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Smoking marijuana and drinking

I was just reading on this website all of the forums about drinking and smoking cigarettes and how bad they are for you. It didnt say anything about weed and I smoke weed maybe once a week or once every two weeks and is it bad for having seizures? Also if you drink maybe two beers to three beers once a weekend is that bad?

Comments

Re: Smoking marijuana and drinking

If you live in a state that has passed medical marijuana laws, you could probably get a prescription for it.  My understanding is that for most (if not all) of these states, epilepsy is a covered condition.   That should tell you something about marijuana and epilepsy, but everyone's different.

I've never had a problem with drinking and the mild type of epilepsy that I have. 

Deb

Re: Smoking marijuana and drinking

 I'm also interested in smoking or drinking weed

I asked my neurologist about it: This is his answer;

"There are 2 kind of molecules in marijuana; one that prevents seizures and one that increases

or stimulates seizures" I understand that that also is with AED So I'm still searching for the possibillity

even though it is forbidden here

sifra

Re: Smoking marijuana and drinking

I told my nerou I smoke weed for my sez's and he was pretty cool with it. I have cut my sez's down about 95% since using mj.  I guess it's the better of the two evils. This year in MI we are trying to get in legal for medical MJ.  Wish me luck......x

Re: Smoking marijuana and drinking

Good luk hope it all goes legal! m has helped me i believe quite a bit , not sure about the hash lol, but the weed, definetly.

Re: Smoking marijuana and drinking

WEM 511 how long have you been smoking weed? I've been just over two years and so far so good. I had a lot of small sez and at least four grand mals a month. Since smoking no grandmals and maybe 1-2 small sez and some days I'm free of epilpesy all around ( ^%^%$^%$^) That's me dancing lol. 

Alcohol will trigger one so I stay clear of booze but I don't miss booze anyway. Hopefully this year we can pass medical MJ here in Mi. I'd love to grow my own. Love that hydro.

Re: Smoking marijuana and drinking

The most common view is that marijuana is not good for you. There are some reports of decreased seizures with it's use, but others with worsened seizures.  Also, the more one uses, the worse memory is and then people start mixing up medicines, and end up having more seizures. Keep in mind that mixing recreational drugs with prescribed drugs will result in more side effects and these could be dangerous. And lastly, since it is an illegal drug, and it is not an indicated or approved treatment for seizures, a person using marijuana for seizures would be subject to the laws of that state/country.

RE drinking alcohol - while 'moderation' is usually ok by most common standards, everyone should talk to their own doctors about it's use. It is a depressant and can affect the brain directly, causing side effects. Alcohol when used regularly could interact with seizure medicines as well. Result could be that people get 'drunk' more easily from combination of alcohol and AEDs, and seizures could be affected.  The combined effects of alcohol and some of the AEDs could be very dangerous. A person who uses alcohol regularly would be at risk for having 'withdrawal' seizures, or increased seizures after they have drank. Lastly, regular use of alcohol also impairs memory leading to more inconsistent use of seizure medicines.

Hope this info helps. Make sure to talk to your own doctor and follow their advice! Alcohol and marijuana are drugs too and should be considered carefully.

Epi_help, Resource Specialist

Re: Smoking marijuana and drinking

yea weed is definetly fine. i've had to deal with seizures my whole life, and basically the only time i was seizure free as a teen was when i smoked weed. then i got mono, and stopped smoking and sure enough my seizures came back. it could just be coincidence though. but definetly do nottt drink alcohol. it is a seizure's worst enemy! i find even a little bit of drinking can trigger some seizure activity.

obviously i wouldn't exactly go out and buy tons of weed, but i've heard it's really good at prevented them, especially if you feel the onset of one.

i'm more worried about smoking it and having a reaction with my meds. are you on any?

Re: Smoking marijuana and drinking

I was only officially diagnosed a year and a half ago but I've been told that my seizures probably started when I was about 5. I've been smoking marijuana regularly for about 2 and a half years now and it hasn't had any effect on my seizures, negative or positive. My response from my neuro when I asked him was basically that marijuana is more likely to suppress the brain activity that would result in seizures and alcohol would stimulate it. I also drink on occassion and have not had any alcohol related issues regarding my epilepsy. I've been taking Lamictal since Oct. '06 and that's the only thing that's made a difference in the frequency of my seizures.

 Mostly as I can gather it's on an individual basis, it could just affect one person differently than another, but I haven't had any personal issues with either weed or alcohol.

Re: Smoking marijuana and drinking

I don't know the medical answer for this, but I asked my neurologist about it and he told me that he could not condone it.  I find it helps me sleep better and I can't say whether my seizures are reduced from it, but I don't think they have increased either. 

Two days ago my doctor told me that I'm a candidate for surgery, so I've got to check out everything I can.  I haven't had a grand mal seizure in several years, but I still have seizures.  I can't decide whether to even go forward with the testing that has to be done first.  I'm afraid the induced seizures may actually make me start having the big ones again.  And I'm at the maximum level I can take of the drugs I'm taking (Keppra and Trileptal).  Any thoughts on surgery (left temporal lobe)?

 

Re: Smoking marijuana and drinking

your question is answered by my piece called respect your epilepsy. it has a insert in it from research from 2 prominent specialists on sudep. read it, that will give you the answer you will need on why not to drink or use illegal drugs with epilepsy. and yes weed is still illegal and you dont know what its been laced with so who knows what chemicals you are actually breathing in and effecting your brain. i hope you and everyone else who take this subject so lightly will understand why the mortality rate for epileptics is higher than the natioal average, its sudep.

God Bless,

banffgirl

life is fragile, handle with prayer.

Re: Smoking marijuana and drinking

I am 43 now and have smoked weed for about 30 years, alot. My epilepsy is caused by injury at birth. I started having grand mal seizures about 8 yrs ago. Now I could say that maybe my grand mals were set off by using some other illegal drugs however, I had only did that a couple of times. I wont do cocaine anymore. At this point in my life I wont stop smoking weed because my doctor has never told me not to. But I won't condone doing any other drugs or drinking alcohol. However everyones epilepsy is different so do whatever makes you feel good. Within reason of course.

Nanc

Re: Smoking marijuana and drinking

Strength & Honour

Re: Smoking marijuana and drinking

Hi all,

I've read through all of your comments and thought it good to post mine as well. 

