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Hello everyone I created this because I wanted to discuss the different aspects of epilepsy with other women that experience it. This is not only to just to talk about seizues,but to also just have fun and catch up. To ask questions and get a second opinion too. When it comes to me I have catamenial epelipsey and Iam having trouble with trying to find the right medication. So hopfully you enjoy writing on here and keeking in touch.
**Crystal**
...melisssa |
melisssa Planning on getting pregnant on Topiramate subset of topamax
Created by melisssaat1/13/10 - 12:02 am|11 Views |
Theresia PMT / PMS and seizures
Created by Theresiaat4/24/08 - 3:14 am|198 Views|25 Comments
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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denisse birth control meds
Created by denisseat9/3/09 - 12:15 am|3 Views I have a question does any one take birth control meds and do you get seizure because i just started taking birth control and i'm scare that i mite get sz and thank you if any one can help me
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danies... The Body
Created by danies...at5/27/09 - 6:11 pm|5 Views
I was on lamictal and zonegran for seven years or longer then got taken off of it. I am now on keppra xr keppra and banzel. I was on the keppra while on the others an getting put on banzel while taken off zonegran.
Then I had tooth go bad...
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Amazon AEDs and Pregnancy
Created by Amazonat5/5/09 - 12:55 am|18 Views
Hi All,
I am 28 years old and i have a question for all those ladies out here who have successfully had babies while on AEDs. If you take AEDs while pregnant, does your baby run the risk of inheriting epilepsy?
I am not sure if i got epilepsy...
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meredi... Pregnancy Advice Needed
Created by meredi...at3/14/09 - 8:56 pm|27 Views|2 Comments
i was diagnosed with JME when i was 12. i have been seizure free for 4 years now, and we are ready to start making babies! i'm on zonegran (which i've had great success with and very little side effects), but can' t decide whether to stay on the meds...
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denisse pms
Created by denisseat12/2/08 - 9:50 pm|39 Views|8 Comments Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
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sorfor... i desprately need HELP!!!!
Created by sorfor...at11/3/08 - 1:14 pm|47 Views|6 Comments hi everybody,i`ve been struggling with epilepsy for 24 yrs now(i`m 31)...u can`t imagine how many doctors i`ve seen & how many prescription i`ve tried but nothing is working!!!!i had epilepsy since i was 7 but i was 1st diagnosed with petitmal at the...
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lusima nuvaring use
Created by lusimaat1/27/09 - 5:10 am|17 Views|4 Comments hey everyone, gald to join the group. I'm 34 and started having isiopathic temporal lobe seizures at age 18. no fmhx or pmhx. had brain surgery, didn't help; but became a neurodiagnostic technologist and take care of the wonderful people that go thru what...
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epi_help Looking for summer tips
Created by epi_helpat10/07/2005 - 2:44pm|4321 Views Blog Posted To: epi_help's blog Hi everyone!
I'm working on putting together tips and info for managing summer vacations for people with epilepsy. Let me know if you have concerns we want to be sure to include or tips you've found helpful.
Also,...
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CG Things are looking up
Created by CGat05/10/2006 - 1:12pm|6769 Views Blog Posted To: CG Things are looking up for me right now. I started a new part-time on-going position that could go full-time and I'm being interviewed for my dream job via phone this Friday. Hopefully everything will work out for the best....
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lovies Begining all over again
Created by loviesat04/30/2007 - 4:57pm|2859 Views Blog Posted To: lovies's blog I see a new neuro tomorrow. I have been ever so anxiously waiting for this appointment. I feel like I am starting all over with my Epilepsy. I was diagnosed in 1972. I just learned today fom my mom that I saw a specialist that ran...
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jjdreamer My Introduction
Created by jjdreamerat07/26/2007 - 7:11pm|2931 Views Blog Posted To: jjdreamer's blog I’m twenty five years old and have been having a difficult time with epilepsy for nearly a year now. Last September, after a late night and drinking far too much caffeine, as I was lying in bed, my hand began twitching. It was...
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Theresia 25 year old female with left temporal lobe e.
Created by Theresiaat09/16/2007 - 1:05am|3267 Views Blog Posted To: My history Would love to hear from anyone in my age group....
I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
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katfaerie seized by fear
Created by katfaerieat03/06/2008 - 9:39am|3487 Views Blog Posted To: katfaerie's blog
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
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lorelama My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|3519 Views Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal.
My teen...
