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Abbygirl

What goes on during a seizure? Do you remember anything/does it hurt?

My six year old has generalized Tonic clonic, Drop attack, Myoclonic...Seizures. I just want to know what she is going through. I hurts terribly to see her have seizures but her neuro says they don't hurt and she doesn't remember anything. Is this true, because she appears to be in physical pain and most of the time she screams during them. Aferwards she cries and appears scared.

Comments

Re: What goes on during a seizure? Do you remember anything/does

Hey,
I'm sorry to hear all that. But answer this question....How would you feel if she was a small 19 month old baby turning bright blue and you had no clue what the heck was going on, how would you feel or respone to that? I hate my life now that I'm 18 yrs old and that is what I have dealt with all through my life. I actually have 2 types of seizures too. Mine are Grand-Mal(tonic clonic) and Complex-Partial. Does it hurt? No when you in one you don't know what is really happening everything kinda becomes a "blur". Memory? Well I can tell you what I was doing before I had the seizure and what I felt like but like I said I have had them for 17 yrs though too. When I have my Grand-mal seizure I drop to the floor and until I'm rolled to my side I flop around like a fish. Now the Complex-Partial I have my right side of my body goes completely numb. I have been through a dr that doesn't beleive I have seizures and that I faked the one when he was on call for ER. I advise you that you dont always use the ER for the seizures. 1 it is too much $ to put out, and 2 why stay in the hospital when you what is wrong with her? I found that out the hard way. I rarely visit the ER now because of that Dr but also because my parents, family and friends know how to treat me when I have a seizure. What goes/brings on a seizure? What goes on is that the neurons in your brain send msgs to your brain telling you to move your hand, head, and etc. Well a seizure happens when there is an overload on msgs floating around in that part that the seizure spot is in. Anything can bring on a seizure.....headaches(certain types or any headache), flashing lights, caffiene overload, chocolate overload, being sleep diprived, not taking meds, and much much more.
Where are you from? What is her name? I hope this kinda helped you out.
"Normal is just a setting on the washing machine, and those that have Epilepsy are far from normal!!!!!"
(; Autumn ;)

Re: Re: What goes on during a seizure? Do you remember anything/

My daughter has had epilesy from birth and I have watched her turn blue. She still will turn blue and can barely breathe during some of her seizures, she'll vomit and choke sometimes. This has been happening from her first day of life.

Re: What goes on during a seizure? Do you remember anything/

I really need help, I can't figure out what is wrong with me. I'm afraid to tell my mom about this cause I'm afraid she won't believe me. But anyway, this has been happening for a very long time, and my mom even recalls me have seizure when I was a baby (feveral seizures I think) anyway this happened just last night, I was up till about 12:00 tring to fall asleep, but can't because I constantly have been having racing heart beats and sudden jults through my body, and I remember all of it. But some how I manage to calm down and then wake up in the morning thinking... thank god! I made it through that horrible night, but I don't remember falling asleep, or I mean like even how... when ever I hear the word seizure I freek out! And my heart races, I don't know what it is but it is horrible! Or when ever I watch TV for along time or go to the movies, I feel the same, start getting shaky, fingernails are turning purple, scared.... I don't know what is wrong with me, for some reason this has been connected to me for as long as I can remember... :(

Or... this is the worst, at basketball games, I'll get so shaky near the end when I am running, and I'll start to get the goose bumps (even know a second ago I was hot and sweaty) and I'll almost start crying.... but when it is over with and I get a chance to calm down, all the symptoms go away and I am relieved!!! But even typing this is making me shaky so I'd better stop... but please... I NEED HELP! Give me some tips or something! please, or if anyof you have experienced this, REPLY AND TELL ME! PLEASE I NEED TO KNOW!

Re: What goes on during a seizure? Do you remember anything/does

when i have a seizure i honestly think im sleeping until i regain my consciousness. i don't feel anything until i wake up. once i fell out of a bar stool when i was having a seizure and did a head dive into the ground and broke my eye socket. i didn't feel a thing until i woke up and lets just say that my head hurt ALOT. also i never remember anything that goes on either. it is kinda frustrating because you dont know what happened to you while you were unconscience. i drive people crazy when i ask them what happened while i was out.

Re: What goes on during a seizure? Do you remember anything/does

Hello,

If you are awake like I was...believe me you feel the severe muscle jerking pain.  I had weakness in my legs which made me collapse where I was standing at the time.  Unable to do anything until I let the seizure run it's course.  Sometimes the weakness in my right leg lasts months.  My right shoulder really hurts for a while after so I go to physiotherapy. I had many other symptoms along with it and I remember almost everything and felt everything.  First the burning smell, metalic taste, followed by the muscle jerks, weakness, my vision went blurry, the room looked distorted, I felt buzzing and ringing in my ears, confussed, migraine after. 

