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Food-Triggered Siezures

So I have never found a trigger my siezures beyond them occuring around my period...but I think I might be on to something. Maybe even something that might give me the origin to my seizures- since they haven't found anything on my CT scans or MRI. I went out for Thai food this week and last to a specific place. I had a small siezure right after eating both times. The first time I didn't think much of it since I was on my period, but it was my only one that week (odd, I didn't have more that cycle) but the second time I looked at my plate suspiciously. I had crab rangoon both times, but I had it once before at this place and didn't react so *scratch*...

However, I recalled the number of times in the past four years that my seziues began at the dinner table. Some of my worst ones began at the dinner table. Could I have an allergy to something? Why would I not be reacting to it more often outside the time of my period? Some minor research does pull up that allergies are stronger during menstration. Could I be more predisposed to a reaction then when my seizure threshhold is lower as is?

I'm going to have to keep track of what I eat now.

Does anyone else have anything similar to this, or heard of it? Is it a possibility?

Comments

Re: Food-Triggered Siezures

 

Okay, here is the list I have come up with over the last couple of days of foods that possibly trigger seizures:

soy milk, soy sauce & other soy products, because they raise estrogen levels!

aspartame, nutrasweet (diet sodas, etc.)

maybe also caffeine, alcohol

also: meat and dairy products unless organic probably contain significant amounts of estrogen hormones, so can be just as bad as the soy products

hope that this information helps. if i were you i would try a paleolithic diet to detox and then remove or reduce the frequency of any of the foods that seem to cause you problems.

-Meow

Re: Food-Triggered Siezures

I'm glad to see a comment!

Well, I have recently cut soy out of my diet since I discovered I have hypothyroidism. I also do not consume any diet sodas or such sugars (willingly). Of course, I may still be ingesting these things when I am not the one cooking. I am guilty with caffeine though in the form of coffee, yet that hasn't been usually present for me to pinpoint it as the culprit as I would have liked to have done so.
I will say that the meat and diary products I didn't think of. I haven't heard of the paleolithic diet but I can assume what it is, I'll check it out and I'll try to introduce healthy foods in and monitor how I feel. I'm sure eating less processed things woldn't be harmful eitheir.

Thank you so much!

Re: Food-Triggered Siezures

Hi again! after sending you that message I have been doing a little surfing and found this link at wikihow. http://www.wikihow.com/Avoid-Food-Triggered-Seizures

Since you mentioned the connection to your menstrual cycle (me too!), you should be careful about the additional estrogens found in the meats, dairy and soy. BTW, soy can be hidden in salad dressings and sausages, amongst other things, so read the labels carefully. Maybe some soy was in your Thai food?

Paleolithic and less processed or best of all organic foods...as far as possible. do keep a food diary for a while and see which things have an effect. Fish oil is good for you, but for some reason fish may have metal in it (i don't really understand it, but sounds likecould be unsafe).

There was also a guy out there who recommends cutting out 4 things: gluten, soy, corn, and dairy (also legumes & peanuts!).  He says you can gradually introduce them later, but try to limit your consumption of them.

Let us know if you see any difference!

-Meow

Re: Food-Triggered Siezures

maybe sugar can have something to do or just plain junk food?? Years ago a gal told me her son had seizures cause of what her doc thought was too much sugar.

 I take a fish oil supplement daily. Fish in certain areas have high mercury readings cause of all the junk we have dump into the oceans and lakes. Sad but true......x

Re: Food-Triggered Siezures

 

I've just recently read about the G.A.R.D –The Glutamate-Aspartate Restricted Diet which is an elimination diet, specifying definite foods (which includes food products and ingredients) that must be avoided.  Perhaps you can experiment with these...

Here is a line-up of the forbidden foods: gluten – commonly derived from wheat and grains…casein – protein found in cow milk (and most dairy products)…soycorn – including corn syrup and corn derivative products…MSG (mono-sodium glutamate) – a very common food ingredient in processed foods even though it is rarely clearly labeled as such…aspartame – commonly used as a sugar substitute…glutamate – found in high concentrations in most beans/legumes…and hydrogenated oils.