The question whether alc or M is good or bad is in a way something you can call contraversial.  It is known that drinking alcohol decrease the effect of AED and indirectly may cause seizures.  Thus, it isn't that Alcohol spurs your E on but merely decrease the effectiveness of your AED.  However, it is important to know that everybody responds differently to alcohol, there are many factors to take into account ie your body wieght, lenght, prescription AED, amount of Alcohol etc.  In general it is not wise to drink to much but as we all know things does get out of hand.  Just be cautious, you,more than anybody, know your E.

In re Marijuana:  Studies have shown that in some patients (mice were tested) M decreased the possibility of a seizure and in other cases increased the risk.  There is no definate answer and like everybody, doctors and neuros, always tell you - Everybody responds differently to everything and nothing is sure.....  In light of the above it is very risky to smoke M without really knowing what effect it has on you.  You can just as well be busy spurring on a seizure!  I tried it a few times at varsity and wham! I had two grand mal seizures in two days (they are normally about 6 months apart).  Evidently it didn't work for me.  In the long run I wouldnt advise anyone to take such a risk nor smoke M (or atleast not to much) because of other health reasons and of course the illegality issue...

Hope i could be of some weird assistance, still a lot to learn. 

Re: Smoking marijuana and drinking

HEY, IT'S YOUR LIFE. DO WHAT YOU WANT. WHAT A TOTALLY STUPID QUESTION. I THINK YOU KNOW THE ANSWER ALL READY. SO, IF YOUR LIFE DOESN'T COUNT FOR ANYTHING, MAYBE YOU SHOULD CONSIDER THE PEOPLE WHO LOVE YOU, WHO DON'T WANT TO SEE YOU HURT, WHO HAVE TO LEARN TO DEAL WITH ONE WHO HAS E AND CHOOSES TO MAKE THINGS MORE DIFFICULT. AND THINK ABOUT THE PEOPLE WHO MAY BE YOUR VICTIMS, WHILE YOU THINK YOU ARE HAVING A GOOD TIME.  DON'T EVEN CONSIDER THINKING THAT YOU ARE GETTING THIS FROM SOMEONE WHO HASN'T BEEN THERE, DONE THAT, BUT DIDN'T HAVE E. I KNOW WHAT DRUGS DO TO PEOPLE. BUT IN THOSE DAYS, NO ONE REALLY KNEW HOW BAD IT COULD GET. BE STUPID IF YOU WANT BUT WHY BRING YOUR STUPID QUESTION HERE.   

Re: Smoking marijuana and drinking

OK, so you're saying that someone with a question shouldn't bring his/her question to a website devoted to information about epilepsy because *you* think it's stupid?  Why on earth would this question be stupid?  It's way more stupid to wonder about something and never ask the question at all.

Marijuana is prescribed to treat epilepsy in a lot of states.  Just like Keppra, or Dilantin or whatever other med is prescribed to treat epilepsy.  Would it still be a stupid question if someone asked about those meds?

This is one of the most judgemental, disrespectful and least helpful replies I've ever seen on this website. 

Deb

this has gotten totally out

this has gotten totally out f hand, lets just agree to disagree. no one is going to change anyones mind on this topic.

God bless,

banffgirl

life is fragile, handle with care.

Re: this has gotten totally out

 

Most of the answers to this question weren't out of hand at all, actually. 

I'm fine with disagreement on any topic, but we all know what can happen to a nice, helpful, informational website when people start calling other people "stupid" when it's fairly obvious that the question wasn't asked to provoke anyone.  One day you have something useful, the next day you have nothing but a flamefest.

Deb

Re: Smoking marijuana and drinking

CATSAMU............WHILE I DON'T THINK THIS EVEN NEEDS A REPLY............WHY DON'T YOU READ THE STATS AND WHAT EPI HELP WROTE. DON'T ASSUME YOU KNOW EVERYTHING............AND DON'T ASSUME I AM JUDGMENTAL,  DISRESPECTFUL, OR NOT HELPFUL. THE ANSWER IS OBVIOUS WHICH MAKES IT MORE THAN A STUPID QUESTION..............GET HIGH AT YOUR OWN RISK, BUT DO IT SOMEWHERE FAR AWAY FROM ANYONE SO NO ONE GETS HURT BECAUSE PEOPLE DO CHOOSE TO DO MANY ILLEGAL THINGS IN ORDER TO GET HIGH. DID YOU EVER CONSIDER THAT HAVING E IS DIFFICULT ENOUGH WITHOUT ADDING AN ILLEGAL DRUG TO ENHANCE YOUR CONSCIOUS STATE?  DID YOU EVER CONSIDER THAT I MAY KNOW MORE ABOUT THIS THAN I CARE TO TALK ABOUT? READ WHAT I WROTE AGAIN. I KNOW WHAT DRUGS DO TO PEOPLE. MARIJUANA IS AN ILLEGAL DRUG. DID YOU EVER EVEN PUT ANY THOUGHT INTO YOUR SAYING I AM JUDGMENTAL AND DISRESPECTFUL IS EXACTLY WHAT YOU ARE BEING. THIS PERSON WAS NOT BEING TREATED BY A MEDICAL DOCTOR WITH A PRESCRIPTION FOR POT.........DO YOU WANT TO BE AN ADVOCATE FOR SOMEONE WHO IS POSSIBLY TAKING HIS LIFE AND PUTTING HIMSELF AND OTHERS AT RISK WITH A POTENTIALLY DEADLY COMBINATION OF MEDICATION AND STREET DRUGS THAT NO ONE REALLY KNOWS WHAT IS IN THAT POT HE IS SMOKING? I CERTAINLY HOPE NOT BECAUSE IT REALLY DOES  SOUND LIKE THAT IS EXACTLY WHAT YOU ARE DOING. I HAVE AS MUCH RIGHT TO GET ANGRY ABOUT A QUESTION LIKE THAT AS YOU DO TO BE AN ADVOCATE, BUT WHO IN THE LONG RUN IS LOOKING OUT FOR THAT PERSON'S SAFETY AND WHO IS ENCOURAGING THIS PERSON TO GO AHEAD AND NOT ONLY DO SOMETHING ILLEGAL AND ALL BUT SAYING IT IS JUST FINE? THINK ABOUT IT. I DON'T INTEND TO REPLY TO YOU AND YOUR LACK OF COMMON SENSE AGAIN.

