had left temporal lobe surgery on the 12th July this year.  The first month was great - nothing really to complain about and I spent most of my days going for walks and then relaxing at home.

I then started working (11 August) and since then my life has been uncontrollable

Hello,
How do I get the doctors to listen to me when they think it all in my head?
Let me start at the beginning.

So I had my first EEG this morning. It started alright..the EEG tech had epilepsy as well and we were carrying on a wonderful conversation. She made me feel very comfortable. I was a little nervous when she was attaching the wires to my head and the alcohol was making my scalp sting..but other than that it was cool. Ugh then the strobe lights came on. Slow at first , then sped up. By the time the third speed came I started getting "THE" nasty feeling in my head..I started crying and hyperventilating. I was so embarrassed. I couldnt believe I was crying!!

hello everyone,  I am new to the site.  My now 2 year old daughter has
taken her first dose of topamax this morning for her "spells".  It is a
long story.  I'll start from the beginning.  When my daughter was about
6 months old she would have episodes of down beat nystagmus that lasted
about 15-30 minutes.  She would be able to look at you if you said her
name, but she would soon drift back to the nystagmus.  at about 10-11
months she quit having these episodes.  then at approx 18 months she
startes having episodes of fine horizontal nystagmus with vomiting,

hello everyone,  I am new to the site.  My now 2 year old daughter has
taken her first dose of topamax this morning for her "spells".  It is a
long story.  I'll start from the beginning.  When my daughter was about
6 months old she would have episodes of down beat nystagmus that lasted
about 15-30 minutes.  She would be able to look at you if you said her
name, but she would soon drift back to the nystagmus.  at about 10-11
months she quit having these episodes.  then at approx 18 months she
startes having episodes of fine horizontal nystagmus with vomiting,

Hi, My name is Rena. I've had epilepsy for 10 years, I have complex partial seizures. I also have bad migranes and panic attacks. I take lamictal, topamax and vimpat. I use to have seizures every week. I started taking vimpat recently and it has decreased my seizures.

Hi everybody,

Memory is a big problem with me as I'm sure it is with many of you.  A nocturnal sz for me (all of mine but 1 are nocturnal) devestates my memory.  Myself and others have noticed some improvement lately and I can't help but wonder if it has anything to do with the fact I've been going to the gym about 6 days a week for an intense cardio workout.

My dr believes I may have been misdiagnosed with a heart arrhythmia and am having seizures. I wake up around 3am occasionally, feeling extremely nauseous and like i've been hit by a truck, as far as anxiety. I KNOW what's coming next, I have a few minutes of warning. Plenty of time to wake my husband up and get a drink, I usually pace back and forth a few seconds before waking up my husband. My heart often races during this time, and sometimes I get a major burning feeling in the back of my upper neck and in the back of my head.

Take Control of your seizures by starting My Epilepsy Diary today.

Keeping a daily record of your seizures can help you and your doctor better understand and treat your epilepsy.

Open my epiCom Diary

Title Posted
EEG's Suck! First timer  
baggytrousers
Epilepsy and Life Insurance  
rw
After effects from Surgery  
happygirl
seizures while sleeping... how do you know?  
Ashleigh.Ruiz
How do you change a inconclusive diagnoses to one you believe you have.  
xwovie
New to E, New to site.  
jameskirby
Afraid of DRIVING  
funwithsteak
24 Months and Not Walking/Cruising or Talking  
JacksMommy
Difficulty understanding speech during a seizure (but hearing you!)?  
snowwoman
Unable To Work, Memory Loss, Etc! How Do You Cope With It?  
RenaGrl808
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
my seizure history  
preme
Booyah releases InCrowd for iPhone and iPod touch  
imblocker
An apple iphone app developer’s diary, and some thoughts on Android  
imblocker
Redesigned iPhone four Credited out Sept 30?  
imblocker
Accessories for iPhone  
nikoyoung
What is DRC, DAR, PGC?  
Moodyxh
tommrow appt  
tweety 12
WHY? WHY? WHY?  
Adz
how life can be  
aek1985
Laura's Blog  
laurapryor44
View all Blogs

Title Page Views
Inspirational Quote - My Own Personal Inner Thoughts  
Butterflygrl
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
side effects of phenobarb.  
pksmom
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
View all Blogs

Title Posted
Epilepsy with showers and baths  
sftbllcutie4lft
Angelia(baby girl)MY LIFE  
angie1261
Lucky to be alive.  
nookums2000
waking up at 42 and what happened  
judyjudy01985
m alana  
scaredypants19
Ed Hardy makes UK trade show debut at Londoncentral  
guoke
Epilepsy Journey  
chiotlune
VCD, SVCD or DVD?  
nikoyoung
Rose's Story  
Amber Randall
From the confusion and insanity of epilepsy came insight, awareness, and understanding, with intuitivness  
manwithepilepsy
View all Stories

Place Your Advertisement Here
All ad revenues support the mission
of the Epilepsy Therapy Project