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Black.Pearl

Epilepsy triggers?

hi

i've been diagnosed with Epilepsy for two months now so i'm quite new to this and i still dont know much about it.. my first seizure ever happend after i took a fluetab (i got it over the counter coz i felt a beginning of a cold) and about 20 minutes after i took it i had my first seizure ever.. two days later i woke with a small headache but by 7 that afternoon it grew to a pounding headache and it was becoming hard for me to even sit with the TV on even though i wasnt watching it just the noise of it was bothering me.. so i took panadol (also i got over the counter for my headaches) same thing happend i had another seizure and then 10 minutes later i had another seizure.. at the time i didnt know it was seizures i was having till i was rushed and admitted to the hosptial for 3 days and was diagnosed with epilepsy.. i was weird coz i use to always take panadol for my headaches but the past year or so my headaches have gotten worse and last longer.. i also have been experiencing an electic shocking feeling in my head for years but have gotten worse the last few years aswell.. another thing i would like to mention these seizures happend about 9 days b4 my period.. i havent taken any medication since for my headaches.. they could last anywhere from an hour up to 3 days.. i had two more fits after i started medication but they were all around the same time as my period.. also the last two seizures happend after i had an EEG done.. my questions are:

Could over the counter medicines be triggering my seizures? could my period or being close to time for me to start my period be a trigger as well? or the flashing lights? is it possible to have more than one trigger? and if they are trigges do i have to have a seizure right after having the trigger or not? the last fit i had which was yesterday happend the day after i had the EEG done but my period should be starting next week.. and the seizure b4 that happend after 5 days of takin an EEG and it was the same day that my period had finished..

sorry for writing to much but would really appreciate your answers..

Comments

Re: Epilepsy triggers?

Some medicines do cause seizures!  Since you've been diagnosed with E have you noticed seizure activity close to your time of the month?  AED's and Epilepsy affect hormones!

Re: Epilepsy triggers?

Yes Actually it is close to my month now.. have about 9 days b4 it should start and i'm starting to have migraines and the shooting electric like pain in my head now for a few days.. and ya i had one seizure on the last day of my period and then three days ago i had one also.. thats the only two seizures i have had since i've been on my AED's and my first seizures happend also around my period time(a week b4) but i'm not sure if it was my period or the pills i took(panadol,fluetab) that triggerd them

Re: Epilepsy triggers?

I've had epilepsy for 30 years now. It started when I was 12, when my periods started.

They can definitely cause seizures! Headaches and migraines are also side affects to epilepsy. Anything could cause a seizure.

The period, classical music, and STRESS are triggers for me.  Stress is a biggie, it makes my body over-react.  I came to the conclusion long ago the stress can kill. I've been getting a Depo-provera shot for my periods.  It's a type of birth control and it USED to stop my seizures.  It also stops the period, for me.  I've been getting it for 12+ years and it's time to stop.  It really helps the cramps.  The shot is given every 3 months. The neuros say to get it every 2 months - because of the meds.

Books about the epilepsy help a lot. "Epilepsy: A new approach - what medicine can do; what you can do for yourself" By Adrienne Richard & Joel Reiter MDs.  This book talks about it and everything you'd want and need know.  I don't know if you tell people about the epilepsy, but it really helps if you do.

I hope this helps 

Re: Epilepsy triggers?

Triggers for me:

Definitely my monthly cycle (the start and ovulation times are worst)

Being overly tired

Possibly at least certain antihistamines

 

Re: Epilepsy triggers?

Are any of you an ASTHMA medicine? I can't use my Albuterol inhaler because it bothers my seizures. I shake and jerk so bad. Any recommendations as to what to suggest to my doctor as an alternative to my current rescue inhaler? I am also on Advair and I despise it because of the steroids and side effects. Any suggestions?

Re: Epilepsy triggers?

Lack of sleep and stress for me. I have noticed if I stay away from computer screen and tv nearing one, might be effective - though it is tough to predict mine.

Clearly lack of sleep for me - I endeavour to get as much sleep as possible and have ready supply of meds = mine are very dangerous.

Re: Epilepsy triggers?