You'll notice that gluten, MSG (maybe from that Thai food?), soy and aspartame are definitely no-nos.  Perhaps this can help.

phylisfeinerjohnson   www.epilepsytalk.com

 

Re: Food-Triggered Siezures

The G.A.R.D diet has absolutely changed the life of our epileptic PDD daughter dogtorj.net it was a Godsend a few years ago!

If you have a child with Autism or seizures PLEASE PLEASE PLEASE look into the glutamate aspartate restricted diet- it is a life changing.

Also look into estrogen blocking foods and the great lists available there, I don't know what we would have done if we had not found that information. We were at our wits end and feeling hopeless, I was severely stressed and she had little quality of life.

The GARD diet is absolutely the best thing that has ever happened in our lives, it's that powerful and effective for our daughter. She has definite glutamate, aspartate/casein sensitivity. Just because a label says "gluten free" or "no added msg" does not mean it is ok. No flavors or colors, gelatin, pectin, dried milk, cow milk or cheese, no flax, oats, dairy for her.

Basically she eats potatoes, rice based products, low glutamate/estrogen veggies, fruits, lamb (pasture raised) homegrown free range eggs and can tolerate some goats milk.

NO soy, wheat , gluten, legumes or beans or asparatate/glutamate rich foods. We are still tweaking it and finding her perfect balance but she is 90% better the last three years.

Re: Food-Triggered Siezures

is a good post ,i want to add that SUGAR IS A TRIGGER FOR ME. I DON'T EAT MUCH SUGAR, IT MAKES ME FEEL AWFUL, BUT WHEN I AM SICK, POSSIBLY MS, BUT DONT KNOW YET, IT DEFINITELY TRIGGERS SEIZURES. I NEVER DRINK ANY ALCOHOL. ONE SIP OF BEER AND I AM SPINNING. AND NEVER, EVER HAVE CAFFIENE!

email harvester

Re: Food-Triggered Siezures

Hi,

I'm a 62 year old man & I have had noctunal seizures all my life(approx. 1 per week) I do take AED medication but last year I learned to eliminate the seizure occurances by primarily changing my diet. I have eliminated the following foods: MSG, NON-ANGUS BEEF, CHEESE, SWEETENERS, SHELLFISH, ALCHOHOL. When I do not eat these things I do not have any seizures. Again, I still take my anti-seizure medication. I know this works for me because occassionally I will have something with MSG in it by mistake & that night I will have a nocturnal seizure. Sometimes I wonder if I just have had a food allergy to these things all my life!

Good Luck All! 

 

Re: Food-Triggered Siezures

I would 100% agree with that. My daughter was diagnosed with epilepsy at 18 months, she started taking small myoclonic jerks her consultant put her on epilim and straight away her jerks turned into big obvious jerks about evey half hour, the consultant told me this was a coincidence she then put her on esothuxomide and within 2 days she was hyperactive to the point of being uncontrolable, sometimes being awake for 24hrs. I then thought about looking into the possible side effects of food additives, as I linked the start of her siezures to around the time her diet started to change, (with her going to nursery ect I had less control over what she ate) I also made the desition to stop the esothuxomide. Within a week of her being on the guard diet she has very little hyperactivity and has aloso not had a single fit since the 29th of jan. I dont care what the consultant says no-one is going to tell me thats a coincidence, she also saw a cranial oesteopath and I think that has helped to.

I think the guard diet is healthy for all children, our food is too full of junk these days it scares me! its a challenge but I think going back to cooking fresh pure foods from scratch is what is needed, not pumping our children full of junk.

 

Re: Food-Triggered Siezures

THANKS MS KITTY! WHILE I WOULD LIKE TO IGNORE WHAT YOU ARE SAYING.........I HAVE SO MANY FOOD ALLERGIES, MY DIET IS VERY LIMITED ANYWAY........BUT I WILL CHECK OUT THE SITE AND PROBABLY CRY! I HAD SURGERY ON MY PITUITARY YEARS AGO, AND DON'T HAVE ALL OF IT. THAT CAUSED ALL THE ALLERGIES I HAVE........ARGHHHHH!

