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jamie ...
jamie ...

INSURANCE COMPANIES MAKING US TAKE GENERICS JUST BECAUSE THERE IS ONE AVAILABLE

DOES ANYBODY KNOW A WAY TO GET AROUND THE INSURANCE COMPANIES THAT ARE MAKING US TAKE THE GENERIC LAMICTAL
OR ANY GENERIC MEDICINE JUST BECAUSE THERE IS A GENERIC AVAILABLE. THEY SAY IT IS JUST AS GOOD BUT HOW CAN IT BE JUST
AS GOOD IF THEY ONLY REQUIRE IT TO BE 80% EFFECTIVE ? THE RELEASING COMPOUND ALSO RELEASES IT AT A DIFFERENT RATE
MAKING YOU HAVE ANYWHERE FROM 20% MORE OR 20% LESS.20% MORE YOU CAN GET TOXIC 20% LESS YOU MAY HAVE A SEIZURE.

MY INSURANCE COMPANIES IS MAKING ME. TAKE GENERICS EVEN IF THE DOCTER SAYS NAME BRAND ONLY.

DOES ANYONE KNOW HOW TO GET AROUND THIS SO WE DONT HAVE TO PAY A FORTUNE JUST TO RECEIVE THE NAME BRAND?

IF THERE IS A WAY PLEASE POST IT SO EVERYBODY CAN BENEFIT FROM IT. I ALSO WOULD LIKE PEOPLE TO CONTACT THE F.D.A.
MAYBE IF ENOUGH PEOPLE COMPLAIN THEY MAY DECIDE TO MAKE GENERICS 100% EFFECTIVE RATHER THAN 80%.

By jamie ... at Thu, 06/18/2009 - 7:14pm | 193 views | 19 comments
help

Recent Comments on this Discussion

There are still a couple of avenues you can try: 

  1. Contact your insurance company; explain your situation.  They'll give you an 800 number to give to your neurologist.  He can fill out a letter of need, explaining the necessity for you to get Lamictal, instead of the generic.
  2. Contact you neurologist.  Have them send the info to the insurance company.
  3. Do you have Medicaid?  Sometimes they'll pay for it.
  4. Sometimes the pharmaceutical company will provide the brand name drug for free!  If they do, it will be sent to your doctor's office; which will give it to you.
  5. Of course, make sure to contact your congressmen/women.  Go to their individual websites and find a Privacy Release Form.  Print it out, and fax it back to them.  You can mail it back, but a fax is preferred because it is a legal document, it will get there sooner, and it won't get lost in the mail.  The reason they need it, is because they're not allowed by law to discuss your case without your written authorization.

Perhaps your "significant other" can fax it from his/her office.  If not, your local Kinko's or other office store will fax it, for a fee.  Make sure to keep all paperwork in a file.

Starting next year, I'll be in the same boat.  My insurance company won't cover Lamictal, either.  However, my neurologist is getting started with the paperwork.

Good luck! - T. Cameron

tcameron

T. Cameron,

That is really good advice.  I'm that organised on the good days I still have once in awhile.  I always used to be that organised.  Oh well.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

zealot

Have your Dr. prescribe LAMICTAL XR. there is no generic equivalent for the XR version!

mcm

Jamie,

Prescribing laws vary by state and payments vary by policy.  Make sure your doctor puts Dispense as Writtent or Do Not Substitute or whatever is required by the laws of your State.  Then make sure he takes whatever steps are necessary to get your insurance company to pay for the brand name.

What you are talking about is something called bio-equivalence.  You have the 80% number correct as it is a lower bound, but we're not talking about "effectiveness" here.  Bio-equivalence is determined by in vitro dissolutions tests and has to be within -80% to +125% of the control, which is the brand name medication.  These percentages are based on a combination of the absolute results and batch to batch variation.

It's pretty complicated and I won't bore you with the details.  I've actually read the statutes on bio-equivalency contained in US Title 21.  I almost lost my lunch.  It's pretty horrifying.

There are two grades of generics:  AA and AB.  I haven't found a generic controlled substance that wasn't AA, meaning that it has to be the same as the brand name control.  I don't think the DEA would tolerate it.

The DEA have money and political muscle.  The FDA have neither.  I have spoken to people at the FDA.  They don't even have the staff or the budget to enforce the pathetically lax laws that are in effect.  They have no money to send inspectors to foreign pharmaceutical and chemical manufacturers to inspect their plants to see if they comply even with minimal standards!

The whole thing is a crock.

WRITE TO YOUR CONGRESSMAN!  YOUR REPRESENTATIVES.  THE FDA WANT TO MAKE THE CHANGES, BUT THEY CANNOT.  THEY NEED FUNDING SO THEY CAN ENFORCE WHAT LAWS THERE ARE AS INADEQUATE AS THEY MAY BE.

