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Hello everyone I created this because I wanted to discuss the different aspects of epilepsy with other women that experience it. This is not only to just to talk about seizues,but to also just have fun and catch up. To ask questions and get a second opinion too. When it comes to me I have catamenial epelipsey and Iam having trouble with trying to find the right medication. So hopfully you enjoy writing on here and keeking in touch.
**Crystal**
...sorfor... New - i desprately need HELP!!!!
Created by sorfor...at11/3/08 - 1:14 pm|29 Views|4 Comments hi everybody,i`ve been struggling with epilepsy for 24 yrs now(i`m 31)...u can`t imagine how many doctors i`ve seen & how many prescription i`ve tried but nothing is working!!!!i had epilepsy since i was 7 but i was 1st diagnosed with petitmal at the...
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lovies New - Hello, I'm new here to the group
Created by loviesat9/6/08 - 10:04 am|28 Views|2 Comments
Hello everyone, I get very confused with new websites and new groups/forums, so if I say anything wrong or put my comments in the wrong place, please forgive!! I thought this group was fantastic! I've had Epilepsy for 35 years, and my seizures have been...
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rtgirl08 Need some advice
Created by rtgirl08at5/27/08 - 1:25 am|27 Views|2 Comments Hey everyone! My name is Emily and I'm 22 years old and new to this group. I was diagnosed with JME when I was 16 and was seizure free for 4 years so they took me off my meds and I was seizure free for almost three years until today. I was on my way...
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Theresia PMT / PMS and seizures
Created by Theresiaat4/24/08 - 3:14 am|101 Views|11 Comments
HI to the other women.
I would be very interested to know whether other women have increased risk of seizures around certain times of the menstrual cycle....and any ways that others try to manage this...
For me, I am much more likely to have...
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epi_help why not post some different topics
Created by epi_helpat4/14/08 - 9:46 am|38 Views|1 Comment
Why not post some different topics, such as puberty, catamenial seizures menopause, pregnancy, parenting, relationships, managing stress, women'shealth etc... then it will encourage to post experiences on these different topics and we can add links to content...
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epi_help Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|2160 Views Blog Posted To: epi_help's blog Hi everyone,
I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place!
So let me tell...
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CG Reality vs. the News
Created by CGat05/10/2006 - 1:12pm|1642 Views Blog Posted To: CG There are times lately, when I feel I am living in a different reality from what I hear on the news. The job prospects are supposed to be so hot out here ... so why are there so many homeless people in my neighbourhood? Why is it so...
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lovies Begining all over again
Created by loviesat04/30/2007 - 4:57pm|403 Views Blog Posted To: lovies's blog I see a new neuro tomorrow. I have been ever so anxiously waiting for this appointment. I feel like I am starting all over with my Epilepsy. I was diagnosed in 1972. I just learned today fom my mom that I saw a specialist that ran...
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jjdreamer My Introduction
Created by jjdreamerat07/26/2007 - 7:11pm|530 Views Blog Posted To: jjdreamer's blog I’m twenty five years old and have been having a difficult time with epilepsy for nearly a year now. Last September, after a late night and drinking far too much caffeine, as I was lying in bed, my hand began twitching. It was...
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Theresia 25 year old female with left temporal lobe e.
Created by Theresiaat09/16/2007 - 1:05am|578 Views Blog Posted To: My history Would love to hear from anyone in my age group....
I am finding that mixing with my epilepsy the start of a career and a marriage, moving (so no regular GP- but I have a great neurologist), renovating...and still studying a bit might...
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katfaerie seized by fear
Created by katfaerieat03/06/2008 - 9:39am|635 Views Blog Posted To: katfaerie's blog
i have recently realized that after 10 years of having epilepsy, i have not really thought about it all that much. i have not talked to a single other person who has seizures except the two people i already knew. my sister and the mother of a childhood...
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lorelama My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|654 Views Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal.
My teen...
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roxiba... 2 brain surgeries and still seizing
Created by roxiba...at06/12/2008 - 3:58pm|353 Views Blog Posted To: roxibaby16's blog
i need some people to talk to i went trough 2 major brain surgeries and im still having seizures . I was also wondering if anyone suggests VNS.
please email me princessroxstar1991@yahoo.com
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angela... Seized For His Glory
Created by angela...at07/08/2008 - 5:55pm|491 Views Blog Posted To: angelacarwile's blog
Hello everyone. I would like to share my personal experience and how this book by Dr. Brenda Robinson has changed my life. Please understand I am in no way trying to solicit, only share with all of you.
