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Women and epilepsy

Group

Hello everyone I created this because I wanted to discuss the different aspects of epilepsy with other women that experience it. This is not only to just to talk about seizues,but to also just have fun and catch up. To ask questions and get a second opinion too. When it comes to me I have catamenial epelipsey and Iam having trouble with trying to find the right medication. So hopfully you enjoy writing on here and keeking in touch.

**Crystal**

...

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Group Content

View All Member Blogs
epi_help
epi_help
Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|8991 Views
Blog Posted To: epi_help's blog
Hi everyone, I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place! So let me tell...
CG
CG
Reality vs. the News
Created by CGat05/10/2006 - 1:12pm|12164 Views
Blog Posted To: CG
There are times lately, when I feel I am living in a different reality from what I hear on the news. The job prospects are supposed to be so hot out here ... so why are there so many homeless people in my neighbourhood? Why is it so...
lovies
lovies
Begining all over again
Created by loviesat04/30/2007 - 4:57pm|4757 Views
Blog Posted To: lovies's blog
I see a new neuro tomorrow. I have been ever so anxiously waiting for this appointment. I feel like I am starting all over with my Epilepsy. I was diagnosed in 1972. I just learned today fom my mom that I saw a specialist that ran...
jjdreamer
jjdreamer
My Introduction
Created by jjdreamerat07/26/2007 - 7:11pm|4760 Views
Blog Posted To: jjdreamer's blog
I’m twenty five years old and have been having a difficult time with epilepsy for nearly a year now. Last September, after a late night and drinking far too much caffeine, as I was lying in bed, my hand began twitching. It was...
Theresia
Theresia
25 year old female with left temporal lobe e.
Created by Theresiaat09/16/2007 - 1:05am|5278 Views
Blog Posted To: My history
Would love to hear from anyone in my age group.... I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
katfaerie
katfaerie
seized by fear
Created by katfaerieat03/06/2008 - 9:39am|5539 Views
Blog Posted To: katfaerie's blog
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
lorelama
lorelama
My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|6167 Views
Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal. My teen...
roxiba...
roxiba...
2 brain surgeries and still seizing
Created by roxiba...at06/12/2008 - 3:58pm|5343 Views
Blog Posted To: roxibaby16's blog
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.   please email me princessroxstar1991@yahoo.com
Lauren...
Lauren...
sick of being home
Created by Lauren...at06/15/2008 - 3:50pm|5036 Views
Blog Posted To: LaurenG1211's blog
I was diagnosed with Juvenile Myoclonic Epilepsy in February when I had my first grand mal. I haven't been able to drive since then. I'm 22 years old, trying to finish school, I'm out on disability, I have no money, i think my boyfriend and I might kill each...
angela...
angela...
Seized For His Glory
Created by angela...at07/08/2008 - 5:55pm|5539 Views
Blog Posted To: angelacarwile's blog
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life.  Please understand I am in no way trying to solicit, only share with all of you.
cukinha
cukinha
Wainting to conceive
Created by cukinhaat08/18/2008 - 6:40am|4549 Views
Blog Posted To: cukinha's blog
    Welcome..    This blog is for all the women who are tring to conceive, and like to get informations of other experiences.   
LiaMarrae
LiaMarrae
Catamenial Seizures Started at Perimenopause
Created by LiaMarraeat10/25/2008 - 9:36pm|4778 Views
Blog Posted To: LiaMarrae's blog
My History--I'm 51 (July '08).  At age 46, my cycles totally changed from what they'd been doing since age 12.  I never really kept track of my cycle length until age 27, when trying to get pregnant, but my cycles for 42 days long back then.  At the age...
stitches
stitches
Tired of fighting for answers
Created by stitchesat11/10/2008 - 8:12pm|4471 Views
Blog Posted To: stitches's blog
    Being five years old and always feeling like you're in trouble don't really help, father drinks , mother yells and somehow you're in the middle and they use you as bait. Never fails does it when they start arguing and  you can't fight for you cause...
danies...
danies...
Epilepsy
Created by danies...at12/30/2008 - 5:03pm|4031 Views
Blog Posted To: daniesbrwneyes's blog
     I was dignosed with epilepsy at the age of seven years old.   The Cause they pointed out was mingitus of the softspot of my brain at 6mnths old which left scar tissue on my brain later to learn it spread  through the yrs.  As Well as  they think...
lindcy
lindcy
HELLO
Created by lindcyat01/10/2009 - 7:27am|3823 Views
Blog Posted To: lindcy's blog
Im new to this but i was diagnosed with epilepsy at 14 years old and am know 27.  My fiance and I, we've been together for 7 1/2 years, would love to have a baby.  As of now im taking depakote and topamax.  My seizures have always averaged about 1-2...
angele...
angele...
my severe chronic headaches due to my epilepsy?
Created by angele...at02/16/2009 - 4:15pm|4333 Views
Blog Posted To: angeleyes12's blog
ok, so i have been having severe chronic headaches everyday where they hurt so bad that i can fall asleep at nighttime. Sometimes the pain contiues into the next day and the day after that. I am about to talk to my doctor. We just cant figure if its do my...
Living...
Living...
My Monster
Created by Living...at02/26/2009 - 4:27pm|4602 Views
Blog Posted To: My New Life
No, I do not have monsters under my bed. That is not why I am scared to go to sleep. I have seizures. I have been diagnosed now for two years. I have complex partial seizures. This affects my ability to go to sleep 1) Because I have seizures...
allyallex
allyallex
A simple teenagers wish :) thanks all
Created by allyallexat03/20/2009 - 8:54pm|4041 Views
Blog Posted To: allyallex's blog
this may be alot to read, but hear me out? it means a bunch :)            
erykaj
erykaj
Life with Sparky
Created by erykajat06/17/2009 - 7:03pm|3236 Views
Blog Posted To: Life With Sparky
I am in the process of of having an Ambulatory EEG. It hasn't been so bad, but since I get them off tomorrow morning, they have started to itch like crazy!  It's funny, I have felt like a member of the Borg (Star Trek fans will get this reference) for the...
heayacap
heayacap
seizures' revenge
Created by heayacapat07/14/2009 - 11:36am|2887 Views
Blog Posted To: heayacap's blog
Well, I have an identical twin sister, and we both have epilepsy (grand mal and petit mal). The theory is that, when the egg splits, there is trauma to the nucleus - like a brain injury. Our parents didn't really noticed much at first, I guess we only were...
mandas...
mandas...
Find insurance for Epilepsy
Created by mandas...at10/23/2009 - 6:45pm|2229 Views
Blog Posted To: mandasuewilson's blog
sharon516
sharon516
Frustrating working with others when you have epilepsy.
Created by sharon516at02/22/2010 - 1:01pm|1920 Views
Blog Posted To: sharon516's blog
First I want to thank my sister Lorraine for giving me the support of starting this blog.  Her encouragement and knowledge she gives me is priceless. I also want to acknowlege the love and support I recieve from my husband Mark, daughter Eva, and son Dexter,...
proudg...
proudg...
i just need so help if anyone can help
Created by proudg...at05/24/2010 - 10:02pm|1292 Views
Blog Posted To: proudgrandma706's blog
brandy...
brandy...
Brandy37043
Created by brandy...at08/05/2010 - 9:30am|345 Views
Blog Posted To: brandy37043's blog
     Who out there is old enough not to be on there parents policy and not have insurance? Am I the only one? Will be getting Disabilty insurance in December. What are your suggestions?  Have 35,00 dollars in hospital bills from when I spent two weeks...
korina...
korina...
Future worries
Created by korina...at08/24/2011 - 9:42pm|130 Views
Blog Posted To: korina JME
Im 21 years old and have currently been diagnosed with JME, i was diagnosed with epilepsy when i was only 11 years old however it wasn't so bad,usually having only 1 or 2 fits a year now i am having a fit at least every 3 months and recently having 2 fits...
megust...
megust...
A little about me ...
Created by megust...at10/01/2011 - 11:48am|400 Views
Blog Posted To: My epilepsy diary
I have been having seizures for many years and have been on many medications. I have generalized epilepsy and have experienced: myoclonic seizures, tonic-clonic seizures, and absence seizures. I have started out on Dialantin, but am now taking Depakote....

