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My3Kids

Seizure Protocol at School

I am just curious about what some of you have in place for seizure protocol at school.

My son (freshman in HS) is in an 'active' seizure cycle and we've had to pick him up at school once a week for the last 3 weeks. These have been very small seizures, and he does get a little tired and 'out of it', so it can be pointless for him to even try at school on 'bad days'. It's just getting to a point where we are holding our breath waiting for The Call, and it's causing some 'stress' worrying about leaving work etc. (even though both employers are aware and understanding - it's still time off used)

Of course if my son has a significant seizure, there is no question about picking him up. But for these little absence events, or brief seizures where he almost seems to 'shake it off', I don't know if we should be running to pick him up.

The staff / aides know about seizure first aid, recognizing my son's particular seizures and they always call me if he has one and then we decide about picking him up. Usually if he has more than one, we go pick him up.

What do others have in place?

Comments

Re: Seizure Protocol at School

My son is only 6 and his seizures are almost always preceded with vomiting. Our procedure is if he vomits, he comes home. If he complains of a bad headache, he comes home. We have an emergency plan that consists of school staff or nurse giving diastat but, I hope it never comes to that.

I know exactly what you mean about "stress" and "getting the call". It has happened a few times this school year...as if kindergarten isn't hard enough!! :)

Good luck and take care, Jenna

Re: Seizure Protocol at School

Hi, I have an 11yo daughter in 5th grade. Where we live 5th grade is the start of middle school. My daughter has had four seizures this school year with the first one happening on the very first day of school. She is diagnosed with complex partial (since age 9), but is now evolving - I don't know if it from the medication or what. At last EEG there are signs of increased activity. I have not had a great experience with the school so far. But my number one demand from the school is that in no circumstances is another student be responsible of my daughter while in or after a seizure. I say that because I have found out, that while IN A SEIZURE, the teacher would have another student walk Molly to the office. Each seizure has been a little different, some with vomit, once she stopped breathing (like she just forgot), but in any case another child should never be in that situation. We are in the beginning stages of a 504 plan (see www.wrightslaw.org) as it seems she is now having absence seizures too, along with memory and concentration difficulties.

If your son can "shake it off", and is not tired and he wants to stay at school - then he should. Ask him what he wants. Is he embarrassed by what happens? If so then maybe pick him up. Teenagers have so much to deal with and I say give our sweeties every extra bit we can to help them through... Best wishes to you and your son.

Re: Re: Seizure Protocol at School

I agree with Mollysmama. It depends on how your son feels. I have an 11 year old son in fifth grade. Any seizures he has had at school have been partial and he remained conscious during them. Sometimes they can last 5 or 6 minutes and it takes him several minutes before he can speak clearly after the seizure it over. He usually has an aura so he knows it's coming. His teacher walks him down to the office. My husband or I usually go to the school to check on him and make sure he's okay. Most of the time, he just wants to get back to class. But if he doesn't feel right, I'll bring him home. Good luck and take care.

Re: Re: Seizure Protocol at School

I am struglling with this also. I have a 12 yr in 5th grade. Just this past week she had 2 on Tuesday in the late evening, 2 on Wednesday in the morning (she stayed home from school and her dad and I took off work), and 2 this morning. The 2 this morning happened at daycare as I was on my way to work. The 2 this morning wasn't strong, but strong enough to where she wet herself with the first one. The 2nd one was a mild absense seizure. But the past few days she has complained about being dizzy and very tired. I left work at noon to pick her up from the day care. We normally have a change of clothes at the school and daycare, but she did not have any today. She may have been able to go to school, but when she said she is dizzy, you really can't make her go. I am getting tired of taking off work for this. We have talked about home schooling her, but I am not so sure. She states to me that no one at school likes her. She eats alone at lunch. She does have an aid that takes her to the library daily. I just feel so sorry for her. I don't know what to do to help her. I know my comment doesn't help, but I feel a little better talking about my problem.

Take care.

Mindy

Re: Seizure Protocol at School

I have a 15 yo son that was just recently diagnosed with epilepsy. Having worked for our school department and knowing they way things are run in our area I immediately called a PET for him and had them draw up a 504 plan for him with the steps and precautions of what to do if he was to seize or show any signs of seizures. We have it set up so that if he feels one coming on that he can get up and go to the nurses office without any flak from the teacher or without having to give the teacher any reason for leaving. In addition if any of the teachers find him in the hallways wandering and not responding they are to lead him directly to the nurses office. Fortunately our nurses office is a medical center so we have a RN on hand at all times and we have a doctor on in the afternoons. So they know what he takes for meds and have my number if anything more serious then a simple partial is to happen then they are to call me and send him to the ER via ambulance because I am unable to drive. But in addition to setting up these precautions I also had to make sure that all of his teachers were aware of what to watch for in case he didn't pick up on an aura. None of the school faculty or staff had any idea of what epilepsy was or what to look for. So they had to set up a workshop day and educated everyone. I hope this helps you some with your questions.