ADVERTISEMENT
ADVERTISEMENT
jppkt

Keppra and Alcohol

I am a healthy 28 year old male who just had his first 2 seizures on consecutive days.  I went to the hospital and had an MRI and an EEG.  The EEG came back abnormal so the DR. put me on Keppra 1000mg a day.  I am a social drinker who drinks regularly.  The Doctor said I shouldn't drink and if I do I can only have one drink.  Is this true?  I am not an alcoholic but the thought of never being able to get drunk again is fairly upsetting to me.  Does anyone have any advice?  What happens if I do drink?

 Thanks

Comments

Re: Keppra and Alcohol

Wow.... we all have different scenarios so it's hard to exactly tell you what will or won't happen.... but I am 27... 28 in 2 weeks & I have had epilepsy since the age of 12.

I have enjoyed much of my college life drinking & learned that there are times where you have to judge it. Personally, taking  3 meds & drinking shortly after can trigger it quickly.... I have to make sure I eat well ,take meds at the right time.... then have a good time....

Hope that helped... if you decide to do it.... be responsible & make yourself eat well to soak in the meds....

~take care

David P.

if you have any questions... feel free to give me a buzz @ 678-523-6789 or email dgpatel80@gmail.com

 

-DP

Re: Keppra and Alcohol

hey man this is henry im 16 years old i just got diagnosed with epilepsy im new to this site and i just read your comment and it made me feel alot better because this has been life changing for me its so hard to think just a month ago i was living a normal life and now i have to deal with a brain disorder its just been really hard for me these last couple of weeks but its good to find people that have gone trought this and made it through college and continued a normal life. I just got prescribed keppra today so im a little drugged out so im on 400mg of zonegran and 1000 mg of keppra a day it seems to be working for now so i hope to God this is the right combination of medicine. As for drinking i used to drink every weekend with my friends just to relax and hangout but now i just choose not to drink because i would rather just not drink and not have seizures.

Henry Candela

Re: Keppra and Alcohol

I notice lots of the people who have had seizures after a drink of alcohol are on Keppra. 

I had my first seizure at age 26 and was put on Phenobarbitol.  That didn't work so I ended up on Mysoline--(Primidone) a really old med.  I was on the highest dose and have only had nocturnal, grand-mal seizures. 

I was told not to drink.  I did anyway--on weekends; not every weekend, just once in a while.  I partied, I got drunk, I passed out--again, once in a while--every few months.  And I never had a seizure after any of those instances. 

I had seizures other times.  Seemingly for no rhyme or reason.  During the middle of the week or on weekends when my husband and I had worked OT and were dead tired and went to bed early.  Again, not everytime I was tired, just once in a while.  Other times on the weekend....Saturday seemed to be the favorite night.   

I was on Lamictal for the last 5 years and drink 1 glass of red wine in the evening.  I have had  2 seizures per year on average over the last 20 years.   

I am now on Topamax (400 mg. all at bedtime)   (last 6 months--long story with side affects) and I have not had a seizure in over 2 years.  Last one was in April of 2006.  I am going to ask to go off the meds. 

My husband and I were told, 20 years ago, that if I was seizure free for 2 years, I could get off the meds.  I am going to see if they will let me.  I have to try.  I am so sick of all the side effects of the meds and want to feel *normal* again. 

Anyway, as long as it doesn't negatively affect you, I don't think 1 glass of wine or 1 beer will harm you.   I'm still here.  (smile)  I did everything wrong.  Believe me.  I'm not proud, just telling the truth. 

Re: Keppra and Alcohol

doctor have to say " if you drink, take only one - no more". if people is epilepsy doctor say no alkohol, if you eat keppra or depracine or something doctor say no alkohol if you have to take , take only one.

keppra and alkoloh mean if you take pils and alkohol - one keppra and 5 drinks is you body more keppra (maybe 2) and alkohol is 6-10 drinks. and /or you take only one and you have very bad feel then.

 

Re: Keppra and Alcohol

I am currently on this perscription and I am also a social drinker.  I had to practically pry it our of my doctor to see if I could even have alcohol, but he told me that I could and I have had a few nights where I had a little to much other nights where just the occasional drink.  I have been fine every time but maybe you doctor has a nother reason for saying what he did about alcohol and it might be because you are so new to the medication and he just wants to monitor you for a little. 