Re: Smoking marijuana and drinking

I don't think you read what I wrote.  I didn't advocate anything except being able to ask a question here without being told to take the stupid question somewhere else.   I still advocate that.

One thing I do know is that everyone's experiences are different, and everyone's experiences are their own.  When one of us professes to know what is true for all of us, then that person stands a good chance of losing her audience.  If someone is told in no uncertain terms that something is true, and subsequently finds out that *for him or her* it is not true, then the person who hammered it over our heads as being a fact has lost credibility. 

It is a fact that marijuana is sometimes prescribed to treat epilepsy.  That means that marijuana is sometimes helpful for epilepsy.  But just like any other med, what helps one person doesn't always help another person.   Conversely, what harms one person doesn't always harm another person.  People react very differently to each drug and medication.  Some people die from an aspirin.  Some people benefit from marijuana.

It is a fact that drinking alcohol responsibly doesn't harm every person with epilepsy.  I am a person with epilepsy and it doesn't harm me.  That is true for me, but not necessarily for every person on here.   I would only ever speak for myself--I'd never tell someone that they should go out and drink because one of my hobbies is wine tasting, for example.  I'd also never tell someone to stop taking Dilantin or Tegretol and only take Keppra because that's what works for me.  My experiences and my truths are very different from yours, or anyone else who participates on this website.

Asking questions is a good thing.  That's one way to learn a variety of people's experiences.  It's a tool in decision making.  After all, if the question hadn't been asked here, the person asking it would never have learned your thoughts, experiences and opinions, correct?

However, being told that the question is stupid, and having someone else's experience being presented as the only truth out there is counterproductive to learning.  Again, that's what I advocate.  Nothing more, nothing less. 

It doesn't matter to me if you reply again or not.  Really.

Deb

Re: Smoking marijuana and drinking

I have been having gm seizures for about 15 years and smoked weed for 20. I have talked to my neurologist about it and he didn't encourage me to smoke, but he didn't say "oh my god, you've got to stop right now!" either. I feel like it (smoking) helps me deal with stress, eat right, and sleep- all of which are good at keeping my seizures away. I figure if I can't get drunk and I quit smoking cigarettes (after 20 years- yeah!) then this is my one vice that I can still do. Is it good for my lungs- no, but looking at the big picture, I think I'm better off doing it then quitting.

Re: Smoking marijuana and drinking

My youngest sister has M.S and it has been proven to help those who suffer from that condition.  Now this would'nt have come to light because of peoples differing views especially those who do not suffer from it. As for epilepsy the washing is still on the line there is no real proof one way or the other. As for me I tried it twice and both times I just twitched a lot.  As for other illicit drugs what ever your poison is please keep it home and don't try and pull inpressionable people down with you.

Every one has a right to be heard with in reason.

plopdan u.k

Re: Smoking marijuana and drinking

FIRST, I AM VISUALLY IMPAIRED AND THAT IS WHY I USE ALL CAPS. IT HELPS ME SEE. NEXT, I WANT TO APOLOGIZE TO THE PERSON WHO WROTE THIS BLOG AND ANYONE I HAVE OFFENDED. IT IS UNLIKE ME TO JUMP ON SOMEONE THE WAY I DID WITH YOU. MY ONLY REASON FOR CONCERN IS BECAUSE I AM A PRODUCT OF THE VIETNAM ERA AND THE HIPPIE GENERATION...........WHICH FOR SOME WHO GOT INVOLVED WITH DRUGS, CAUSED THE DEATH OF PEOPLE VERY DEAR TO ME. ALSO, A SIBLING WITH A LIFELONG ADDICTION. THESE IMPRINTS HAVE NEVER LEFT MY MIND, OR MY HEART, AND IN MY DESIRE TO PROTECT YOU, I INSTEAD ATTACKED YOU AND FOR THAT I AM SORRY. I STILL DO HAVE TO SAY, MIXING MEDICATIONS WITH ALCOHOL AND ANY DRUG, BE IT MARIJUANA OR OTHERS, IS A POTENTIALLY DANGEROUS COMBINATION AND PLEASE CONSIDER THAT BEFORE YOU DECIDE TO OPT FOR DOING SO. SINCERELY AND MANY BLESSINGS, JAN

Re: Smoking marijuana and drinking

you are sooo off the air JAN - WHO DID POT KILL? do you think you can o.d. on it? it is probably safer than any other recreational drugs & most prescribed drugs. anyone reading your post would probably think heroin is safer the way you are ranting on. do you want that? well tell the truth. you don't die from pot! addictions are handled by education! i can go out & look for heroin & find it i'm sure. but i don't because i know the truth of what it will do to me. THAT IS WHAT STOPS ME! if you LIE & get caught your not believed the next time. so when someone YOU told pot will kill them finds out the truth, there is nothing to stop them trying harder drugs & there death will be your fault through your trying to get people to believe what you want them to believe.

 real life is not like religion - you can't just make up stories & say it's true because you "feel it". in the real world you need proof.

Re: Smoking marijuana and drinking

As a person in the younger generation I just want to say this is a valid question. This is why people click on the forum discussion highlighted...so we can see people's answers...if we wanted to see people say drugs are bad don't do drugs...we'd go talk to mom and dad. Isn't that the point of this website? By all means i'm not advocating drugs cause the amount of drugs i've squeezed into my body in the last 7 years of my life has most likely contributed to my epilepsy. But as a newbie to "epilepsy" and to this website i'm disappointed by certain reactions to "Stupid" questions. Don't go to a forum and comment on something you are against, especially if it's not helpful.  Being an epileptic in social situations is difficult enough, especially when your in your 20's and you have to rediscover your body's limitations, and thats why these questions are asked here first. All I'm saying is let's keep this a positive environment for people like me, who already are having a hard time with the other side effects Epilepsy gives you at first.

