Welcome to the redesigned epilepsy.com
It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.
The new features include:
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYHello everyone I created this because I wanted to discuss the different aspects of epilepsy with other women that experience it. This is not only to just to talk about seizues,but to also just have fun and catch up. To ask questions and get a second opinion too. When it comes to me I have catamenial epelipsey and Iam having trouble with trying to find the right medication. So hopfully you enjoy writing on here and keeking in touch.
**Crystal**
...Theresia PMT / PMS and seizures
Created by Theresiaat4/24/08 - 3:14 am|296 Views|33 Comments
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
|
melisssa |
meredi... Pregnancy Advice Needed
Created by meredi...at3/14/09 - 8:56 pm|54 Views|7 Comments
i was diagnosed with JME when i was 12. i have been seizure free for 4 years now, and we are ready to start making babies! i'm on zonegran (which i've had great success with and very little side effects), but can' t decide whether to stay on the meds...
|
Lisa_G PREGNANCY ADVICE - ON KEPPRA & LAMICTAL
Created by Lisa_Gat6/12/10 - 5:35 pm|21 Views|1 Comment
Hi guys,
I'm 28 from Australia, have generalised tonic clonic epilepsy, last seizure in Feb 2010 (now June 2010). I'm currently taking 2000mg Keppra & 300mg Lamictal per day to control my seizures. My seizures have gotten worse over the past...
|
erykaj Pregnancy on Seizure and Depression Medication
Created by erykajat6/27/10 - 11:01 am|3 Views
Hi,
I am researching the effects of taking both an AED (I take Zonegran) and depression medication during pregnancy.
|
Amazon AEDs and Pregnancy
Created by Amazonat5/5/09 - 12:55 am|37 Views|2 Comments
Hi All,
I am 28 years old and i have a question for all those ladies out here who have successfully had babies while on AEDs. If you take AEDs while pregnant, does your baby run the risk of inheriting epilepsy?
I am not sure if i got epilepsy...
|
therat... Request for Reasonable accommodations in the workplace
Created by therat...at4/16/10 - 6:35 pm|3 Views |
melisssa Planning on getting pregnant on Topiramate subset of topamax
Created by melisssaat1/13/10 - 12:02 am|20 Views |
denisse birth control meds
Created by denisseat9/3/09 - 12:15 am|11 Views I have a question does any one take birth control meds and do you get seizure because i just started taking birth control and i'm scare that i mite get sz and thank you if any one can help me
|
danies... The Body
Created by danies...at5/27/09 - 6:11 pm|9 Views
I was on lamictal and zonegran for seven years or longer then got taken off of it. I am now on keppra xr keppra and banzel. I was on the keppra while on the others an getting put on banzel while taken off zonegran.
Then I had tooth go bad...
|
epi_help Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|8991 Views Blog Posted To: epi_help's blog Hi everyone,
I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place!
So let me tell...
|
CG Reality vs. the News
Created by CGat05/10/2006 - 1:12pm|12164 Views Blog Posted To: CG There are times lately, when I feel I am living in a different reality from what I hear on the news. The job prospects are supposed to be so hot out here ... so why are there so many homeless people in my neighbourhood? Why is it so...
|
lovies Begining all over again
Created by loviesat04/30/2007 - 4:57pm|4757 Views Blog Posted To: lovies's blog I see a new neuro tomorrow. I have been ever so anxiously waiting for this appointment. I feel like I am starting all over with my Epilepsy. I was diagnosed in 1972. I just learned today fom my mom that I saw a specialist that ran...
|
jjdreamer My Introduction
Created by jjdreamerat07/26/2007 - 7:11pm|4760 Views Blog Posted To: jjdreamer's blog I’m twenty five years old and have been having a difficult time with epilepsy for nearly a year now. Last September, after a late night and drinking far too much caffeine, as I was lying in bed, my hand began twitching. It was...
|
Theresia 25 year old female with left temporal lobe e.
Created by Theresiaat09/16/2007 - 1:05am|5278 Views Blog Posted To: My history Would love to hear from anyone in my age group....
I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
|
katfaerie seized by fear
Created by katfaerieat03/06/2008 - 9:39am|5539 Views Blog Posted To: katfaerie's blog
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
|
lorelama My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|6167 Views Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal.