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roxiba... 2 brain surgeries and still seizing
Created by roxiba...at06/12/2008 - 3:58pm|3279 Views Blog Posted To: roxibaby16's blog
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.
please email me princessroxstar1991@yahoo.com
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Lauren... sick of being home
Created by Lauren...at06/15/2008 - 3:50pm|3106 Views Blog Posted To: LaurenG1211's blog I was diagnosed with Juvenile Myoclonic Epilepsy in February when I had my first grand mal. I haven't been able to drive since then. I'm 22 years old, trying to finish school, I'm out on disability, I have no money, i think my boyfriend and I might kill each...
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angela... Seized For His Glory
Created by angela...at07/08/2008 - 5:55pm|3498 Views Blog Posted To: angelacarwile's blog
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life. Please understand I am in no way trying to solicit, only share with all of you.
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cukinha Wainting to conceive
Created by cukinhaat08/18/2008 - 6:40am|2690 Views Blog Posted To: cukinha's blog
Welcome..
This blog is for all the women who are tring to conceive, and like to get informations of other experiences.
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LiaMarrae Catamenial Seizures Started at Perimenopause
Created by LiaMarraeat10/25/2008 - 9:36pm|2650 Views Blog Posted To: LiaMarrae's blog My History--I'm 51 (July '08). At age 46, my cycles totally changed from what they'd been doing since age 12. I never really kept track of my cycle length until age 27, when trying to get pregnant, but my cycles for 42 days long back then. At the age...
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stitches Tired of fighting for answers
Created by stitchesat11/10/2008 - 8:12pm|2584 Views Blog Posted To: stitches's blog
Being five years old and always feeling like you're in trouble don't really help, father drinks , mother yells and somehow you're in the middle and they use you as bait. Never fails does it when they start arguing and you can't fight for you cause...
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lindcy HELLO
Created by lindcyat01/10/2009 - 7:27am|1993 Views Blog Posted To: lindcy's blog
Im new to this but i was diagnosed with epilepsy at 14 years old and am know 27. My fiance and I, we've been together for 7 1/2 years, would love to have a baby. As of now im taking depakote and topamax. My seizures have always averaged about 1-2...
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angele... my severe chronic headaches due to my epilepsy?
Created by angele...at02/16/2009 - 4:15pm|2257 Views Blog Posted To: angeleyes12's blog ok, so i have been having severe chronic headaches everyday where they hurt so bad that i can fall asleep at nighttime. Sometimes the pain contiues into the next day and the day after that. I am about to talk to my doctor. We just cant figure if its do my...
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Living... Anyone know the answer to this?
Created by Living...at02/26/2009 - 4:27pm|2408 Views Blog Posted To: My New Life I had a childhood dream of becoming a marine biologist and owning my own boat and boating out in the middle of the ocean and going scuba diving. Of course now I don't still want to be a marine biologist. I have something more realistic in mind, but if I...
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allyallex A simple teenagers wish :) thanks all
Created by allyallexat03/20/2009 - 8:54pm|2138 Views Blog Posted To: allyallex's blog
this may be alot to read, but hear me out? it means a bunch :)
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erykaj Life with Sparky
Created by erykajat06/17/2009 - 7:03pm|1266 Views Blog Posted To: Life With Sparky
I am in the process of of having an Ambulatory EEG. It hasn't been so bad, but since I get them off tomorrow morning, they have started to itch like crazy! It's funny, I have felt like a member of the Borg (Star Trek fans will get this reference) for the...
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heayacap seizures' revenge
Created by heayacapat07/14/2009 - 11:36am|916 Views Blog Posted To: heayacap's blog Well, I have an identical twin sister, and we both have epilepsy (grand mal and petit mal). The theory is that, when the egg splits, there is trauma to the nucleus - like a brain injury. Our parents didn't really noticed much at first, I guess we only were...
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mandas... Find insurance for Epilepsy
Created by mandas...at10/23/2009 - 6:45pm|332 Views Blog Posted To: mandasuewilson's blog |
sharon516 New - Frustrating working with others when you have epilepsy.
Created by sharon516at02/22/2010 - 1:01pm|87 Views Blog Posted To: sharon516's blog
First I want to thank my sister Lorraine for giving me the support of starting this blog. Her encouragement and knowledge she gives me is priceless. I also want to acknowlege the love and support I recieve from my husband Mark, daughter Eva, and son Dexter,...
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mickey23 |
lyzolari Women & Pregnancy & Alternative Treatments for Epilepsy - survey ...
Created by lyzolariat1/16/10 - 12:13 pm Posted To: |
lyzolari Survey for: Women Who Had Epilepsy While They Were Pregnant And W...
Created by lyzolariat1/8/10 - 5:26 am Posted To: |
mickey23 |
Newyor... |
jillwh... |
aidadj... Lamictal Keppra & Trileptal -pregnancy?
