Can exercise induce seizures?
 Loading
|
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAY
Hello, I am new here and I need some help/support.
I have had seizures (or) something that appears like them for the past few years.
They have gotten worst. And, I don't know what to do. I don't have medical insurance at the moment, or able to get the medication that was prescribed.
I guess, I am needing information from people who have been diagnosed with epilepsy, to see if what is happening to me, physiological or a real medical issue.
This is what happened to me today:
First I felt odd, like an feeling of impending doom or something, I even wrote a note to my family telling them the pass word to my computer because I want to get my book published, then the my toes on one foot curled under real tight and I felt pressure, a lot of pressure in my eyes/head/neck muscles, I could not keep standing up, I found myself up against the wall like I was trying to hug it. I felt like I was having to tell my body, "okay, work with me" I couldn't understand why I was unable to just walk through my house, Then I dropped to the floor, but I know I didn't loose consciousness, I could however feel my self (muscles) clenching up so strongly I though something was going to rip. My arms/legs were banging into my step sons bed frame, and then I started breathing heavily for a little while. Not sure how long, I laid their but now I am having difficulty concentrating, my head hurts and I am still getting those jerking muscles in my right foot and right arm.
When this happens to me , I don't normally loose consciousness, I am able to hear people around me throughout the whole thing.
Am I going crazy or should I go see a doctor. I feel afraid though, so I don't know. But I don't know if it is stress related. I am under a lot of stress, Type A personality all the way, lack of sleep, lots of caffeine. But, this seems to be getting worst what ever it is. I just don't want to agree with a diagnosis of epilepsy and be all drugged up, if this is something I can correct myself.
Sorry , I am just so unsure about all of this. I live with a chronic pain problem from a past auto accident. I have also had a severe concussion a long time ago, and 2 TIA's back in 2000. My one EEG a long time ago, showed spiking, but I was not put on seizure meds until this past year, after I had a procedure done to my neck RFA. Then they put me on topamax which I only took for a month, because my insurance rant out.
Ugg, I just don't know.
Thank you for any advice.
And, good luck to all of you.
--FindaWay
(Link edited by moderator)
Thank you for reading
and for any advice. Much appreciated.
 MichaelK |
 whofan this might be a stupid question but here we go!
Created by whofanat11/15/08 - 2:23 pm|5 Comments Posted To: |
krainey How serious is this? Do I need to seek help immediately?
Created by kraineyat10/16/08 - 10:46 am|3 Comments Posted To: |
bykerb... |
bykerb... |
 1never... |
 JayBri... |
Amaterasu Seizures while sleeping? How can I tell if Im having them?
Created by Amaterasuat4/24/08 - 11:30 am|19 Comments Posted To: |
 Black.... |
Black.... |
dudett... |
lemon-oh |
Sasa |
 suebear Question for VNS patients: Should I be concerned?
Created by suebearat10/27/07 - 1:16 pm|1 Comment Posted To: |
 Sashka my brother needs help, possibly simple partial seizures
Created by Sashkaat6/2/07 - 4:40 pm|2 Comments Posted To: |
moriendi New - Preggo & wondering ... Could I be Epileptic?
Created by moriendiat12/16/08 - 1:59 pm|1 Comment Posted To: |
 REl3EL |
 confuzzed |
TheHam |
pewter New - Wouldn't all seizures be "psychogenic"?
Created by pewterat12/5/08 - 6:36 pm|7 Comments Posted To: |
 Rachel... |
 angele... |
vmathe1 New - Have you taken an SSRI and then developed seizures?
Created by vmathe1at12/1/08 - 4:20 pm|5 Comments Posted To: |
renatta2 |
 nalda |
Recent Comments on this Discussion
There is this thing about MDs and Neurologists that if someone comes in saying they are having seizures and can actually remember the events then they aren't actually having seizures. This can't possibly be true in 100% of all cases because up to a point, I remember my symptoms albeit vaguely. After a point, I remember symptoms again albeit vaguely.
It is what happens between those 2 points that I have absolutely no idea of. I also know of some folks here who remember their symptoms.
You though, had a EEG which you said showed spikes and they gave you Topamax which is expensive... I hear you on that one cause I've got that script myself. However, there are pharmaceutical help plans out there - you can ask doc for samples - and doc can help you fill out paperwork for the medication aid.
