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Stefanie514

3 year old on Keppra

My 3 year old has been on Keppra for over a year and it seems like her outburst get worse!  I don't know if it is her being her 3 year old INDEPENDENT self or maybe the Keppra.  I am not one to use her medication as a crutch and I just think it is just how she is....but she is the SWEETEST child and the littlest thing will set her off into a "melt down"  I had read some things about giving her a B6 Vitamin and even my doctor said I could...has anyone else tried adding the B complex vitamin and had results?!  Thanks!

 

Stef

Comments

Re: 3 year old on Keppra

my son is 3 1/2 yrs old and has been on keppra for just over 2 years now.   He is definately a handful too, but you need to talk to the doc anyway.  I doubt that it is the meds if you haven't noticed it until now.  But you should still mention it to the nuero.  Good Luck

Re: 3 year old on Keppra

No she has always had these "melt downs" since she had started the meds which just happened to be right before she turned two.  So I always just thought it was "terrible twos".  I was just wondering if anyone has put their kids on vitamins and if it helped with "melt downs"  I know the difference in her being a kid and something not being 100% right.  It seems on days she eats healthier or better she is not as out of wack....but then again I can only force her to eat so much she is miss INDEPENDANT :)  I think I am going to add a B supplement and just see how it goes :)

Re: 3 year old on Keppra

Stef,
I'm sorry that I am responding so late. But I don't know if you have started the B6 or not but I have known a few parents who give it to their children and it seems to help to an extent. I know that we started Keppra on our daughter when she was 20 months old and I noticed her behavior take a turn for the worse almost instantly. We took her off of the Keppra a month or so later and she was put on a variety of other medications and her behavior never really calmed down. However I have noticed now (she just turned 3) that her behavior problems has a direct correlation to seizure activity. So I wouldn't be totally surprised if my daughter behavior problems weren't seizure and medication related. Are your daughter seizures under control with Keppra? If the behavior problems are becoming too much for you to want to deal with, could you talk to your neurologist and consider trying another medication? We switched medicines whenever Kaitlyn's behavior would be impacted too much. You don't have to settle for the behavior to be that way, there are other options.

I thought in a way that Kaitlyn's behavior was to an extent terrible two's but my motherly instinct always said that there was more to it. Other people never listened until this past week because Kaitlyn had been seizure free for 3 months, then had 2 seizures back to back and seriously, the second her seizure was over, her behavior was back to that awful rip roaring, ready to go behavior. So it totally validated that it was mostly seizure related for her.

I hope I helped a little bit. I don't get on here much anymore. If you ever want to email me, feel free.

emilylouiseb@yahoo.com

Thanks!
Emily

Re: 3 year old on Keppra

My son had his first seizure when he was 18 months old. The neurologist told our DR to put him on Keppra , that was 8 years ago. Keppra was new on the market and our insurance would not cover it until we tried a list of other drugs first. I threatened the person on the phone by telling them that if my son had another seizure that night I would be suing them; they gave me the medication I need and covered it. His seizures did not stop right away, but they did decrease with time. He has been on Keppra for 8 years and it keeps him to about one grand mal year. The side affect that I see with Keppra is anger; and that has gotten worse as he has gotten older. We do give him two 100 mg of B6 two times a day and that does seem to help with the anger.

Re: 3 year old on Keppra

Exciting news about my 3 year old!  She had her 2nd eeg (I was told she had to have one every 18-24 months) and the results came back NORMAL!!!!!!!!!!!!!!!!  I had to pull over in the car I was crying so hard b/c i was so happy!  So we went to the neuro and he said we coudl ween her off her meds (Keppra) and WHAT A DIFFERENCE!  She doesn't get so "wrapped around the axel" I noticed within 2 days of decreasing her meds.  Looking back I still wouldn't change keppra b/c it was the first one we tried and got very lucky she didn't have ne more seizures?!  I guess there is some new study going on in little kids that have 6 months of seizure activity and then NOTHING?!  NE WAYS...if you are considering Keppra consider the mood side effects.  But for me moodiness was way better than seizures!  Best of luck to everyone and I will continue to pray for all of our children's health and well being!

 <3 Bailey's mom

Re: 3 year old on Keppra

Hi Stefan. I hope your daughter is doing well.  My 18 months old son is taking Keppra for two weeks.  No side effect I have noticed so far but will have to continue to observe him carefully.  The seizure stopped since he started to take Keppra 1.5 ml twice a day.  To be honest I'm more worreid about developmental disability than mood change.   Have you noticed any develpmental issues while she was on Keppra?  Thanks.

