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It is now easier and faster than ever to access news, articles and community content. With less clutter and an improved navigation system, your favorite content is now only a click away.
The new features include:
Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYWe all need a place to address our moods whether they be silly or serious and I feel the Groups aren't any different. I hope this becomes a place for us all to interact and get to know each other better, whether it be our dreams or our idiocrasies. Add more catagories as you think of them so we can all share in the moment. Cheers!
- You may have to click on 'View All Discussions' in the Group Content box in order to see all the catagories.
...spiz Never-Ending Sentence
Created by spizat5/3/08 - 8:52 pm|58 Views|10 Comments
I'll start a sentence then the next person makes the first word or two of their sentence finish mine while making an unfinished sentence of their own to be finished and added to by the next person, etc. Let's make it fun!
-Spiz
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spiz Funny, Inspiring, Thought Provoking Sayings, Bumper Stickers, Etc.
Created by spizat3/25/08 - 12:34 pm|159 Views|21 Comments Share a laugh or smile. Inspire.
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Colina Spelling bee
Created by Colinaat1/8/09 - 12:32 pm|8 Views|1 Comment
So I have a real hard time with spelling as many of you do too. So I thought maybe to ease the frustration we could teach each other those annoying words that I/We just can't get right. Maybe even a trick to remember them. I know I could look them up but...
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spiz Favorite Commercials/ Most Aggravating Commercials
Created by spizat3/15/08 - 1:27 am|57 Views|14 Comments From the ones you love to like to the ones you love to hate...let's hear them!
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spiz Seizures - Your Earliest Memory Of Them
Created by spizat3/15/08 - 7:37 pm|27 Views|3 Comments Share the memories of your earliest experiences of seizures.
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spiz Name That Tune
Created by spizat3/14/08 - 11:24 pm|44 Views|9 Comments
Type a line from a song and see who can name the song.
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spiz Chat Room Slang
Created by spizat3/31/08 - 5:01 am|116 Views|5 Comments
There is so many slangs and acronyms used in the chat room. Let's see how many we can put here to help each other learn them. Make up some of your own too!
Please do not list any that are offensive. Thank you!
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spiz If You Could, Would You?
Created by spizat3/15/08 - 1:09 am|105 Views|13 Comments If you could switch a day with a loved one so they would have to experience what would be a bad day in your life with seizures...would you and why?
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spiz Embarassment of E
Created by spizat7/15/08 - 11:10 am|62 Views|2 Comments Need a place to vent, talk about the embarassment of E - personal or seen by all? Here's the place for when it gets to be to much to hold it all in.
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spiz Guess The Meaning...
Created by spizat6/29/08 - 10:30 pm|24 Views|2 Comments Here's a game where we guess the meaning of acronyms made up by us. Please do not leave any that include the use of offensive words. Come on and join the fun!
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spiz Cool....My own blog!!!!
Created by spizat09/01/2005 - 5:14pm|19905 Views Blog Posted To: Spiz's Blog This will take some getting used to...but I think it will be fun!
I'm having a bad headache which isn't unusual(just ask my husband). But what is unusual is that my cheekbone and behind my eye...right side...has the same numbing...
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epi_help Resource Corner
Created by epi_helpat10/07/2005 - 2:44pm|8991 Views Blog Posted To: epi_help's blog Hi everyone,
I wanted to formally introduce myself to the community as the Epilepsy.com Resource Specialist. I joined this summer and am getting rolling on this site as all the exciting changes are taking place!
So let me tell...
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rootbe... I am confused
Created by rootbe...at10/16/2005 - 2:07pm|37095 Views Blog Posted To: rootbeergirl16's blog my daughter is 9 and just been diagnosed epiletic for sezures in 2 and half years her last one was 35 min long anyway they just prescribed lamictal and i am trying to sort out the good bad and ugly of it all and i am seeking some advice....
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Colina My family has never seen me on the computer so often!
Created by Colinaat11/10/2005 - 10:05am|15933 Views Blog Posted To: Colina's blog
Hi everbody. I'm very new to this site with the exception of finding the best place for information. I have always been very shy and apprehencive about joining any chat rooms or stuff, but I have found this to be the best thing...
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mommy2... have u been there?
Created by mommy2...at06/27/2006 - 4:48am|5311 Views Blog Posted To: mommy2kyra's blog It seems that I keep finding out that my sz's began even earlier than I'd thought. Originally, I had a nocturnal grand mal (almost age 26) and it took a couple of years for me to figure out that I'd been having cp's, not panic attacks...
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kathyc Replacing Dilantin w/Lamictral
Created by kathycat09/16/2006 - 1:17am|7745 Views Blog Posted To: kathyc's blog My husband has been on Dilantin 500mg nitely for 34 years and his neurologist is now replacing it w/Lamictral. He is increasingly shaky-trembles all the time. Next week he will start decreasing his dilantin dosage 100mg every 5 days...
