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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYA place where people with temporal lobe epilepsy can come and discuss our shared experiences and feel less alone. ...
 bluema... perceptual oddities
Hello ~ I would like to hear from others who have the perceptual symptoms of temproal lobe epilepsy. The complex partial seizures have come under control from taking 300 mg Lamictal, but I continue to live with the odd sensations - out of body, deja and...
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 momof3... I have Seizures in my Left temporal Lobe...
Ive had seziures since I was a just a baby, and Im now 29 years old. yesterday, I went into my dr and was told I would be having a video EGG done in March of 2011.
Has anyone here ever had one of these? Ive done some research online and have seen...
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 blklabana |
 Michaeldb Erectal dysfunction
As a new member in this group I would like say Hello to everybody here. And I would like to start a discussion that your doctor may not start on his own initiative...
For men, temporal lope epilepsy itself is often accompanied by low or missing sexual lust...
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bookbabe does anyone experience irritability as a symptom of temporal lobe epilepsy?
Up until my TLE diagnosis, my periodic symptom of irritablility (not being cranky, more like stimuli or small annoyances make me feel like screaming) were considered to be symptoms of my bipolar II disorder. My neurologist indicated that they could be TLE...
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Meliss... temporal lobe seizures and/or schizophrenia
I was wondering if anyone who has been diagnosed with temporal lobe seizures also went through psych evaluation to rule out schizophrenia. My husband has yet to have a seizure while being monitored by EEG, so he is still labeled as having a seizure disorder...
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 gph |
 steve14 Hello I am new here
Hi, I am new to this site today, have been scanning the net for months but never actually gone ahead and joined any group until now.
I am 31 and from London, although I now live in Hertfordshire following getting married in 2005. I thought I would...
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bookbabe nocturnal seizures - how do you know you are having them?
This is perhaps a silly question, but how do you know if you are having nocturnal seizures if you live alone? I realize that if I wake up on the floor with a bloody nose it would be a good clue, but... I have TLE with one grand mal 15 years ago. Sometimes...
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Corinna Sz vs bipolar episode
Can anyone tell me what are the criteria for differentiatiating a sz from a manic episode, I was diagnosed a bipolar for years and given ineffective meds but now my new psychiatrist says the spells which I thought was just shaking with "fear " were...
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epi_help Resource Corner
Hi everyone,
I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place!
So let me tell...
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 Nylrad topamax???
This is my first post on this website; don't know what I'm doing for sure. But I saw a post where someone was asking about the side effects of Topamax. I've been taking Topamax for just a few months (after being on Phenytoin and...
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 juperee About Me
Hey folks! I am a 32 yr old married electrical engineer living in the Twin Cities. I had my first noticeable seizure on March 25, 2006. It was a full generalized tonic clonic (grand mal), lasted a few minutes, and when I came to, I...
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 compos... Composition of My Life
Allow me to first introduce myself. I am male who was born in Kansas in the year 1979. I later moved to North Carolina in 1996, and have been there every since.
Like many of you, I am an individual with Epilepsy. Being a music...
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 shelly... New Update
Hi everyone sorry I haven't written in a while I have been trying to keep everyone in chat updated on what has been going on. But things in my life have been just a slight crazy. I was sent down to Boston to have a consultation with...
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 Theresia 25 year old female with left temporal lobe e.
Would love to hear from anyone in my age group....
I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
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 cittauk out of my mind
Before getting this horrible thing I was an ok person. Fun to be with calm collective sensible etc
The seizures seem to have stopped for now taking Lamotrogine and so far so good.
But am getting terrible out of control rages. They happen for no...
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 cougardfw feelin ....Different
Ok it's 8:26 a.m and no offense but thats early to me ......and i dunno maybe it's a sign of what the day is gonna be like but hey i Aint complaining ..I dunno .In terms of seizures well....this is the week i go back to my Epi. Doc to see if he is happy w/...
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 gypsyg GYPSPYG
I'VE READ SO MANY DIFFERENT STORIES AND FEEL FOR A LOT OF YA'LL SOME I DON'T KNOW BUT MOST I DO.
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 katfaerie seized by fear
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
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 ValNew... My Jake's Story...In a Nutshell
In the Summer of 2006, my extremely healthy, active, smart, 10 year old boy, Jake, got a mosquito bite, which lead to Viral Encephalitis. I woke to find him in Status Epilepticus. My husband and I came very close to losing our son in the ER that...
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 irish2... Once the shock has worn off
I was invited to talk at Neurolgical Discussion Day(Wrexham 30th Apr North Wales) it was
the best thing I ever did. I cried 3/4 through but it helped me to get my
feelings out. If you have the confidence, do it. This is what I said
“Once the shock...