Keep it peaceful

Re: Smoking marijuana and drinking

SYNDEY,  I DID APOLOGIZE FOR WHAT I HAD WRITTEN. I AM ASHAMED OF MYSELF FOR HAVING REACTED THE WAY I DID. ALL I CAN DO IS APOLOGIZE AND IF SOMEONE CANNOT ACCEPT MY SINCERE APOLOGY, I CANNOT DO ANYTHING TO CHANGE THAT, EXCEPT DELETE WHAT I HAD WRITTEN. THAT SEEMS LIKE THE COWARDS WAY OUT. MY CHOICE WAS TO LEAVE IT THERE SO OTHERS MIGHT SEE HOW MY REACTION UPSET PEOPLE AND LEARN FROM MY MISTAKE, HOPEFULLY SO ALL OF US WILL STOP AND THINK BEFORE WE REPLY TO ANY BLOG OR DISCUSSION. SINCE THESE FORUMS ARE OPEN, ANYONE CAN REPLY. WHEN ASKING A QUESTION ABOUT ANY TOPIC, IS IT NOT USEFUL TO HEAR FROM SOMEONE WITH EXPERIENCE? IS IT NOT USEFUL TO LEARN THRU WHAT I WROTE IN MY APOLOGY THAT DRUGS ARE DANGEROUS? I WOULD THINK THAT WOULD BE SOME VALUABLE INFORMATION AND NOT VIEWED AS ONE SIMPLY SAYING DRUGS ARE BAD. THE QUESTION THAT STARTED THIS FORUM DISCUSSION IS INDEED A VERY VALID QUESTION. I DO NOT UNDERSTAND WHY SOMEONE WHO HAS EXPERIECE THAT RELATES DIRECTLY TO THE QUESTION SHOULD NOT WRITE ABOUT WHAT THEY HAVE EXPERIENCED AND LIVED THRU. I WOULD THINK THAT WOULD BE VERY VALUABLE INFORMATION AND SOMETHING TO THINK ABOUT. GRANTED, MY FIRST RESPONSE WAS TERRIBLE, BUT IF YOU HAD LIVED THRU THE TRAUMA OF HEARING OVER AND OVER THAT FRIENDS HAD DIED FROM DRUGS, OR MIXING DRUGS AND ALCOHOL, PERHAPS YOU WOULD UNDERSTAND WHY I BELIVE I HAVE VALUABLE INFORMATION TO GIVE.  I MIXED ALCOHOL WITH SOME DIET PILLS MANY MANY YEARS AGO, AND I ALMOST DIED.  IT WAS A VERY STUPID MISTAKE ON MY PART.  I WAS AT A FRIENDS HOUSE ONE DAY, ALSO MANY YEARS AGO. I DID NOT KNOW SHE WAS USING DRUGS. I LEFT HER HOUSE AND MADE THE 5 MINUTE DRIVE BACK TO MY HOME. MY SISTER WAS WAITING ON THE PORCH FOR ME. KAREN WAS DEAD FROM AN OVERDOSE. IN THE FEW MINUTES IT TOOK ME TO GET HOME, KAREN HAD DIED. THAT STILL HAUNTS ME. I REMEMBER THE SHOCK OF HEARING MY FRIEND HAD DIED WITHIN A COUPLE OF MINUTES AFTER I LEFT HER KAREN WAS ONE OF MANY WHO MIXED DRUGS AND DIED. I WAS YOUNG THEN, IN MY EARLY TWENTIES, YET IN SOME WAYS IT SEEMS LIKE YESTERDAY.  IS THAT NOT VLAUABLE INFORMATION TO CONSIDER? IF YOU THINK NOT, I REALLY DON'T UNDERSTAND. I HOPE THAT YOU DO NOT THINK THAT BECAUSE I AM NOT YOUR AGE NOW, THAT MY SAYING WHAT I KNOW TO BE TRUE IS SIMPY SOMEONE SAYING DRUGS ARE BAD. YOU SAID YOUR E. IS CAUSED BY THE DRUGS YOU USED.            

IT IS EVIDENT IF YOU LOOK AROUND THAT THERE ARE MANY HURTFUL THINGS BEING SAID ON WHAT IS SUPPOSED TO BE A SUPPORT COMMUNITY. WHAT IS HAPPENING IS VERY UNLIKE WHAT THIS COMMUNITY WAS BEFORE. STILL THERE ARE A MULTITUDE OF VERY CARING, LOVING PEOPLE ON THIS SITE. BLESSINGS AND PEACE, JAN  

 I USE ALL CAPS FOR THE VISUALLY IMPAIRED.

I AM YOUNGER THAN I LOOK, OLDER THAN I THINK, AND WISER THAN I KNOW

 

Re: Smoking marijuana and drinking

JAN, THOUGH I AM A LITTLE BIT YOUNGER, BUT NOT BY MUCH, I CAN RELATE WITH YOU COMPLETELY. THE THING IS THE YOUNGER GENERATION DOESNT RELIZE THAT THE 60S AND 70S WAS THE HIEGHT OF THE DRUG EXPOLSION. IT STARTED OUT WITH THE HIPPIE GENERATION AND CONTINUED INTO THE 70S WHEN I BECAME A TEENAGER WHERE KIDS WERE DOING DRUGS ALL THE TIME, EVEN AT SCHOOL. NO ONE EVEN BATTED AN EYE. WE KNOW BUT TEACHERS AND ADMINISTRASTION WAS BLIND TO IT. WE ARE TALKING ANY THING FROM MARIJUANA TO HASH AND LSD OR STRONGER. AND YES WE DID SEE FRIENDS OD.

I FOR ONE TOLD MY OWN KIDS ABOUT IT SO THEY KNEW THEIR SQUARE MOM WAS NT SO SQARE THAT SHE DIDNT KNOW ABOUT ALL OOF THIS AND TO STAY AWAY BECAUSE OF WHAT I HAD SEEN. THEY WERE SHOCKED I EVEN KNEW THE WORD HASH AND ABOUT PIPES. BUT IT KEPT THE LINES OF COMUNICATION OPEN AND WE HAD NO PROBLEMS WITH DRUGS EXCEPT AFRIEND HERE AND THERE THAT THEY BROUGHT TO ME TO HELP THAT NEEDED TO BE TOLD WHY NOT TO TAKE IT CUZ THEY HAD STARTED USING OR WERE THINKING ABOUT TRYING.

SO WE MAYBE OLD LIKE YOU SAID JAN, BUT YES WE LIVED THRU ALOT BACK THEN. DRUGS FLOWED FREELY, BUT THEY WERENT LACED WITH THE STUFF THEY ARE NOW. BUT REMEMBER WE ARE THE OLD ONES NOW AND WE DONT KNOW ANYTHING, LOL.

