I'm looking for advice/opinions for my 14 year daughter. She is 14 and extremely bright. She had a grand mal seizure on July 2 at 1:00 a.m. She had fallen asleep in the living room and wouldn't go to bed when I woke her up. When she finally did go to her bedroom, we heard a loud thump and found her on the floor. By the time we got to her, she wa done shaking and was unconscious so we didn't know she had a seizure. We took her to the ER and they said she was dehydrated. Several months prior to this, she began having arm jerks after waking up. If she was holding anything, she would drop it. I took her a neurologist in August. He felt strongly that she had a seizure in July and sent her for an EEG. The technician that performed the EEG told us she has absence petit mal seizures and would outgrow these after a few years on medication. She said that she sees these type of seizures in very smart children. Went back to the neurologist and he said he suspects JME and that she won't outgrow it. He then ordered a 12 hour video EEG. During the video EEG, the neurogolist on call started her on Keppra. So, when she woke up, she didn't have the arm jerks. However, 3 days later she had another grand mal seizure. She is now on 1000mg of Keppra. The large arm movements haven't happened, but her hands move all of the time. They are almost like a fumbling/twitching movement. I have been calling the neurologist for a week and can't get him to call me back. I haven't really even talked to him since the video EEG to get the results to know what we are dealing with. In fact, he doesn't even want to see her for 4 months! Does anyone have any suggestions on these hand movements that she does? I don't know if it's the medicine or the JME or if she even has JME!