I was diagnosed about 2.5 years ago.  It seems like we have a monthly trigger in common.                         Most likely it is your hormone levels during the time you are having about to have or just off your period.  Estrogen and Progestrogen levels have a lot to do with our brain chemistry and can change a lot of things for those of us who have epilepsy.  When I first started having seizures I would have simple partial seizures out of the blue, experiencing de ja vu and some pretty freaky tingling feelings.  I dismissed them for months and decided I had repressed childhood memories or something.. Thn I had my first tonic clonic seizure right after i had gotten off my period.  Then the next month it happened again.  I decided then to see a doctor.   I have found no reason for my seizures.  But my menstrul cycle is a time when I am always very aware of what is going on around me.    I am still not sure that this is my only trigger.  I once thought maybe carrots too.

Keep a journal of what you eat and any meds you take even if you are a drinker.  In my research I have found just about anything can be a trigger.  I hope your seizures stay in control.   If there is someone with you all the time work out a signal to let them know you feel something coming on if you have Auras.  I almost always have a warning before and it is a great relief that I have someone to catch me if I fall.                              

Michele K

Re: Epilepsy triggers?

 I just wanted to say Hi to everyone, and thanks alot for posting all of these. I am 6 1/2 months pregnant, and was just diagnosed with Epilepsy recently. I have appearently had it for years, but never had medical insurance, and the people I was surrounded by were not very supportive, and never noticed when I mentioned feeling off. I too thought the entire time I was just having panic attacks, because of weird child hood experiances, and weird triggers, until I started having grand mal siezures, at the start of my pregnancy.

Re: Epilepsy triggers?

Before meno. I had one sz per month - except during pregnancy.  During Pregnancy I did not have any seizures what-so-ever!   

Re: Epilepsy triggers?

HI, I WAS READING THRU ALL THE REPLIES TO YOUR QUESTIONS AND IF I AM RIGHT, A COUPLE OF THINGS WERE NOT MENTIONED. FIRST, YOU SHOULD TALK TO YOUR DOC ABOUT OTHER MEDS YOU TAKE. SECOND, THERE ARE A LOT OF DIFFERENT TRIGGERS, SOME ARE 'AURAS', OR ALL CAN BE. AURAS ARE SMALL SEIZURES. THEY CAN HAPPEN FOR WEEKS BEFORE A SEIZURE, OR SECONDS BEFORE. THE BEST WAY TO KEEP TRACK OF WHAT IS GOING ON IS TO USE THE SEIZURE DIARY ON THIS SITE, OR KEEP A JOURNAL OF OTHER MEDS TAKEN, FOOD EATEN, ACTIVITY, ETC. THE MORE YOU KEEP TRACK OF THE MORE YOU WILL KNOW ABOUT WHAT IS HAPPENING WITH YOU AND THAT CAN BE SHARED WITH YOUR DOC. HOPE THAT HELPS! I AM SORRY YOU HAVE TO DEAL WITH E. BUT AS YOU CAN SEE, YOU AREN'T ALONE!    

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

Re: Epilepsy triggers?

I know how you feel. I can not take any kid of over the counter drugs they case me to have a seizure.So the colds season I have to be extra careful around people. As well I did have seizures the first couple of days of period but my doctor up my meds and it seems to me working so far.

Re: Epilepsy triggers?

Flashing lights  menstrual cycle are definitly triggers for women not all women have the same triggers but the menstral cycle was a big one for me and for the longest time I could not figure out why every time I had my period I would have a seizure It got to the point I had to have a hysterectomy it was so badand with the over the counter meds you have to be very careful what you take it depends on what you took.

Re: Epilepsy triggers?

Yes, the flashing red lights do it to me also.  For me, the flashing red lights are a little slower than a blinking street light, but when I have an EEG, they use fast blinking lights.  I have already gone through meno., but before hand, I would have them before each period.  Other triggers are excitment, worry, fear, cafine, low energy (lack of sleep).  I have at least 4 sz each month now and before meno. I had one each month.  

Re: Epilepsy triggers?

I was diagnosed about 1.5 years ago and this last winter I got really sick(cold) and the tylenol cold doesnt seem to cause any episodes.  But i also have horrible daily headaches and my doctor prescribed a nasal spray for migraines and it caused really bad episode were I was hearing voices.  Not fun...  So since then I do not mess with any meds unless I have consulted my epilepsy dr.  I strongly suggest seeing a epilepsy specialist not just a neuroligist.  PS I tried topamax and it did help with the seizures just the migraines and deja vu feeling. hope this helps!!!!