I am sure there where other things I just don't remember right now.  I worry all the time about having another seizure because of these issues.  So of course I will make sure I take my prescribed med's to keep them under control.  I haven't had one since January 8/09.  Regarding feeling or remembering anything:  I did, and I remembered almost everything and felt that I knew what was going on around me, I just felt like my bedroom looked different because it would happen as soon as I woke up and got out of bed.  I tried to type on my computer my symptoms but my eyes where too blurry and my fingers where too weak. Thank God for spellcheck. I am 48 years old.

So I guess it depends on the type of seizures you have had.

Re: Re: What goes on during a seizure? Do you remember anything/

Hi Abbeygirl.

Nice to see you here, but less than nice the reason why. I'm really sorry your poor baby is going thru this.... Truly I am... I really appreciate the powerful effect seizures can have, and don't treat seizures lightly... Or 'triggers' either... The triggers are various too. I appreciate your baby might yet be to young to have experienced the delights of tea, coffee, and chocolate, sleep deprivation, etc. As I do your poor baby be less than aware when your baby does, those could act as 'seizure triggers'. As Autumn points out' normal' is a setting on a washing machine, and there is a heavy price to pay when seizures occur. There sure is nothing 'normal' about seizures, and effects of them when those triggers turn up. Mostly at times when least expected or wanted. Brushing your teeth, or eating comes to mind here as two powerful triggers....

This might sound dumb, but my experience has been with the seizures I have had that have progressed beyond the 'partial stage' is....Bruises, once a powerful feeling in my back? Kind of like I had been punched, stabbed, or kicked.... I have had a bad headache that my neuro put down to after-effects of my body going thru the seizure. As Jacky 99 points out it can be frustrating when seizures happen and you cannot remember a thing. As jacky also comments ... which is a good point....People can be driven crazy by the not knowing what happened while they were 'out' or even if they ever have been 'out.'... Some people during 'seizure episodes' really have difficulty in remembering who they are, and have met... True... I can't imagine having to have to use an alternative method to 'test' my recall of seizure events. So just imagine how your baby feels..... Your baby can't tell you how they feel because of seizure effects. Or place a coping mechanism in place...That has to be painful and impact. I wish you all the best. I hope you hang in there, and read the excellent links on this site that are far better than abstracts...

Also.... Talk to your baby- even if that might seem difficult at times.Try and bring your baby up not to hate having seizures, and to talk freely about the effects of them... That helps.....
Try and stay positive and upbeat that helps. Please keep us updated on your progress.

Cat.
"Many false prophets are gone out into the world." 1 John 4:1

Re: Re: Re: What goes on during a seizure? Do you remember anyth

Hey happycat2,
What a nice comment about me that you use to prove a point. I didn't grow up hating them I just recently started to hate them but also relized that not all teens are "protected" from the harms of the world like smoking, alchol, and addicting drugs because of my seizures and my life is not reuined like theirs. Even though I thought it was it really isn't. My life was reuined when I was an eighth grader with a dream of being on the basketball and volleyball teams all the way through HS. I found the alterative of CHEERLEADING where I got to go to all the games just like being a player. Which was quite fun and I enjoyed while it lasted.
"Normal is just a setting on the washing machine, and those that have Epilepsy are far from normal!!!!!"
(; Autumn ;)

What can I say autumn18?

What can I say autumn18?

Other than appreciated you appreciated what I had to say. Posted by you with such a generosity of spirit when you did too..... Sometimes its easy to read something and say 'well that was interesting, I have to go pay the bills or go get the kids ready to see the next match, film' ... Or whatever seems more important at the time... I appreciate too... Not all teens grow up protected from the dangers there are in the world... Some really go out of their way looking for it, you have to face up to that.... Then wonder when they do they feel like a complete klutz when tired from the effects of whatever it is that gives them that high.... Again, something to be faced up too ...

High levels of anxiety can have an effect upon the system that can really knock a person sideways. As can the impact of the seizure feeling less than themselves. More so when in the midst of wondering if their titration rate is at the right rate and needs to be slower.

Its nice to know things are changing out in the world and that in future people such as yourself won't have to go out into the world and hate seizure effects experienced as a teenager continuing thru life. Or even wonder about the impact of them... Its also nice to know that good research is being done that shows the true picture of living with epilepsy... One that will last....

One of the most difficult aspects of living with epilepsy is the uncertainty of when a seizure is going to occur. Surveys and studies report a high level of anxiety about seizures among people of all ages, even when it has been some time since any seizure activity has taken place

http://www.epilepsyfoundation.org/epilepsyusa/predict.cfm

Hang in there. Stay strong and upbeat. It helps...

Cat.

"Many false prophets are gone out into the world." 1 John 4:1