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MichaelK

Breakthrough seizure caused by lack of sleep

Due to some of the pressure I am under I do not get enough sleep. Last night was one of those examples where I chose to work extra and it caused me to have a breakthrough seizure after 6 weeks of having no seizures whatsoever. Is it really important to tell my neurologist about this? He will only prescribe more medicine for me or recommend that I have surgery, neither one of which I want. What is the best thing to do?

Comments

Re: Breakthrough seizure caused by lack of sleep

Michael.

My ten year old son had three break through seizures in September after going nine months seizure free. He had gotten in to a routine of staying up late and then with school starting I do not think he was getting enough. The doctor did up his meds to another 250 mg of keppra in the am so now he is on 500 mg in am and 500 mg in pm. That is still a relatively low dose of meds. He is 4'7" and 104 lbs. I would probably try and get more rest and then see what happens after that. If you are still having seizures then you should tell your doctor.

Re: Breakthrough seizure caused by lack of sleep

I dont know man how frequent were your seizures prior to 6 weeks ago?  Me for example..  they can come and go.  I can have tons and tons of them in a period of a few weeks then they stop for a week or 2 or even 2 months and restart - and I do get plenty of sleep etc. 

 Lack of sleep, stress etc as others have said will definitely do it.  Make sure you keep up with your doctors appointments If it doesnt feel right call your doctor and see if they think you should come in.  Maybe they can get you something to help you sleep too - for me the anti-seizure meds do that for me lol. 

Re: Breakthrough seizure caused by lack of sleep

Hi BCShepard,

Thanks for your reply. Sounds like you have a really fickle situation, sometimes everything is OK, sometimes it's not. With me, things are usually pretty steady until I do something like not get enough sleep and have a breakthrough seizure. That is when I can have problems. So I am going to wait and see. I really appreciate your advice.

Re: Breakthrough seizure caused by lack of sleep

peace R.C.

  Hello

    everything described here I suppose I have gone through ??

      Over a short period a few yrs ago I had major stress of all kinds and with it went a regualr schedule a good diet and mostly regular sleep. over a short span and now it seems 2 yrs have had my general health and mostly sz disorder change many times .

    I aslo have found with out a regualr sleep pattern and schedule the meds I have tried have on many occasions caused a lot of harm and made this worse many times . ie more partials mostly and some outright rejection of the drug with bad side effects .

    Rick

 

Re: Breakthrough seizure caused by lack of sleep

Hi Curt,

What your son had done is exactly like me - getting into the habit of staying up late and not getting enough sleep. I'm on a pretty high dose of Depakote ER - 2000 mg per day in addition to Tegretol and Zonegram. My neuro has warned me that the next step for me may be surgery. I think it is important, as you said, to get more rest and see how it goes from there. Thanks for taking the time to give me your advice - I appreciate it!

Re: Breakthrough seizure caused by lack of sleep

I have the exact same problem. I got the habit of sleeping really late and when i have to wake up in the morning sometimes thats when problems start. I will usually get minor shaks in one arm and then the shakes get more aggressive until the seizure kicks in. I see you mentioned something about surgery. What kind of surgery are you talking about and how can that help a condition like this one ?

Re: Breakthrough seizure caused by lack of sleep

My neurologist hasn't been very clear about those questions so I will have to wait until I am referred to a neurosurgeon, I guess. I also have the same shaking problem as you. It can be caused, I think, by either too little sleep, too much physical activity, or too much mental activity. What do you do when you see your hand shaking?

Re: Breakthrough seizure caused by lack of sleep

well its just like my doctor said. there really isint much you can do when you feel a seizure coming but try to sleep as fast as you can. But what i have noticed is that when i feel shakes starting i get a little nervous about it and that helps me not sleep even more. which basically will result in me having a seizure a few minutes later. How about you? Is there something you do when you feel shakes coming ?