Re: Epilepsy triggers?

prosessed foods caffine sugar a lot of carbs at a time

Re: Epilepsy triggers?

  Hi,

  The triggers I have gotten have changed through the years.  When I was in grade school, it was usually a certain taste or smell that triggered seizures.  Now, with my seizures changing over the years it's usually colors or things I see that trigger seizures.  I noticed that sometimes print will bring on seizures and also when I do a lot of beadwork after awhile, it seems like it's just too much stimulation to take in.  As a whole it seems like when there is too much I see to take in or colors.  I also get them by stop lights and in the winter if I'm walking the brightness of the snow triggers some.  One other kind of feeling I get with auras but not all the time is a jumpiness kind of feeling where I have to quick go into another room away from everyone or thing, and close the door.  It sounds more like a panic attack but a seizure follows it, or at least a start of one.  I have the vns implant also, so the magnet sometimes will stop them.

Re: Epilepsy triggers?

Hi,

 I often have that same feeling of needing to get away.  I just figured it was because of the embarassment that I feel about my epilepsy, I didn't think it had to do with the actual disease.  I haven't been sleeping well lately, having almost constant headaches, and I do feel a lot of anxiety.  I have an appointment coming up in about a week so it is good to know that many of this things could be the cause of, and not the effect from my seizures.  You have all been a great help.

Re: Epilepsy triggers?

 HI, EVEN THOUGH I'VE BEEN LIVING WITH E. FOR BETTER PART OF 40 YRS, ONLY LAST FEW YRS I'VE BEEN MORE AWARE OF TRIGS. IT WAS IN EFFECT ALL THOSE YRS, BUT I DIDN'T HAVE THAT KNOWLEDGE. FOOD- WISE, RECENTLY DISCOVERED THAT 'GINGER' IS A TRIG. FOR ME.

AMPLIFIED SOUNDS-VOICES AND MUSIC, ESPECIALLY PERCUSSION INSTRUMENTS.  BACK IN ERA OF SOUND SYSTEMS WITH LARGE FLOOR SPEAKERS, HAD TO STOP ATTENDING CERTAIN EVENTS, ESPEC. IN ENCLOSED BUILDINGS--CLUBS, CONCERT ROOMS ETC.  AT OUTDOOR EVENTS, HAD TO MOVE FAR AWAY FROM SPEAKERS. EVEN LIVE DRUMMING WOULD AFFECT ME AT TIMES, BUT DIDN'T KNOW WHY.  RECENTLY STOPPED LISTENING TO SOME 'RELAXATION/MEDITATION/YOGA CD'S BECAUSE OF THE CHIME-LIKE , HIGH PITCHED  SOUNDS. LEFT LAST CHURCH WHEN THEY SET UP SOUND SYSTEM( FOR BAND & CHOIR-VOL. WOULD BE UP HIGH, AND IT WAS HORRIBLE FOR ME); ALSO GOT RID OF MOST OF MY WIND-CHIMES--FOR THE SAME REASON. CONTEMPORARY MUSIC W LOTS OF HEAVY BASE ARE PROB. TOO. THIS MAY SOUND STRANGE, BUT A PERSON RIGHT NEXT TO ME SPEAKING IN VERY LOUD, HARSH OR HIGHPITCHED VOICE FOR LONG PERIODS ALSO HAS SIMILAR EFFECT. EVEN USING COMPUTER AND SCROLLING UP/DOWN REPEATEDLY AND READING LOTS OF PRINT ON SCREEN. CROSSING STREETS WITH RUSHING SINGLE/DOUBLE LANE TRAFFIC IS SO HARD AND SCARY FOR ME. USUALLY TRY TO FIND PEDESTRIAN CROSSING AT JUNCTION W TRAFFIC LIGHTS. ISN'T ALWAYS THERE.

REACTIONS: I GET A FUNNY SENSATION IN THE PIT OF MY STOMACH; SOMETIMES ALMOST SICK, NAUSEOUS FEELING; STRANGE ACHY FEELING IN HEAD; FUNNY SENSATION BEHIND EYES; FUNNY RIPPLING, JITTERY SENSATION UP AND DOWN AND THROUGH MY BODY; FEEL UNFOCUSED AND OUT-OF-SYNC. IF I REMAIN IN SITUATION, GET HEADACHE, JUMBLED THOUGHTS AND SPEECH, AND WHAT I CALL THE 'SEIZURY FEELING'

KNOW THAT WAS A LOT. THANKS FOR GIVING ME THE CHANCE TO SHARE. PEACE & HARMONY

Re: Epilepsy triggers?