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banffgirl Newbie
Created by banffgirlat03/23/2007 - 10:07pm|49352 Views Blog Posted To: banffgirl's blog Well everyone out there I don't know how you do it. I decided to join after getting this newsletter for at least 3 or 4 years. I entered a chat room last night but couldn't keep up. About 4 years ago my seizures went from pretty...
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ROCKNROLL EPILEPSY, NON EPILECTIC SEIZURES, HORMORNES, NOT HORMONES
Created by ROCKNROLLat07/12/2007 - 9:31pm|70565 Views Blog Posted To: DERAILED, GETTING BACK ON THE TRACK BOY, IT WOULD HAVE BEEN A LOT EASIER IF I HADN'T UNENROLLED AND ENROLLED AGAIN. SEIZURES ARE GETTING WORSE AND MORE FREQUENT. JUST BACK FROM DIAGNOSTIC LAB TODAY AND HAVE TO WAIT A MONTH?????? TO GET THE RESULTS AND FIND OUT WHAT...
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dayna The eyes
Created by daynaat07/23/2007 - 9:00pm|8217 Views Blog Posted To: dayna's blog If the eyes are the window to the soul...why do they look at me like that? Can they see inside the dark? No one can see in there...If I am not looking out, they shouldn't look in. What are they looking for? Don't they understand...
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reba Fears before surgery. now happiness after.
Created by rebaat09/06/2007 - 10:47am|3733 Views Blog Posted To: reba's blog i am 37 yrs old, married and the mother of 3 beautiful kids.
I just recently had right temporal lobe surgery on August 22. after just staying in the hospital 5 days, i was able to come home. it is now september 5, and i am recovering...
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crashl... Crash is Back
Created by crashl...at09/25/2007 - 12:23pm|42920 Views Blog Posted To: Crashllama's Blog I tried to give up the "Crashllama" nickname but it just won't go away. EVERYONE calls me Crash or Llama. I guess it fits me somehow. Sigh. I apologize for deleting my account as other things had come up. I had a really bad...
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ValNew... My Jake's Story...In a Nutshell
Created by ValNew...at03/16/2008 - 8:04am|5446 Views Blog Posted To: Val's Blog
In the Summer of 2006, my extremely healthy, active, smart, 10 year old boy, Jake, got a mosquito bite, which lead to Viral Encephalitis. I woke to find him in Status Epilepticus. My husband and I came very close to losing our son in the ER that...
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lorelama My life with Epilepsy
Created by lorelamaat03/28/2008 - 11:54am|6167 Views Blog Posted To: Inpatient Video EEG
I was diagnosed with epilepsy 30 years ago. I have been on every AED on the list except for Topamax and Lamictal. My seizures started with very intense audio/visual auras followed by unconciousness which was sometimes (at that time) a gran mal.
My teen...
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Lizust New at this need your help, also need help on not being embarrassed about having seizures
Created by Lizustat04/03/2008 - 11:26am|3493 Views Blog Posted To: Lizust's blog
If any one reads this, I'm not sure what to expect. I have different kinds of seizures and am stuggling on explaining epilepsy to friends and family. Many times I have to try and "justify" my disability to others and it gets very frustrating. ...
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Colie_... |
Wondering what events are upcoming? Use the Event Calendar in this section to learn about events taking place in your community, state, or country. See what other epilepsy.com members are promoting. Remind yourself of new activities. Have your own event? Add it to the calendar for other members to find!
Learn more about the Event Calendar and how to create your entry in our Event Calendar Help Section.
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spiz Funny, Inspiring, Thought Provoking Sayings, Bumper Stickers, Etc.
Created by spizat3/25/08 - 12:34 pm|21 Comments Posted To: |
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spiz Favorite Commercials/ Most Aggravating Commercials
Created by spizat3/15/08 - 1:27 am|14 Comments Posted To: |
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spiz 101 Things I Want To Do Before I Bite The Dust
Created by spizat3/14/08 - 11:03 pm|6 Comments Posted To: |
spiz |
i am a 24 year old woman living with epilepsy. i have gran mal seizures,...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
There's a lot about me, e.g., level of education, politics, music....
Altho I do not have epilepsy, I am a person living with it. My husband...
Im on Zonisamide and Carbatrol Sr. Every since I've been put on Zonisamide...
i am a 24 year old woman living with epilepsy. i have gran mal seizures,...
Documentary Filmaker
Hi, I'm here with my.epilepsy.com as a resource, to help wherever...
I am 40, mother of 3 and grandmother of 1 (+1 on the way)! Great life. I...
There's a lot about me, e.g., level of education, politics, music....
Altho I do not have epilepsy, I am a person living with it. My husband...
I have been diagnosed with epilepsy for 30 years, temporal lobe epilepsy...