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cukinha Wainting to conceive
Created by cukinhaat08/18/2008 - 6:40am|236 Views Blog Posted To: cukinha's blog
Welcome..
This blog is for all the women who are tring to conceive, and like to get informations of other experiences.
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LiaMarrae New - Catamenial Seizures Started at Perimenopause
Created by LiaMarraeat10/25/2008 - 9:36pm|202 Views Blog Posted To: LiaMarrae's blog My History--I'm 51 (July '08). At age 46, my cycles totally changed from what they'd been doing since age 12. I never really kept track of my cycle length until age 27, when trying to get pregnant, but my cycles for 42 days long back then. At the age...
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stitches New - Tired of fighting for answers
Created by stitchesat11/10/2008 - 8:12pm|68 Views Blog Posted To: stitches's blog
Being five years old and always feeling like you're in trouble don't really help, father drinks , mother yells and somehow you're in the middle and they use you as bait. Never fails does it when they start arguing and you can't fight for you cause...
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Wondering what events are upcoming? Use the Event Calendar in this section to learn about events taking place in your community, state, or country. See what other epilepsy.com members are promoting. Remind yourself of new activities. Have your own event? Add it to the calendar for other members to find!
Learn more about the Event Calendar and how to create your entry in our Event Calendar Help Section.
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wendylouu |
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belimawr Want to help, New Dx, weird Dr recommendations
Created by belimawrat6/15/08 - 10:02 am|2 Comments Posted To: |
Angie6380 |
Theresia |
rwolfe |
epi_help |
Sobralia |
sonjac... New - Epilepsy, pregnancy and giving birth
Created by sonjac...at1/21/08 - 7:14 am|12 Comments Posted To: |
Name: Women and epilepsy
Since: Apr 10, 2008
About the Group:
Women can deal with epilepsy in a different aspect than men. When it comes to the start of puberty to when menopase occurs. There are a numerous amount of effects that women can have due to hormones and becaus of childbearing. Due to this I wanted to start a group to talk and get to know other people with the same seizure and if when it comes to certian subjects you can get a second opinion. Overall one will be able to converse and find out information that can help medically and socially.
I'm person living with epilepsy seen the age of 17 Im at some control...
Heyy, I'm Jenn. I'm 15 years old for a few more days :] I'm currently...
I love animals and I like reading and I have craft projects and I...
I'VE BEEN MARRIED 11 YEARS, HAVE 2 GROWN GIRLS FROM FIRST MARRIAGE,...
I am a 28 year old woman who has been diagnosed with epilepsy for...
Well...I'm 27 and I've lived with epilepsy for about 17 years now.(yay)...
**UPDATE** After being on the max dose of KEPPRA for 9 months a new...
I'm person living with epilepsy seen the age of 17 Im at some control...
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
I am 31 and have been diagnosed with Juvenile Myoclonic Epilepsy (JME)....
Hello, I have had seizures since I was 13. The dr's hoped I would...
I normally have 4 to 6 seizures a month. I have had 2 surguries and...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
i was diagnosed with a seizure diorder just recently and want to chat...
Heyy, I'm Jenn. I'm 15 years old for a few more days :] I'm currently...
I found out I had epilepsy a few days after my 17th birthday, since...
I'VE BEEN MARRIED 11 YEARS, HAVE 2 GROWN GIRLS FROM FIRST MARRIAGE,...
I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...
I have 3 children, & 5 grandkids! I live in IL near to WI. I have...
im 20 and am still living at home i am the only one n my whole family...
I have had 4 brain surgeries in the past 2 years.
I was in a near-fatal head on auto collision in 1986 which resulted...
hiya my name is sophia, i live in england , yorkshire and i a full...
Name: Shari Hubby: Kevin Daughter: Meghan Nephews: Logan, Chase,...
I love animals and I like reading and I have craft projects and I...
I'M 21 FROM THE ISLAND OF JAMAICA, HOWEVER LIVE IN NEW YORK CITY RIGHT...