My seizures are IDENTICAL to yours, but my triggers are different. It's amazing how eloquently you put how it feels to have a seizure. I've never met anyone who has them the same way I do. Nice to know I'm not alone! Glad I found this website.

God Bless,

Jennifer 

Re: Epilepsy triggers?

 

Hi Jennifer, thank you posting those comments about the similarity in seizure.  I feel heaps better !! It isnice to know one is not alone.  Even though you know what you know, it's very frustrating to explain to others, and even those who want to understand, just seem unable to. It's worse when you're dealing with  health professionals who just don't listen or simply dismiss you & those experiences.

This topic is of special interest to me since I deal with multiple food intolerances/sensitivities. (And other substances as well-- try creating a fragrance-controlled environment in a society teeming wiith fashionable scents, and chemical odours).  Reading all the comments about the link between periods & hormonal changes and sz activity, makes me believe that had somethinfg to do with the presence and frequency of certain types of szs I experienced years ago. I'll  continue to be vigilant  about what i put in & on my body, and surround myself with in the immediate environment that i do have some control over.

Peace & Harmony!

 

Re: Epilepsy triggers?

MANGOM, YOU HAVE A LOT OF THE SAME TRIGGERS I DO, BUT SOME YOU MENTION DON'T BOTHER ME. I HAVE A LOT OF MEDITATION CDS. I THINK I WILL START PAYING ATTENTION AND LET YOU KNOW IF I HAVE SOME THAT DON'T HAVE THE TRIGGERS YOU MENTIONED. IT'S REALLY SAD THAT YOU HAVE SO MANY TRIGGERS, ESPECIALLY TO MUSIC THAT IS SUPPOSED TO BE FOR MEDITATION. THE DOCS HERE RECOMMEND MEDITATION FOR SEIZURES.

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

 I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

Re: Epilepsy triggers?

 Hi jan, Hope all's good with you. Just rereading your comment from Sunday. thinking about it, it's not all that bad. Am such a passionate music lover, that i substitute with selections from other genres that have the same positive effect. Also look forward to getting the names of any in yr set, that are minus the trigggers.

Thanks in advance.

Peace & Harmony

Re: Epilepsy triggers?

WELL, I AM GLAD YOU CAN LISTEN TO SOME MUSIC! SO FAR, THE CDS I MENTIONED ALL HAVE TRIGGERS FOR YOU. I THINK I WILL TRY SOME I HAVEN'T LISTENED TO IN A WHILE AND SEE HOW THEY ARE! I DON'T KNOW IF PLAYING THE MUSIC VERY QUIETLY HELPS, BUT IT DOES HELP ME AT TIMES.  ANOTHER THING I WONDERED ABOUT.........DO YOU HAVE A WAY TO MAKE CDS WITH ONLY THE MUSIC YOU CAN TOLERATE ON THEM? I NOTICE SOME THAT I HAVE DON'T HAVE YOUR TRIGGERS THROUGHOUT THE ENTIRE CD. YOU MAYBE COULD TOLERATE PARTS OF DIFFERENT CDS. WHY DON'T YOU  BLOG? I DON'T KNOW VERY MUCH ABOUT YOU!  

I ALSO JUST REMEMBERED THAT AT TIMES EVEN THE NOISE FROM THE FRIG REALLY BOTHERS ME. DOES THAT HAPPEN TO YOU OR ANYONE ELSE, I WONDER? 

I WISH YOU PEACE, LOVE, BLESSINGS, JOY.........JAN

 I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

Re: Epilepsy triggers?

Hi - I also have seizures triggered by street noise. It seems to be from multiple noise at once when the street noise happens like cars, squeaky brakes, and maybe keys gingling at the same time. I have simple partial seizures that sounds like an airplane engine in my right ear. I've had these seizures for 20 years, but didn't know they were seizures until I had my second grandmal in 2006. My question is ...are these audiogenic seizures? I'm also noticing these seem to happen with period onset and when I eat smoked salmon.

Thanks for your post. I'm glad someone else has mentioned the street noise seizures.

Re: Epilepsy triggers?