Re: Keppra and Alcohol

I like wine with dinner every night, usually a couple of glasses.  I take 2000 mg of Keppra daily for TLE and have never had a problem with it. 

Deb

Re: Keppra and Alcohol

SAV

I have been taking keppra for the last 6 yrs.-3750mg/day.  I like wine and have 2-3 glasses @ get togethers, ok'd by my dr.  Good thing to eat when drinking  for the meds to be absorbed into the system.  Maybe the dr, because this is a new med for you, and seizures are new for you says "no" to the drinking.  I'd follow what he says and see if the keppra helps stop the seizures-that's MOST impt.  And if you're still having them, and taking the meds, maybe you can start drinking more.  Good luck-hope it works for you!

 

Re: Keppra and Alcohol

I used to be a regular social drinker and I wasn't exactly told, "No, you can't drink alcohol again!" but why take the chance?

As hard as it was & still is (I still have a fully stocked wine rack) I haven't touched a drop since my seizure and going on Keppra.  At first it was rather unbearable, kinda like the kid in the candy store who is denied everything if you know what I mean, but it did pass.

I guess it is just a personal decision.  Everyone has to figure out the correct course of action for themselves and their families but why risk having another seizure if going dry would have or could have prevented it?  Of course, my first (and only) seizure was a tonic-clonic and my desire to avoid another seizure overrides any desire to consume alcohol.

Just my thoughts on the subject!

Re: Keppra and Alcohol

My epilepsy started when I was 20, right in the middle of my peak drinking age. (18 was the legal age back then) I didn't have much problems with my own desire to drink, but it was VERY hard to avoid the social pressure. It took some time and others around me got used to it. I just used a very generic response when pressured. "I have nothing against drinking, I just can't with my medication." This worked with most people and I rarely had to explain my E to them. Sometimes it even made me a little more popular, because I was the sober driver.

Now at 46, I do drink occasionally. One way I keep from going to excess is by drinking wine, weak mixes, or dark beer. This way I get to drink, but slower than those around me.

BE SURE TO NOT DRINK AND DRIVE. You're chances of a break through seizure are increased and could prove fatal for you or someone else.

Best of Luck.

Re: Keppra and Alcohol

Hi

 I started on Keppra six weeks ago - 500 mg a day.

My doctor told me to avoid alcohol for three weeks.

 I had my first two glasses of wine last week with a meal and had the shakes all night.

It's put me off drinking again. I wouldn't risk your health.

I'm finding it hard at the mo. My workmates don't know I'm on Keppra or my condition so also trying to avoid the pregnancy rumours on social drinks out!

 I just hope maybe I can have the odd drink again soon.

 :-)

Re: Keppra and Alcohol

The effects are different for everyone...part of the beauty of epilepsy, eh?

I live with epilepsy; I am 42 and I began having seizures at age six.

I take several meds for epilepsy, keppra among them. I also enjoy a drink now and then...I hope you find that sweet-spot.

Take care...

Re: Keppra and Alcohol

Hey, I'm a 26 year old female who has been a bartender/dancer (ballet/jazz, etc...) for the last few years.  I had my first partial seizures about a year and a half ago and my first tonic clonic a little over a year ago.  I still wasn't diagnosed until this past summer with epilepsy and I was told drinking wasn't the cause, so I've continued and nothing has really changed- even on Keppra and Lamictal.  I feel like my health has still declined-I've had about 5 or 6grand mals in the last year and countless partials and the meds don't help at all as long as I'm still drinking.   Despite the fact that I've been told I have temporal lobe epilepsy and drinking is not a major factor, I recently stopped drinking altogether.  I was going out a lot and given where I work and the lifestyle I lead, it's extremely hard to say no to a drink with friends and the idea of not drinking is daunting. I am not an alcoholic but I know what you mean about how hard it seems to believe you can never have a few too again.  I know it's cliche, but I'm just taking it one day at a time.  You have to trust your own body.  I am doing my own experiment now after a year and a half of not getting better to see if alcohol is the primary factor in my epilepsy and if it is, then I would rather not drink again and listen to my own advice than heed the advice of doctors and suffer what I have been for the last year and a half.

