I'm looking to know if it's possible for seizure types to change from when
you're originally diagnosed, and if the way seizures happen can change. Things
seem to be getting better for me in some ways, but also really, really strange
Originally, I was diagnosed at age 5 with peti-mal seizures. I took meds
until age 12. Well, age 16, I experienced another seizure (a bit more severe,
don't know the type), got put back on meds and have been on them ever since -
various combinations. I'm now 33 and currently I'm on Topomax 100mg 2 x day,
Keppra 500mg 2 x day, and Clobazam 10mg at night.
The strange thing -- until a couple months ago I'd have seizures that would
be absence or really minor complex partial seizures once in awhile, and am aware
of most of the triggers to manage things. When seizures happened, people around
me would pick up on it, I'd be totally out of it, unaware, unresponsive and
unable to talk to people in a way they'd understand for about 20 minutes after.
Most recently, I've had a couple seizures where I sorta know I'm having them.
Last Saturday, during a seizure my boyfriend was talking to me, I was talking to
him, I sorta remember the conversation and I remember saying I have a headache,
but I'll be ok, baby, I just want to chill out....my jaw is going to be sore
Then, this week at work (I work in a call center), I remember it feeling like
the lights were going on and off for a bit. I took a few calls where I broke 'em
off (ended them), then I remember talking to a lady who said, it's okay, just
relax, I'm probably not interested but I'll talk to you. While going through
main part of the seizure I mummbled the sales pitch sorta, and wrote my bf's
cell # on a note pad. Then I hung up my phone, walked over to my account manager
& said "call this # I can't, tell him spacey says hi"...the rest is sorta
hazey, but it's wierd to remember going through the seizure.
Is it possible to have things change in a way where you remember going
through seizures? Any one else ever have this happen? Doe this mean I have to
increase my meds or change them?
Any input would be appreciated.
Erin / Godiva
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