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Epilepsy/Seizure Caused Hallucinations?

I have been reading about the different types of seizures and epilepsy and am pretty sure I have temporal lobe epilepsy (my neuro won't put a name on it yet). I just have a question. I spent a week in a neuro unit going from being just confused to almost a complete vegetable before my neuro finally ran an eeg and started me on Keppra. I have read that people hallucinate during seizures, but it also says the seizures only last 30 sec to 2 min. I was in the hospital a week, but it felt like years due to the constant hallucinating. I had a constant feeling of wanting to "make things right" or explain to someone what was wrong with me, even though I didn't know. Unfortunately, in my hallucinations, everytime I would come close to "making things right," one of my six children would die in some awful way. It was like a constant nightmare. Has anyone ever experienced anything like this? The hallucinations described here under different forms of seizures are exactly right, but they lasted way longer than 2 minutes... is that possible? I don't know what to think. I know that Keppra made them go away even though I was still confused for days later. I'm so afraid of this happening again. I'm mainly just wanting to know if anyone experienced seizures that caused long hallucinations like this. Thank you. :)

Comments

Re: Epilepsy/Seizure Caused Hallucinations?

I haven't had this- but will say that a seizure can last much longer than the typical time frame. My first seizure ever was a simple partials (I have complex partials that generalize now) I was in the hospital four days before they gave me an EEG, a diagnosis, and an anti-convulsant. The entire time my head and arm was jerking and I was having 4 or 5 major convulsions a day. I have had complex partials where I am definetly acted stoned that have lasted hours when I was on lower doses. If I went by the timing standards I would have been at the emergency room sooo many times over, but then again I have clusters.

Point being, everyone is different and I think the 30 sec. to 2 min. is a general standard of what an everyday seizure is. That doesn't mean that people don't have more serious ones, don't go into status, things like that. Whatever seizure type causes hallucinations, well you had a much stronger type of it. Same as how someone can have a simple partials sz that lasts a minute and I had one for four days. Can it happen again? I don't know, how this happened in the first place? Is this the first time? Were you not on any AED's? For me that was 5 years ago and since being put on meds I have had bad seizures but never again something like that. I don't want to imagine being on nothing though...

Re: Epilepsy/Seizure Caused Hallucinations?

Your ccomment about "wanting to make things right" struck a chord with me.  I'm wondering if your sensations and hallucinations are from the Keppra, and not the seizure.  Keppra made me feel very "responsible" to the point that I spent all night dreaming about fixing and counting and sorting things and organizing people.  Once I talked to my doctor about these obsessional thoughts, he added Elavil at bedtime, which helps me stay asleep and also lets me dream normally.  I even talked to myself in a dream once when I started to obsess, and said "Stop it.  You don't have to do this!" and I did.

 

 

Best wishes for a calm spirit,

 

Ramona

Re: Epilepsy/Seizure Caused Hallucinations?

I went to see a doctor for something similiar to this and he told me that I wasn't loosing my mind, thank heavens, it just depended on where the seizure was occuring at in my brain. It made me feel much better. When I have nocturnal seizures I sometimes feel as if I'm dreaming and yet can't make it better. But I can't come 'out' of it because I'm seizing. Hope this helps.

Re: Epilepsy/Seizure Caused Hallucinations?

My daughter is suffering from epilepsy and is undergoing treatment with Keppra and gardenal. Also, we have put her on ketogenic diet. We need to check ketone level in her urine five times a day. Recently, she too suffered from hallucinations and the reason for that was traced to very high levels of ketones in urine. Till then we had no idea that maximum level of ketones in urine too is required to be maintained.

Rajneesh Anand
Jammu
INDIA

Re: Epilepsy/Seizure Caused Hallucinations?

Sure,,, Hallucinations, confusions, disorientations, memory lose & the urge to know what's happening to you & why, desperately feeling "LOSING CONTROL & TRYING TO GET EVERYTHING RIGHT" is part of the seizures or Epilepsy.

And having tried Keppra & Lamictal before finally ending up with Dilantin,,, the Hallucinations, confusions, disorientations & the urge to know what's happening to ME & why,,, has NOT changed at all, making the seizures DIFFICULT TO TRACE & LIVE WITH.

While I'm sure, there are many experts who can DEFINE the symptoms & answer your questions better than I can, from 10 years of experience with all kinds of seizures & "few" Epileptic medications, I've come to realize & accept that the symptoms you defined are just part of my seizures (Epilepsy).

Therefore, I learned to just simply get over it,,, RELAX, SIT-DOWN, SLOWLY & GRADUALLY GO ON WITH THE STRIKES, till everything feels back to normal again.

I hope this makes sense to you & help you to understand that Epilepsy is a whole LOT of package of more "DIFFICULTIES" than just SEIZURES & shaking on the ground.

Wishing you recovery & good health.

Ghebr

www.myspace.com/myseizures

Re: Epilepsy/Seizure Caused Hallucinations?

Hallucinations can totally happen during a seizure. There are multiple types of hallucinations even that can happen during the seizure. These hallucinations include, but are not limited to derealization, depersonalization, feeling like things are bigger than you, or smaller, feeling like everything is moving fast and blurry around you, or feeling like everything is moving in slow motion. There are many different parts of the brain that a seizure can affect. The seizure can affect multiple parts at once, or a single part of the brain. The seizure can even spread out over a period of time and you can have multiple different types of seizures in the same day I recently had a complex partial seizure (I made a post about it in this forum, it's at the top of the page at least currently).

The seizure was extremely bizarre. I felt like I was in a dream, or a nightmare. But I thought I was just laying in my bed. In reality I was walking around in a trance-like state, saying things relevant to the things going on in my mind, but made absolutely no sense to anyone around me. Three days after this, I came back into full consciousness where I could actually talk to people and make sense.

So, to answer your question, seizures can definitely be accompanied by hallucinations. I know this for a fact due to personal experience. Epilepsy is a very frightening and uncertain thing you can be diagnosed with. When you are first diagnosed, you try to pinpoint the source of where the condition could have come from. That can be a source of stress that can precipitate seizures. I have been trying to focus on ways to relax my mind and body since this has all started. Really the only option is to take tings into your own hands and try your very hardest to be proactive ad positive about everything around you. Well, maybe not the ONLY option, but that is what I have been doing. I want to be certain about life and try to let the people I care about know that this is a condition I cannot fully control and to not let it effect them emotionally as much as it possibly has been.

Reaching out for help is a very important thing to do if you have epilepsy. Even if you feel you can just do everything for yourself by yourself, this is simply not true.

Try your best to positively reinforce yourself and know that there are people who care about you, even during those times where it might feel you are absolutely alone. Life is a test of fate where you can choose to drop it and give up, or you can believe the truth that there are people love you and there are people who are completely willing to help.

Sorry for the huge post. I just want people to know that you are definitely not alone in life, and in your personal experiences. Though you might think that sounds ignorant or only specific to my own life, please trust me that it absolutely is not. If you want to talk about epilepsy or other stuff about your experiences, please feel free to message me

Re: Epilepsy/Seizure Caused Hallucinations?

It is a real blessing to hear that other people experience hallucinations etc. My daughter who is 10 years old has just recently been experiencing new things such as seeing and hearing voices that aren't there...as well as smelling things right before she has a seizure. This has been a scary experience for all of us and it is comforting to know that we are not alone. Thank you to all of you for making our situation slightly more normal!

Re: Epilepsy/Seizure Caused Hallucinations?

Thanks for joining us here! Good luck!

Epi_help
Resource Specialist

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