Hi - I also have seizures triggered by street noise. It seems to be from multiple noise at once when the street noise happens like cars, squeaky brakes, and maybe keys gingling at the same time. I have simple partial seizures that sounds like an airplane engine in my right ear. I've had these seizures for 20 years, but didn't know they were seizures until I had my second grandmal in 2006. My question is ...are these audiogenic seizures? I'm also noticing these seem to happen with period onset and when I eat smoked salmon.

Thanks for your post. I'm glad someone else has mentioned the street noise seizures.

Re: Epilepsy triggers?

HI B, FIRST OF ALL THE CAPS ARE FOR THOSE WHO HAVE IMPAIRED VISION, I'M NOT SHOUTING AT YOU.   MULTIPLE TRIGGERS ARE COMMON FOR SOME OF US BUT NOT ALL, OBVIOUSLY.  SOMETIMES SMELLS, LIGHTS, AND THE BIG ONE ANXIETY OR PRESSURE, CAN BE TO BLAME.  HAVING TO GO FOR AN EEG CAN PUT A LOT OF PRESSURE ON US, AND THIS COULD BE A FACTOR.

LAVENDER IS OFTEN RECOMMENDED FOR CALMING PEOPLE DOWN, PERHAPS THE SCENT OF LAVENDER COULD HELP TO BALANCE OUT THE SITUATION - IF THE ANXIETY WAS A TRIGGER.  CHECK WITH THE USE OF LAVENDER WITH YOUR DR FIRST, DON'T JUST FOLLOW MY LEAD.  HOPE THIS HELPS.

TLBY&KY

ADZ

Re: Epilepsy triggers?

Hi-

I started having seizures when I was 4 and was put on meds. Then the docs said I "grew out of them" by age 13....they took me off of my meds and then I began having seizures again when I was 20. I've had them until just recently (now age 28). They seem to be in remission...if that makes any sense. I guess my body goes through phases? I hope this "dormant" phase lasts long enough for me to get pregnant a few times and have my kids before they start up again.  

Mine are not around the time of my period, but seem to crop up when I am stressed. I discovered an unusual trigger recently. I am highly sensitive to MSG (the preservative used in chinese food). It used to just give me migraines when I ate it, but a few months ago, I had a seizure almost immediately after I ate some chinese food. I called the restaurant, and sure enough....they had used MSG. I had been seizure free for almost a year before that happened.

I've changed my diet a lot and that seems to help. My seizures are identical to what user "mangomelee" describes below. I'm guessing they also have temporal lobe seizures.

Basically, just watch what you eat....try to limit the amount of toxins you are taking into your body......buy organic if you can and limit alchohol, etc. Doing this has also helped with my migraines, as well as seizures. If your body has less to process and eliminate, it might get less overwhelmed and neurologically "jittery".

I am really sorry you are going through this. I hope things improve for you and you find some answers for your condition.

Peace, and God Bless you....

Jennifer  

Re: Epilepsy triggers?

Triggers for me are always my period and at odd times: eating, but I don't know what.

Yesterday I ate for both lunch and dinner: seashell pasta, tomato, sausage, bay leaves, muenster cheese.

As soon as I was done with dinner I started getting the weird feeling and stared at the plates for what felt like eternity, until my roommates cleared out and left me sitting there. Finally I went to watch TV and couldn't control my head as it kept wanting to jerk to the right. Since it was light enough activity I kept fighting in the other direction, so I ended up looking like a bobble head doll. I kept thinking it would develop into my usual sz but luckily it faded away. I ate it earlier without incident...

OH! I also had some strawberries, angel cake, and Cool Whip my roomie gave me. Hmm...

It's possible it was just your period kicking in and the fluetab was a coincidence, esp. if you now consistently react to your period. It sounds as if you already had warning signs this was developing, the zapping sensations and such. I would probably take it again in the future and see what happens. If you don't seize then you know it wasn't your trigger, no sense avoiding something pointlessly. And if you do, you know to look for whatever ingredients in it that other things may have as well.

Re: Epilepsy triggers?

Has your doctor ever checked your metabolic system for protein issues. I found the root cause
for the seizures and migraine/auras was a metabolic disorder. I have to be on a limited
protein diet and take special medicine along with meds for migraines and seizures. Being
compliant has cut issues way down. Had hyst. so period is not issue. I do have to watch out
for weird triggers every day.