FILE ADVERSE EVENT REPORTS.  DO WHAT YOUR DOCTORS ARE SUPPOSED TO BE DOING!  IT IS THE ONLY WAY IT WILL GET DONE!

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

zealot

Your insurance company is making you take the generic version of the pills that your doctor is writing brand only on your prescription?  Has he been informed of this?  It sounds illegal.  This could affect your safety, your LIFE!  Of course, you already know this.  BTW, who is your insurance company, so I know not to use it?

tcameron

I cant really see a way around it. As any other business, insurance companies will try to keep their expenses to a minimum and that includes recommending the generic drugs available. Maybe if you get a more expensive and more detailed insurance quote in witch you specify exactly the type of meds you will require...

archie...

Most health insurance companies will make us take the generic drugs instead of the recommended ones because they are a lot cheaper, not because they are just as effective. I got my coverage from let property insurance and in the contract, it was stated that, because I have a preexisting disorder, I would receive only the prescribed treatment without any replacement. Until now, I am satisfied with the way my coverage worked.

DavieA...

I brought to my Doctors attention that I prefered Trileptol over generic  Oxcarbazepine and my insurancec Blue Cross in California, did not raise an issue.  For me it was a conversation with my physician.  Good luck

sunspo...

refer to above posted comment

sunspo...

I spoke to my neurologist about this very topic.  He mentioned that the drugs are all the same, but the other ingredients used to hold the drug together into the pill/capsule can change the drug's effectiveness by %20 in either direction. 

One way to make sure your insurance company pays for the real brand name drug is to have your doctor write "no substitutions" on the prescription.  They HAVE to fill the brand name prescription with that statement.  Of course, your doctor might not want to write that on your prescription.  

Your neurologist will tell you which drugs are/aren't safe to take as generic. 

Good luck!

 

tcameron

we went thru this with my husband's lamictal. he has blue cross. they have a form that the doc has to fill out indicating brand name only. generic means he ends up having more seizures.  call your insurance co. and tell them that you NEED brand only, that generic increases your risk for more seizures . be calm, be patient...scream only after you have hung up the phone . it took nearly 5 months to get this done, meanwhile paying nearly $1000 a month for his prescription.

i hope you can get your insurance co. to work with you...and that your doctor has the patience to work with you on this til it gets resolved.

kathy

kathyc

Tried to post this comment earlier but something happened and it wouldn't let me.  I live in Canada and am on Lamictal and Keppra.  The generic doesn't work for me.  My pharmacist suggested filling the generic while I still have some of the brand name left.  Put the generic away (I use it in case I run out of the brand name) and continue with the brand name.  Contact the Special Health Authority right before you need to refill your brand name prescription and tell them the generic isn't working. (Usually my doctor contacts them).  So far, they've okayed the Lamictal and I'm looking at getting the same thing done with the Keppra. I know it's expensive to start with, but the savings is astronomical.

Terribee

Generic prescribing for epilepsy
remains controversial. This study aimed to ascertain if a change
occurred in the incidence of seizures or side-effects when a different
pharmaceutical manufacturer's version of the same antiepileptic drug
was taken (a ‘switch’). Forty general practices with a list size of 350
168 were recruited. They identified with radiology 2285 people being treated for
epilepsy with either carbamazepine, phenytoin or sodium valproate. A
questionnaire was sent to the people with epilepsy. Those who recalled
taking a different pharmaceutical manufacturer's supply of the same
antiepileptic drug over the last 2 years were interviewed by their
practice if they reported a problem with the control of their epilepsy
after a ‘switch’. 

melanyor

If nothing is done to reform the current system, the cost of health care will increase. That said, trying to cut insurance cost spending is a gamble, and as much as anyone needs debt relief these days we all need several forms of insurance as well.

RaquelK

I am also on lamictal and I have noticed that there is an inconsistant effectiveness of generic versus name brand.  My Rx is mail order in 90 day intervals.  For several weeks, I was not all that comfortable with the way that I was feeling, in a sort of a constant aura, or feeling on edge.  I reorderded my Rx just as soon as I was allowed to.  I still had 30 days left of this shipment when I received the next.  I immediately started taking the new shipment of Rx's and I felt great.  I still have 30 days left of the prior shipment so, once in a while, I'd slip in a couple of days worth of the old shipment.  I can tell the difference, I return to that uncomfortable aura like state after taking the old shipment for a couple of days.  Of the three pills that I take a day, one will be from the previous shipment until that shipment is gone.  That's the only way that I can find to safely get rid of them.   I obviously cannot throw out the balance of the first shipment but I don't want the on edge/aura like sensations either. 