 I HOPE EVERYONE ELSE CHECKS OUT THE SIGHT OR EMAILS THAT ROWDY TEXAN!.........NO MATTER HOW DIFFICULT IT MIGHT BE. MEOW!!!  

I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

Re: Food-Triggered Siezures

I had found that link as well a short bit ago. I was thinking of finding an N.D. as the page suggests although research pulled up that they are in the same area with homeopaths and such which I don't trust at all...hmmm. I'd have to find a good one.

I do have to eat well regardless, I havent been. Even by normal standards my diet is everywhere. I will definetly start by doing this organic/less processed diet. Soy and gluten free will help my hypothyroidism as well so I should do it. But diary...thats cheese! Thats edible gold from the gods! And ice cream..I'm lactose intolerant, why am I whining?

Thank you Meow, and everyone else too.
Okay people. I'll try it!

 

....Right *after* breakfest? 

 

Re: Food-Triggered Siezures

Nutmeg I found causes them in me but I don't really use it too much and still have them despite cutting it out. When I eat high quality Finnish sausage I get them really really bad and I have no idea why must be something in the seasonings because I have been tested for the major allergies but everytime I eat them massive episode so my husband won't let me anymore. There wasn't MSG in mine but that is surely used in restaurants and loads of people have bad reactions to it.

Re: Food-Triggered Siezures

MAY I ASK WHAT SOY, HYPOTHYROID AND SEIZURES HAVE IN COMMON? I AM HYPOTHYROID. I KNOW WHEN I AM NOT ON THE RIGHT DOSE OF SYNTHYROID, I HAVE MORE SEIZURES, BUT DON'T KNOW CORRELATION WITH SOY. 

SUGAR IS A TRIGGER FOR ME. I DON'T EAT MUCH SUGAR, IT MAKES ME FEEL AWFUL, BUT WHEN I AM SICK, POSSIBLY MS, BUT DONT KNOW YET, IT DEFINITELY TRIGGERS SEIZURES.  I NEVER DRINK ANY ALCOHOL. ONE SIP OF BEER AND I AM SPINNING. AND NEVER, EVER HAVE CAFFIENE!    

 I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

Re: Food-Triggered Siezures

 

They say that soy has phytohormones (plant estrogen esp.) but I suppose it could also throw your thyroid system out of whack too. It is worth testing on your own, at least.

Re: Food-Triggered Siezures

Well, cutting out soy in your diet if your hypothyroid is necessary. It causes your hormone production to drop, as does broccoli, cauliflower, strawberries, wheat, and a whole list that you can find online. Eating these things make you feel better for a while, and used to be recommended to hypothroid sufferers, because it causes the thyroid to grow in an attempt to help itself (e.i. goiters!). What the siezures have in common, I have read research saying that nothing- yet I discovered my hypothyroidism when it took me to the emergency room with severe dizziness and a rapid heartbeat that lasted days until they gave me the synthroid. I had *alot* of seizures in that time frame despite being pumped with a new drug through IV, Dilantin, so I'm skeptical that hypothryoidism can't at least aggravate epilepsy.

I've never considered sugar, however I was in the emergency room again yesterday (picked up from a RESTAURANT!) and the nurse looked at my glucose and remarked "Did you have a slice of pie?" Umm...no. A bite of pancake though and some sugar in my coffee. But not that much...

So yeah, try cutting those things out of your diet so your not working against your synthroid levels. 