Re: Keppra and Alcohol

Well, I had my first seizure at age 17 and have been on Epival for the last twelve years without any problems when I would drink. You can imagine being in high school means you are pretty much exposed to alcohol on a frequent basis (at least I was!) so yeah, I indulged. Maybe a bit too much sometimes, but I never had any seizures while drinking.

I then ended up marrying a drummer in a local band here and his group plays the bar circuit nearly every weekend so I often go out to support him. It hasn't been a problem - so far so good.

Then, my neuro switched me to Keppra nearly two weeks ago and I wanted to test the waters so I had a glass of wine with dinner one night without any incidence. I am now up to 2000mg of Keppra and again had a couple of drinks and seemed to notice that it hit me just a little harder than normal. I swear I'm not an alcoholic though! I just happen to enjoy my wine...good luck to you and just go by how you feel. Take care!

Re: Keppra and Alcohol

 

Hi Dark Angel I just read your comments on Keppra and booze, and as a fellow wine drinker, I thought I'd reply. All I drink is red wine, the occasional white wine in the summer, but I think I drink too much. If I'm honest, it halps me to chill out, gives me confidence, and helps me to forget my troubles, I don't get drunk every night or anything that crazy, but once I start drinking, I just don't want to stop, I do have to stop after about five large Shiraz or Merlots, what's your limit? Yesterday, I got totally hammered on about four glasses, it was lunch time though, I don't drink that often during the day, and having recently lost my job, that would be a very"slippery slope" if I did start daytime boozing.

        I'm on 1500mg of Keppra twice a day, I really only have Complex Partial seizures, I usually get the aura beforehand, which totally freaks me out, I get the taste, smell, the epigastric rising, and I find them more terrifying than any seizure, I've just spent the whole day in what's become known as "wobbly mode" meaning I've had lots of auras and just felt unlike my usual self, I forgot to take the Keppra last night as I was half cut, I usually just go to sleep, I don't get aggressive or mouthy after a drink. I just wanted to reply to you, as it was good to hear from a fellow wine drinker.

        I'm writing a book about my experiences with epilepsy called "Fit For Life" and if it's the last thing I do, I'll get it published, I'm just waiting for a second lot of brain surgery, it worked for five years the first time then my seizures came back again after five years, fingers crossed eh?

       Anyway, all the best to you, long may you continue seizure free!

Cheers

Elaine

Re: Keppra and Alcohol

I used to call myself a social drinker but the alcohol treatment center I wound up in told me I was an alcoholic. It was another 20 years or so after that before I'd had my first seizure, and was still drinking. I used the process of elimination when treating my Epilepsy, and the first thing to go was the drinking. It was easy to ask myself after a seizure, I wonder if I had a seizure because I was drinking because I knew I wasn't. Now, it's easier to try to figure out what I might have done/not done as to the reason I had a seizure, I know it wasn't the drinking because I quit that. Did I not eat or forget to take my meds as  that's usually a trigger. Usually the only other reason is I forgot to take my meds, and didn't get enough sleep. These days, I know better to even think about drinking, just don't do it.    

Re: Keppra and Alcohol

George - NYC -- A neurologist I am not, but I have had virtually all versions of epilepsy and the seizures connected to them for 35 years. Fortunately, I've never seen drinking alcohol wise--socially or health-wise. Maybe having a couple of grandparents die a young life because of drinking taught me quite a lesson. I am on Keppra (2250mg), Depakote ER (1000mg), and Lexapro (20mg) and know well that drinks and anti-seizure pills mean "war" within our systems. And it's not a matter of letting of precious bodies have time to adjust to the swigs aimed at them; it is our logical acceptance of taking pills and aiming our loose change at things far wiser than alcoholic drinks. If this sounds Victorian, let it. However, ask people who have had epilepsy for decades, not merely those who just been told about it.