Re: Epilepsy triggers?

Hey there:

I got epilepsy when I was 12 - right after my period started!  So, yes, seizures happen because our hormones go crazy with the menstruation.  Some classical music and stress cause seizures for me. 

A lot of things can cause seizures for people. Read up on it.  Books really help.

I also get headaches.  I read that headaches/migranes are common with epilepsy.  Tell your doctor, because they can prescribe meds.  What I take is Maxalt-mlt.  It melts in your mouth and responds quickly.

Good Luck....

Re: Epilepsy triggers?

Hello,

   I have the normal ones and some strange triggers. The smell of vanilla, when I am in a vehicle and we are going through groves of trees in the daylight (the flashing of light ), and once I tried using "selsum blue" shampoo (awoke in bed three days later. ), then stress and lack of sleep. I can not eat chile powder, I love chile but it must be fresh or frozen.

  I sure there are a few more but that just a few with me

Good Luck no alleykat 

Re: Epilepsy triggers?

Hi,

The only time I have seizures is when I am about to start my period or I am on my period. Doctors say it's commom in girls because of all the hormonal changes we go through. I started my period in 6th grade and a month later I started having seizures. And yes, flashing lights do trigger seizures. My friend can't even watch fireworks because they trigger her seizures. Also strobe lights can trigger seizures. Good luck and god bless. =).

~Kristena

Re: Epilepsy triggers?

Hi,

I also feel like my period triggers my epilesy. Just found out one week ago, that for sure it was seizures.          

Re: Epilepsy triggers?

I was diagnosed with Epilespy when I was 11. Since I have have had atleast 100 seizures and I am now 18. So a lot fewer than some people. I noticed my biggest triggers are flashing lights and stress. I had my worst one a few years ago when friends and I went to get pizza. In the pizza place a light was getting ready to blow and was flickering really fast. I noticed it was bothering my eyes so I walked outside, but later that night at our lil girly get together I had a horrible grand mal. So I have learnt to try to avoid things like that. As I am sure you have all noticed most epileptics have very sensitive eyes.

Re: Epilepsy triggers?

I was diagnosed with Epilespy when I was 11. Since I have have had atleast 100 seizures and I am now 18. So a lot fewer than some people. I noticed my biggest triggers are flashing lights and stress. I had my worst one a few years ago when friends and I went to get pizza. In the pizza place a light was getting ready to blow and was flickering really fast. I noticed it was bothering my eyes so I walked outside, but later that night at our lil girly get together I had a horrible grand mal. So I have learnt to try to avoid things like that. As I am sure you have all noticed most epileptics have very sensitive eyes.

Re: Epilepsy triggers?

Black.Pearl

I can relate to some of what you are going through. I found out that I had Epilepsy about 2 years ago, i was scared to death. My first one with Friends and my boyfriend, we were doing movie night @ hour house. Everything was fine, about 30 minutes into the movie I started to feel tingling in my lower lip. I really didn't think anything about it at first. So I took a drink of Diet Coke and waited a bit and then my lip start to go numb "this was on my left side" it was getting worse. Without saying anything to anyone I went to go to the bathroom. When I went to the bathroom I had put my hands on the counter and was looking into the mirror and the next thing I knew was that I noticed that my Jaw was going one way and my head was going another. It was going so fast and then I started to hyperventalate. The next thing I knew I was out. When I woke up I had 3 paramedic's over top of me. My boyfriend calling my name and my friends there. I had no knowing of what had happened @ all. other then what I had just said. They wanted to take me to the hospital but I refused and wanted to go to bed. It took a long time to convince them, but the left. I got my boyfriend to put me to bed. But from what I understand was by the time my boyfriend got to me I was Dead weight and had a hard time geting me out of the small bathroom we had. I have ad a few since then and Now on meds for it. Which to me  I don't like taking meds exspecially stuff like that.

But my point to all this is that for all the ones I have had, I went throught the same thing. I was on my period or was between a week of getting it. I had not realized that until about a month ago. I was doing some research on one the meds they had me on. And found out that seiures can be cause by your period which i thought was reall screw up. So your period could be triggering your seizures. There is a name for it but I can't think of it right now. but if you want to know more let me know and I will see if I can find out what the name of it is for you.

Re: Epilepsy triggers?

I have many things trigger my seizures

 

Period sometimes which they gave me diamox to take around then an has helped it.

