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Tue, 2/7/2012

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The Cabana

We all need a place to address our moods whether they be silly or serious and I feel the Groups aren't any different. I hope this becomes a place for us all to interact and get to know each other better, whether it be our dreams or our idiocrasies. Add more catagories as you think of them so we can all share in the moment. Cheers!

- You may have to click on 'View All Discussions' in the Group Content box in order to see all the catagories.

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Group Content

View All Member Blogs
spiz
spiz
Cool....My own blog!!!!
Created by spizat09/01/2005 - 5:14pm|19905 Views
Blog Posted To: Spiz's Blog
This will take some getting used to...but I think it will be fun! I'm having a bad headache which isn't unusual(just ask my husband). But what is unusual is that my cheekbone and behind my eye...right side...has the same numbing...
epi_help
epi_help
Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|8991 Views
Blog Posted To: epi_help's blog
Hi everyone, I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place! So let me tell...
rootbe...
rootbe...
I am confused
Created by rootbe...at10/16/2005 - 2:07pm|37095 Views
Blog Posted To: rootbeergirl16's blog
my daughter is 9 and just been diagnosed epiletic for sezures in 2 and half years her last one was 35 min long anyway they just prescribed lamictal and i am trying to sort out the good bad and ugly of it all and i am seeking some advice....
Colina
Colina
My family has never seen me on the computer so often!
Created by Colinaat11/10/2005 - 10:05am|15933 Views
Blog Posted To: Colina's blog
Hi everbody. I'm very new to this site with the exception of finding the best place for information. I have always been very shy and apprehencive about joining any chat rooms or stuff, but I have found this to be the best thing...
mommy2...
mommy2...
have u been there?
Created by mommy2...at06/27/2006 - 4:48am|5311 Views
Blog Posted To: mommy2kyra's blog
It seems that I keep finding out that my sz's began even earlier than I'd thought. Originally, I had a nocturnal grand mal (almost age 26) and it took a couple of years for me to figure out that I'd been having cp's, not panic attacks...
kathyc
kathyc
Replacing Dilantin w/Lamictral
Created by kathycat09/16/2006 - 1:17am|7745 Views
Blog Posted To: kathyc's blog
My husband has been on Dilantin 500mg nitely for 34 years and his neurologist is now replacing it w/Lamictral. He is increasingly shaky-trembles all the time. Next week he will start decreasing his dilantin dosage 100mg every 5 days...
banffgirl
banffgirl
Newbie
Created by banffgirlat03/23/2007 - 10:07pm|49352 Views
Blog Posted To: banffgirl's blog
Well everyone out there I don't know how you do it. I decided to join after getting this newsletter for at least 3 or 4 years. I entered a chat room last night but couldn't keep up. About 4 years ago my seizures went from pretty...
ROCKNROLL
ROCKNROLL
EPILEPSY, NON EPILECTIC SEIZURES, HORMORNES, NOT HORMONES
Created by ROCKNROLLat07/12/2007 - 9:31pm|70565 Views
Blog Posted To: DERAILED, GETTING BACK ON THE TRACK
BOY, IT WOULD HAVE BEEN A LOT EASIER IF I HADN'T UNENROLLED AND ENROLLED AGAIN. SEIZURES ARE GETTING WORSE AND MORE FREQUENT. JUST BACK FROM DIAGNOSTIC LAB TODAY AND HAVE TO WAIT A MONTH?????? TO GET THE RESULTS AND FIND OUT WHAT...
dayna
dayna
The eyes
Created by daynaat07/23/2007 - 9:00pm|8217 Views
Blog Posted To: dayna's blog
If the eyes are the window to the soul...why do they look at me like that? Can they see inside the dark? No one can see in there...If I am not looking out, they shouldn't look in. What are they looking for? Don't they understand...
reba
reba
Fears before surgery. now happiness after.
Created by rebaat09/06/2007 - 10:47am|3733 Views
Blog Posted To: reba's blog
i am 37 yrs old, married and the mother of 3 beautiful kids. I just recently had right temporal lobe surgery on August 22. after just staying in the hospital 5 days, i was able to come home. it is now september 5, and i am recovering...
crashl...
crashl...
Crash is Back
Created by crashl...at09/25/2007 - 12:23pm|42920 Views
Blog Posted To: Crashllama's Blog
I tried to give up the "Crashllama" nickname but it just won't go away. EVERYONE calls me Crash or Llama. I guess it fits me somehow. Sigh. I apologize for deleting my account as other things had come up. I had a really bad...
ValNew...
ValNew...
My Jake's Story...In a Nutshell
Created by ValNew...at03/16/2008 - 8:04am|5446 Views
Blog Posted To: Val's Blog
In the Summer of 2006, my extremely healthy, active, smart, 10 year old boy, Jake, got a mosquito bite, which lead to Viral Encephalitis.  I woke to find him in Status Epilepticus.  My husband and I came very close to losing our son in the ER that...
lorelama
lorelama
My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|6167 Views
Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal. My teen...
Lizust
Lizust
New at this need your help, also need help on not being embarrassed about having seizures
Created by Lizustat04/03/2008 - 11:26am|3493 Views
Blog Posted To: Lizust's blog
If any one reads this, I'm not sure what to expect.  I have different kinds of seizures and am stuggling on explaining epilepsy to friends and family.  Many times I have to try and "justify" my disability to others and it gets very frustrating. ...
Colie_...
Colie_...
Colie's blog
Created by Colie_...at08/13/2008 - 7:59am|4540 Views
Blog Posted To: Colie_byrd's blog