 

Re: Keppra and Alcohol

i have had e all my life. in my early 20s i did drink, had only abscence seizures at the time. after a night of drinking socially, in bed at 11pm, i had my first tonic clonic. spent time in the hospital getting on new meds. the neuro back then, it was the mid 80s said ok to a drink now and than, well the next time i had a magarita, at about 3or 4 in the morning i had a siezure so violent it dislocated my shoulder so again my hubby had to call an ambulance for i was out of it and when i got out of the postical state, the pain was excrutiating. i stoped drinking and was under control for 20 years, at 45 i started having siezures again, neuro said occasion wine or beer ok. well i went thru many meds and after 10 months he gave up and sent me to a epilepsy specialist, who told me to stop drinking completely, no alcohol at all! cuz i put down i occasionally had a glass of beer or wine on paperwork they give you. said alcohol and e do not mix and neither do siezure meds and alcohol. also found out that stimulants such as sinus meds alter the way siezure meds work as well. so you are playing with fire. you only have 1 brain. dont fry it by mixing stuff that may not hurt you as you see it today, but long term effects are killers. you need a new doctor, a epilepsy specialist that will give you the straight info. regular neuros knew some e stuff but treat alot of other neurological disorders so their training in e is limited compared to the specialist. hope this helps, there is also lots of info on this website.

God Bless!

banffgirl

Re: Keppra and Alcohol

Hi,

Am taking Keppra 500 mg twice a day for the past 2 months. I had beer last week and the next day I had a mild siezure in my work area. Thank God, my collegue who knows about this helped me. I have complex partial seizure since my 10 years of age and now am 23. For these days I was taking carbamizene and gardinal. i switched to keppra onlt 2 month back. So, is there anything like, keppra does not support alcohol consumptuion ? carbamizene was supporting.

Re: Keppra and Alcohol

I dont suggest drinking any alcohol while on medication..... not only does it counteract with the medicaton, it also can cause more seizures and god knows what else.
I was told not to drink alcohol at all, or even take cold medication. So better care your self and good luck in years happens.

_______

Sweet16

 

This is a comprehensive addiction portal focusing on topics of alcohol and drug abuse. http://www.alcoholaddiction.org

 

Re: Keppra and Alcohol

This is a comprehensive addiction portal focusing on topics of alcohol and drug abuse. http://www.alcoholaddiction.org

Re: Keppra and Alcohol

I don't drink at all because of my meds.One drink and all I want to do is sleep and then sometimes I have a breakthrough sez they called them.Last weekend we where at a wedding and I was the only nondrinker there.

Re: Keppra and Alcohol

Ask yourself if alcohol is more important than your family, friends and others around you?  That should lead you to your answer.  They are your support and if they aren't helping you quit drinking....question their intentions. 

Find a neuro you trust and ask any/ all questions on your mind.  

Good luck and stay strong. 

Re: Keppra and Alcohol

this website is so good

===========================

sarika

Alcohol abuse affects millions. This site has a lot of useful information.

 

<a href="http://alcoholabuse.com">http:// alcoholabuse.com</a>

 

 

 

 

Re: Keppra and Alcohol

Please remove external links - they belong in the section on Products, Resources and Helpful Links.

 

Epi_help,
Resource Specialist

Re: Keppra and Alcohol

Keppra is a medicine that is used with other medicines to treat primary
generalized tonic-clonic seizures in adults and children 6 years of age and older with
idiopathic generalized epilepsy, myoclonic seizures in patients 12 years of age and older
with juvenile myoclonic epilepsy, and partial onset seizures in patients 4 years of age and
older with epilepsy. This may cause extreme sleepiness, tiredness, weakness or problems with
muscle coordination. If I were you, follow what the doctor said. In fact it's for your own sake. Alcohol can do no good to you and to your health.

____________________

wilbert

Alcohol abuse affects millions. This site has a lot of useful information.

Alcohol Abuse

Re: Keppra and Alcohol

Please put external links under the forum thread of "resources, products and helpful lilnks". Thanks! 

Epi_help, 
Resource Specialist

Re: Keppra and Alcohol

Anyone diagnosed with seizures and taking seizure medicine should read up on alcohol effects on both meds and seizures, and talk to their doctor for individual device.  