Re: Breakthrough seizure caused by lack of sleep

It depends on where I am at. The time between when my arm starts shaking and when a seizure comes is a little more prolonged with me than in your situation it seems. I have anywhere from 30 minutes to 1 hour before a seizure will come. I try to monitor the degree of the shakes as much as possible and take appropriate action. If it's only a small amount, I then sit down and rest. If my hand is shaking quickly then I know I better go to bed soon. Usually I am so tired by then that I can fall asleep right away. Sometimes this doesn't work and I will have a seizure anyway, so it's risky.

Re: Breakthrough seizure caused by lack of sleep

I don't believe you need to tell the dr. Getting more sleep is the important part, and that's what needs to be worked on. Even meds to sleep for a short time should help reset the clock (which you could get otc). I don't know what meds you're on, so I don't know if any otc meds would interact with you.

A LOT of things cause seizures, especially for us with ep. Lack of sleep, stress (really), lights, music, etc.

Good luck, I hope you have good dreams real soon.

Re: Breakthrough seizure caused by lack of sleep

I agree with Diana!  Lack of sleep, STRESS!!!, loss on the stock exchange, forgetting your medication, flickering lights, music etc. can cause a seizure, even a change in food had done it to me, or eating to much sugar and I am not diabetic.  Just something out of the ordinary does it to me once in a blue moon! Try going back to your regular routine for a while and see how you do.  Hopefully getting your rest and getting some appropriate nourishment will do the trick!

Re: Breakthrough seizure caused by lack of sleep

Hi Toni,
Thanks for your reply. I definitely agree with you that anything, including stress, can be a big factor and I just need to get back in my schedule. I'm trying to do that now and we'll see how it goes. Wish me luck!

Re: Breakthrough seizure caused by lack of sleep

Thanks, Diana. I'm trying to put myself on a regular schedule of at least 8 hrs. every night. I've let myself get into the habit of staying up late while studying for two professional exams that I need to pass.
Again, thanks for your help!
-Michael

Re: Breakthrough seizure caused by lack of sleep

i started at prolly age 16. am 21 right now and usually my seizures start when i barley wake up and only sleep like 3-5 hours. what is the consquences of having to many seizures , would you know ?

Re: Breakthrough seizure caused by lack of sleep

That's an interesting question. From what I understand, having too many seizures increases the likelihood of having more seizures. Eventually, this could lead to brain damage.

Re: Breakthrough seizure caused by lack of sleep

While in the hospital during the work up for my surgery cutting back on my sleep was part of the way they used too find out where my sez were starting.Like anyone can get a good night sleep in a hospital

Re: Breakthrough seizure caused by lack of sleep

What kind of surgery was it? My neurologist hasn't given me a good explanation about this. Has it helped you?

Re: Breakthrough seizure caused by lack of sleep

I'm going to add this comment.Just about all my sez are nocturnal.Two things have helped. One doc had me hooked up to a blood sugar monitor which showed that my blood sugar level was dropping off at night.She thought low enough to trigger a sez the other doc did'nt seem think so.Anyway my niebor is a nurse and she suggested I eat some natural peanut butter at bedtime it has helped.My wife asked the doc if maybe I should try takeing a mild sleeping pill at bed time that has helped also.I don't like taking even more med cause I'm draging my butt around enough now.So I'm breaking the pills in half that's helped.How can anyone want to be a drug addick?
They think that things intterping my sleep patterns are my trigger at night.I'm never giving in and I'm never giving up.

Re: Breakthrough seizure caused by lack of sleep

One thing, as many have mentioned is sleepleness and stress. It is my expirience that stree promotes a lack of sleep and when I don't get AT LEAST 7 hours I find myself for the first hour after awaking dropping things out of my hand. I find that until my mind planes out and gets settled that I'm suceptable to that-I have to make slow movements until my brain wakes up.

While we can have our eyes closed and seem to be getting rest we must reach the level of REM sleep for it to truely be effective!

Fellow epeleptics NEVER discount quality if sleep nor the duration!!