 

Re: 3 year old on Keppra

Happie,

The main thing I noticed was she was sooo frustrated with anything that seemed challenging.  Recently she had an EEG and came back NORMAL!  She was able to be weened off of Keppra and has been off of it since September 1st!!!!  I don't think there were any develpmental issues...she wasn't potty trained until October (one month after being off Keppra) so I don't know if this was just her being the strong headed wonderful little girl that she is or if there is any relation?  She did start writing and listening and coloring better once off the keppra...but again I don't know if this is an age thing or keppra thing.  I always felt though that if it was controling her seizures (which affects her brain worse) then I was ok dealing with a frustrated or more challenging of a child.  I think it over weighs taking them off and going through a ton of tests and trials to see what else would work?!  Just keep an eye on your baby and talk with your neuro and pediatrician to make sure he is on track!  Bailey was always where she was supposed to be in all her stages and had been on it since she was 2!  I just thought as a parent she should be coloring better and should be potty trained before 3!  She was 3 years 8 months when it finally clicked! HAHA!  Keep a journal of any behavior issues so you can talk to your doctor.  Again for me Keppra was better than having to have a blood test every 6 months to make sure her liver was functioning properly so I picked keppra to start with and lucky for us it controled it and they have since stopped!  Best of luck with everything and if you need ANYTHING else or want someone to talk to or ask anything else I would be happy to share with you! 

Re: 3 year old on Keppra

Thank you so much for the quick reply and information Stefan.  I'm so glad to hear your daughter's been doing great without Keppra for almost 5 months!  that's awesome!  I only hope my son grows out of it like your daughter did.  We haven't noticed any major developmental issues on him for the past 18 months but he's just a little slow with learning new words.  Our doctor said it's normal for the babies who are exposed to multiple languages (we use Korean at home) so we didn't worry much before.  However since he started to have seizure and take Keppra we started to worry how the seizure and Keppra would affect his learning process in that age.  We haven't noticed any major behavioral changes on him so far but will do a follow-up meeting with our neuro next week and discuss further. We didn't take journal until today and I'm glad you reminded that to me.  We will start taking journal today.  Again thank you for sharing the information and wish the best to your daughter and your family!  

Re: 3 year old on Keppra

Happie....

Remember if anything you are helping your son by putting him on Keppra.  The more seizures he has the more damage it does to his brain.  We are so lucky to have realized at an early age about my daughter's seizures so we could get them under control!  I don't think I would worry about his development.  You must be an amazing mother and I am sure you (like most of us on this thread) are doing all the research and getting all the knowledge you can!  Hope his seizures stay under control and I will add you and your family to our prayer requests!

Re: 3 year old on Keppra

Hi Stefan I hope you see this. I was wondering, what type of seizures was your daughter having and what part of the brain did her abnormal EEG show was affecting. Also what dosage of Keppra was she on? My son is dealing with the same issue right now and just curious to hear different stories and outcomes. Thank you for your help.

 

 

Re: 3 year old on Keppra

Asmend...

Bailey's seizures were in the left side of her brain and were petite mal seizures.  Her eyes would roll back real fast and her arms would jerk out for a split second.  2 times it happened we had her in our lap and she would just lay back on us and rest then another one would happen.  This went on about 5 times in 5 minutes!  She topped out at 1.5 ML in the morning and 2ML at night.  She has been off Keppra and seizure free since LAST September :)  The doctor thinks it is just medical fluke?!  That there is a study being done or has been done about children that have seizures between the ages of 18-24 months...no reason for onset and no reason for stopping?!  I believe it was done at Vanderbuilt.  Best of luck and my thoughts and prayers are with you through this time.

Stef

Re: 3 year old on Keppra

Logan's Mom,

My daughter is 2 and she has had 7 seizures over the last year.  Her neuro wants to prescribe Keppra.  How was your experience?  How is your son doing now?

 

Jule 

Re: 3 year old on Keppra

Hi,

My nine year old son is on 750 mg of keppra a day and we have started him on a vitamin b complex in the morning with breakfast and then magnesium oxide in the evening with dinner. It has been such a turn around. Now if he gets upset he will just go off and be upset where before he would throw whatever was in site or attack you with all his mite. He also takes 1 oz of aloe vera juice before dinner to help with his acid reflux most likey caused by the keppra. He has started having seizures again so probably be upping the meds. I hate the drugs. We are going to start him on a omega 3 for kids that does not taste or smell fishy they say. He loves tuna but we cannot eat that everyday or he will not love it anymore. wyboemail@yahoo.com

Re: 3 year old on Keppra

My daugther's first medication was Keppra.  She was 2 1/2 when she started it and she did have quite a few behavioral issues.  Looking back however, it wasn't as bad as the last 2 medicines we switched to.  She is now on ther 4th medicine, in the 8 months since she was first diagnosed, and we are hoping that this is it.  Our biggest problem with Keppra was that after we got her to the correct dosage, her body became used to it and she began having breakthrough seizures.  At one point, she was having a seizure every hour on the dot, we could predict it down to a few minutes here or there. 

Each child is different and different medications will react differently.  If you are concerned at all about her behavior, talk to the nuerologist.  Even though some people see our daughters outbursts as being "normal", we know our daughter and know what is "normal" for her.   Never let anyone tell you what is normal for your child, trust your instincts.  If you think something isn't right, trust it and talk to someone, it never hurts to ask.

Re: 3 year old on Keppra

Talk to your neurologist. You know your child. You know if the outburst are getting worse. It is  a geat medication, but like all medications, it can have side effects, and as your child gets older, the seizure control may change also. Hope this helps.