 While drugs of many kinds and alcohol don't mix, too much alcohol can aggravate seizures directlly in some people or increase seizures as the withdrawal effects of alcohol occur.  People also may get more forgetful, missing seizure medicines which can increase likelihood of seizures even more.   How much people drink and how fast may affect how the alcohol effects them, and how it may affect their seizures meds. It may also affect how drunk a person gets. Here's a link to info about things that can affect seizures. Make sure to listen to your doctor too and ask lots of questions. It will help you learn what's important for you. People do need to learn how to cope with the social effects - how and where to go out with friends and not drink, and other ways of socializing. 

http://www.epilepsy.com/epilepsy/provoke_seizure

 http://www.epilepsy.com/epilepsy/provoke_alcohol

http://www.epilepsy.com/epilepsy/seizure_medicines

 

Epi_help,
Resource Specialist

Re: Keppra and Alcohol

I would like to draw to everyone's attention the possibility, that if the belief is that alcohol did not cause the seizures, then why are you all discussing the connection?

 I have made the connection after years of habitual drinking, which I would never have considered to be either excessive or  problematic in terms of leading a normal lifestyle. I was, and still am a very fit man. I have won fitness titles, and coach others to this end. If there is a clue to what has changed in my life, it is this; I decided about a year ago, to stop drinking. Not long after, I started to experience some strange sensations. Through time I was diagnosed with Epilepsy. I have no doubt that this was as a direct result of my abrubt cessation of alcohol use. If you want my advice, you will take this not only as a warning, but also as an opportunity to have an even healthier way of life....alcohol free.

Good Luck.

Re: Keppra and Alcohol

What up everyone, I've only been epileptic since sept. 07, but since middle school i've always smoked weed and drank (18 now). Once this happened I obviously lost my license and as a result spent the next 8-9 months drinking and smoking more then ever. I always noticed before medication when I would drink I'd never have a myoclonic twitch but when I'd smoke weed it'd be immeadiate. Now that I've had medication I've noticed that smoking doesn't do a thing anymore and drinking the same until I haven't drank for a period of 3 days or more. After a few days go by almost always, when im tired before I go to sleep I would have a major myoclonic twitch. I myself, am into lowriding and cruising cars so getting my license back (7 days from today I get my last EEG) is important and can't really afford to get a bad EEG result. My 2 cents, it aint really worth it bro.

Re: Keppra and Alcohol

i have drank on keppra and not had any real problems, no seizure etc. I get drunk quicker and my hangovers are about twice as bad as before

 i have decided to stop drinking though because the hangovers are a killer, and i want off my tablets if i can go a year or so longer with no seizure. they said after 2 yrs i could consider it.

i feel im "outgrowing" going drinking and bored of it.

 i say never say to yourself NEVER allowed to drink. just drink when you really want to and feel youre missing out, but best not make it a regular thing. but dont deny yourself too much because you have to LIVE

 a lot of people are puritanical so will automatically say dont drink before thinking about it properly and weighing up the pros and cons. ie, the fact you will be unhappy if you can never drink again.

 i went to the doctor and he said small amounts have some benefits but its not a license to just get wasted every day.

 

Re: Keppra and Alcohol

Hi jppktat. I am a healthy 27 year old female who started had her first seizure (a grand mal) in August 2005 about 3 weeks after I  turned 24. I am a social drinker as well (especially when I was still in college and I was told to avoid alchohol as well. For 2 years my EEGs all came back negative until last summer when I was put on a video EEG  and I had one recored while I was having one.  I contiued to  have seizureseven though I was taking 500mg of Phenytoin, 500mg of Lamictal, and 1000mg of Keppera 2x a day. I also was told to avoid alcohol, because alcohol decreases dilantin levels ( the hormone that controls your seizures). The last time I drank, I had 2 or 3 beers and the next morning I went to Kennywood, an amusment park in Pittdburgh and was told that I wnt into convulsions right in the middle of the park. The next morning I woke up in the ER, and of course I don't remember anything. Since then, I have not drank and I have not had any convulsions even though I still have the very tiny petit mal seizures where I twich and loose awaereness of all of my surroundings for a minute or two or I will wake up with my lips chewed up from where I had a seizure in the middle of the night. My advice to you from my personal experiance, is to be very carefull about when  you drink and make sure you listen to your doctors. In fact, I really don't feel the urge anymore since my 21st b-day.