My teen...
|
roxiba... 2 brain surgeries and still seizing
Created by roxiba...at06/12/2008 - 3:58pm|5343 Views Blog Posted To: roxibaby16's blog
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.
please email me princessroxstar1991@yahoo.com
|
Lauren... sick of being home
Created by Lauren...at06/15/2008 - 3:50pm|5036 Views Blog Posted To: LaurenG1211's blog I was diagnosed with Juvenile Myoclonic Epilepsy in February when I had my first grand mal. I haven't been able to drive since then. I'm 22 years old, trying to finish school, I'm out on disability, I have no money, i think my boyfriend and I might kill each...
|
angela... Seized For His Glory
Created by angela...at07/08/2008 - 5:55pm|5539 Views Blog Posted To: angelacarwile's blog
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life. Please understand I am in no way trying to solicit, only share with all of you.
|
cukinha Wainting to conceive
Created by cukinhaat08/18/2008 - 6:40am|4549 Views Blog Posted To: cukinha's blog
Welcome..
This blog is for all the women who are tring to conceive, and like to get informations of other experiences.
|
LiaMarrae Catamenial Seizures Started at Perimenopause
Created by LiaMarraeat10/25/2008 - 9:36pm|4778 Views Blog Posted To: LiaMarrae's blog My History--I'm 51 (July '08). At age 46, my cycles totally changed from what they'd been doing since age 12. I never really kept track of my cycle length until age 27, when trying to get pregnant, but my cycles for 42 days long back then. At the age...
|
stitches Tired of fighting for answers
Created by stitchesat11/10/2008 - 8:12pm|4471 Views Blog Posted To: stitches's blog
Being five years old and always feeling like you're in trouble don't really help, father drinks , mother yells and somehow you're in the middle and they use you as bait. Never fails does it when they start arguing and you can't fight for you cause...
|
danies... Epilepsy
Created by danies...at12/30/2008 - 5:03pm|4031 Views Blog Posted To: daniesbrwneyes's blog I was dignosed with epilepsy at the age of seven years old. The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread through the yrs. As Well as they think...
|
lindcy HELLO
Created by lindcyat01/10/2009 - 7:27am|3823 Views Blog Posted To: lindcy's blog
Im new to this but i was diagnosed with epilepsy at 14 years old and am know 27. My fiance and I, we've been together for 7 1/2 years, would love to have a baby. As of now im taking depakote and topamax. My seizures have always averaged about 1-2...
|
angele... my severe chronic headaches due to my epilepsy?
Created by angele...at02/16/2009 - 4:15pm|4333 Views Blog Posted To: angeleyes12's blog ok, so i have been having severe chronic headaches everyday where they hurt so bad that i can fall asleep at nighttime. Sometimes the pain contiues into the next day and the day after that. I am about to talk to my doctor. We just cant figure if its do my...
|
Living... My Monster
Created by Living...at02/26/2009 - 4:27pm|4602 Views Blog Posted To: My New Life
No, I do not have monsters under my bed. That is not why I am scared to go to sleep.
I have seizures. I have been diagnosed now for two years. I have complex partial seizures.
This affects my ability to go to sleep 1) Because I have seizures...
|
allyallex A simple teenagers wish :) thanks all
Created by allyallexat03/20/2009 - 8:54pm|4041 Views Blog Posted To: allyallex's blog
this may be alot to read, but hear me out? it means a bunch :)
|
erykaj Life with Sparky
Created by erykajat06/17/2009 - 7:03pm|3236 Views Blog Posted To: Life With Sparky
I am in the process of of having an Ambulatory EEG. It hasn't been so bad, but since I get them off tomorrow morning, they have started to itch like crazy! It's funny, I have felt like a member of the Borg (Star Trek fans will get this reference) for the...
|
heayacap seizures' revenge
Created by heayacapat07/14/2009 - 11:36am|2887 Views Blog Posted To: heayacap's blog Well, I have an identical twin sister, and we both have epilepsy (grand mal and petit mal). The theory is that, when the egg splits, there is trauma to the nucleus - like a brain injury. Our parents didn't really noticed much at first, I guess we only were...
|
mandas... Find insurance for Epilepsy
Created by mandas...at10/23/2009 - 6:45pm|2229 Views Blog Posted To: mandasuewilson's blog |
sharon516 Frustrating working with others when you have epilepsy.