Acatone triggers my seizures which is in fingernail ploish remover to  paint thinner to many other things.

Certian types heat cause me to have seizures

Video games from Nintendos Certian games

 To Much Green Tea since green tea speeds up my matabolism

Not Enough Rest causes them also

An Yogurt it interacts with meds even my doctor said he could told me that.

 

Re: Epilepsy triggers?

I was wondering about all this new 3-D stuff that's hitting the market

Re: Epilepsy triggers?

well I just found out at least this month that period triggered my sz big time my migraine my depression and in a long time I had more than 10 complex partial sz in a day I was frieking out....every mouth now is different I gotta go with the flow

the 3-d does start setting my auras off so do the flashing lights in movies or tv shows

for me if my sugar drops I start getting auras

migraines set off my auras as well

 :cvargas

Re: Epilepsy triggers?

   I also have migraines and they trigger my seizures sometimes. I have had seizures for five years now and I am glad to hear someone else has triggers from migraines also. When I first started having seizures I was working in a cabinet factory and painting was by job. I worked for a whole year and nothing happened . One night my fan went out that draws the fumes uot and I inhaled fumes for about 30 minutes. It made my heart feel like it would jump out of my body. Two days later at the job I fainted and started having seizures. They were grand mal and lasted for about 2 or 3 minutes and started again. I have been having them off and on again since then. They quit for about two years after starting on Dilantinand antidepression meds. I now am on dilantin, cymbalta,zanax,pnenabarb,inderal and imitrex for my migraines.Also flashing lights,loud noises willtrigger them also. God Bless everyone that is going through this , but we are not alone. 

Re: Epilepsy triggers?

Matt

I have found that one of my huge triggers (besides flashing lights of course) is the spice nutmeg. It will knock me down with only a little bit. You would be surprised how many foods it is in, and it is not required to be broken out on an ingredient label, it is just listed under the catchall of 'spices'.

Dangers for me include cookies and pastries, certain BBQ sauces, most curries, cream soups, jerk rubs, various spicy ethnic foods  (which I love), bratwurst (a great disappointment for a WI boy, it means I can never go home again), Valentina hot sauce, colas, and many other foods I have discovered by accident. My most recent find was that I can never have another Animal Cracker for the rest of my life.

I am not the only one with this sensitivity as my best friend also had seizures because of it. Watch out for Middle Eastern foods, Italian foods, Jamaican foods, and especially Ethiopian food :(

MCS

Re: Epilepsy triggers?

MSG a huge trigger (in most mixes, ethnic foods, chips, canned soups ect)

Asparatame (diet sodas)

Gelatin, Legumes, Gluten

Try the G.A.R.D it stops seizures for MANY people.

Basically gave daughter Maggie her life back.

www. dogtorj.net

Re: Epilepsy triggers?

I too take Keppra (2000mg per day). I began at 3000mg per day. However, we're trying it a bit lower now to see if it makes any real difference in the amount and/or intensity of my seizures. As it stands now, I can count on one seizure about every 3 or 4 weeks--most often while I'm sleeping or just after waking up. It does make me a bit crabby, but if you'll read about the side effects of this pill, you'll see that it's common. I would complain about it if I hadn't tried about 20 other seizure-control pills over the years. My worst so far have been Tegretol and Dilantin. So it's with Keppra I'm going to stay. I just have to tell myself now and then that as much as I love life, I have epilepsy...and probably always will. Triggers? Being overtired. Drinking coffee. Flashing lights. Hot & humid summertime weather. Colds and the flu.

Re: Epilepsy triggers?

hi George,

I too get them only in bed, usually while I am just waking up. I have just recently began taking Keppra and hope that it will diminish the seizures. Although they are only lasting a few seconds, it is really discouraging !

Regards,

Samuel

Re: Epilepsy triggers?

Triggers is great!

I asked the nurse why does the doctor have on such high doses of medication.  She said we recorded your seizures! Some are interesting!  I will have  to agree.

I have seen patients do the usual seizures in bed recording but when they are sleep deprived.  They are interesting recordings.

When I work I sometimes don't eat breakfast, or skip lunch....I start having a seizure in a hospital.  I hug people they thought I was extremely friendly, then I run out of the room not good.  That's my funny ones.  When monitored on the EEG unit the Neurologist said "Did you have to do that but chuckled, the electrode wires and everything else was pulled to during the seizure.  The monitor box has to be replace.  That was pretty good.  I told him, I worked in the field for a reason."