Re: Keppra and Alcohol

Hey I've really been wanting to talk to people who have been thru seizures......I am 23 yrs old (female) & just this year I had my first 2 seizures out of nowhere...Ive been healthy my entire life so I dont understand! All my tests have came back fine so far. I had one in April, in my sleep, a grand mal seizure,of course I dont remember anything from that night, my parents just happend to hear me hitting against the wall so they found me & took me to the ER. They automactically started me on three 100mg Dilantins a night...which made me feel so bad...dizzy,sleep,weak,it messed up my birth control, ect*  Well i didnt have any more seizures, so they weened me off the Dilantin, finally a week of NOT being on it anymore, I have my 2nd seizure just this month , on Oct.6, once again in my sleep! Does anyone have any kind of info on this? I'm now taking 2 dilantins a day along with two 500mg Keppra's a day.....I feel HORRIBLE...

Re: Keppra and Alcohol

My aunt suffers from seisures all the time. She's had that problem her whole life. My suggestion would be if you are an addict, seek treatment from an <a href="http://www.drugrehabsunsetmalibu.com/alcohol-rehab/">alcohol rehab</a> because I don't think it's a good idea to drink. You could ask your doctor what would be the problems that would happen if you did drink. Asking your doctor would be the best solution. My aunt never drinks, and that is probably why. It might be too dangerous.

Re: Keppra and Alcohol

I have been taking Keppra for about 3 years now. I had my first seizure in Summer of 2005 out of no where. Over the years I have had several grand mal seizures, most have been caused because I didnt take my medicine for a day or two or getting no sleep studying for exams.

I am a social drinker (23 yr old male) and I have not had any problems with seizures due to my drinking. (My last seizure was about a year ago)

 I have read a lot of people talking about bad hangovers and I have experienced those. However, I also found out how to prevent them. When I take my medicine for the night (which is now 250mg twice a day) I take my Keppra with my meal and lots of water. I also take a vitamin B supplement before and after I go out. Also, I do not start drinking until the Keppra has been in my system for at least 2-3 hours. I noticied that if I took my medicine while drinking or right before I started to drink I would get really bad headaches and I wouldnt even want to drink but now I do not have any problems.

It is possible to drink on Keppra but you have to find out what works for you. Don't overdue do it, you just have to find your happy medium. Also, my experience might be different due to the fact that it has been a long time since my last seizure and my low dosage. I might think twice about going out a lot if I were taking a higher dosage and my seizures were more frequent.

 Good luck and be careful.

Re: Keppra and Alcohol

You should pay attention to your doctor, alcohol and epilepsy don't work together and it's better for you to understand this now otherwise you risk having other seizures and things can get worse. If you find it hard keep sober you may consider alcohol rehabilitation, once you are done with that you can focus on your condition in a better way.

Re: Keppra and Alcohol

Today I was diagnosed with Epilepsy after having my first seizure last week.  It was enduced when I did not sleep for about 40 hours and I had it during a math exam.  I'm a freshman at Ohio State University and I have been drinking and partying since I was in middle school.  Growing up in North Dakota, partying is one of the only things to do and today my doctor said I can't get drunk.  It wasn't a devastating blow but I considered it shitty once I thought about how much I actually do drink.  Seeing how I am a freshman at  a party school, its going to be really hard not to party too hard.  I was put on keppren and I am going to get my prescription filled tomorrow.  I'm back home now for winter break and obviously I'm going to drink with my friends.  I was thinking a light drunkeness will be all I can settle for maybe once or twice a week.  If there are any adverse affects I will probably stop using keppra seeing how I have only had one seizure and it was because I didn't sleep.