AS YOU SAID PEACE AND BLESSINGS,

 

GOD BLESS,

BANFFGIRL

LIFE IS FRAGILE, HANDLE WITH CARE.

Re: Smoking marijuana and drinking

Sigh.  Ok...I'm a mom who loves my daughter with all her heart.  Reading thru these posts, I will first admit I am very very angry and want to say a lot of angry things.  But your question is very valid and asked in complete sincerity. 

My daughter had her first seizure when she was 18, under a lot of stress, and I would say probably moderately involved in drugs and alcohol. (how much does one really share with one's mother eh?).  After several trips to the ER over the next few years, one of the first questions out of all the dr's mouths were..what did you take? what did you drink? (knowing that she was an epileptic).  From what I've read so far (and agreed, I got a lot of reading still to do, I'm no expert by any means), there is no known cause for epilepsy.  Since as far as we know there was no family history of it.  Yeah.  I'm leaning towards the drugs (she swore she only smoked pot).  Maybe the medical field can't PROVE that alcohol and drugs can bring on a seizure, but when so many doctors suspect it...why in god's green earth would you continue to use them?

Now she would argue with me blue in the face that it didn't cause her epilepsy.  And she may be correct.  But without fail, anytime she slipped, she had a seizure the next day.  I guess my point is..do you really NEED pot in your life? or alcohol? Besides the legal issue...both just make you act really really stupid.  And don't you have enough problems?  I don't know about you, but my daughter is having real problems finding a job..no job...no money..no money..no meds..no doctors..no meds/drs..no car..no car..try finding a job LOL.  And those are just the tip of the iceberg.  Now I'm gonna read up on the nicotine stuff..cause she does smoke, and I'm not sure how we're gonna get off THAT one. but boy that would help the money situation too. But yeah, help with stress? and I guess for many a beer or joint would do the same.  I'm just saying..if you can avoid it, you should.

Oh and don't even THINK about saying to me.."she must have gotten some bad weed".  Yeah.  You grow your own? ohhh...thats right...you trust your DRUG DEALER!!! He grows his own and besides, he'd never screw you, right? Pullleeesse.

Now I bow with respect to those that smoke marijuanna for supposedly medical reasons..personally it would be the LAST avenue I would consider taking.  It just opens up a whole new can of worms, in my humble opinion.  But if you feel its ABSOLUTELY the only thing that helps...I respect your opinion.  I don't agree with it..but I respect it.

Yeah, socially tis hard.  The bright news is...you'll always have friends, if for no other reason then they know you'll be sober enough to drive them home LOL.  And yeah, I know it's hard cause you'll lose some too (funny the potheads were the first to go), the drinkers stick around better *shrug*.  But you'll never have a dui, you'll have more money in your wallet..I could go on and on.

 Yeah..I'm deadset against drugs and alcohol for everyone at this point of my life.  I just have never read, seen, where it made ANYone's life better..and has devastated so many.  The one thing I DON'T get..is why society still glamorizes it??  And I truly sympathize with all people, young and old, who have to deal with the pressure from their peers about it.  Its easy to say just stand up with courage and speak out against it...but it gets lonely out there by ourselves.

I'll get off my soapbox now, and go back to researching LOL.  I did write this hoping that, even though I'm old and a mother of an epileptic, if even one kid reads it and say "yeah, that makes sense", it'll be enough.  I'm with my daughter every step of the way...we'll figure this out...but my words to her are..don't add more to your plate than you need to, you have enough.  And I consider the pot/drinking one of those things just so easy to leave off your plate.

Now the other one I gotta tackle with her is the computer LOL she looooves the computer and since alot of her seizures happen there..I gotta figure that one out too LOL.

 

 

Re: Smoking marijuana and drinking

I use marijuana for my seizures and I  got a choice I can smoke weed and lead a normal life or have the epilepsy. I'll take the weed over the epilepsy any day. As for bad weed read the FDA report on sez medications that came out this jan. I'm not going thru that hell again

Anyway marijuana has been used for epilpepsy for centurys. The chinese use for all sort of healing properties. One of the famous queens used it for monthly cramps. My wife during her breast cancer use marinol and was deathly sick but could drink marijuana tea and eat without the pain and agony.

I think it's great to keep kids off drugs booze and cigs but they do make up their own minds. I wish you the best of luck with your daughter. Mine 20years old and just left home and it never ends but all we can do is love them and hope for the best..........x not a drug addict just an epileptic

Re: Smoking marijuana and drinking

Very nice article informative unbiased and sensitive to a
disability that is very misunderstood and underrated. As an Epileptic
I thank you for helping educate people on the one natural
honest cure we have here on Earth Cannabis. In my own case of 13
years of Seizures between Cannabis and the Vitamins, Minerals and
Supplements I use (especially Magnesium, Niacin and Folic Acid) have
yielded the best results ! Unfortunately none of these can be
patented and sold therefore the field of Neurology will probably
never fully acknowledge the  effectiveness of natural remedies.

We must understand why  our federal Government has
chosen to ignore the thousands of bonafide health reports on the
benefits  of Cannabis in all it's forms for hundreds if
not thousands of illnesses and Ailments that continue to plague the
human body as it ages. I honestly was told as a child, a small child
that anything God placed on this Earth we as his children were
allowed to partake of it in its natural state.  Now I
have used this principle for over 30 years and have never went beyond
Cannabis (not counting Alcohol). Which leads me to address another 
myth associated with Cannabis. I was given the talk by my parents as
a teenager and threatened with the now infamous phrase,Marijuana
is a gateway drug! I'm sure we all heard it at some point in our
lives. The perception as we know now was way off the true factors in
anything in life are moderation and self-awareness. Simply out know
your limits and operate to the best of you ability within them. 