Im on Zonisamide and Carbatrol Sr. Every since I've been put on Zonisamide...
I had Surgery on 11/12/2007 my epilepsy has improved because of it. They...
I HAVE ABSENCE,SIMPLE,PARTIAL,COMPLEX PARTIALS,ATONIC?NOT SURE ABOUT...
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Please see "My Jake's Story...In a Nutshell" in People Stories, or...
| Title | Posted | |
|---|---|---|
| Focal activity followed by generalized activity but no epilepsy | Feb 7, 2012 | |
| BendyPianist | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Feeling Like a Human Guinea Pig | Feb 7, 2012 | |
| christopherpaul | ||
| Anywhere to donate extra medication? | Feb 7, 2012 | |
| jesgal | ||
| help? :( | Feb 7, 2012 | |
| tanyalynn | ||
| help? :( | Feb 7, 2012 | |
| tanyalynn | ||
| deciding whether or not to medicate my 11-month-old daughter | Feb 7, 2012 | |
| krowlyk | ||
| Looking to get pregnant, but concerned | Feb 7, 2012 | |
| Bella2 | ||
| Rolandic Seizures - Just confused ! | Feb 7, 2012 | |
| fleamcgee | ||
| Seizures During Sleep | Feb 7, 2012 | |
| Morning Sunshine | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,610 | |
| epi_help | ||
| topamax and weight loss | 19,311 | |
| alexia mom | ||
| kepra | 19,197 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,342 | |
| pdl1 | ||
| How exactly do aura's feel | 13,990 | |
| WendyBendy | ||
| Sexual Side Effects | 13,513 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,427 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,405 | |
| spiz | ||
| electrical shock in head? | 10,072 | |
| Maggie | ||
| Weight Gain and Depakote | 9,005 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| Passing out twice after seizure -- Is this something to be concerned about? | Feb 7, 2012 | |
| ArizonaAbby | ||
| Speech at Epilepsy Pipeline Update Conference -2012 | Feb 7, 2012 | |
| dayna | ||
| The Doors. | Feb 7, 2012 | |
| BowlofMush | ||
| Epilepsy Pipeline Update Conference | Feb 7, 2012 | |
| bryan_farley | ||
| marijuana | Feb 7, 2012 | |
| ccraven | ||
| Two weeks in with Zarontin | Feb 7, 2012 | |
| BowlofMush | ||
| 1st post :) | Feb 7, 2012 | |
| bethmummyofisla | ||
| My First Seizure | Feb 7, 2012 | |
| xyz123dpzlis | ||
| Upcoming EEG | Feb 7, 2012 | |
| JennDPT | ||
| Wear MBT shoes to enjoy life | Feb 7, 2012 | |
| lvfashioner | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,399 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,780 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,579 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,537 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,211 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,903 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,831 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,710 | |
| teft | ||
| newborn seizure | 2,254 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| Moms of epileptic toddlers | Jan 24, 2012 | |
| Xaviersmom2 | ||
| Autism | Jan 15, 2012 | |
| Aaron Chan | ||
| brain surgery | Dec 26, 2011 | |
| jen020309 | ||
| People in their 20's with epilepsy | Dec 7, 2011 | |
| Mandy911 | ||
| TEAM ETP | Nov 28, 2011 | |
| krisj | ||
| 24yr old male | Sep 21, 2011 | |
| Dave24 | ||
| Could I be Epileptic | Sep 13, 2011 | |
| kathygardendancer | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| Help me plz. I can't go on like this | Feb 6, 2012 | |
| Lindsea | ||
| For my daughter | Feb 6, 2012 | |
| britni1780 | ||
| Why can't I find out what is going on with me? | Feb 5, 2012 | |
| dgreer27 | ||
| nightime seizure | Feb 5, 2012 | |
| ishaq | ||
| my grandchild with possible panayiotopolous syndrome | Feb 5, 2012 | |
| krys | ||
| Please Read and Help | Feb 4, 2012 | |
| WALLIGAT0R | ||
| Hello. I'm new to the forum | Feb 3, 2012 | |
| Tom S. | ||
| Maxx | Feb 3, 2012 | |
| MDS2006 | ||
| Lyme Disease as a cause for seizures | Feb 1, 2012 | |
| ssidah | ||
| new member | Jan 31, 2012 | |
| cricketsgidget | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,412 | |
| kroiz | ||
| my story | 553 | |
| snoby | ||
| Temporal Lobe Epilepsy | 531 | |
| Always Have On Clean Underwear | 499 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 470 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 467 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 418 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 389 | |
| karalyeva | ||
| Life......... | 371 | |
| dizzygal | ||
| My Daily Philosophy..... | 364 | |
| KatieFerguson88 | ||
| View all Stories | ||
Name: The Cabana
Since: Mar 14, 2008
About the Group:
A place for the serious, the not so serious and the seriously silly...Enjoy!

