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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYThe LGS Foundation is a non-profit organization dedicated to providing information about Lennox-Gastaut Syndrome, a rare and debilitating form of childhood-onset epilepsy while raising funds to pursue research, services, programs and support for patients living with LGS and their famiiles. For more information, go to www.lgsfoundation.org
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 Camryn... |
Chriss... My 7 yr old son has LGS. Just had brain surgery. HELP!
Created by Chriss...at5/30/08 - 9:54 pm|51 Views|5 Comments |
denise05 I'm looking for other parents of adult children with LGS
Created by denise05at10/6/08 - 3:18 pm|11 Views My son is 24 and just finally diagnosed with LGS. I've been suspecting it for a while, but the neurologists are a little hard-headed.
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 whatnext Adults with LGS
Created by whatnextat1/10/08 - 1:16 pm|54 Views|2 Comments I'm looking for other adults with lennox gastaut syndrome. My son is 20 years old now and still has seizures, just when we thought we had seen every type of seizure, from drop attacks to grand mals, he surprises us with another type. The newest starts as...
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 kdredske Webmaster's Blog
Created by kdredskeat08/07/2008 - 6:45am|5110 Views Blog Posted To: Webmaster's Blog
Hi Everyone,
I'm the new webmaster here at epilepsy.com and now that I've finally gotten pretty familiar with the many things that we offer you, I want to introduce myself and share tips and hints for using our website.
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mash37917 HELP
Created by mash37917at04/06/2009 - 3:25pm|2615 Views Blog Posted To: mash37917's blog We came from the Neurologist today. He is prescribing Rufinamide and wants to do a spinal tap as well. He has mentioned Lennox-Gastaut syndrome. Does any one have any experience with this?
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143hay... 4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:38 pm|7 Comments Posted To: |
143hay... 4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:38 pm Posted To: |
143hay... 4 Yr Old on Lamictal, Dr.wants us to consider Corpus Callosotomy
Created by 143hay...at7/8/08 - 7:37 pm Posted To: |
raquels New - Life, Liberty and the right to choose.
Created by raquelsat7/19/10 - 12:03 pm|3 Comments Posted To: |
 Eterna... New - Home birth or water birth an option?
Created by Eterna...at7/12/10 - 10:01 am|9 Comments Posted To: |
 Sammis... New - Ambulatory 48 hr EEG abnormalities everywhere
Created by Sammis...at7/9/10 - 11:22 am|4 Comments Posted To: |
 phylis... |
Eterna... New - Good course of action for planning for a child?
Created by Eterna...at6/30/10 - 6:45 pm|6 Comments Posted To: |
 TriadE... |
omgjack New - Please watch - Autism and epilepsy...
Created by omgjackat6/24/10 - 10:27 pm|1 Comment Posted To: |
Sammis... New - New Dr he suggested possible AVM or aneurysm??
Created by Sammis...at6/24/10 - 10:04 am Posted To: |
Emely84 New - Complex Partial Epilepsy(25-45 minutes long)
Created by Emely84at6/21/10 - 10:57 pm|3 Comments Posted To: |
 kristi... New - Not epilepsy but seizure activity...?
Created by kristi...at6/17/10 - 6:12 pm|3 Comments Posted To: |
Andrew T New - Trying to figure out if this is a simple partial seizure. Anyone ...
Created by Andrew Tat6/17/10 - 12:01 pm|5 Comments Posted To: |
Sammis... |
Sammis... |
kristi... |
buterf... |
 alexis00 New - complex and simple partial seizures with visions?
Created by alexis00at6/6/10 - 4:52 pm|6 Comments Posted To: |
Sammis... |
phylis... |
 stacei... A Hope for Change to Translate Rhetoric into ACTION
Created by stacei...at5/31/10 - 9:42 pm Posted To: |
rocket... Paganini, and Tchaikovsky, they both are alleged to have had epil...
Created by rocket...at5/31/10 - 9:32 am|2 Comments Posted To: |
phylis... If You're Thinking of Getting Pregnant...
Created by phylis...at5/31/10 - 8:48 am|2 Comments Posted To: |
ShainaJ13 Could I get someone to lend a hand on a project?
Created by ShainaJ13at5/29/10 - 6:56 pm|2 Comments Posted To: |
**update** Camryn has been diagnosed with LGS (Lennox-Gastaut Syndrome) My...
I am the webmaster at Epilepsy.com. I've been working on the Internet...
My son's whole life has been a learning experience. I wish I would...
15 year old son has had uncontrolled epilepsy for 13 years. Here to...
**update** Camryn has been diagnosed with LGS (Lennox-Gastaut Syndrome) My...
My son's whole life has been a learning experience. I wish I would...
15 year old son has had uncontrolled epilepsy for 13 years. Here to...
I am the webmaster at Epilepsy.com. I've been working on the Internet...
I am the grandmother, legal guardian of 13yr old Abby with lennox...