 

So if your not benefiting from the medicinal properties of one of
the most amazing plants on Earth because of some 30 year old
perception, mis-conception then update your thinking. HMMMM I wonder
who would be behind such a fear campaign as the one Cannabis endured
back in the 30's, 40's and 50's? Pharmaceutical companies maybe? So
politics really do come before well-being, welcome to the real
world. 

 thehealthyarizonan.blogspot.com

 

Re: Smoking marijuana and drinking

I AGREE WITH YOU WHOLE HEARTEDLY. THE THING IS THOUGH, THERE IS A LARGE FOLLOWING OF WEED SMOKERS AND DRINKERS ON THIS SITE SO OUR SOAPBOX IS WASTED HERE. I HAVE STOOD WHERE YOU ARE STANDING, IT IS UNHEARD HERE. DRUGS AND DRINKING WITH THE YOUNG IS A REAL PROBLEM REGARDLESS IF EPILEPTIC OR NOT BUT IT IS WORSE IF THEY ARE EPILEPTIC. THE THING THE YOUNG DONT REALIZE IS HOW MANY END UP ADDICTED. I LISTEN TO PEOPLE AT WORK TALK ABOUT THEIR GROWN KIDS AND THEIR FRIENDS. YOU HEAR ABOUT YOUR OWN GROWN KIDS FRIENDS OR OLD AQUAINTANCES FROM HIGH SCHOOL DAYS THAT SOMEONE HEARD ABOUT. THERE ARE SO MANY THAT ARE IN REHAB. THAT IS WHAT OUR 20 SOMETHINGS AND RIGHT AT 30 YEAR OLDS SEEM TO HAVE IN COMMON COMPARED TO PREVIOUS GENERATIONS. SAD BUT TRUE. ONCE THEY GO TO REHAB THEY WISH THEY HAD LISTENED TO YOU IN THE FIRST PLACE. I KNOW NOT EVERYONE WHO DRINKS AND SMOKES WEED ENDS UP ADDICTED BUT IT DOES HAPPEN TO A LOT OF OUR YOUNG ADULTS. MORE THAN YOU REALIZE, JUST CHECK OUT HOW MANY MEETINGS AND HOW LARGE THEY ARE NOWADAYS. CHECK HOW MANY REHAB PLACES ARE FULL OF OUR YOUNG ADULTS. SCARY!!!

I TYPE IN CAPS FOR THE VISUALLY IMPAIRED 

GOD BLESS, BANFFGIRL LIFE IS FRAGILE, HANDLE WITH CARE.

Re: Smoking marijuana and drinking

what a rant!!! what has this to do with epilepsy treatment?

Re: Smoking marijuana and drinking

Hey just read your post.

Cant remember what type of epilepsy or seizures i have but i've had one brain haemhroage when i was 7 and when diagnosed with AVMs after a second when i was 18(spelling i know). Now the episode that happened when i was 18 was half brought on by drug usage i was on alot of drugs. They said it still would of happened, the 2nd AVM that is, but it most likely wouldnt have happened until alot later in life and that the drugs brought it on.

I have since stopped all drugs. But since that happening two years ago i did have a few relapses. I smoked some pot and i ended up in the ER. I did some other stuff, i ended up in ER.

Whenever i seemed to have a big weekend on the booze i would end up in E.R lesson is. Dont do it

Alcohol i have learnt to handle. if i am going to drink i drink safely and in moderation and only on special occasions. Like you said i save money and yeah you lose friends but hey they cant be to good of friends if they leave you because you cant smoke or drink anymore?

So many benefits.

I only hope your daughter can see what shes doing and that she knows shes not alone

i feel for her aswell completely as i struggle to cope with watching all my friends do things that i once did!

Re: Smoking marijuana and drinking

Now i do agree with alot of things that u r saying but sometimes it may not be the pot but if shes not taking her meds on time another factor would be the computer, because if she spends alot of time at the computer thats really a problem.  My daughter is only 11 years old and she loves to spend time on the computer but we have to limit the time that she is on it.  Her neurologist suggests that we map out a planned amount of time for her to be on the computer because the flicker of the computer causes impulses on her brain that causes her to have seizures, so if she has more seizures at the computer then its the computer and she's only attacking herself, just like you lose brain cells when you drink and smoke, you lose them when you have seizures too.  My daughter has seizures and she can't remember what she was doing before she had a seizure and she goes and starts something else.  THINK ABOUT IT!!!!

Re: Smoking marijuana and drinking

Ive had a couple Heinekins in a night with no problems

 I wouldnt suggest Marijuana and Im sure cigarettes are fine

but remember, different people have different seizure triggers, so if something bad happens and its when your drinking/smoking, I would suggest you stop

Re: Smoking marijuana and drinking

The problem with self-medicating with Marijuana is that it easily crosses over to the realm of abuse. I'm positive it has certain positive medical effects, but it's difficult for the individual to draw the line between medical use and recreational use...that's why the whol legal pot thing in Cali is such a joke. No attempts are being made to regulate the amount of Marijuana "patients" smoke. You simply get a card that authorizes you to buy weed at any of the many, many dispenseries (they even deliver to your door) here - but you don't get a prescription for a certain amount. People scoff att people who go in to drug rehab for marijuana addiction, but I can totally see it happening, specially now that it's so readily available. There's one dispensery a block from where I live, one where I work, and I pass several by on my way home. It's everywhere, and if you have an addiction to marijuana it can be very difficult to quit simply because it's always around you. So I guess what I'm saying is that if you find that Marijuana helps you with you epilepsy, just keep close tabs on how much you smoke, and be honest with yourself about the reason why you're getting high at any specific time.

Re: Smoking marijuana and drinking

everything in  moderation. you can have an addcition to anything. Food, pills, sex and even over the counter nose sprays. just like the bottle says " take as needed"........X

 

Re: Smoking marijuana and drinking

Good advice mate

Re: Smoking marijuana and drinking

Colleen Datelle

Since Epilepsy is known as a brain injury & since marijuana/weed fries the brain, then yes. Weed is bad for epileptics or anyone for that matter.  

Re: Smoking marijuana and drinking

weed is bad for epileptics or anyone for that matter you say???.  Really not. Marijunana has been use for seizures for many centuries. In fact some people with epilpesy use marijuana along with their seizure medications and have great sucess contolling their seizures.........x

 

 

Re: Smoking marijuana and drinking

I can't imagine weed causing seizures. If anything it probably helps with cutting down electrical impulses. Alcohol does the same thing. Now alcohol with certain medications could be bad, just depending on how much alcohol and what medication. I'm on Depakote 125mg 3 times a day and haven't exactly gotten wasted so far, but a couple beers haven't hurt. And when the regular doctors wouldn't prescribe me anything a while back, if I drank or on the very rare occasion that I smoked weed, I knew I probably wouldn't have seizures that night or the next day. I hope I've helped!

