I am new in this forum .. and very freaked out ....3 years ago, in May 2005, I woke up in the middle of the night as I couldn't breathe. I was litterally suffocating. My husband said my arms and legs were jerking. I was confused when I woke up, and I had petechiae around my eyes. I went to see the neurologist and did numerous test. My EEG was normal, and they found a cavernous haemengioma in my brain when doing a MRI scan, but no bleeding. One year after, nearly to the day, I had the same "episode" again. Sensation of choking + jerking arms & legs + petechiae on my face. Another MRI but still nothing, and my haemengioma was the same (no bleeding). No unusual electrical activity.
Last year, again at the same period, I had an episode during the daytime. I was on the phone with my brother, and suddenly I couldn't breathe in or out. I couldn't speak. I blacked out and hit my head on the bin. Result : 9 stitches and a "Harry Potter" look ! Again, petechiae on my face. The ENT (Ear, Nose & Throat specialist) asked me to do a fluoroscopy and they could see that I couldn't swallow very well, and I might have had a laryngospasm ... but you usually don't black out from this.
A couple of days ago, the same happened again when I was in the bathroom. I remember not being able to breathe and thought "here we go again". I tried to lay down on the floor to avoid any injury. I woke up in bed (I don't remember how I went to bed !), with my legs, arms and back aching (results of jerking ?) and petechiae all over my face ... once again.
I am really freaked out by this. I am going to see the ENT and the neurologist again this week. Is it epilepsy ? It only seems to happen once a year or so. Has any of you suffered with petechiae after a seizure ? Petechiae are usually a sign of suffocation (great ...). Has any of you suffered with suffocation ?