Re: Keppra and Alcohol

Ever heard of Kepprage? Well, you may get suicidal, violent, aggressive, irrational, etc.  I can't take Keppra. I cannot take it especially with alcohol...it just makes that bad situation worse. It may not have the same effect...but at least you know now

Re: Keppra and Alcohol

Intresting topic. Last year when I had my seizure I had the same ordeal. I am social drinke more on the light side. I was put on Keppra 1000mg and told not to drink. I was told not to drink bceause  alcohol lowers your seizure threshhold (aka more likley to have seziures) and also the alcohol lowers the effectivness of the Keppra. So basically when you drink whether you take the medication or not your putting yourself more at risk. I know I was pissed and felt the same way you did even though I drink maybe 1 glass of wine a week.  I do not advise not taking the medications just to drink. Just to give in idea how powerful alcohol can be; the night before I had my first seizure ever I had only 2 drinks. They say that could have been the trigger. I no one longer take Keppra for any meds. However, I limit my drinking to once every 2 weeks or so. I'm sure this is not the greatest. However, I suggest you start prepring for yourself to a cut back. The more you have seizures the more likely you will reconsidering the drinking, in my opinion. Also what  helped me was telling eveyrone  I had seizures.  People stopped buying me drinks and actually take drinks way from me or tell or people not offer me drinks so I do not feel bad. This sounds unplesant, but actually, it helps as it feels like support and also makes it not so weird when I'm at a bar or social gathering

Re: Keppra and Alcohol

I am not on Keppra I only take 125mg of topiramate, I have nocturnal frontal lobe epilepsy. I was told not to drink on this medication much lik everyone else, because of the withdrawl effects. I have had one seizure from drinking and this is because I mixed about 7 different types of drinks over the course of 5 hours, beer, vodka, gin, wine, you name it. I woke up having a massive autonomic seizure, with my heart in atrial fibrillation. Since then I have only drank beer and I can drink up to 4, I just make sure its 2 hours after I have taken my medication. I havent had another problem since that one time. But we are all different so I would be very careful, I am also on a very low dose.

Re: Keppra and Alcohol

Hey I'm a 17 year old male. In the past 3 weeks I've had 2 seizures, the first two I've ever had. When at the hospital I took an CT scan and an EEG both of which came back normal. Unable to determine why I had these seizures the drs prescribed me to take Keppra. I realize I'm not legal drinking age, so save me the guilt trip. I go to parties just about every weekend and while getting drunk isn't the most important thing to me, considering I still have my senior year of high school and college left, not being able to ever drink again upsets me. So if anyone could shed some light on how to safely mix alcohol and Kepptra thatd be greatly appreciated.

Re: Keppra and Alcohol

Please note: I'm not a medical doctor
My suggestion would be to take a scientific approach. Record how many seizures you have per day, or per week, what you were doing the day you had a seizure, and other details that might be relevant.
If you have a beer, record how you feel the next day, etc. Don't have too many drinks at once, eat something, and if you take the medicine at night, wait an hour or two after you've had a drink.
I've been on Keppra for about 3 years, in combination with Trileptal. I do have a drink a few times a week and I have not had a seizure. Other comments on this topic prove that even one drink can prompt a seizure for some Keppra users. Since Keppra is a relatively new drug, long-term side effects of drinking while on the drug aren't readily available. If you feel that the risk of a seizure due to alcohol is too great, then don't have a drink at all. Everyone's brain is different, so figure out what works for you.
I make every attempt to live my life without letting epilepsy get in the way. I've learned what works and what does not work, as you will.
You are 17, you'll make mistakes, but the fact that you chose to ask how other people deal with the temptation of alcohol proves that you are interested in preserving your health.

Re: Keppra and Alcohol

removed by admin

Re: Keppra and Alcohol

Hi Gcuje - Hope this finds you well.
When I was diagnosed I just knocked the booze on the head! Turned out a wise move as shortly later I suffered a brain injury, spawned by my E.
If you can, I'd do likewise.
I still have a great time partying - but being Irish I'm arguably daft enough without the drink!
It's also good fun being sober & watching your mates make pratts of themselves as they get drunk!
You do save quite a bit of money too!

Slainte; J.

"Even monkeys fall from trees"!