Re: Smoking marijuana and drinking

My epilepsy had absolutly nothing to do with brain injury! Pot doesn't "fry" your brain ~ despite what 1980's t.v. told you! You think your brain isn't frying when you have a seizure? If smoking a little can prevent a grand mal, wouldn't it be worth it? After a seizure, i'm wrecked for hours, my sleep cycle is off for days (often causing more seizures) and my mood is volitile to say the absolute least. After a joint i'm relaxed and hungry. i can sleep.

Keep in mind, I'm not saying ditch your meds and hop on the pot wagon (though i did find some relief there), only that we should be open to anything that minimizes the all of the added 'spice' epilepsy brings to our lives!

As far as pot being bad for everyone... well, do try to keep up to date on all medical information, including foriegn sources. Germany has had some very positive results testing weed as a viable treatment option. 

THC, the fun little ingredient that makes pot attractive, is present in all mammallian breast milk. When it was absent in mouse milk, the poor little baby mice all died. It is assumed that the outcome would be the same in humans. So, before you go damning the effects of pot, maybe educate yourself a bit. 

Re: Smoking marijuana and drinking

My mom might have Epilepsy and she smokes weed but it seems to do the oppositre and helps make them stop but not always. My mom was diagnosed with diabetes in 2005 and it's really hard on her. Sometimes when my friends come over they get scared and want to go home 'cause they see her having seziures but some don't mind. I usually make sure if my mom took her med's for it or sometimes hse'll just ask. Some times mom get's scared and starts to cry and think she's a loser and she's not just for something to have happend with her health.

 My mom used to dance and be really active does that have something to do with it to? Maybe being to active is the issue or maybe to much stress? I know it can also be caused by head injuries or tramatic events in your younger years. My mom also used to get teriblle migranes when she was younger then me! (Im 14) I find it kind of hard and frustrating to see my mom is pain like this and sometimes I even yell but I don't mean to. I really love my mom doesn't everyone love there mom? lol

 

Sometimes I look @ my mom and she just looks sooooo sad.

I think Marijuana helps yes it makes you air headed @ times but it helps make you feel better. Drinking coffee is another story.

Re: Smoking marijuana and drinking

Greetings! I have a seizure disorder (grand mal and petit mal seizures) caused from a brain tumor/cancer and although 90% of it was removed, it is located in my left temporal lobe that is very common for seizure locations.  My nuero-oncologist, nuero-surgeon, and my nuerologist who are the best in the world year after year and are head of their respective departments at Cedars-Siani in Los Angeles, and all have give me a medical prescription for marijuana.  They recommend that I use INDICA cannibas as opposed to sativas as sativas are often likely to bring on paranoia.  But studies being done in Europe and in the US have found that Indica cannibas is actually an effective medication for preventing seizures. Moreover, it is often used by many people who have side effects from prescribed medications that are untolerable (vomiting, panic attacks, anxiety, desire to attempt suicide, insomnia, depression are just some side effects of anti-epileptic drugs).  Recent studies in countries all over the world are reaching the same conclusions in recent years that cannibas is an effective treatment of seizure disorders for many people.  Just with any medication however, it is not going  to be the perfect fit for everyone as each person is different.  Here's just one link of thousands of articles that are related to the studies that document that cannibas can prevent seizures:

http://www.qmul.ac.uk/news/newsrelease.php?news_id=224 

Moreover, cannibas has been found to actually prevent growth of brain cancer in terminally ill patients.  Here is a link:

http://www.webmd.com/cancer/news/20040815/marijuana-stall-brain-tumor-growth

As for alcohol, the use of alcohol is found to lower the threshold of seizure inactivity. Thus, when drinking alcohol, you should take your medications (assuming you are on meds where alcohol is accpetable) as usual and you might want to take additional mg to help your body from lowering it's threshold.  I would speak qwith your pharmacist and nuerologist before drinking or taking additional meications.  I am on 1000 mg of Keppra twice per day and can drink with no problems and after I have alcohol, I take 1000 mg more of Keppra at my Dr's suggestion. 

Finally, cigarettes.  Smoking cigarettes also can trigger seizures. The nicotine in cigarettes acts on receptors for the excitatory neurotransmitter acetylcholine in the brain, which increases neuronal firing. Thus, studies have proven that smoking cigarettes can have significant consequences and is not recommended whatsoever.

 I hope this helps.  Good luck :-)

 

Re: Smoking marijuana and drinking

HI USCGIRL,

AFTER READING YOUR POST, I AM REALLY WORRIED ABOUT THE PEOPLE WHO ARE YOUNGER OR NEW TO EPILEPSY READING WHAT YOU WROTE SO HERE GOES.

WITH THE MARIJUANA, YOUR DOCTOR MAY BE PEFECTLY WILLING TO PERSCRIBE YOU MARIJUANA, I UNDERSTAND IT IS BIG OUT IN CALIFORNIA FOR ALL SORTS OF MEDICAL REASONS. A LARGE PORTION OF THE NEUROLOGICAL PROFFESSION DOESNT AGREE WITH MARIJUANA USE. ALSO, I PERSONALLY WONDER ABOUT THE DAMAGE IT DOES TO YOUR LUNGS SINCE YOU ARE INHALING SMOKE JUST LIKE IN CIGARETTE SMOKING. JUST A DIFFERENT PLANT LEAF.

YOU SHOULDNT TELL PEOPLE ITS OK TO DRINK ALCOHOL WHILE TAKING KEPPRA AND TELL THEM JUST TO TAKE MORE MEDS. EVEN TELLING THEM TO TALK TO THERE PHARMASIST DOESNT MAKE IT RIGHT. YOU ARE STILL DOING A MAJOR DISSERVICE TO THE PEOPLE ON EPILEPSY.COM I HAVE BEEN ON KEPPRA AND THE INFO I GOT WITH MY PERSCRIPTION AS WELL AS MY EPI SPEC BOTH TOLD ME NO ALCOHOL. I HAVE COPIED AND PASTED THE INFO FOR THE KEPPRA. 

What should I avoid while taking Keppra?

Avoid drinking alcohol. It can increase some of the side effects of Keppra and may also increase the risk of seizures. Keppra can cause side effects that may impair your thinking or reactions. Be careful if you drive or do anything that requires you to be awake and alert.

Tell your doctor if your regularly use other medicines that make you sleepy (such as cold medicine, pain medication, muscle relaxers, and medicine for depression or anxiety). They can add to sleepiness caused by Keppra.