 

 

Re: Food-Triggered Siezures

AAARGH...........I EAT STRAWBERRIES CONSTANTLY TO CURB MY SUGAR CRAVINGS! AND THEY AFFECT MY THYROID.....HMMMM, NOT GOOD. MY THYROID HAS ENOUGH PROBLEMS AS IT IS. I CUT OUT SOY A COUPLE OF YEARS AGO BECAUSE IT ALSO CAUSES SHHHHHHHH GAS! BROCCOLI IS ONE OF THE FEW VEGATABLES I AM NOT ALLERGIC TO. NOT LOOKING GOOD HERE! GUESS I WILL JUST STICK TO BEANS AND MORE BEANS.....REFRIED, THAT IS. YOU BETTER START PAYING ATTENTION TO THAT SUGAR INTAKE, MISSY! AND CUT THE CAFFIENE! I HAVEN'T HAD IT IN 30+ YEARS. NOW WHEN I SMELL A SODA, IT SMELLS LIKE SOMETHING THAT BELONGS IN THE TRANSMISSION OF A CAR. I CAN'T IMAGINE HOW AWFUL IT WOULD TASTE TO ME!

I HAD RESEARCHED THE THYROID AND SEIZURES A LONG TIME AGO. I WISH I HAD KEPT THAT INFO SO I COULD GIVE IT TO YOU. I KEPT BEING TOLD MY THYROID FUNCTION WAS NORMAL, BUT IT WASN'T AND I FINALLY FOUND AN ENDOCRINOLOGIST WHO KNOWS I KNOW WHAT I AM TALKING ABOUT AND I AM ON 75 MCG OF LEVOTHYROXIN, EVEN THOUGH MY THYROID RANGE IS NORMAL AND I FEEL SO MUCH BETTER. IT TAKES A WHILE FOR IT TO HELP. WHEN I SEARCHED BEFORE, I CAME UP WITH INFO FROM MAYO CLINIC, CLEAVELAND CLINIC, MERCK MANUAL AND AUSTIN ENDOCRINOLOGY. I JUST DID A SEARCH NOW AND THERE WAS A LOT OF INFO, BUT I DIDN'T READ IT. NONE OF IT WAS FROM THE SITES I MENTIONED. HOWEVER, BEFORE WHEN I SEARCHED, I FOUND THAT THERE DEFINITELY IS A LINK BETWEEN THYRIOD DYSFUNCTION AND SEIZURES. THEY GET WORSE. THERE WAS A LONG EXPLANATION, BUT I JUST DON'T HAVE IT ANYMORE. WHAT AN INTERESTING CONVERSATION.......ALTHOUGH DISHEARTENING FOR ME CAUSE I HAVE SO VERY MANY ALLERGIES TO FOOD, I CAN'T KEEP TRACK OF ALL OF THEM AND DON'T KNOW WHAT ALL OF THEM ARE, SO I EAT THE SAME THINGS OVER AND OVER. HMMMMMMM..........NOT ANYMORE I GUESS!   

I DON'T KNOW IF YOU HAVE NOTICED, BUT THERE ARE A LOT OF PEOPLE ON THIS SITE WHO HAVE THYROID PROBLEMS. HMMMMMMMM...........VERY INTERESTING/ MAKES ME ALSO THINK THAT SOME AED'S CAUSE THE PROBLEM.    

I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

Re: Food-Triggered Siezures

I can tell you from a medical stand point since I am a Registered Nurse at the hospital and I am specializing in neurology as I progress to get my Bachelor's degree in Nursing. It may sound funny, but you may have a potassium deficiency. It is a condition well known to cause seizures since it disrupts the electrical activity in your neurons which is what causes seizures. I can give you a hint since I have seizures as well (which is why I specialized in neurology). Try eating a food like bananas that have a significant amount of pottassium, especially during your period since you can lose a significant amount of potassium during that time (that is one reason headaches are common in the cycle). You can start out eating one a day (banana) and see where it gets you. It has really helped me decrease the number of my seizures (although the idea of potassium rich fruits and vegetables was brough to me by a paramedic friend of mine and not my neurologist.) I wouldn't go as far as getting potassium vitamins since too much potassium can cause seizures as well and it would take several bananas to result in this and they also have neutralizing vitamins in them making it less likely.If you would like to know more, just e-mail me at rowdy_texan04@hotmail.com and be sure to specify epilepsy so I don't think it's junk mail.