I am the mother of a young man with Lennox Gastaut Syndrome, a severe...
| Title | Posted | |
|---|---|---|
| Paying for your seizure pills with no insurance? | May 24, 2012 | |
| Tatianalee | ||
| Brain Surgery Complete - Sex Drive Almost GONE | May 24, 2012 | |
| peytonwelch | ||
| Ketogenic Diet For Children | May 24, 2012 | |
| Natarina | ||
| Anyone on Lamictal AND Keppra? | May 24, 2012 | |
| Bloodyrose | ||
| epilepsy and hormonal effects | May 23, 2012 | |
| cindyloowho | ||
| Lamictal Nausea, Dizzy Spells | May 23, 2012 | |
| karyliin6 | ||
| Severe Epilepsy And Pregnancy | May 23, 2012 | |
| AmyBoop88 | ||
| Fish oil and absence seizures | May 23, 2012 | |
| absence_amie | ||
| Weaning off of Dilatin | May 23, 2012 | |
| Katz | ||
| Best pediatric neurologists in NC? | May 23, 2012 | |
| Ashleygordon82 | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,619 | |
| epi_help | ||
| topamax and weight loss | 19,330 | |
| alexia mom | ||
| kepra | 19,243 | |
| brian mattingly | ||
| Possible cure for absence seizures | 16,388 | |
| pdl1 | ||
| How exactly do aura's feel | 14,077 | |
| WendyBendy | ||
| Sexual Side Effects | 13,524 | |
| George R | ||
| MEDICAL ALERT I.D.'s | 12,453 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,443 | |
| spiz | ||
| electrical shock in head? | 10,083 | |
| Maggie | ||
| Weight Gain and Depakote | 9,011 | |
| galinda | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| My Blog Disappeared! Can't my seizures too? | May 24, 2012 | |
| MichaelK | ||
| SEIZURES ARE CHANGING. WHY? WHAT KIND AM I HAVING NOW? BRAIN EXPLOSION I FELT IS A MYSTERY TO ME | May 24, 2012 | |
| ROCKNROLL | ||
| Hyperventilation & epilepsy, a way to help yourself. | May 23, 2012 | |
| buteykomike | ||
| Medicine adjustments | May 23, 2012 | |
| fashionlove45 | ||
| NOT YELLING, VISUALLY IMPAIRED. POSTICTAL SHOPPING. ANYONE ELSE WITH THIS PROBLEM? TBI AND SHOPPING | May 22, 2012 | |
| ROCKNROLL | ||
| Seizures and medical marijuana | May 21, 2012 | |
| seizureprone134 | ||
| being unigue and being hypocrite | May 20, 2012 | |
| futuer poet | ||
| Coming out? | May 19, 2012 | |
| fashionlove45 | ||
| RWAY40 | May 19, 2012 | |
| rway40 | ||
| TOLD MY FRIENDS!!! | May 19, 2012 | |
| fashionlove45 | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| my partial complex seizures | 4,540 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,787 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,586 | |
| JudiS | ||
| How can you tell if a sleep seizure happens? | 3,545 | |
| epl_controller | ||
| Feeling Sick | 3,308 | |
| JBJ1984 | ||
| side effects of phenobarb. | 3,215 | |
| pksmom | ||
| Tegretol XR and ANXIETY meds | 2,904 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,836 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,711 | |
| teft | ||
| newborn seizure | 2,256 | |
| Sunny_80 | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Angela-48 | May 11, 2012 | |
| ANGELA-48 | ||
| Babies with seizures | May 5, 2012 | |
| gabrielsmommy121911 | ||
| Parent and Family Support Group Newton Kansas | Mar 13, 2012 | |
| Brown67114 | ||
| No more driving | Mar 9, 2012 | |
| Amy829 | ||
| Audubon, Pennsylvania (King of Prussia area) Parents of Kids with Epilepsy Looking to connect with others in thier area | Mar 7, 2012 | |
| ajssoscia | ||
| People who have epilepsy and are parents of young children, step children or pregnant. | Feb 27, 2012 | |
| kjsdestiny | ||
| Had the worse seizure of my life last night! Complex Partial | Feb 8, 2012 | |
| jlamont | ||
| Self-Management of Medication | Feb 7, 2012 | |
| columbia.epilepsy.study | ||
| Dravet Spectrum Disorder | Feb 4, 2012 | |
| mytboy | ||
| Diving with eplilepsy | Feb 1, 2012 | |
| p59 | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| New to this | May 23, 2012 | |
| kitkat2503 | ||
| Is it Emotional | May 23, 2012 | |
| frustrated1965 | ||
| Adjusting with the thought of epilepsy after misdiagnosis for over 20 years | May 22, 2012 | |
| goofyheather | ||
| Continuing with life | May 21, 2012 | |
| nastaran | ||
| Working my life around having epilepsy | May 21, 2012 | |
| 1505loupylou | ||
| The frustration of not knowing exaclty what is wrong... | May 20, 2012 | |
| cag122 | ||
| sharon watson | May 19, 2012 | |
| shazzax6 | ||
| My first seizure. | May 17, 2012 | |
| Jayscott | ||
| My Epilepsy story | May 16, 2012 | |
| Mar1tza | ||
| Cooper my 3 year old amazing son | May 15, 2012 | |
| supercooper | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,431 | |
| kroiz | ||
| my story | 562 | |
| snoby | ||
| Temporal Lobe Epilepsy | 561 | |
| Always Have On Clean Underwear | 508 | |
| crashllama | ||
| my brain has died a thousand deaths........... | 476 | |
| banffgirl | ||
| Kelly's Life With Epilepsy | 472 | |
| kjcanada1979 | ||
| What My Seizures Are Like...... | 421 | |
| javaman | ||
| Nocturnal grand mal seizures (primary generalized epilepsy) | 395 | |
| karalyeva | ||
| Life......... | 376 | |
| dizzygal | ||
| My Daily Philosophy..... | 366 | |
| KatieFerguson88 | ||
| View all Stories | ||
Name: LGS Foundation
Since: Dec 17, 2007
About the Group:
Lennox-Gastaut Syndrome Foundation
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