THERE ARE GOOD DOCTORS AND BAD DOCTORS OUT THERE. IF A DOCTOR TELLS YOU TO TAKE EXTRA MEDS IF YOU DRINK ALCOHOL, WHEN THE MANUFACTURE OF THE MED SAYS DONT DRINK ALCOHOL, THATS A BIG RED FLAG. WHEN ALCOHOL CAN INCREASE THE SIDE EFFECTS OF THE MED AND HE TELLS YOU TO TAKE MORE IF YOU DRINK WHEN YOU SHOULDNT BE ANYWAYS SINCE THE MANUFACTURER SAYS NOT TO, THAT IS EVEN WORSE. 

I ALSO READ THE NEWS IN THE INTERNET, AND A LITTLE WHILE BACK THERE WAS A ARTICLE ABOUT THE TOP RANKED HOSPITALS IN THE USA. I REMEMBERED READING THAT THE TOP HOSPITALS WERE ALL OUT IN THE NORTHEAST AND THOUGHT THAT WAS RATHER INTERESTING. I WENT A HEAD AND PULLED THAT ARTICLE UP, ITS IN USNEWS.COM, CEDARS-SINAI MED CENTER IS #17, NOT #1.

IF YOU CHOSE TO USE ALCOHOL AND SMOKE MARIJUANA, THAT IS YOUR CHOICE. BUT PLEASE DONT COME ON HERE AND SAY THAT THE TOP DOCTORS IN THE COUNTRY SAY ITS OK TO DO IT. THERE ARE PEOPLE NEW TO EPILEPSY THAT COME ON HERE FOR INFO. THANKS FOR UNDERSTANDING.

 I TYPE IN CAPS FOR VISUALY IMPAIRED

GOD BLESS,

BANFFGIRL

LIFE IS FRAGILE, HANDLE WITH CARE.

Re: Smoking marijuana and drinking

I completly agree with Banffgirl 100%

She hit the nail right on the head, and i think she answered the questions on this subject to anyone who asks, very truthfully. Thanks Banffgirl for shedding some light on this topic.

 Take care all, and God Bless

Becky

Re: Smoking marijuana and drinking

after reading your post i'm worried that your religious views cloud your judgement (god bless? which mythological deities' blessing its' a long, long list?)pot DOESN'T need to be smoked it can be eaten! are you commenting in ignorance of this fact or just choosing to ignore it? these "large numbers" (very murky facts' on the numbers - don't you even have a percentage?) of neurologists who don't agree with marijuana use. is it using it for epilepsy they don't agree with ? or have you conveniently left out another fact? where did you get this "fact"? if pot is illegal in the u.s. how could they know of it's effects on epileptics? i think the perfusion of the religious right in america has smothered any investigation into it's medicinal use!

 & i have to know because we are talking our OWN experiences - not what we heard in church DO YOU OR HAVE YOU EVER SUFFERED FROM EPILEPSY?

If so you should learn all you can & not poo-poo other peoples experiences or thoughts. how could you suffer this horror & not be open to all possibilities? p.s. the earth orbits the sun, not the other way around so please DON'T EVER BLESS WITH YOUR ARCHAIC, DISPROVEN, BACKWARD LOOKING, SCIENCE INHIBATING MYTHS' the world has suffered enough from it!!!!!!!!!!

Re: Smoking marijuana and drinking

This topic remains a hot one and lots of different opinions. While some people report an improvement in seizures after marijuana, others have a worsening. Research, what little there is, has shown mixed results. So to date, one can't say that marijuana is good for people with epilepsy. This, like any medication, prescription or over the counter, including herbal products, supplements or 'other therapies', should be talked about carefully with the doctor treating the person.  Neurologists who specialize in epilepsy would have the most info on this I think.

 When sharing experiences, let's be careful about telling people what to do for medical treatment of seizures.

 

Thanks! 

 

Epi_help , 
Resource Specialist

Re: Smoking marijuana and drinking

This topic remains a hot one and lots of different opinions. While some people report an improvement in seizures after marijuana, others have a worsening. Research, what little there is, has shown mixed results. So to date, one can't say that marijuana is good for people with epilepsy. This, like any medication, prescription or over the counter, including herbal products, supplements or 'other therapies', should be talked about carefully with the doctor treating the person.  Neurologists who specialize in epilepsy would have the most info on this I think.

 When sharing experiences, let's be careful about telling people what to do for medical treatment of seizures.

 

Thanks! 

 

Epi_help , 
Resource Specialist

Re: Smoking marijuana and drinking

Ok. so obviously everyone is different when it comes to smoking and drinking. When i drink, even more then a wine of glass, i feel really wierd. not tipsy wierd either...bc i know the difference. There are certain drinks that i can drink and be ok with. I prefer to stay away from liquor, beer, wine just because my neuorologist suggested no smoking, drinking or pregnancy unless i was off meds or cured. Its up tp you what you wanna do. your coming on a website asking other people what you should do but everyone has a different type of epilespy. do what you feel is the right thing to do. I knew a kid at my mom's job. smoked weed a few times a week knowing he had epilespy and it killed him bc his brain couldn't handle it. suit yourself and do what you believe best suites you my dear.

Re: Smoking marijuana and drinking

Hi everyone,

I hav recently been diagnosed with epilepsy and have to say the medication makes my life a whole lot more stressful therefore causes more seizures 8 pills a day at exactly the right time is hard to remember! All of my specialists say my seizures are caused by the cerebral abscess i had 5 years ago.

My Dr has been trying to find the right medication for me but has so far been totally unsucessful, smoking weed seems to help, I have less seizures- maybe because I am more relaxed I don't know- and have less trouble with nausea and sleep problems. Alcohol is a different story, a much smaller amount seems to have more effect on me and can only assume it's because of the meds- just like antibiotics you shouldn't take them and drink- just a little bit of common sense there. Cigarettes are totally bad for you, you are not just smoking a leaf, you are smoking a totally processed and chemically altered leaf. Make sure you know your dealers BTW its not that hard to meet them there is probably one right down the street you never know.

This is just my opinions so I hope I haven't offended anyone, I think you should experiment in a totally safe environment and make sure you are careful for a few days after, it may be good for you or it might be really bad.

P.S. I know my spelling is terrible

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