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owynsm...
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dizzygal
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Colie_...
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i am a 24 year old woman living with epilepsy. i have gran mal seizures,...

GAmom3
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I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...

gjsamuels
gjsamuels

There's a lot about me, e.g., level of education, politics, music....

kathyc
kathyc

Altho I do not have epilepsy, I am a person living with it. My husband...

Patty F.
Patty F.

Im on Zonisamide and Carbatrol Sr. Every since I've been put on Zonisamide...

banffgirl
banffgirl



banffgirl
banffgirl

Colie_...
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Colina
Colina

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crashllama

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reba

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0

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Please see "My Jake's Story...In a Nutshell" in People Stories, or...



Title Posted
Focal activity followed by generalized activity but no epilepsy  
BendyPianist
Self-Management of Medication  
columbia.epilepsy.study
Feeling Like a Human Guinea Pig  
christopherpaul
Anywhere to donate extra medication?  
jesgal
help? :(  
tanyalynn
help? :(  
tanyalynn
deciding whether or not to medicate my 11-month-old daughter  
krowlyk
Looking to get pregnant, but concerned  
Bella2
Rolandic Seizures - Just confused !  
fleamcgee
Seizures During Sleep  
Morning Sunshine
View all Forums

Title Page Views
my.epilepsy.com Updates  
epi_help
topamax and weight loss  
alexia mom
kepra  
brian mattingly
Possible cure for absence seizures  
pdl1
How exactly do aura's feel  
WendyBendy
Sexual Side Effects  
George R
MEDICAL ALERT I.D.'s  
picnupthepcs
Over 40 Different Types Of Seizures - Revised  
spiz
electrical shock in head?  
Maggie
Weight Gain and Depakote  
galinda
View all Forums

Title Posted
Passing out twice after seizure -- Is this something to be concerned about?  
ArizonaAbby
Speech at Epilepsy Pipeline Update Conference -2012  
dayna
The Doors.  
BowlofMush
Epilepsy Pipeline Update Conference  
bryan_farley
marijuana  
ccraven
Two weeks in with Zarontin  
BowlofMush
1st post :)  
bethmummyofisla
My First Seizure  
xyz123dpzlis
Upcoming EEG  
JennDPT
Wear MBT shoes to enjoy life  
lvfashioner
View all Blogs

Title Page Views
my partial complex seizures  
Zanna1211
Topomax... The Dreaded.........  
Dr Jason
Brain Zaps, tics & twitches  
JudiS
How can you tell if a sleep seizure happens?  
epl_controller
Feeling Sick  
JBJ1984
side effects of phenobarb.  
pksmom
Tegretol XR and ANXIETY meds  
Butterflygrl
TYLENOL, AEDs & SEIZURES  
cmscribbles
Nonepileptic "Events" vs. "Seizures"  
teft
newborn seizure  
Sunny_80
View all Blogs

Title Posted
Self-Management of Medication  
columbia.epilepsy.study
Dravet Spectrum Disorder  
mytboy
Diving with eplilepsy  
p59
Moms of epileptic toddlers  
Xaviersmom2
Autism  
Aaron Chan
brain surgery  
jen020309
People in their 20's with epilepsy  
Mandy911
TEAM ETP  
krisj
24yr old male  
Dave24
Could I be Epileptic  
kathygardendancer
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Title Posted
Help me plz. I can't go on like this  
Lindsea
For my daughter  
britni1780
Why can't I find out what is going on with me?  
dgreer27
nightime seizure  
ishaq
my grandchild with possible panayiotopolous syndrome  
krys
Please Read and Help  
WALLIGAT0R
Hello. I'm new to the forum  
Tom S.
Maxx  
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Lyme Disease as a cause for seizures  
ssidah
new member  
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