Created by aidadj...at6/13/09 - 6:10 pm|3 Comments Posted To: |
sprtgrl99 |
speedy... |
Mornin... |
kay69 |
denisse |
denisse |
DoveHo... |
kharri19 |
kharri19 |
uberzw... |
AmityF |
jenn 54 |
jenn 54 |
wendylouu |
wendylouu |
wendylouu |
belimawr Want to help, New Dx, weird Dr recommendations
Created by belimawrat6/15/08 - 10:02 am|5 Comments Posted To: |
Angie6380 |
Name: Women and epilepsy
Since: Apr 10, 2008
About the Group:
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start a group to talk and get to know other people with the same seizure and if when it comes to certian subjects you can get a second opinion. Overall one will be able to converse and find out information that can help medically and socially.
I have had epilepsy since I was twelve years old. I am now a mother...
I have had epilepsy for 11 years now. It started after I got encephalitis....
I am 53 yrs old and had gran mal seizures from 5yrs old till 9 yrs...
I have had epilepsy since I was twelve years old. I am now a mother...
I am a 28 year old woman who has been diagnosed with epilepsy for...
Well...I'm 29 and I've lived with epilepsy for about 18 years now.(yay)...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
**UPDATE** After being on the max dose of KEPPRA for 9 months a new...
Hi im Hannah i am twenty-three years old and i have light brown and...
My name is Brittany and I moved to Robersonville NC after living in...
I have had epilepsy for 11 years now. It started after I got encephalitis....
I was diagnosed with epilepsy at 19, I was getting absence seizures...
I am 33 years old and have had epilepsy my whole life. I had grandmals...
I'm person living with epilepsy seen the age of 17 Im at some control...
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
Hi, I am a 36-year old female living with Epilepsy.
I am 31 and have been diagnosed with Juvenile Myoclonic Epilepsy (JME)....
Hello, I have had seizures since I was 13. The dr's hoped I would...
I'm a proud mother of three beautiful children and I have Complex...
I normally have 4 to 6 seizures a month. I have had 2 surguries and...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
Hey everyone! I'm a rural teacher, and I teach grades 3-6 in one...
I am 24 years old. I have been living with Epilepsy since November...
i was diagnosed with a seizure diorder just recently and want to chat...
Heyy, I'm Jenn. I'm 15 years old for a few more days :] I'm currently...
I found out I had epilepsy a few days after my 17th birthday, since...
I had first seizures @ age 2 in a case of anemia. I started having...
I was diagnosed with Epilepsy about 6 1/2 years ago after having a...
I have epilepsy that can be really bad for several weeks then ok for...
I moved to Sacramento,California 2 1/2 years ago from Milwaukee, Wisconsin...
I'VE BEEN MARRIED 11 YEARS, HAVE 2 GROWN GIRLS FROM FIRST MARRIAGE,...
Here to learn more about Epilepsy, hear other's stories, get input,...
I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...
I have 3 children, & 5 grandkids! I live in IL near to WI. I have...
A mom of 2. My faith & children are most important to me. I love to...
I graduated from Minnesota State University Mankato with a Bachelors...
I'm 24 and I just started having seizures a month ago. Have not been...
I am a mother of two children, neither of whom have seizures. I am...
im 20 and am still living at home i am the only one n my whole family...
I have Temporal Lobe Epilepsy, as well as several other medical problems...
I have had 4 brain surgeries in the past 2 years.
I am 53 yrs old and had gran mal seizures from 5yrs old till 9 yrs...
I was in a near-fatal head on auto collision in 1986 which resulted...
hiya my name is sophia, i live in england , yorkshire and i a full...
Name: Shari Hubby: Kevin Daughter: Meghan Nephews: Logan, Chase,...
I am married and we have a 5yo son and 15yo daughter...along with...
I love animals and I like reading and I have craft projects and I...
I am a 26 year old female from Northern California. I was diagnosed...
I'M 21 FROM THE ISLAND OF JAMAICA, HOWEVER LIVE IN NEW YORK CITY RIGHT...