Re: Food-Triggered Siezures

There is a great connection between the "gut" and the brain. Just doing a quick search with gut/brain/seizure and you will find some interesting reading. Also be highly suspicious of all processed and prepared foods, as MSG is hidden in many different forms. My daughters seizures are triggered by the many different byproducts that are hidden in foods.

Try an elimination diet, and stick to fresh, organic, whole foods.

The postassium idea is interesting, but if there is an insulin issue, this could be a problem. Bananas are high in natural sugars.

Robin

Re: Food-Triggered Siezures

I actually picked up bananas at the store because of this after not doing so for years. I was convinced bananas made me nauseus because I would always get an upset stomach after eating them...but I'll try again. As far as high natural sugar- I think the banana is better than the French Toast with maple syryp I will sometimes have!

Re: Food-Triggered Siezures

IF THEY STILL BOTHER YOUR TUMMY, I JUST DID A QUICK SEARCH FOR FOOD HIGH IN POTASSIUM AND HERE ARE SOME:Apricots, dried  10 halves  407 
Avocados, raw  1 ounce  180 
Bananas, raw  1 cup  594 
Beets, cooked  1 cup  519 
Brussel sprouts, cooked  1 cup  504 
Cantaloupe  1 cup  494 
Dates, dry  5 dates  271 
Figs, dry  2 figs  271 
Kiwi fruit, raw  1 medium  252 
Lima beans  1 cup  955 
Melons, honeydew  1 cup  461 
Milk, fat free or skim  1 cup  407 
Nectarines  1 nectarine  288 
Orange juice  1 cup  496 
Oranges  1 orange  237 
Pears (fresh)  1 pear  208 
Peanuts dry roasted, unsalted  1 ounce  187 
Potatoes, baked,  1 potato  1081 
Prune juice  1 cup  707 
Prunes, dried  1 cup  828 
Raisins  1 cup  1089 
Spinach, cooked  1 cup  839 
Tomato products, canned sauce  1 cup  909 
Winter squash  1 cup  896 
Yogurt plain, skim milk  8 ounces  579 
USDA Nutrient Database for Standard References, Release 15 for Potassium, K (mg)

TADA!! OF COURSE SOME DON'T SOUND ALL THAT GOOD TO ME, AND SOME WE NEED TO CUT OUT, BUT THIS SHOULD HELP! GO FOR THE ORGANIC TO GET RID OF ALL THE PESTICIDES, ETC.

I USE ALL CAPS FOR THE VISUALLY IMPAIRED. I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

Re: Food-Triggered Siezures

I can not eat yogurt it speeds up metablosim which speeds my medication out me. Even my doctor told me not to do yogurt because would inter act with medication.  Becarefull on what you do to speed up your metabolism if you speed that up you take risk of running medication out you. It was happening i drinked so much green tea it was funny i drinked it as i should drink water. 

Re: Food-Triggered Siezures

Thanks for the research...I love everything on the list.

Re: Food-Triggered Siezures

I read on a fact sheet of the epilepsy.com website that seizures can be triggered by emotional stress. Personally I find eating certain foods emotionally stressful, e.g., anything I know is unhealthy or that reminds me of some event that I found stressful. Also, maybe consider the people you were dining with and how you feel around them. Assess other environmental factors of the restaurant you were in, e.g, was it overly noisy, smelling, crowded, hot, cold, dimly lit or too bright....

Good luck : ) 

Re: Food-Triggered Siezures

I know emotion does i got rid of 1 big emotion in my life holding me down and was doing better.

Re: Food-Triggered Siezures

Without seeing this topic before, bananas are something I've craved ever since my seizures first started. Another craving is peanut butter and jelly, I hated eating it when I was younger. I usually keep a cut up honeydew mellon in the fridge to munch on, the riper it gets, the sweeter it is.

Re: Food-Triggered Siezures

I started craving banannas to just after getting better and being sick.  When i was kid and my sz started i craved cheese alot though.