I presently walk on my partial complex seizure and have no warning and end up in street.  The doctors in the ER said you need a baby sitter.  I told them no I don't.  I have a dog that barks at me when I have a seizure and when he wants out.  They said sorry "no go!"  You have been almost hit twice. 

I am on Keppra 6000 mg., Zonegram 400 mg, Valporic Acid 1500 mg daily.

I have diarrhea, balance, headaches, cognitivity a little slow.

Re: Epilepsy triggers?

I haven't been able to identify too many of my triggers as there doesn't seem to be any kind of consistency with me, but I've definately noticed that the ketogenic diet did REMARKABLE things for me, bringing my fits down from up to 180 per day to 4 whole months where I was totally fit-free.  In general though, gluten and sugar are two things I've learnt to ignore completely - and apparently these are incredibly common!  As epileptics, we need to keep our blood sugar levels as stable as possible, so high fats and proteins can be beneficial / low GL diet.  It's worth a try - and elps lose weight too, so there's a double bonus!  Skiing was also BAD news as was a cruise

Re: Epilepsy triggers?

OH MY GOODNESS I AM SO HAPPY THAT I FOUND THIS WEBSITE. ITS GREAT. I NEVER KNEW THAT SO MANY THINGS IN EVERYDAY LIFE ESPECIALLY FOOD COULD TRIGGER A SEIZURE AND I HAVE HAD EPILEPSY GOING ON SIX YEARS NOW. NICE TO FINALLY FIND PEOPLE WHO UNDERSTAND AND KNOW WHAT ITS LIKE. INSTEAD OF PEOPLE WHO JUST TELL ME THAT I AM JUST TRIPPIN. SO WITH THAT BEING SAID, I THINK THAT ICECREAM AND CHOCOLATE ARE TRIGGERS FOR ME. WHAT DO YOU GUYS THINK ABOUT THAT?

Re: Epilepsy triggers?

hi. well as far as triggers go, there are plenty. i have found a lot........when i was in my teens i always used to get one around the time of my period. other triggers include: overheating, tiredness, stress, bright/flashing lights, swimming, (esp in warm weather), sport, missing medicine and getting overworked which leads to stress or being overtired. as for other meds triggering seizures, discuss it with your doctor, and consider these questions when you consider it for a trigger. did you always take panadol for aches and pains? did it just start to be a problem only after you were diagnosed with epilepsy? have you any allergies to any medicines? if it was only problematic AFTER you were diagnosed, and you were using it before, then it may be a trigger and get a painkiller that doesnt have panadol in it for you. check also for allergies to any meds.hope this helps and good luck.

Re: Epilepsy triggers?

Many antihistamines are powerful seizure triggers.  This is paricularly true when ingested, instead of used as a spray.   It is almost impossible for me to take a strong antihistamine pill without having a really good grand mall set off.    They have come out with some newer large molecule antihistamines that supposedly cannot past your brain filters, but they still will cause rashes of the smaller seizures... there have been some pretty good studes done on this.  This is not just my experience. 

 there are a whole bunch of meds that trigger seizures. Reglan the stomach drug does.  

In terms of chemicals and food additions there is a lot list... but the most powerful seems to be MSG.   One of the red food dyes is really poweful but, it is one that they do not use any more because of other problems.  They used to use that and MSG in cheap hot dogs years ago.. and a cheap hog dog would trigger a seizure in me and many others... and for many of us we thought it was the hot dogs.. but discovered it was the ingredients used in the cheap ones.  

Nutmeg and few other spices can trigger seizures in some.  Actually what happens is not a triggering of the seizure in most times... but the lowering the person's seizure threshhold.  There used to be some really great listings of high triggers and medium triggers and possible triggers.. in terms of meds and foods on an old web site.

 WALT

Re: Epilepsy triggers?

I have many triggers to much caffeene,  Greentea, Yogurt,   Actone which is in fingerpolish nail remover ti paint thinner,  getting to hot in sun,  stress,  being upset, not enough sleep. An achol is non it interacts with medication an some people cant drink grapefruit juice due to type med they take.  everyone is different on there causes that triggers them.   I have certian nintendo games  throw me into them but i can go to concerts and play the play station.

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