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lusima
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hey everyone, gald to join the group. I'm 34 and started having isiopathic temporal lobe seizures at age 18. no fmhx or pmhx. had brain surgery, didn't help; but became a neurodiagnostic technologist and take care of the wonderful people that go thru what i also enounter. I wanted to know if anyone is on the Nuvaring? I have PCOS and had surgery for that, BUT do onot have catamenial szs.!!! just now my period have never regulated. I hope you all have a great day! don't walk in fear!
By lusima at Tue, 01/27/2009 - 5:10am | 19 views | 4 comments
Topic: Women and epilepsy
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Name: Women and epilepsy
Since: Apr 10, 2008
About the Group:
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start a group to talk and get to know other people with the same seizure and if when it comes to certian subjects you can get a second opinion. Overall one will be able to converse and find out information that can help medically and socially.
You must register in order to post into this group.
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2012 Epilepsy.com. All rights reserved.
Recent Comments on this Discussion
The Nuvaring has been amazing for me! I have had two solid months sz-free now ever since I have started it. I have catamenial sz and I was skeptical of it but the gyno suggested it since it I didn't want to go on Depo and I'm too scatterbrained to take a pill! Also, since it stays pretty much where you put it, it would not interact with the Topamax so much. I am shocked to say the least, I'm wasn't very optimistic after four years of seemingly uncontrolled epilepsy and constant switching of meds. And I barely have an side effects, the worst of them are from the Topamax. I look forward to lowering it if this continues! Nuvaring def. is not going to work for everyone, but it is worth a shot. I am glad I wasn't scared away from it because it had a little estrogen in it. Whatever it is doing for me, it is what I needed.
Unlike the other respondent, I LOVE the NuvaRing! I went on the NuvaRing because I was having breakthru bleeding on other oral contraceptives (tried both Yaz and Yasmin) that interacted with my seizure medication. So far, being on NuvaRing has not caused an increase in my seizures and my breakthru bleeding has ceased. It's also nice having to take one less pill everyday. To each his own, but for me, being on Topamax and NuvaRing, so far so good.
Do not use the Nuvaring!!! The same day I started using the ring, my auras disappeared and my seizures became uncontrollable. I tried it for one or two weeks to see if it was something else that was causing this to occur. Two days after I took out the ring, my auras came back and my seizures started responding to medication. I love having auras because they warn me when I am going to have a seizure. I do know that there were posts here that stated that other females had their seizures become uncontrollable when they used the ring. Try Yaz or the patch. I used both of them and they both didnt affect my seizures in a negative way. I am currently on Yaz which helps me with the fact that my seizures usually get worse the week before and during my period.
thanks for responding. Ive tried everything and nothing has regulated. what blosw my mind was my neurologist told me 2 yrs ago to get an ovary ultrasound and thats how i found out that I had PCOS. its very common in women w/ epilepsy. if it wasnt for her, would i of have been dx because my ob-gyn docs never brought anything up of this sort! well, ive been on the ring for 5 weeks now and absolutely hate it, i rather take the pill everyday. the only good thing about this it bypasses ur liver and will not interfere with medication use. i will see how my szs do with it, im comcerned of just my daily living.
thanks so much, best of luck. keep me informed of how ur doing? Maria