Re: Food-Triggered Siezures

Bananas are a truly disgusting fruit. Unfortunately I have to eat at least two of them every week to keep my potassium level up. I have had a couple of seizures where I was told that my potassium level was low and maybe that was the cause. Supposedly there are other things you can eat to get the potassium, but it seems that bananas work best and fastest for me. Blecch! If I had a choice, I would rather eat my gym shoes.

Matt 

Re: Food-Triggered Siezures

 

VERY FUNNY!

Re: Food-Triggered Siezures

I completely agree with you.  Sorry Banana-fans.  Kiwi, Honeydew, Apricots, Avocado and Oranges are all rich in Potassium though.  ... Oh ... and Prunes!

(((Catamenial Epilepsy))) Re: Food-Triggered Siezures

Hello everyone,

Great forum.  I've been doing research for the past 20yrs and have found that it is ABsoLUTEly true that foods trigger my seizures.  So, I avoid all food products with (wheat, corn, soy, caffiene, alcohol, msg, sweeteners) ...I think that's it.  And I feel fantastic.

Most recently I learned that I have a seizure condition called Catamenial Epilepsy.

Here is a website that you may find interesting:  "Catamenial Epilepsy and Progesterone" http://professionals.epilepsy.com/wi/print_section.php?section=hormones_catamenial

"the woman [with Catamenial Epilepsy] may tend to have more seizures at particular times during her menstrual cycle, usually just before or during the onset of menstruation or at the time of ovulation...the surge of serum estrogen levels at the time of ovulation may be associated with increased seizure tendency; as may the fall in serum progesterone levels just before and during menstruation...If a catamenial pattern of seizure exacerbation is established from this record, additional steps in the evaluation will help to guide treatment...Because progesterone has anticonvulsant effects and estrogen has proconvulsant effects, treatment with progesterone or estrogen antagonists may prove to be useful adjunctive treatments in appropriate patients."

Also, a search engine like Google:  "Catamenial Epilepsy" progestrone   OR  define     This will get a whole bunch of stuff on the subject of Catamenial Epilepsy, which is having seizures around hormone changes that women tend to have around their menstrual cycle and at the time of ovulation.......when Estrogen containing foods really tend to INCREASE estrogen and LOWER the seizure threshhold.

I'm not a doctor, just done LOTS of research over the years.  My seizures, PMS, and other behavioral changes around my menstrual cycle and ovulation have stopped now (Thank G-d) .....with the elimination of certain estrogen containing foods and seizure-provoking (for whatever reason....like soda since I was 12yrs old).  I am so greatful that I've got my life back in order.

Good luck to you all.  And it really does sound like those of you women with seizures that happen mostly around your menstrual cycle may have this type of seizure disorder (Catamenial Epilepsy).

I suggest to log your seizures (how many & what type) on a calendar or in a journal.  As well as try a food journal to see which foods provoke certain unwanted Emotions/Seizures and such.

Be well,

LovesMath  :) 

 

Re: (((Catamenial Epilepsy))) Food-Triggered Siezures

I was recently daignosed. Just started having them in the past month and increasing in numbers. I recently switched my diet from white bread to wheat. I was in the hospital for a number of days and didnt have any. I have also had some a few hours after having caffeine. I think I will be staying away from both for now on.

Re: (((Catamenial Epilepsy))) Food-Triggered Siezures

AUTUMNS MOMMA CHERI

Thank you so much for this information.  My daughter has intractable epilepsy, autism, etc etc.  Anyways we have felt for a long time that the neurologist was missing something.  My daughter is too sensitive to food.  We have eliminated certain foods from her diet just because of the reaction she has.  To think that certain foods cause seizures just made a light bulb go off.  This is great information, and I plan on contacting her neurologist with this information.

Thank you

Re: (((Catamenial Epilepsy))) Food-Triggered Siezures

teachergreen

Really? You believe your seizures were provoked by soda. (caffeine) ? How often did/do you have seizures? What do you drink in place of the soda? Water, juice, and milk get a little boring for me.