| Title | Posted | |
|---|---|---|
| heart pacemaker and VNS?? | Mar 18, 2010 | |
| Silver5 | ||
| Not a candidate for brain surgery - now what? | Mar 18, 2010 | |
| barn619 | ||
| Topamax Dizziness Lasts All Day | Mar 18, 2010 | |
| sonjadupor | ||
| Having a HUGE INSURANCE ISSUE!!! I need suggestions... PLEASE | Mar 18, 2010 | |
| HERMESIEL | ||
| Lamotrigine/ lamictal and contraception | Mar 18, 2010 | |
| Laura B | ||
| Ecstatic Seizures | Mar 18, 2010 | |
| victoria.w | ||
| ALTERNATIVE CURE FOR EPILEPSY. | Mar 18, 2010 | |
| callpaul | ||
| Low sperm count...anybody? | Mar 18, 2010 | |
| Anie | ||
| Temporal Lobe Epilepsy: what does it feel like? | Mar 17, 2010 | |
| rokchik1 | ||
| Disability... | Mar 17, 2010 | |
| Lexx | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,443 | |
| epi_help | ||
| topamax and weight loss | 18,976 | |
| alexia mom | ||
| kepra | 18,913 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,852 | |
| pdl1 | ||
| Epilepsy and marijuana | 15,645 | |
| cjad234 | ||
| Sexual Side Effects | 13,151 | |
| George R | ||
| How exactly do aura's feel | 13,057 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,465 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,091 | |
| spiz | ||
| electrical shock in head? | 9,477 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Specimen for Study Part II - Stupidity of Doctors | Mar 17, 2010 | |
| MichaelK | ||
| Support Groups/Naples | Mar 17, 2010 | |
| pibbs84 | ||
| Doctors and diets | Mar 17, 2010 | |
| Christine86 | ||
| Jillian's Progress | Mar 17, 2010 | |
| jillsmom | ||
| Coughing up a Lung | Mar 17, 2010 | |
| kjeldoran_king | ||
| Seizures and medical marijuana | Mar 17, 2010 | |
| seizureprone134 | ||
| Single Mom Recently Diagnosed With Temporal Lobe Epileptic Seizures | Mar 17, 2010 | |
| ambdab01 | ||
| spiderman | Mar 17, 2010 | |
| DaniellaMT | ||
| gerbera daisies | Mar 17, 2010 | |
| DaniellaMT | ||
| I need an answer. | Mar 16, 2010 | |
| Lisakelli1 | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 8,008 | |
| Butterflygrl | ||
| my partial complex seizures | 3,878 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,662 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,475 | |
| JudiS | ||
| side effects of phenobarb. | 3,074 | |
| pksmom | ||
| Feeling Sick | 2,934 | |
| JBJ1984 | ||
| How can you tell if a sleep seizure happens? | 2,914 | |
| epl_controller | ||
| Tegretol XR and ANXIETY meds | 2,819 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,754 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,603 | |
| teft | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Absence Seizures in Kids | Mar 17, 2010 | |
| zmommy | ||
| Baytown Texas Epilepsy Support Group | Mar 16, 2010 | |
| cmender1984 | ||
| Mothers With Epilepsy | Mar 16, 2010 | |
| cmender1984 | ||
| Seizures: First Diagnosis Infantile Spasms, Second Diagnosis: Atonic Drop Seizures | Mar 11, 2010 | |
| trey2007 | ||
| DestinyMaker | Mar 10, 2010 | |
| destinymaker | ||
| you are not alone my friend. | Mar 1, 2010 | |
| donnia | ||
| Panayiotopoulos Syndrome | Mar 1, 2010 | |
| valentina | ||
| i have Epilepsy and A career... looking to talk to others of te same | Feb 25, 2010 | |
| krayb450 | ||
| College Students Living and Learning with Epilepsy | Feb 22, 2010 | |
| risingagain13 | ||
| Just Been Diagnosed Of Having Epilepsy? | Feb 19, 2010 | |
| norrmbeam | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Combo gift packs | Mar 18, 2010 | |
| bobo0 | ||
| Never Grew Out of It! | Mar 17, 2010 | |
| fhsu_recruiter | ||
| Sophies Story- Infantile Spasms | Mar 17, 2010 | |
| sophiesmummy | ||
| MIGUEL'S STORY | Mar 15, 2010 | |
| miguelitos mom | ||
| Not again | Mar 15, 2010 | |
| megan.flore | ||
| Given epilepsy for a reason | Mar 15, 2010 | |
| sissy_girl | ||
| My Story | Mar 14, 2010 | |
| ouize | ||
| miss | Mar 12, 2010 | |
| farakh | ||
| Zoey's Story | Mar 12, 2010 | |
| rina23x | ||
| Never thought at my age! | Mar 12, 2010 | |
| jackie2010 | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,298 | |
| kroiz | ||
| (TLE) seizures, insurance company denies me for health care due to epilepsy | 891 | |
| wenko | ||
| my story | 473 | |
| snoby | ||
| Always Have On Clean Underwear | 449 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 426 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 406 | |
| banffgirl | ||
| What My Seizures Are Like...... | 382 | |
| javaman | ||
| Temporal Lobe Epilepsy | 353 | |
| Nocturnal grand mal seizures (primary generalized epilepsy) | 343 | |
| karalyeva | ||
| Life......... | 337 | |
| dizzygal | ||
| View all Stories | ||
