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Hello everyone I created this because I wanted to discuss the different aspects of epilepsy with other women that experience it. This is not only to just to talk about seizues,but to also just have fun and catch up. To ask questions and get a second opinion too. When it comes to me I have catamenial epelipsey and Iam having trouble with trying to find the right medication. So hopfully you enjoy writing on here and keeking in touch.
**Crystal**
...denisse birth control meds
Created by denisseat9/3/09 - 12:15 am|2 Views I have a question does any one take birth control meds and do you get seizure because i just started taking birth control and i'm scare that i mite get sz and thank you if any one can help me
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Theresia PMT / PMS and seizures
Created by Theresiaat4/24/08 - 3:14 am|182 Views|21 Comments
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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danies... The Body
Created by danies...at5/27/09 - 6:11 pm|5 Views
I was on lamictal and zonegran for seven years or longer then got taken off of it. I am now on keppra xr keppra and banzel. I was on the keppra while on the others an getting put on banzel while taken off zonegran.
Then I had tooth go bad...
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Amazon AEDs and Pregnancy
Created by Amazonat5/5/09 - 12:55 am|16 Views
Hi All,
I am 28 years old and i have a question for all those ladies out here who have successfully had babies while on AEDs. If you take AEDs while pregnant, does your baby run the risk of inheriting epilepsy?
I am not sure if i got epilepsy...
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meredi... Pregnancy Advice Needed
Created by meredi...at3/14/09 - 8:56 pm|25 Views|2 Comments
i was diagnosed with JME when i was 12. i have been seizure free for 4 years now, and we are ready to start making babies! i'm on zonegran (which i've had great success with and very little side effects), but can' t decide whether to stay on the meds...
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denisse pms
Created by denisseat12/2/08 - 9:50 pm|39 Views|8 Comments Hi Everyone new to the group but i have some question because i seen i get my seizure a little bit more often when i have my periods i have had my seizure for 10 yrs now so i seen more often so just want 2 hear what kind of way do you feel. thanks
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sorfor... i desprately need HELP!!!!
Created by sorfor...at11/3/08 - 1:14 pm|46 Views|6 Comments hi everybody,i`ve been struggling with epilepsy for 24 yrs now(i`m 31)...u can`t imagine how many doctors i`ve seen & how many prescription i`ve tried but nothing is working!!!!i had epilepsy since i was 7 but i was 1st diagnosed with petitmal at the...
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lusima nuvaring use
Created by lusimaat1/27/09 - 5:10 am|17 Views|4 Comments hey everyone, gald to join the group. I'm 34 and started having isiopathic temporal lobe seizures at age 18. no fmhx or pmhx. had brain surgery, didn't help; but became a neurodiagnostic technologist and take care of the wonderful people that go thru what...
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lusima nuvaring use
Created by lusimaat1/27/09 - 5:07 am|2 Views hey everyone, gald to join the group. I'm 34 and started having isiopathic temporal lobe seizures at age 18. no fmhx or pmhx. had brain surgery, didn't help; but became a neurodiagnostic technologist and take care of the wonderful people that go thru what...
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lusima nuvaring
Created by lusimaat1/27/09 - 5:06 am|2 Views hey everyone, gald to join the group. I'm 34 and started having isiopathic temporal lobe seizures at age 18. no fmhx or pmhx. had brain surgery, didn't help; but became a neurodiagnostic technologist and take care of the wonderful people that go thru what...
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epi_help Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|5025 Views Blog Posted To: epi_help's blog Hi everyone,
I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place!
So let me tell...
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CG Reality vs. the News
Created by CGat05/10/2006 - 1:12pm|6731 Views Blog Posted To: CG There are times lately, when I feel I am living in a different reality from what I hear on the news. The job prospects are supposed to be so hot out here ... so why are there so many homeless people in my neighbourhood? Why is it so...
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lovies Begining all over again
Created by loviesat04/30/2007 - 4:57pm|2686 Views Blog Posted To: lovies's blog I see a new neuro tomorrow. I have been ever so anxiously waiting for this appointment. I feel like I am starting all over with my Epilepsy. I was diagnosed in 1972. I just learned today fom my mom that I saw a specialist that ran...
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jjdreamer My Introduction
Created by jjdreamerat07/26/2007 - 7:11pm|2774 Views Blog Posted To: jjdreamer's blog I’m twenty five years old and have been having a difficult time with epilepsy for nearly a year now. Last September, after a late night and drinking far too much caffeine, as I was lying in bed, my hand began twitching. It was...
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Theresia 25 year old female with left temporal lobe e.
Created by Theresiaat09/16/2007 - 1:05am|3057 Views Blog Posted To: My history Would love to hear from anyone in my age group....
