Christmas comes and goes so fast. Im one of those that wants the tree down and everything put away the next day, Im over it. Not that I don't like Christmas, I just hate clutter. Toys, boxes, etc scattered all over the place is driving me nuts. I'll still leave the tree up for a while, at least until new years. This year the lights on my tree stayed on all the time. So my tree has been lit up for about a month now. Ive never done that before. Definately got more use out of them this year. We had a great Christmas and everyone was very happy with what Santa brought for them. Sarah was given so many nice things this year, her favorite things were dinosaurs and Biscuit. Her closet is filled with dinosaur stuff. I think Ive said before that she plays like a boy. She was never a real baby doll child, she preferred playing with batman, etc. I think it's because she has a dad that plays with her a lot. Jessica got many things too and her favorite was a z-Vibe vibrating stick. It's a speech therapy/oral sensory probe that you put in her mouth. She loves it because it feels good on her gums. Her favorite toy was a little train with balls that go inside. She likes Sarah's Biscuit too. Sarah didn't get up until 6am Christmas a.m., I was happy. She was excited to see her presents under the tree. Within 30 minutes, it was over. I hope everyone had a great day and got everything they wanted ;) I also hope you thanked everyone that got you a gift. Im always amazed at the people I get gifts for that never say a word. It makes me really angry, but it shouldn't, I know. Is it really too much to want a thank you though?
I think Ive decided about Jessica and daycare. Sometimes a moms intuition comes into the picture and you get a feeling of what you should do. Over the last couple of weeks more and more signs have been shown to me to help make a decision. So she'll be changing in the next few weeks. Im excited about the change for her because she'll be getting the things she needs during the day. She will also be around someone her own age and hopefully learn from them. She'll also have lots of room to explore and walk (eventually). I think Sarah was about 1 1/2 when she left her babysitter and went to regular daycare. My checking account will be so happy about the change too. She's met the new people and we are slowly introducing her to them so the transition will be smoother. She is a very happy, outgoing baby but at the age where change is a major event. It can be full time which is good too. That way she isnt going 2 places during the week. She'll still be at her regular babysitters a lot. Definately on weekends more than previously. Im hoping to get more time with Sarah on the weekends. She is having a difficult time and it's partially because of the lack of attention from me. She's not doing too well academically right now and getting in trouble for talking too much. So Im hoping by having extra money and using her babysitter on the weekends or evenings, I'll get one on one time with Sarah. You don't get that time back and she desperately needs that attention. I have to say that her teacher isn't the best this year. She's not very helpful when a student needs a little extra help on a subject. I am just shocked at the things 1st graders are learning. She is doing math word problems with very easy algebra. I say easy because for an adult it's easy, for a 6 year old it's too much. Some are hard for me too. Maybe I dont understand the reason why they do this but I certainly don't remember doing homework every night in 1st grade. I was pretty bad in math but still graduated college with a 4.0. Most of my classes were Chemistry or Physics based so I'd say it was pretty hard stuff, but I cant do some of Sarahs 1st grade math problems. I feel like Im on the show, are you smarter than a first grader sometimes. I certainly don't have teacher skills or the patience to teach. I have to hand it to the teachers out there. I don't know how you do it, especially at this age. Teachers definately don't get paid enough for what they're required to do. There are some bad teachers out there (Sarahs this year) but I think most are great people. My sister is a teacher. Hats off to ya sis.
So many people ask why we do certain therapies and I found a good way to explain.
These examples may sound extreme but for some with sensory processing disorders they are not.
At least as adults we have grown to understand ourselves and our bodies. We know what we can and can not tolerate, what does or does not feel good and most importantly, we have the coping skills and problem solving abilities to deal with it the best we know how. These children do not!
Unless we understand what is going on, help them understand their own bodies and minds, get them the right treatment and help them find the coping skills and insight, they will continue to suffer until adulthood.
Sensory processing disorders are best treated if caught before the age of 7 when the nervous system is still malleable.
It is imperative we identify and treat these children as early as possible so we can make a positive difference and get to them before...
I decided on Jessicas party. Even with having only close family, that would be around 20-30 people so Im going to do it that way. I wont hurt anyones feelings if only family attends. Kids first bdays are really for the parents anyways. They have no clue whats going on. Im sure all the neighborhood kids Sarah plays with will be over to jump in the moonwalk and that's about 10 kids on top of my family. I just want it to be special because she's gone through so much. I'll do it at home and Jessica will have prism cake for her bday cake. Prism cake is a Christmas cake my grandmother made every year and I didn't even think about it until Christmas. It's basically cool whip and all different colored cubes of jello stirred up. There's other stuff in it but I can't remember what thickens it. It gets a little formed in the fridge, thicker than pudding. I love it and Christmas wouldn't be the same without it. Jessica tried it and loved it too. It'll be messy but so much fun. So people will be eating prism cake, Im not making 2 ;)
New years eve both girls will be spending the night out. Jessica had way too many seizures on July 4th because of the fireworks so she's going to Robins where their neighborhood doesn't do them. I know our culdesac will be doing them. She's been doing so well and I doubt she'd have any but it doesn't hurt to prevent them from happening. Then it will also give me a chance to clean my back yard after the fireworks are done. There ends up being tons of trash from them. I hate that.
My brother's strange seizures
Created by Eryn.w...at9/29/08 - 3:22 pm
My brother's strange seizures
Created by Eryn.w...at9/29/08 - 3:21 pm
New - SCN1A gentic test-
Created by sushinaat6/15/08 - 7:52 pm|3 Comments
Created by mommy2...at12/25/07 - 7:22 am|1 Comment