| Title | Posted | |
|---|---|---|
| who am i? | Nov 20, 2008 | |
| Daniella | ||
| Aggressive Side Effects of Meds | Nov 20, 2008 | |
| WendyRAllen | ||
| Scared to go somewhere due to seizure | Nov 20, 2008 | |
| DoveHorse12 | ||
| epilepsy,life,plans | Nov 20, 2008 | |
| rrd123 | ||
| Seizures, school and peers | Nov 20, 2008 | |
| ladybugg31186 | ||
| Seizures, school and peers | Nov 20, 2008 | |
| ladybugg31186 | ||
| top 100 pediatric neurologists? | Nov 20, 2008 | |
| leeannpetty13 | ||
| Lamictal Rash | Nov 20, 2008 | |
| daydreamer410 | ||
| Completely Confused and Totally Frustrated | Nov 20, 2008 | |
| snoviasif | ||
| Anybody know about zonegran? | Nov 20, 2008 | |
| amyoon | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,319 | |
| epi_help | ||
| topamax and weight loss | 18,803 | |
| alexia mom | ||
| kepra | 18,580 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,422 | |
| pdl1 | ||
| Epilepsy and marijuana | 14,339 | |
| cjad234 | ||
| Sexual Side Effects | 12,544 | |
| George R | ||
| How exactly do aura's feel | 12,337 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,134 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 9,869 | |
| spiz | ||
| electrical shock in head? | 9,312 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Cauliflower warm with spray butter | Nov 20, 2008 | |
| wenko | ||
| side effects of zonegran | Nov 20, 2008 | |
| martin21 | ||
| Sea Lice causing seizures | Nov 20, 2008 | |
| sdavis864 | ||
| OVERCOME WITH EMOTION, PROUD TO BE AN AMERICAN AND HUMBLED | Nov 20, 2008 | |
| ROCKNROLL | ||
| Dose higher, Syntax Gone | Nov 20, 2008 | |
| stephsobota | ||
| Lost, alone, frustrated | Nov 20, 2008 | |
| confuzzed | ||
| A wookie looks at life 3 | Nov 20, 2008 | |
| wookie | ||
| what others say!!! | Nov 20, 2008 | |
| hayley G | ||
| Better everyday | Nov 20, 2008 | |
| kroiz | ||
| La la la la la, feelin' groovy | Nov 20, 2008 | |
| stephsobota | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 7,911 | |
| Butterflygrl | ||
| my partial complex seizures | 3,827 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,607 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,442 | |
| JudiS | ||
| side effects of phenobarb. | 2,946 | |
| pksmom | ||
| Feeling Sick | 2,763 | |
| JBJ1984 | ||
| Tegretol XR and ANXIETY meds | 2,711 | |
| Butterflygrl | ||
| How can you tell if a sleep seizure happens? | 2,594 | |
| epl_controller | ||
| Nonepileptic "Events" vs. "Seizures" | 2,521 | |
| teft | ||
| TYLENOL, AEDs & SEIZURES | 2,497 | |
| cmscribbles | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Epilesy support for winners | Nov 10, 2008 | |
| bethkashenberg | ||
| Lets hang out in Colorado | Nov 5, 2008 | |
| kylesmom08 | ||
| Benign Rolandic Epilepsy -- Is it really benign | Sep 13, 2008 | |
| LaraHj | ||
| Epilepsy/any topic | Sep 4, 2008 | |
| TomII1000 | ||
| Parents Of Children With Epilepsy | Aug 31, 2008 | |
| zachsmommy | ||
| Can't Stop Them!!! | Aug 24, 2008 | |
| Amber28 | ||
| Conceiving with epilepsy | Aug 18, 2008 | |
| cukinha | ||
| Seizures after Weight Loss Surgery | Jul 26, 2008 | |
| meltingmama | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| It's My Life | Nov 20, 2008 | |
| CarolinaBrittany | ||
| My story | Nov 20, 2008 | |
| sanicay | ||
| Lindas episode | Nov 20, 2008 | |
| binkey16 | ||
| Newest phone call from the doctor | Nov 20, 2008 | |
| Gingersnap | ||
| Don’t Struggle on Account of Collateral | Nov 20, 2008 | |
| peterstochin | ||
| Temporal Seizure Disorder | Nov 20, 2008 | |
| lespicasso | ||
| shake and shout from the inside out | Nov 19, 2008 | |
| rikk | ||
| Why do I drop things? | Nov 19, 2008 | |
| dmacasassy | ||
| cody | Nov 19, 2008 | |
| codysmom | ||
| Miss | Nov 18, 2008 | |
| cortex | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 1,874 | |
| kroiz | ||
| Seizure Cat helps unfold my seizure life! | 562 | |
| wenko | ||
| my story | 436 | |
| snoby | ||
| Always Have On Clean Underwear | 393 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 376 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 349 | |
| banffgirl | ||
| What My Seizures Are Like...... | 341 | |
| javaman | ||
| Crystal's story | 308 | |
| Crystal11 | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 296 | |
| karalyeva | ||
| How I found out I hade seizures | 279 | |
| HilaryWeinberg | ||
| View all Stories | ||