I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
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katfaerie seized by fear
Created by katfaerieat03/06/2008 - 9:39am|3274 Views Blog Posted To: katfaerie's blog
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
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lorelama My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|3233 Views Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal.
My teen...
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roxiba... 2 brain surgeries and still seizing
Created by roxiba...at06/12/2008 - 3:58pm|3045 Views Blog Posted To: roxibaby16's blog
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.
please email me princessroxstar1991@yahoo.com
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Lauren... sick of being home
Created by Lauren...at06/15/2008 - 3:50pm|2893 Views Blog Posted To: LaurenG1211's blog I was diagnosed with Juvenile Myoclonic Epilepsy in February when I had my first grand mal. I haven't been able to drive since then. I'm 22 years old, trying to finish school, I'm out on disability, I have no money, i think my boyfriend and I might kill each...
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angela... Seized For His Glory
Created by angela...at07/08/2008 - 5:55pm|3272 Views Blog Posted To: angelacarwile's blog
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life. Please understand I am in no way trying to solicit, only share with all of you.
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cukinha Wainting to conceive
Created by cukinhaat08/18/2008 - 6:40am|2527 Views Blog Posted To: cukinha's blog
Welcome..
This blog is for all the women who are tring to conceive, and like to get informations of other experiences.
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LiaMarrae Catamenial Seizures Started at Perimenopause
Created by LiaMarraeat10/25/2008 - 9:36pm|2476 Views Blog Posted To: LiaMarrae's blog My History--I'm 51 (July '08). At age 46, my cycles totally changed from what they'd been doing since age 12. I never really kept track of my cycle length until age 27, when trying to get pregnant, but my cycles for 42 days long back then. At the age...
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stitches Tired of fighting for answers
Created by stitchesat11/10/2008 - 8:12pm|2417 Views Blog Posted To: stitches's blog
Being five years old and always feeling like you're in trouble don't really help, father drinks , mother yells and somehow you're in the middle and they use you as bait. Never fails does it when they start arguing and you can't fight for you cause...
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lindcy HELLO
Created by lindcyat01/10/2009 - 7:27am|1834 Views Blog Posted To: lindcy's blog
Im new to this but i was diagnosed with epilepsy at 14 years old and am know 27. My fiance and I, we've been together for 7 1/2 years, would love to have a baby. As of now im taking depakote and topamax. My seizures have always averaged about 1-2...
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angele... my severe chronic headaches due to my epilepsy?
Created by angele...at02/16/2009 - 4:15pm|2033 Views Blog Posted To: angeleyes12's blog ok, so i have been having severe chronic headaches everyday where they hurt so bad that i can fall asleep at nighttime. Sometimes the pain contiues into the next day and the day after that. I am about to talk to my doctor. We just cant figure if its do my...
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Living... My Monster
Created by Living...at02/26/2009 - 4:27pm|2224 Views Blog Posted To: My New Life
No, I do not have monsters under my bed. That is not why I am scared to go to sleep.
I have seizures. I have been diagnosed now for two years. I have complex partial seizures.
This affects my ability to go to sleep 1) Because I have seizures...
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allyallex A simple teenagers wish :) thanks all
Created by allyallexat03/20/2009 - 8:54pm|1923 Views Blog Posted To: allyallex's blog
this may be alot to read, but hear me out? it means a bunch :)
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erykaj Life with Sparky
Created by erykajat06/17/2009 - 7:03pm|1051 Views Blog Posted To: Life With Sparky
I am in the process of of having an Ambulatory EEG. It hasn't been so bad, but since I get them off tomorrow morning, they have started to itch like crazy! It's funny, I have felt like a member of the Borg (Star Trek fans will get this reference) for the...
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heayacap seizures' revenge
Created by heayacapat07/14/2009 - 11:36am|760 Views Blog Posted To: heayacap's blog Well, I have an identical twin sister, and we both have epilepsy (grand mal and petit mal). The theory is that, when the egg splits, there is trauma to the nucleus - like a brain injury. Our parents didn't really noticed much at first, I guess we only were...
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mandas... New - Find insurance for Epilepsy
Created by mandas...at10/23/2009 - 6:45pm|131 Views Blog Posted To: mandasuewilson's blog |
Wondering what events are upcoming? Use the Event Calendar in this section to learn about events taking place in your community, state, or country. See what other epilepsy.com members are promoting. Remind yourself of new activities. Have your own event? Add it to the calendar for other members to find!
Learn more about the Event Calendar and how to create your entry in our Event Calendar Help Section.
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jillwh... |
aidadj... Lamictal Keppra & Trileptal -pregnancy?