Created by sharon516at02/22/2010 - 1:01pm|1920 Views Blog Posted To: sharon516's blog
First I want to thank my sister Lorraine for giving me the support of starting this blog. Her encouragement and knowledge she gives me is priceless. I also want to acknowlege the love and support I recieve from my husband Mark, daughter Eva, and son Dexter,...
|
proudg... i just need so help if anyone can help
Created by proudg...at05/24/2010 - 10:02pm|1292 Views Blog Posted To: proudgrandma706's blog |
brandy... Brandy37043
Created by brandy...at08/05/2010 - 9:30am|345 Views Blog Posted To: brandy37043's blog Who out there is old enough not to be on there parents policy and not have insurance? Am I the only one? Will be getting Disabilty insurance in December. What are your suggestions? Have 35,00 dollars in hospital bills from when I spent two weeks...
|
korina... Future worries
Created by korina...at08/24/2011 - 9:42pm|130 Views Blog Posted To: korina JME
Im 21 years old and have currently been diagnosed with JME, i was diagnosed with epilepsy when i was only 11 years old however it wasn't so bad,usually having only 1 or 2 fits a year now i am having a fit at least every 3 months and recently having 2 fits...
|
megust... A little about me ...
Created by megust...at10/01/2011 - 11:48am|400 Views Blog Posted To: My epilepsy diary I have been having seizures for many years and have been on many medications. I have generalized epilepsy and have experienced: myoclonic seizures, tonic-clonic seizures, and absence seizures. I have started out on Dialantin, but am now taking Depakote....
|
Wondering what events are upcoming? Use the Event Calendar in this section to learn about events taking place in your community, state, or country. See what other epilepsy.com members are promoting. Remind yourself of new activities. Have your own event? Add it to the calendar for other members to find!
Learn more about the Event Calendar and how to create your entry in our Event Calendar Help Section.
| Previous | February, 2012 | Next |
| Sun | Mon | Tue | Wed | Thu | Fri | Sat |
|---|---|---|---|---|---|---|
1
| 2
| 3
| 4
| |||
5
| 6
| 7
| 8
| 9
| 10
| 11
|
12
| 13
| 14
| 15
| 16
| 17
| 18
|
19
| 20
| 21
| 22
| 23
| 24
| 25
|
26
| 27
| 28
| 29
|
CK1 New - Non-medicated Epileptic, 35 weeks pregnant...HELP, I need advice!
Created by CK1at7/19/10 - 10:22 am|1 Comment Posted To: |
claire... |
Fashio... |
ash_garbs zonegran/zonisamide and pregnancy (planned/unplanned)
Created by ash_garbsat4/1/10 - 7:37 am|1 Comment Posted To: |
Turbo20 Are your seizures especially grand mal at the same time or more p...
Created by Turbo20at3/28/10 - 4:09 pm Posted To: |
karries |
mickey23 |
lyzolari Women & Pregnancy & Alternative Treatments for Epilepsy - survey ...
Created by lyzolariat1/16/10 - 12:13 pm Posted To: |
lyzolari Survey for: Women Who Had Epilepsy While They Were Pregnant And W...
Created by lyzolariat1/8/10 - 5:26 am Posted To: |
mickey23 |
Newyor... |
jillwh... |
aidadj... Lamictal Keppra & Trileptal -pregnancy?
Created by aidadj...at6/13/09 - 6:10 pm|4 Comments Posted To: |
sprtgrl99 |
speedy... |
Mornin... |
kay69 |
denisse |
denisse |
DoveHo... |
kharri19 |
kharri19 |
uberzw... |
AmityF |
jenn 54 |
I was diagnosed with TLE in 2005, after about 7 years of not knowing...
I have had seizures since I was 11 years old and still have them now,...
I'm 43 years old and have been living with epilepsy for 22 years....
I'm 23 from Australia, Creative, Animal studies student/Vet clinic...
I have had epilepsy since I was twelve years old. I am now a mother...
I am a 28 year old woman who has been diagnosed with epilepsy for...
Well...I'm 29 and I've lived with epilepsy for about 18 years now.(yay)...