Re: Food-Triggered Siezures

Green tea triggered mine an starting to find out to much coffee does mine also starting to wonder what else. Or if it is type of meds I am taking because it only through out certian parts of life it seem it happen to trigger.

Re: Food-Triggered Siezures

teachergreen

Have you ever heard of Dr. Pepper and dark tea causing seizures? This summer I rarely drank hot tea but drank a Dr. Pepper almost every day. I enjoy the flavor of the drink and I guess I could try eliminating it for a period of time. I'm not sure how long that period would be before I see results-no seizures. I have 4-6 seizures a month.

Anyone out there have seizures because of caffiene?

Re: Food-Triggered Siezures

I'm not sure about Dr. Pepper, but many dark sodas have nutmeg in them, and nutmeg will knock me down in a matter of minutes. I don't have a problem with caffeine, (and hope I never do, coffee is my drug of choice) but I have heard it can be a problem for some other people. It's probably a good idea to avoid anything with the suffix "-ine-" as it means it's a stimulant along the lines of 'speed'. Methedrine, dexadrine, etc. This would include most allergy medicines, unfortunately for those of us with hayfever.

Matt 

Re: Food-Triggered Siezures

Reading what everyone wrote  we can't always go by everyones  food thoughs either . Because everyone body is different to . I know no one should do any achol at all.  If i ate only certian things i  weight 10 lbs  i only  weigh 90 and eat tons food.

Re: Food-Triggered Siezures

Matt

Nutmeg is a big trigger for me and Thai food often contains it. Sometimes it's a pain in the neck for me to go to a Thai restaurant because often the staffs' English isn't the best. Usually what I have to say is "If you're not sure it's not in there I'll eat something else.". No sense in waking up on their floor just to eat something that smells good.

 

MCS

Re: Food-Triggered Siezures

Yes I think nutmeg is connected with a great number of allergies. I wonder if a higher number of reactions are reported in countries where it is prevelant in cooking, or whether there is less aversion to it due to consistent consumption during childhood? lawn trimmer

Re: Food-Triggered Siezures

You'd think that after having lived with epilepsy for 35 years, I'd come to realize that caffeine does bring on seizures in me! However, I still seem to drift back towards my all-important coffee in the morning...and oftentimes throughout the day. Many folks with epilesy tell me to cut it out entirely, whether it gets into my system in the form of coffee, tea, chocolate, whatever. Caffeine makes me feel quite "up" for a while. But maybe it's time to just rule it out entirely. Do you find you get more seizures after having had caffeine? Give me some advice. Thanks!

Re: Food-Triggered Siezures

First I will start by saying I am a registered nurse. I was diagnosised with complex partial seizures in 7/08 when I woke up and did not know what year it was, thought it was 1985, or anyone around me.  I had been under extreme stress at work and home. During my EEG it was found I had a spot on my brain,hence the seizures.  Well, now after spending the weekend in Las Vegas with tons of stimulation i have my first seizure in my arm.  This thing is going from bad to worse.  I find I have the majority of seizures when under stress of any kind and especially sleep deprivation.  As far as food, probably just alcohol.  I would caution people about potassium, too much can affet the rate  and regularity of the heart.  I also suffer from thyroid disease, but mine is hyperthyroidism and if my thyroid is too high I will have more seizures.

Re: Food-Triggered Siezures

teachergreen

 

I'm thinking my seizures might be caffeine related. I guess the only thing to do is give up any caffiene altogether and see if it makes a difference. Except I went a whole month without seizures and still drank drinks w caffeine.Maybe I just keep wanting to find the cause and still not except I will probably have epilepsy the rest of my life.

Any thoughts?

Re: Food-Triggered Siezures

i dont know about anyone else but aspartame triggers mine or sumtimes red food dye

Re: Food-Triggered Siezures

Anything with the sweetener SORBITOL in it almost kills me at the smallest dose.  (Seizures, Vomiting, and things I won't mention)  I had no idea they have been slipping it into so many over-the-counter medicines recently.  Not to mention mints, chewing gum, ice cream, soda...