Created by aidadj...at6/13/09 - 6:10 pm|3 Comments Posted To: |
sprtgrl99 |
speedy... |
Mornin... |
kay69 |
denisse |
denisse |
DoveHo... |
kharri19 |
kharri19 |
uberzw... |
AmityF |
jenn 54 |
jenn 54 |
wendylouu |
wendylouu |
wendylouu |
belimawr Want to help, New Dx, weird Dr recommendations
Created by belimawrat6/15/08 - 10:02 am|5 Comments Posted To: |
Angie6380 |
Theresia |
rwolfe |
epi_help |
Sobralia |
Name: Women and epilepsy
Since: Apr 10, 2008
About the Group:
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start a group to talk and get to know other people with the same seizure and if when it comes to certian subjects you can get a second opinion. Overall one will be able to converse and find out information that can help medically and socially.
A mom of 2. My faith & children are most important to me. I love to...
I was diagnosed with Epilepsy about 6 1/2 years ago after having a...
Hey everyone! I'm a rural teacher, and I teach grades 3-6 in one...
I am 23 years old. I have been living with Epilepsy since November...
Hi, I am a 36-year old female living with Epilepsy.
I am a 28 year old woman who has been diagnosed with epilepsy for...
Well...I'm 28 and I've lived with epilepsy for about 18 years now.(yay)...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
**UPDATE** After being on the max dose of KEPPRA for 9 months a new...
Hi im Hannah i am twenty-three years old and i have light brown and...
My name is Brittany and I moved to Robersonville NC after living in...
I was diagnosed with epilepsy at 19, I was getting absence seizures...
I am 33 years old and have had epilepsy my whole life. I had grandmals...
I'm person living with epilepsy seen the age of 17 Im at some control...
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
Hi, I am a 36-year old female living with Epilepsy.
I am 31 and have been diagnosed with Juvenile Myoclonic Epilepsy (JME)....
Hello, I have had seizures since I was 13. The dr's hoped I would...
I'm a proud mother of three beautiful children and I have Complex...
I normally have 4 to 6 seizures a month. I have had 2 surguries and...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
Hey everyone! I'm a rural teacher, and I teach grades 3-6 in one...
I am 23 years old. I have been living with Epilepsy since November...
i was diagnosed with a seizure diorder just recently and want to chat...
Heyy, I'm Jenn. I'm 15 years old for a few more days :] I'm currently...
I found out I had epilepsy a few days after my 17th birthday, since...
I had first seizures @ age 2 in a case of anemia. I started having...
I was diagnosed with Epilepsy about 6 1/2 years ago after having a...
I am a student from New Jersey hoping to attend medical school.
I have epilepsy that can be really bad for several weeks then ok for...
I moved to Sacramento,California 2 1/2 years ago from Milwaukee, Wisconsin...
I'VE BEEN MARRIED 11 YEARS, HAVE 2 GROWN GIRLS FROM FIRST MARRIAGE,...
Here to learn more about Epilepsy, hear other's stories, get input,...
I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...
I have 3 children, & 5 grandkids! I live in IL near to WI. I have...
A mom of 2. My faith & children are most important to me. I love to...
I am 24 years old and a senior at Minnesota State University Mankato,...
I'm 24 and I just started having seizures a month ago. Have not been...
I am a mother of two children, neither of whom have seizures. I am...
im 20 and am still living at home i am the only one n my whole family...
I have Temporal Lobe Epilepsy, as well as several other medical problems...
I have had 4 brain surgeries in the past 2 years.
I was in a near-fatal head on auto collision in 1986 which resulted...
hiya my name is sophia, i live in england , yorkshire and i a full...
Name: Shari Hubby: Kevin Daughter: Meghan Nephews: Logan, Chase,...
I am married and we have a 5yo son and 15yo daughter...along with...
I love animals and I like reading and I have craft projects and I...
I am a 26 year old female from Northern California. I was diagnosed...
I'M 21 FROM THE ISLAND OF JAMAICA, HOWEVER LIVE IN NEW YORK CITY RIGHT...