Hi, 14 years with Epilepsy. on medication for 12 and seeking a permanent...
**UPDATE** After being on the max dose of KEPPRA for 9 months a new...
Hi im Hannah i am twenty-three years old and i have light brown and...
I was born in Hawaii and relocated to fort Gordon in Augusta...
My name is Brittany and I moved to Robersonville NC after living in...
I have had epilepsy for 11 years now. It started after I got encephalitis....
I am a roman catholic. I am a college student at the University of...
I was diagnosed with epilepsy at 19, I was getting absence seizures...
I am 33 years old and have had epilepsy my whole life. I had grandmals...
I'm person living with epilepsy seen the age of 17 Im at some control...
I'm an 18 year old and I have had epilepsy for only a few months,...
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
Hi, I am a 36-year old female living with Epilepsy.
I am 31 and have been diagnosed with Juvenile Myoclonic Epilepsy (JME)....
I'm 43 years old and have been living with epilepsy for 22 years....
Hello, I have had seizures since I was 13. The dr's hoped I would...
I'm a proud mother of three beautiful children and I have Complex...
I normally have 4 to 6 seizures a month. I have had 2 surguries and...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
I have grand mal and petite mal seizures. I was born with this but...
Hey everyone! I'm a rural teacher, and I teach grades 3-6 in one...
I am 24 years old. I have been living with Epilepsy since November...
i was diagnosed with a seizure diorder just recently and want to chat...
Heyy, I'm Jenn. I'm 15 years old for a few more days :] I'm currently...
I found out I had epilepsy a few days after my 17th birthday, since...
I live in Northern California... Was diagnosed with epilpsy days after...
I had first seizures @ age 2 in a case of anemia. I started having...
I was diagnosed with Epilepsy about 6 1/2 years ago after having a...
21 year old university student finishing off B/A double major in criminology...
I have epilepsy that can be really bad for several weeks then ok for...
I moved to Sacramento,California 2 1/2 years ago from Milwaukee, Wisconsin...
I'VE BEEN MARRIED 11 YEARS, HAVE 2 GROWN GIRLS FROM FIRST MARRIAGE,...
Here to learn more about Epilepsy, hear other's stories, get input,...
I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...
I'm 23 from Australia, Creative, Animal studies student/Vet clinic...
I have 3 children, & 5 grandkids! I live in IL near to WI. I have...
A mom of 2. My faith & children are most important to me. I love to...
I graduated from Minnesota State University Mankato with a Bachelors...
I have had seizures since I was 11 years old and still have them now,...
Hi my name is Melissa and I;m trying to get pregnant right now I am...
I'm 24 and I just started having seizures a month ago. Have not been...
I am compassionate, nomadic, intelligent, laid back, & fun woman....
I am a mother of two children, neither of whom have seizures. I am...
im 20 and am still living at home i am the only one n my whole family...
I have Temporal Lobe Epilepsy, as well as several other medical problems...
Hi, Im 27 and i have had seizures since i was 16 yrs old. Im from ont canada.
I am newly diagnosed (2010) with Simple Partial Seizure by a Neurologist...
I have had epilepsy since the age of 13 and have tried lamactal, topamax,...
I have had 4 brain surgeries in the past 2 years.
I am 53 yrs old and had gran mal seizures from 5yrs old till 9 yrs...
I was in a near-fatal head on auto collision in 1986 which resulted...
hiya my name is sophia, i live in england , yorkshire and i a full...
Name: Shari Hubby: Kevin Daughter: Meghan Nephews: Logan, Chase,...
I am married and we have a 5yo son and 15yo daughter...along with...
I love animals and I like reading and I have craft projects and I...
I am a 26 year old female from Northern California. I was diagnosed...
I was diagnosed with TLE in 2005, after about 7 years of not knowing...