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kristenam Problems with testing
Hi. My name is Kristena. I have been living with epilepsy for four years now. I have Bifocal seizures. My mom wants me to have testing done, but the hospitals are full. Have you guys ever had any big testing done or had surgery to help cure you?
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 roxiba... 2 brain surgeries and still seizing
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.
please email me princessroxstar1991@yahoo.com
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 angela... Seized For His Glory
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life. Please understand I am in no way trying to solicit, only share with all of you.
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deanna... |
 Michel... Is freedom coming?
My last visitt with the doctor was rather intense in a scary and eciting way. The Epileptologist said that I was probably a perfect candidate for surgery. Wow, what does this mean, freedom forever following the surgery or could this mean trouble?
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 spitle... |
Corinna Corinna"s Blog
I am a 58 year old woman with TLE, living in Gainesville Florida, finally correctly diagnosed (I think) by an A_1 psychiatrist after years of psychiatric mis-diagnosis, hospitalizations, and stigma.
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 seakats |
sdavis864 Sea Lice causing seizures
Hi All,
Just wondering if anyone has ever had seizures come on because of insect bites etc.
Have suffered T.L.E. for 20 odd years. Tried various meds but in the end could control without.
Due to stress, drinking, tiredness etc i stilll get...
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 Dtiller im new
I finally got to the point that my doctor signed that i could get my driver lic. back and the DMV is giving me crap. It has been 2 yrs since my last grand mal and 1 for my peti. I am scared they wont give it to me . al though the dmv book states 6 months...
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 dfg |
 Nicki007 Do these things change?
I have had ep. since I was 9 . My seizures have varied threw out the years . I've experienced everything from the starring seizures to grand mal to statis epilepticas. Now I am 38 and I am having only anxiety seizures where along with regular meds I take...
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 Living... My Monster
No, I do not have monsters under my bed. That is not why I am scared to go to sleep.
I have seizures. I have been diagnosed now for two years. I have complex partial seizures.
This affects my ability to go to sleep 1) Because I have seizures...
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bluema... Living With Life-Long But Late-Developing Temporal Lobe Epilepsy
Hello, I live in northeastern Massachusetts, born in 1952, and am an artist and former art therapist and art teacher. Sezures became apparent to me just a few years ago, though I've been walking around in Alice in Wonderland's world since childhood.
I...
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 owl4mom new job concerns
I finally got a full time clerical job and am so concerned that until I relearn, again, how to do everything there will be no problems. I just do not want to loose this new job. I have terrible short term memory from meds and surgery. I also did not...
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JohnV |
 Harold... From my recent writings; a seizure and some disjointed reflections
Below is my latest posting from my public blog, http://sumnonrabidus.wordpress.com/
This particular entry is both a description of a seizure and some (disjointed) speculation on the beginnings of life in the universe--which is where my TLE's religious proclivities...
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Michae... Depression a defense against effects of seizures
I had a nocturnal seizure last night/this morning. I woke up fuzzy headed like there was
a pressure behind my forehead. It feels like I'm not quite awake. On a
side note this is the first nocturnal that I've remembered and was
semi-lucid for. +1 XP for...
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cmh29 Please read my story and respond
Hello. My son is 4 years old and just had his 4th seizure today. The first started last august (2009) and then he had one in nov, dec, and jan. He wakes up (all 4 times between 5-6am) gagging/coughing then becomes slowly unresponsive, staring upward...
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 amy1021 First entry
This is my first blog entry. Seems impossible to fit everything into one entry without rambling, so I won't. I had my first seizure (or so I thought) on March 10th around 4:00 in the morning. This date will forever be remembered, no matter how much temporal...
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diablo549 World turned upside down... almost
I'm really not even sure where to start...
For as long as I can remember I was plagued with severe emotional issues. The depression was so bad that I was self-medicating and had attempted suicide. The anxiety was so bad that I would get panic attacks from...
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brandy... Brandy37043
Who out there is old enough not to be on there parents policy and not have insurance? Am I the only one? Will be getting Disabilty insurance in December. What are your suggestions? Have 35,00 dollars in hospital bills from when I spent two weeks...
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 Tavia18 Teen Life with a Dash of Epilepsy
People think they can understand Epilepsy, but the truth is no one understands it till they go through it. And Epilepsy is something I wouldn't wish on my worst enemy. And a "normal person" always has someone to talk to about there problems that...
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 Mostre... |
REMDenver |
I was diagnosed with TLE in 2005, after about 7 years of not knowing...