| Title | Posted | |
|---|---|---|
| Is it typical for an epileptic person to pace constantly or have sudden rushes of energy making you want to run? | Nov 21, 2009 | |
| Concordia | ||
| Epileptologist in DFW? | Nov 20, 2009 | |
| dhemphill | ||
| How long is open trileptal suspension bottle good for? | Nov 20, 2009 | |
| Sholow | ||
| Can we have white chocolate? | Nov 20, 2009 | |
| lilcrumb3 | ||
| Keppra and depression | Nov 20, 2009 | |
| jennysomers | ||
| AFTER SURGERY-IS THAT FEELING A SEIZURE??????? | Nov 20, 2009 | |
| gregg9130 | ||
| Frontal Lobe Epilepsy | Nov 20, 2009 | |
| Jesscottwvwv | ||
| seizure recovery... | Nov 20, 2009 | |
| jubatum | ||
| Controlling Anxiety | Nov 20, 2009 | |
| Alang | ||
| Confused about some terminology | Nov 20, 2009 | |
| drowsydreamer | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,424 | |
| epi_help | ||
| topamax and weight loss | 18,947 | |
| alexia mom | ||
| kepra | 18,843 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,716 | |
| pdl1 | ||
| Epilepsy and marijuana | 15,216 | |
| cjad234 | ||
| Sexual Side Effects | 13,080 | |
| George R | ||
| How exactly do aura's feel | 12,910 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,357 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,020 | |
| spiz | ||
| electrical shock in head? | 9,421 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
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| Depression and Epilepsy | Nov 20, 2009 | |
| MichaelK | ||
| What a day! | Nov 20, 2009 | |
| epi_help | ||
| Results with my Neurologist, med changes and life changes | Nov 20, 2009 | |
| Gina Marie | ||
| i broke his ankle... | Nov 20, 2009 | |
| jacky99 | ||
| Sleep deprivation EEG | Nov 20, 2009 | |
| freedbythewind | ||
| TYLENOL, AEDs & SEIZURES | Nov 20, 2009 | |
| cmscribbles | ||
| Links of London jewelry | Nov 20, 2009 | |
| tiffanyblog | ||
| A novice writer needs YOUR help! | Nov 20, 2009 | |
| ACSutliff | ||
| Heck of a day | Nov 20, 2009 | |
| 4mygirl2 | ||
| vaic t800 TV cell phone with camera | Nov 20, 2009 | |
| agoodsellers | ||
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| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 8,002 | |
| Butterflygrl | ||
| my partial complex seizures | 3,859 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,649 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,464 | |
| JudiS | ||
| side effects of phenobarb. | 3,061 | |
| pksmom | ||
| Feeling Sick | 2,907 | |
| JBJ1984 | ||
| How can you tell if a sleep seizure happens? | 2,853 | |
| epl_controller | ||
| Tegretol XR and ANXIETY meds | 2,801 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,712 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,595 | |
| teft | ||
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| Title | Posted | |
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| Grandparents of grandchildren with Epilepsy | Nov 14, 2009 | |
| EmiliesGrandma | ||
| neeraj clinic, rishikesh,india | Nov 14, 2009 | |
| ankita gupta | ||
| Project Uplift | Nov 4, 2009 | |
| tamliniscute | ||
| SEIZURE FREE | Nov 3, 2009 | |
| gracie9933 | ||
| EPILEPSY SUPPORT GROUP NORTH CAROLINA | Oct 9, 2009 | |
| Roxanne D | ||
| Community Feedback on Proposed New epilepsy.com Feature | Sep 30, 2009 | |
| kdredske | ||
| Parent with Child with Epilepsy,Dystonia, and Autism | Sep 24, 2009 | |
| TashaCole | ||
| RX outreach Program | Sep 22, 2009 | |
| mw | ||
| Fun and Games | Sep 22, 2009 | |
| phylisfjohnson | ||
| Epilepsy and Memory Loss?? | Sep 17, 2009 | |
| lindseygthatsme | ||
| View all Groups | ||
| Title | Posted | |
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| WHY??????????????????????? | Nov 20, 2009 | |
| marymm | ||
| Ugg Bailey Button Boots–Your Winter Footwear | Nov 20, 2009 | |
| lovetiffany | ||
| Ceremony to welcome President Hu Jintao to the country, accompanied by up to 200 people Barack Obama Barack Obama | Nov 19, 2009 | |
| nicky001 | ||
| Ten best sale cell phones(one) in Otc:A2688 TV cell phone | Nov 18, 2009 | |
| agoodseller | ||
| new roads to travel | Nov 18, 2009 | |
| Marsha Cash | ||
| febrile seizures | Nov 18, 2009 | |
| febrileseizures | ||
| 6 months post brain surgery | Nov 18, 2009 | |
| robin4902 | ||
| James Rowell | Nov 18, 2009 | |
| jamesrowell | ||
| Police Officer with Epilepsy | Nov 18, 2009 | |
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| So Wonderful of Using a Video Baby Monitor | Nov 18, 2009 | |
| buyairshoe | ||
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| Jessica Roiz | 2,277 | |
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| my story | 469 | |
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| Always Have On Clean Underwear | 439 | |
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| Kelly's Life With Epilepsy | 418 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 394 | |
| banffgirl | ||
| What My Seizures Are Like...... | 379 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 334 | |
| karalyeva | ||
| Life......... | 329 | |
| dizzygal | ||
| Crystal's story | 326 | |
| Crystal11 | ||
| View all Stories | ||