I'M 21 FROM THE ISLAND OF JAMAICA, HOWEVER LIVE IN NEW YORK CITY RIGHT...
| Title | Posted | |
|---|---|---|
| Focal activity followed by generalized activity but no epilepsy | Feb 7, 2012 | |
| BendyPianist | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Feeling Like a Human Guinea Pig | Feb 7, 2012 | |
| christopherpaul | ||
| Anywhere to donate extra medication? | Feb 7, 2012 | |
| jesgal | ||
| help? :( | Feb 7, 2012 | |
| tanyalynn | ||
| help? :( | Feb 7, 2012 | |
| tanyalynn | ||
| deciding whether or not to medicate my 11-month-old daughter | Feb 7, 2012 | |
| krowlyk | ||
| Looking to get pregnant, but concerned | Feb 7, 2012 | |
| Bella2 | ||
| Rolandic Seizures - Just confused ! | Feb 7, 2012 | |
| fleamcgee | ||
| Seizures During Sleep | Feb 7, 2012 | |
| Morning Sunshine | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,610 | |
| epi_help | ||
| topamax and weight loss | 19,311 | |
| alexia mom | ||
| kepra | 19,197 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,342 | |
| pdl1 | ||
| How exactly do aura's feel | 13,990 | |
| WendyBendy | ||
| Sexual Side Effects | 13,513 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,427 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,405 | |
| spiz | ||
| electrical shock in head? | 10,072 | |
| Maggie | ||
| Weight Gain and Depakote | 9,005 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Passing out twice after seizure -- Is this something to be concerned about? | Feb 7, 2012 | |
| ArizonaAbby | ||
| Speech at Epilepsy Pipeline Update Conference -2012 | Feb 7, 2012 | |
| dayna | ||
| The Doors. | Feb 7, 2012 | |
| BowlofMush | ||
| Epilepsy Pipeline Update Conference | Feb 7, 2012 | |
| bryan_farley | ||
| marijuana | Feb 7, 2012 | |
| ccraven | ||
| Two weeks in with Zarontin | Feb 7, 2012 | |
| BowlofMush | ||
| 1st post :) | Feb 7, 2012 | |
| bethmummyofisla | ||
| My First Seizure | Feb 7, 2012 | |
| xyz123dpzlis | ||
| Upcoming EEG | Feb 7, 2012 | |
| JennDPT | ||
| Wear MBT shoes to enjoy life | Feb 7, 2012 | |
| lvfashioner | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,399 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,780 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,579 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,537 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,211 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,903 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,831 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,710 | |
| teft | ||
| newborn seizure | 2,254 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| Moms of epileptic toddlers | Jan 24, 2012 | |
| Xaviersmom2 | ||
| Autism | Jan 15, 2012 | |
| Aaron Chan | ||
| brain surgery | Dec 26, 2011 | |
| jen020309 | ||
| People in their 20's with epilepsy | Dec 7, 2011 | |
| Mandy911 | ||
| TEAM ETP | Nov 28, 2011 | |
| krisj | ||
| 24yr old male | Sep 21, 2011 | |
| Dave24 | ||
| Could I be Epileptic | Sep 13, 2011 | |
| kathygardendancer | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Help me plz. I can't go on like this | Feb 6, 2012 | |
| Lindsea | ||
| For my daughter | Feb 6, 2012 | |
| britni1780 | ||
| Why can't I find out what is going on with me? | Feb 5, 2012 | |
| dgreer27 | ||
| nightime seizure | Feb 5, 2012 | |
| ishaq | ||
| my grandchild with possible panayiotopolous syndrome | Feb 5, 2012 | |
| krys | ||
| Please Read and Help | Feb 4, 2012 | |
| WALLIGAT0R | ||
| Hello. I'm new to the forum | Feb 3, 2012 | |
| Tom S. | ||
| Maxx | Feb 3, 2012 | |
| MDS2006 | ||
| Lyme Disease as a cause for seizures | Feb 1, 2012 | |
| ssidah | ||
| new member | Jan 31, 2012 | |
| cricketsgidget | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,412 | |
| kroiz | ||
| my story | 553 | |
| snoby | ||
| Temporal Lobe Epilepsy | 531 | |
| Always Have On Clean Underwear | 499 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 470 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 467 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 418 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 389 | |
| karalyeva | ||
| Life......... | 371 | |
| dizzygal | ||
| My Daily Philosophy..... | 364 | |
| KatieFerguson88 | ||
| View all Stories | ||
Name: Women and epilepsy
Since: Apr 10, 2008
About the Group:
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start a group to talk and get to know other people with the same seizure and if when it comes to certian subjects you can get a second opinion. Overall one will be able to converse and find out information that can help medically and socially.