Currently retired military on disability diagnosed with Temporal Lobe...
My name is Maegan Overstreet and I'm fourteen. I have lived with epilepsy...
I'm 43 years old and have been living with epilepsy for 22 years....
I am pleased to find this forum. I have hidden my epilepsy from everyone...
grand-mal noght & daytime aura for 12 years. had surgery in 12/07...
Well...I'm 29 and I've lived with epilepsy for about 18 years now.(yay)...
MY DAUGHTER WHO IS 10 HAS EPILEPSY
**UPDATE** After being on the max dose of KEPPRA for 9 months a new...
I'm currently a law student dealing with absence and other partial...
I Had my first seizure last year in September when I had my youngest...
I AM A SINGLE MOM RAISING A CHILD WITH SEIZURES AND I FEEL LIKE I...
Grand Mal seizures for 13yrs. Seizure free but not symptom free 15/16...
Diagnosed in 1990.I have had 2 right temporal lobectomies.The first...
Sorry, for the mass content, skip the first section for the latest...
I was born in Hawaii and relocated to fort Gordon in Augusta...
I have Secondary Left Temporal Lobe Epilepsy. The seizures are sort...
I have a 4 year old son who has had 3 complex partial seizures. I...
Currently retired military on disability diagnosed with Temporal Lobe...
Just ben diagnosed with simple and complex partial sz from rt temp...
I am pleased to find this forum. I have hidden my epilepsy from everyone...
I have had epilepsy my entire life with a few times where symptoms...
I was recently diagnosed (Nov '09) with Temporal Lobe Epilepsy. Prior...
I live in Washington and work with individuals with physical and mental...
Hi, I'm a 19 year old sort of student, and I had surgery on 26th June...
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
i am a 17 year old female. i get intense deja vu adn i feel nauseous...
I'm 43 years old and have been living with epilepsy for 22 years....
I am a veteran who ended up with epilepsy after being hit by a mortor...
My name is Harley and my younger brother, three years difference,...
There's a lot about me, e.g., level of education, politics, music....
I'VE HAD EPILEPSY SINCE I WAS A TEEN NO ANSWER TO FOR WHY ME. BY THE...
The first seizure I remember was 1953 when I was in second grade,...
I love running as it relaxes me
I have been living with what I thought was anxiety and panic attack...
I'm serving active duty in the military, I've been in for four years...
I mostly enjoy playing music. We play a pretty wide selection of...
I'm 15 and have had temporal lobe epilepsy for a year now.
I have been living with seizures since May of 2006. they were diagnosed...
i'm a single mom of two beautiful kids, we love animals and the outdoors....
- Been having attacks since I was a little kid - Diagnosed with TLE...
I have epilepsy that can be really bad for several weeks then ok for...
I am origionally from Dresden, Maine. I live in Berlin,NH. I am married...
Here to learn more about Epilepsy, hear other's stories, get input,...
My husband of nearly 8 years and the father of my children ages 3...
Epilepsy since I was 20 years. Playing bridge in winter and sailing...
I was diagnose at age 8. I joined the epilepsy foudation last year...
I am 27 yrs. old and I have been living with epilepsy ever since I...
My name is Maegan Overstreet and I'm fourteen. I have lived with epilepsy...
29 yr old female, mother of 3 kids, and living with Complex Partial Epilepsy.
I have Temporal Lobe Epilepsy, as well as several other medical problems...
I am a fighter.
I am a med-student, and a patient.
I started having grand mal seizures when I was 20 years old, in college...
I Care for my wife who has had complex partial epilepsy since the...
I deal with it as best as i can but when it gets to me it REALLY gets...
Found out I was Epileptic on Thursday, May 6, 2010, so am very new...
I am a Lamictol success story
I have had 4 brain surgeries in the past 2 years.
I'm currently a homemaker due to my epilepsy. I had a head injury...
I have had epilepsy all of my life and have just recently gone through...
I have had Epilepsy since I was 7. I ski, fish, never leave my computer...
Hi my name is Tiny and I have been recently diagnosed with Temporal...
I'm a guy living in Western Washington state, USA. I suffer from complex...
I was diagnosed with TLE in 2005, after about 7 years of not knowing...
Raising my grandson's 4 year old Tye has brain damage with seizures and epilepsy
Please see "My Jake's Story...In a Nutshell" in People Stories, or...
I am a veteran dealing with this disorder, currently going to school...
Name: Temporal Lobe Epilepsy
Since: Apr 13, 2008
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Discussions on personal experiences with temporal lobe epilepsy
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