ADVERTISEMENT

DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

Hi everyone, I've had surgery for my seizures coming from my right temporal lobe , But now they are coming from my hippocampus. Which they told me before but they can't operate. Sorry im not good at explain. is there any one else with the same problem.

victoria

Comments

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

"Changing the misconceptions society has about epilepsy, by educating one person at a time"....Lisa-Marie Kinsman Author of "Free at Last, My Lifetime Battle to Overcome Epilepsy".

Hi  Vicki,

What hospital did you have your surgery done at?

I had left mesial temporal lobe epilepsy for 31 years myself.  I went through all of the pre-surgery tests...MRI, CAT scan, Video EEG, Neuropsychological testing, etc.  December 15, 1994, while I was fully awake, my left hippocampus was removed.

My question to you, was your surgery done while you were awake so the doctors could test you and make sure they didn't remove anymore than was necessary?  Why did they not remove your hippocampus?

Lisa-Marie

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

it was tooo dangerous. the resected my right temporal lobe twice. im still having seizures and its realli annoying

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

I had my ant. left temporal lobe first, in 1976.  I was seizing thru out most of the surgery.  When they did they did the hippocampus in 1991, they went back to the 5th cranial nerve, I was out again.  They never removed the uncus.  They found that my focus was in my speech center, and now I am in a medication study and it seems to work.  Hopefully others can try it and it will work for them it is similar to Keppra.  I am having very subtle to no seizures at this time w/ this medication.

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

  My epilepsy was (FINALLY) diagnosed in 1986 when I was 25, as Complex Partial (Temporolimbic), using N.P. leads. In 2004 a nasopharyngeal/low temporal 16 lead EEG showed epileptic seizure activity in the amygdala hippocampus...so yes, I have Hippocampal seizures. I have not had surgery; I am currently taking Lamictal 200mg x2, Keppra 500mg x2, and Provigil 150mg morning only. My most recent MRI showed 5 brain lesions that had never showed up before...also "changes in" small vessel ischemic disease (very interesting, since "changes in" has to mean it detected OLD and new,  though the Doc in 1997 insisted I had not had a stroke despite all evidence to the contrary!).  I am currently being evaluated for MS; the doctor who treats my epilepsy documented my clinical history spanning 1986-95, 2004-present . . . my deteriorating neurological condition prompted him to refer me to someone considered to be the top MS neurologist in town; this guy did a surface only EEG and proclaimed I didn't have epilepsy (though he doubled my Keppra; isn't that ironic), and dismissed the 5 brain lesions as "unimportant", and did not mention the reference to "small vessel ischemic disease" at all (I had to get my own copy of the MRI report to find that out). My epilepsy has never shown up with only scalp electrodes, but this doc says nasopharyngeal EEG's are no longer being done (in 2004 the neurologist I was seeing then ordered the equipment especially for me, but he has since retired). I have been on Medical Leave (from my job of 30 years) since May 23 . . . my epilepsy doc says to forget the "top MS" (ha!) guy . . . my previous multiple N.P. EEG data, clinical history picture, and current MRI report proves I will not be able to return to work, and (thank God I qualify) I must apply for Medical Disability Retirement from my workplace, then SSMDI also. I could write a book (my doctor actually wants me to do that eventually anyway-lol) here, but I am unsure what you are asking for (?), if it be traded tales of experiences (horror stories), treatment option discussions, repercussions of epilepsy on female issues (in my own life or in general), the ignorant public conception of Complex Partial Seizure activity behaviors as psychiatric problems as opposed to physical/organically caused   . . . ?   You are welcome to E-mail me directly at Eight121960@yahoo.com           

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

Hi and yes, I have probably your same or similar type of seizure. Begins in the hippocampus and goes to amygdala and then spreads everywhere in brain. (So no surgery for me). I have had hundreds of petit mal and only two grand mal in my life. Been on almost every drug you could name, right now Lyrica is working alright, but my mother ( being an anti drugs person) just told me to ask my doc about medical marijuana. OMG! I tried to email you, but it did not go through. Thought about writing the book myself. We should chat - my email is floodcolleen@gmail.com.

Cheers!
Colleen Flood. :)

Re: DOES ANYONE ELSE HAVE HIPPOCAMPAL SEIZURES

Hi and yes, I have probably your same or similar type of seizure. Begins in the hippocampus and goes to amygdala and then spreads everywhere in brain. (So no surgery for me). I have had hundreds of petit mal and only two grand mal in my life. Been on almost every drug you could name, right now Lyrica is working alright, but my mother ( being an anti drugs person) just told me to ask my doc about medical marijuana. OMG! We should chat - my email is floodcolleen@gmail.com.

Cheers!
Colleen Flood. :)