Re: Keppra and Alcohol

I am a 21 year old female and I started having seizures for the first time about a year and a half ago; I have had 5 since then and they have all been very spread out, besides the time I had two in one day. I had an EEG and a MRI, both of which came back normal. My first doctor told me they were caused by alcohol withdrawal, and that he was almost certain that I do not have epilepsy, therefore he did not put me on medication. I have been drinking since 13, so I believe he is right on. I have since been sent to the ER a few times and they have always put me on Keppra, but I am stubborn and I do not agree with taking medication so I would never take it. The only time I have EVER had a seizure has been the following day after I drank a heavy amount. I had another seizure yesterday, and I am finally considering quitting drinking completely, but I still don't think I am going to take my medication; I am hoping that quitting drinking will be enough to stop the seizures. Has anybody else had the seizure experience, but not actually been diagnosed with epilepsy? If so, does quitting drinking without medication stop the seizures? Or am I being far too stubborn?

Re: Keppra and Alcohol

My story is very similar to yours! When I was 19 I experienced my first seizure; I had been drinking all day the previous day and attended a major sporting event. Since I was with a friend who had no idea what was going on, the ambulance was called and I was sent to the ER. We arrived to the assumption it was caused by alcohol withdrawals, with no medication prescribed. 6 months later I experienced another one (once again after drinking), about six months after that another one (again related to drinking). You would think I would just stop drinking? But I did not want to QUIT, but did cut back. In Sept of 2011 I experinced a seizure, but I was not drinking the night before. Until this episode I, along with you, had refused to take medication because I felt I "didn't need it."
For me quit drinking was not enough, even though it may be what had started my epileptic episodes, and medication helped to control them. I was hesitant to start on my medication, and agreed to start on the lowest dose possible of Keppra (The doctors tried to pull a quick one and prescribed 1000mg/daily, when the lowest dose is 500mg/day ... so do some research - you know yourself better than any medical provider) The lowest dose was enough to control my seizures, until recently I had a break-through seizure. ( I had started working out and changed my diet, this may have altered my Keppra levels, I am waiting to see my doctor regarding it.)
It's okay to be stubborn about it, as it is YOUR body; but I have learned the hard way that the doctors do know what they are talking about; and IF it was a alcohol withdrawal seizure, don't you think that by quitting drinking it will only induce more seizures? I suggest working closely with your doctor to eliminate drinking at a safe pace, and take a small dose of anti-seizure medication to safe gaurd you. You can always come off the medication when you are ready! I wish you the best of luck with your journey; It will get better!

Re: Keppra and Alcohol

Hi curio & Merry Christmas!
There can be many causes of seizures & E & booze are just two of them. I appreciate your Szs have been widely spread out but try knocking the booze on the head for a couple of months before going back to the docs for another opinion.
The booze may well not have anything to do with your probs but cutting back will always help - although I appreciate, too, this is probably the wrong time of year to be bouncing such thoughts off you!
All the best
J.

"Even monkeys fall from trees"!

Re: Keppra and Alcohol

Craig knowles

Re: Keppra and Alcohol

Unfortunately, I have quite a bit of trial-and-error in this particular area. I was diagnosed with absence seizures about 10 years ago, developed grand mal about 6 years ago. Epilepsy medications pretty much all have similar side effects to drunkenness; drowsiness and dizziness are the two big ones. That said, in my experience, it takes about half the drinks to get me feeling twice as drunk. If you insist on drinking on your medication, get used to being called a "lightweight." In my experience, hard liquor is FAR more damaging than beer or wine or the drinks with the lesser alcohol contents. Also, sleep is crucial. I can drink as many beers or as much wine as I would like, provided I've been taking my medication prior and get a minimum of 6 hours of sleep the next night, and be fine. But as soon as I start drinking too much hard liquor and start depriving myself of sleep...it's a toss-up whether I'll spend the next day in the hospital.

 Nobody can prevent you from drinking. But, with epilepsy, there's a certain science to drinking. Learn the science, or forgo the drinks. Best of luck. :) 

Filtered HTML

  • Web page addresses and e-mail addresses turn into links automatically.
  • Allowed HTML tags: <a> <em> <strong> <cite> <blockquote> <code> <ul> <ol> <li> <dl> <dt> <dd>
  • Lines and paragraphs break automatically.

Plain text

  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
Type the characters you see in this picture. (verify using audio)
Type the characters you see in the picture above; if you can't read them, submit the form and a new image will be generated. Not case sensitive.