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Title Posted
Focal activity followed by generalized activity but no epilepsy  
BendyPianist
Self-Management of Medication  
columbia.epilepsy.study
Feeling Like a Human Guinea Pig  
christopherpaul
Anywhere to donate extra medication?  
jesgal
help? :(  
tanyalynn
help? :(  
tanyalynn
deciding whether or not to medicate my 11-month-old daughter  
krowlyk
Looking to get pregnant, but concerned  
Bella2
Rolandic Seizures - Just confused !  
fleamcgee
Seizures During Sleep  
Morning Sunshine
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
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Title Posted
Passing out twice after seizure -- Is this something to be concerned about?  
ArizonaAbby
Speech at Epilepsy Pipeline Update Conference -2012  
dayna
The Doors.  
BowlofMush
Epilepsy Pipeline Update Conference  
bryan_farley
marijuana  
ccraven
Two weeks in with Zarontin  
BowlofMush
1st post :)  
bethmummyofisla
My First Seizure  
xyz123dpzlis
Upcoming EEG  
JennDPT
Wear MBT shoes to enjoy life  
lvfashioner
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Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
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teft
newborn seizure  
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Title Posted
Self-Management of Medication  
columbia.epilepsy.study
Dravet Spectrum Disorder  
mytboy
Diving with eplilepsy  
p59
Moms of epileptic toddlers  
Xaviersmom2
Autism  
Aaron Chan
brain surgery  
jen020309
People in their 20's with epilepsy  
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TEAM ETP  
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24yr old male  
Dave24
Could I be Epileptic  
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Help me plz. I can't go on like this  
Lindsea
For my daughter  
britni1780
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