If a doctor, insurance company, an employer (on behalf of the insurance company) tries to convince you that generics are just as good, they're wrong.  Common sense says that if generics were just as good, their cost would be equivalent to name brand Rx's.   

Steven

woodland

I mean no offense

Really and truly I don't mean no offense.

Yet, folks get so upset about insurance companies refusing to pay for brand name drugs that they insist on taking or their doctors insist on them taking.  Because the insurance companies may refuse to pay for the drug BUT will cover the cost of a generic, folks feel that the insurance company insists they take the generic. 

Insurance companies are folks in business suits and dresses, sitting behind a computer screen, processing claims and withholding monies on claims.  They are in business to make money and they don't make money by paying out large amounts on brand name drugs when there is a generic.

Yet they do not force generics on anyone to swallow.  They just don't pay for the brand names and the patients, if they insist on taking the brand name, have to pay the excessive pharmaceutical costs out of their own pocket.

I'm not for the insurance companies and in fact despise them.  It's just common sense and the way the system works.  Your insurance company isn't your friend and isn't looking out for your health.  Sure they may cover some portion of the cost of your medical expenses but they deny or restrict vast amounts of things you probably greatly needed but didn't get cause the medical provider knew he/she/ or it wouldn't get paid.  It's business.

Generics are not exactly the same as brand.  If so, there would be no generic drugs and only brand name drugs.  Generics are cheaper because they are made cheaper and in larger volume.  The main active compound ingredient must be within some parameter of the brand name but all the other stuff, the inactive or ancillary compounds or formulations can be very very different. 

This is why, for example, you may not develop hives on the brand name tablet but you take the generic and have to be rushed to the ER for an allergic reaction OR vice versa.

Insurance companies CAN NOT MAKE YOU take a generic if YOU DON'T WANT TO TAKE A GENERIC.

If your doctor writes on the prescription pad "Dispense as Written" or "DAW" with the brand name listed, the Pharmacy for whom you take that prescription to - by law - must fill that prescription with the brand name drug listed on the prescription.

NOW, whether YOUR insurance company decides to pay for, or any portion thereof, the brand when they know there is a generic available - is completely up to them to decide.

If they, the insurance company, decides that they don't want to pay for, or any portion thereof, the brand name drug when they know there is a generic available... THEN YOU CAN decide to take the brand name drug and pay for the cost out of YOUR pocket which is very expensive.

HOWEVER, the Insurance Companies can not force a generic pill on you when the doctor wrote "dispense as written" or "DAW" on the prescription.  Any pharmacist who dispenses a generic pill when the MD specifically wrote "Dispense as Written" or "DAW" for a brand name... should be investigated. 

They (the insurance company) can however, refuse to pay for the brand name drug.

If there is a new law somewhere where a pharmacist can switch the script without the MD who wrote it's authorization... someone needs to post it here.

 

 

 

 

pewter

Hello,

Recently I had to get a refill on my Depakote. The first prescription I had was for the name-brand drug, which is obscenely expensive. Luckily my insurance covers most of it. However, my neurologist and I are still working to completely control my seizures and starting a generic drug in the middle of the process would be unwise. I told the nurse at my neurologist's office to make sure that the medication refill would be Depakote ER and not the generic one. She understood why and then told the neurologist and agreed. At the pharmacy, they gave us the real thing even though it is more expensive (we paid full price of course, minus what the insurance covers). 

Basically, as long as your doctor notes on the prescription that he or she wants you to have the name-brand drug and NOT the generic, the pharmacy has to oblige. I am also on Dilantin but my neurologist put me on the generic one in his initial prescription, just because of the costs to us. Talk to your doctor or neurologist one-on-one if you can and ask them to make sure the pharmacy knows to give you the correct drug. Bug their nursing assistants about it too. Taking generics suddenly when you are on the name-brand drug because of your insurance company is just unacceptable. It's way too dangerous.

If this is what you're already doing, I will ask my mother if she knows anything in particular about how it all works considering that she works in the hospital pharmacy.

Hope you have success

-Hrafn

Hrafn

I've been having trouble with my Dilantin levels, for a combination of reasons. 

My doctor requested weekly blood levels until he could be sure that my dose was in therapeutic range. 

I'm constantly afraid of losing my insurance and having to pay for the brand-name drug out of pocket.  I'm switching to lamotrigine now as the doctor says there are fewer problems with maintaining the level.  I purposely asked for the generic so that I could be confident that I could pay for it.

Once I'm off the Dilantin, I will ask for weekly lamotrigine blood levels till we're sure the dose is right.  That way, even if the generic pill delivers a lower dose than the brand-name one, we can adjust how many I take.  I'll still be at the therapeutic level.

Could that work for you?

Best wishes from New Jersey

NewJersey

My doctor writes myne for brand only and I have never had a problem.  What insurance do you have?

emva01

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