Re: Food-Triggered Siezures

 I will direct all of you to www.epilepsymom.com

 I found this woman's site after I realized and I stress, I , b/c when I talked to a allergiest he told me he's never seen anyone have a seizure due to a food allergy. I disagreed, found evidence on the Internet, told him a list of what I thought my son was allergic to (kept a food diary) told him I didn't want skin tests, only RAST b/c some people won't react for days, as was the case with my son. It could take 2-4 days for a reaction/seizure. Just over the past 3 mos. I have found two other kids who have seizures who allergic to milk. Anyhow, The things I thought my son was allergic to, he was and I got to say, "I told you so!" to his previous allergist as I now have one who worked with me to test for a good range of food, developed a diet to try (allergen free) and my son has been seizure free for nearly 6 months now! 

He is on two meds: depakote and Topomax (weaning currently). Previously was on Keppra too, but is off that.

 I STRONGLY URGE anyone with seizures to get RAST testing!! There's AGE and AGG tests, do both if you have to. Beg, plee with your Dr., make up symptoms if you have to and DO NOT do the skin tests. They will tell you blood tests aren't as reliable, BULL! Request RAST and even if they tell you it's not an allergy when you get your results back, don't eat that food, for awhile at least. 

I got no where relying only on the Dr. I took matters into my own hands and it has paid off...two fold!

 Good luck and even if you're not a mom of a child with epilepsy, still visit www.epilepsymoms.com. There's SO much info that I had to realized and find out on my own. 

Mom of 2 year old Bauer, SCN1A positive epilepsy

Re: Food-Triggered Siezures

Thank you so much for your reply!!! Our son, Addison, was recently diagnosed with epilepsy. His results to the test the doctors have ran are not adding up! We go this month to the doctor to see about a special diet. But, I have never heard of these other test. I will definitely check them out.

Re: Food-Triggered Siezures

Caffine,pork,cut back on dairy,cheinise cooking,drinking,not enough fiber in diet,

 

Re: Food-Triggered Siezures

Well, I had 2 different things trigger my auras. Without meds, they would've gone to full blown seizures. As I would start to eat, it would trigger an aura. It didn't matter what the food was. And certain colors, usually an off-orange color would trigger them. I had a temporal lobectomy last year. And they also removed half of my hippocampus. But during the intracranial monitoring, when off my meds, I could start to eat or just even THINK of the color and it would trigger a grand mal. Eating didn't cause them every time, but the color did. I figured out the color in a restaurant. It was a mexican place that had the walls painted an orange-ish, pink-ish color. When the neurologist couldn't get any seizures out of me for the monitoring, I started to joke about how they could take me to dinner with all the monitoring equipment to this place. He had me describe the color. Within 5 minutes, I had a grand mal. 4 more seizures were triggered as I started to eat.

Hope this helps.

Re: Food-Triggered Siezures

I have found that recently red meat gives me absence seizures!! I really, really wanted a bacon, lettuce and tomato sandwich. I enjoyed it . Had an absence seizure as I sat down after and started knitting.  So my husband thinks it is the knitting. No. The knitting calms me. I am vegetarian with fish and ocassionally chicken. Lots of greens, folates, seem to help me feel better, too. Thai food has a lot of potassium in the sauces that is used as flavourant. And their flavourings are high in MSG. I ask for the food without the sauce...they bring mine on the side. I ask for my salads without dressing unless the chef makes it without flavoured sauces.

It makes me sound like a pain in the ... but it is easier than explaining my condition. Fresh organic food always helps control my seizures. And coffee is no trigger for me.

If your seizures are in your limbic system, could food smells trigger your absence seizures?

Re: Food-Triggered Siezures

Every time I pass a fast food resturant I have a seizure. It might be due to the various creepy mascots associated with them, particularly Ronald McDonald, Big Boy and the unsettling, acid-dropping Buger King man. No wonder I'm prone to frequent status epilepticus, considering the ubiquitous nature of these icons of American dining. My advice is to put on blinders as you board the bus.

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