My son's Neurologist called me back today and said we had room to up the clobazam. He said that the clobazam seemed to be limiting the seizure spread somewhat. Darren is now aware during the seizures and able to talk during them and he wasn't before. The clobazam is obviously not doing all it is supposed to be doing however as Darren is still having the same number of seizures as he was pre-medication. We will start giving him 30 mg/day starting tomorrow and then talk to the Neuro at our appointment later this month about adding a second medication to the clobazam. I read that Clobazam is usually the add on drug not the stand alone... i wonder why we wouldn't try a different stand alone drug instead of adding one on to an existing drug that is obviously not getting the job done. Why create a coctail of medication if you have a useless ingredient? My husband is ready to pull him off everything and see how things go that way as it really is no better on drugs so far...I do want to give Clobazam a thorough chance though... i don't want to cross off a drug until it is proved completely useless... and clobazam seems to be headed in that direction for Darren. It has produced no known side-effects and that has been a blessing... i'd rather give this a good go than start on something new that may bring with it side-effects and a possibly more complicated dosage schedule...EEG is on the 12th and Neuro appointment is on the 27th so i guess we don't have too long to wait which is nice at this point. I have a load more questions and i'm ready for some answers even if they aren't solid ones...It must be difficult to find the right concoction for each person suffering from epilepsy...each one with their own body chemistry, possible lesions, life stresses and special circumstances... I recognize the need for us a parents or patients to be vigilant with our own research and care. The importance of keeping notes, not just for us but for the medical professionals trying to help us solve each of our puzzles.