However, please do see a Neurologist for your symptoms cause they do need to evaluate you.
Sounds like they are real seizures.
I can't stress this point enough, go get medical insurance now. It sounds like you haven't been diagnosed, so you don't have to claim that you have a pre-existing condition. Most insurance policies won't cover pre-existing conditions if you've had a lapse in coverage. Any kind of coverage at all. I understand how burdensome the premiums can be, but without coverage I would be in massive debt right now, I would owe well over 10,000 dollars.
If you shop around online you can find some relatively inexpensive premiums. Let's say you found a policy for 200/month with prescription copays ($10 for generic, $20 for preferred, $40 for name brand), and then began treatment for your seizures. If you neurologist put you on Lamictal, (sixty 100mg pills is $240/month without any coverage), then you would have insurance and prescription coverage for the same price you would have just for the meds.
Just please try to get some coverage. Epilepsy is expensive, an MRI will run you about three grand completely out of pocket. Monotherapy is even costly, and most people can't get their seizures controlled on just one. I spend nearly 90 dollars a month on AEDs with coverage. Please try.
Hi FindaWay,
Glad you found epilepsy.com - you'll find lots of info about seizures and epilepsy here, as well as people who have had similar experiences. Your note indicates that someone already thought you may have seizures in that you were given a seizure medicine to help control symptoms. It takes longer than a month to find out if a drug works, as many drugs like Topamax, need to be built up slowly and thus it will take a while to see if it works without causing side effects. While it's often hard to afford medicines, there are resources to help wtih the cost of medicine. The pharmaceutical company that makes the drug may have a Patient Assistance Program that can provide medication free of charge to people who don't have insurance coverage and how meet eligibility criteria. There are other ways to get medicines at low cost or free, depending on certain criteria. Try these sites -
www.pparx.org
www.needymeds.org
www.HopeRx.org
These are just a few sites.. I'm sure other members will offer more ideas!
Re whether or not you are having seizures, a person really needs to be evaluated by a neurologist who is experienced in treating seizures and have records reviewed. Here are some links to general info on seizures and epilepsy - also look at the videos in the Multimedia Center, but keep in mind that seizures can look and feel different from one person to the next.
http://www.epilepsy.com/101/101_epilepsy
http://www.epilepsy.com/epilepsy/types_seizures
http://www.epilepsy.com/EPILEPSY/diagnosis
http://www.epilepsy.com/epilepsy/warning_signs
http://www.epilepsy.com/epilepsy/medication_compliance
To keep track of what's going on, try our online seizure diary and print out a report for your doctor. The info from you will help both of you sort out what's going on and what tests may be needed.
http://www.epilepsy.com/seizurediary
Hope this helps you get started!
Epi_help, Resource Specialist
i totally agree, honey you should see a doctor. You are definitely NOT crazy okay? lol but i know what you feel like...im worried about you =( tell us what happens, alright? I care about you and will think about you hun. Good luck! =)
I've been going through the same thing as you! I've also been hesitant to do anything about it because although i can't recall my episodes with clarity, i can remember images and what people are doing around me. I thought because of this it surely couldn't be serious.
I've been passing out for 2 years now, my doctors all said it was in my head. Then i started having seizure activity... but i wrote it off as it "being in my head"
I can't tell you how thankful i am you've posted this. My new doctor believes i am having seizures. I do expierience auras, my head hurts like hell afterward and i'm sooo exhausted afterward. I've been reading and reading and didn't know what to make of what was happening to me.
I'm really sorry you're going through all of this, and it's quite maddening isn't it? Because of your post i'm going to be more proactive on my care.
God Bless
As for meds, believe it or not, you can save BIG bucks at the drugstore around the corner (some prescription, some generic and some of both, depending upon the pharmacy) if you just do a little homework... Click here: http://my.epilepsy.com/discussion/988656 Places include CVS, Walgreens, Costco, Target and RXSavingsPlus.
And there's Free presciption drug assistance through these sources:
Free Medicine Program www.freemedicineprogram.com/
Pfizer for Living Share Card www.pfizerhelpfulanswers.com/ProgramList.aspx
The Partnership for Prescription Assistance www.pparx.org
Rxhope.com www.rxhope.com/
Needy Meds http://www.needymeds.org/
For full information, go to http://my.epilepsy.com/node/582 Phylis Feiner Johnson www.epilepsytalk.com